being hereditary??

[Guest guest]

I have read some material about Samters being hereditary. I would like to know

what the groups take is on it..not so much the medical findings, as that seems

to be split, Just some personal experiences and feelings...thanks

[Guest guest]

i think it may .. just last month my 23 yr old daughter had an allergic reaction to aspirin at work .. she took a pain reliever from the first aid box at work and got severely sick .. she never took aspirin before (reyes syndrome connection to aspirin )so she never knew. she has an appt tomorrow with my samters doctor so i'll let you know the outcome .. it all makes sense though .. she has had the same sinus infection for about 8 mos and many foods she likes have high salicylates in them .. i think she may need to be desensed to live a normal life .. i hate to see her suffer as long as i have .. wish us luck tomorrow.. kim b

samters being hereditary??

I have read some material about Samters being hereditary. I would like to know what the groups take is on it..not so much the medical findings, as that seems to be split, Just some personal experiences and feelings...thanks

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[Guest guest]

My father and I are both diagnosed with Samters. I think there is probably a

genetic factor, like a predisposition, but that there may be participatory

events that allow samters to evolve from just having one or two of the corners

of the triad to all three. My father is one of three siblings, and while others

have allergies and/or asthma, only he has samters. My father has 4 children, I

am the only one currently diagnosed with Samters. My sister has aspirin

allergy, but not asthma and only occasional rhino sinusitis, though she does

have other immune illnesses; one brother is prone to respiratory

infection/bronchitis; my other brother is prone to sinus infection and recently

had to have sinus surgery but has no polyps and has not exhibited asthma or

aspirin allergy. Of course this could change for them - I was in my 30's before

I exhibited all 3 corners and my brothers are quite a bit younger.

Hope that helps. I'm watching my 2 children carefully. I may have their

sinuses scoped when they are a bit older to make sure there are no functional

issues which will make them more susceptible to infection. Both my brother and

I had functional issues that if corrected earlier would have made life much

nicer.

>

> I have read some material about Samters being hereditary. I would like to know

what the groups take is on it..not so much the medical findings, as that seems

to be split, Just some personal experiences and feelings...thanks

>

[Guest guest]

My grandfather had samters. One of my cousins had a funny reactionto aspirin once, but didn't develop Samters....yet.

I am the only one of 12 grandkids to have Samters, so far, but i really do believe it's genetic. I sincerely hope my kids don't get this.

Becky

From: "gypsymouse@..." <jratico@...>samters Sent: Tue, 27 April, 2010 20:35:30Subject: Re: samters being hereditary??

My father and I are both diagnosed with Samters. I think there is probably a genetic factor, like a predisposition, but that there may be participatory events that allow samters to evolve from just having one or two of the corners of the triad to all three. My father is one of three siblings, and while others have allergies and/or asthma, only he has samters. My father has 4 children, I am the only one currently diagnosed with Samters. My sister has aspirin allergy, but not asthma and only occasional rhino sinusitis, though she does have other immune illnesses; one brother is prone to respiratory infection/bronchiti s; my other brother is prone to sinus infection and recently had to have sinus surgery but has no polyps and has not exhibited asthma or aspirin allergy. Of course this could change for them - I was in my 30's before I exhibited all 3 corners and my brothers are quite a bit younger. Hope that helps. I'm watching my 2 children

carefully. I may have their sinuses scoped when they are a bit older to make sure there are no functional issues which will make them more susceptible to infection. Both my brother and I had functional issues that if corrected earlier would have made life much nicer.>> I have read some material about Samters being hereditary. I would like to know what the groups take is on it..not so much the medical findings, as that seems to be split, Just some personal experiences and feelings...thanks>

[Guest guest]

No one else in my family has anything like it. I just hope my son who is 13 never has to deal with this. On Apr 27, 2010, at 1:46 PM, Bannister wrote:

My grandfather had samters. One of my cousins had a funny reactionto aspirin once, but didn't develop Samters....yet.

I am the only one of 12 grandkids to have Samters, so far, but i really do believe it's genetic. I sincerely hope my kids don't get this.

Becky

From: "gypsymouserocketmail" <jratico@...>samters Sent: Tue, 27 April, 2010 20:35:30Subject: Re: samters being hereditary?? My father and I are both diagnosed with Samters. I think there is probably a genetic factor, like a predisposition, but that there may be participatory events that allow samters to evolve from just having one or two of the corners of the triad to all three. My father is one of three siblings, and while others have allergies and/or asthma, only he has samters. My father has 4 children, I am the only one currently diagnosed with Samters. My sister has aspirin allergy, but not asthma and only occasional rhino sinusitis, though she does have other immune illnesses; one brother is prone to respiratory infection/bronchiti s; my other brother is prone to sinus infection and recently had to have sinus surgery but has no polyps and has not exhibited asthma or aspirin allergy. Of course this could change for them - I was in my 30's before I exhibited all 3 corners and my brothers are quite a bit younger. Hope that helps. I'm watching my 2 children

carefully. I may have their sinuses scoped when they are a bit older to make sure there are no functional issues which will make them more susceptible to infection. Both my brother and I had functional issues that if corrected earlier would have made life much nicer.>> I have read some material about Samters being hereditary. I would like to know what the groups take is on it..not so much the medical findings, as that seems to be split, Just some personal experiences and feelings...thanks>

[Guest guest]

After my last surgery, my ENT said it’s very possibly handed on

to a family member and I should keep a look out for symptons in my daughter

who’s now 24 and starting to show them.

From: joan harvey

[mailto:thomyris7@...]

Sent: Wednesday, 28 April 2010 6:05 AM

samters

Subject: Re: Re: samters being hereditary??

No one else in my family has anything like it. I just hope my son who

is 13 never has to deal with this.

On Apr 27, 2010, at 1:46 PM, Bannister wrote:

My grandfather had samters. One of

my cousins had a funny reactionto aspirin once, but didn't develop

Samters....yet.

I am the only one of 12 grandkids

to have Samters, so far, but i really do believe it's genetic. I sincerely hope

my kids don't get this.

Becky

From: " gypsymouse@... " <jratico@...>

samters

Sent: Tue, 27 April, 2010 20:35:30

Subject: Re: samters being hereditary??

My father and I are both

diagnosed with Samters. I think there is probably a genetic factor, like a

predisposition, but that there may be participatory events that allow samters

to evolve from just having one or two of the corners of the triad to all three.

My father is one of three siblings, and while others have allergies and/or

asthma, only he has samters. My father has 4 children, I am the only one

currently diagnosed with Samters. My sister has aspirin allergy, but not asthma

and only occasional rhino sinusitis, though she does have other immune

illnesses; one brother is prone to respiratory infection/bronchiti s; my other

brother is prone to sinus infection and recently had to have sinus surgery but

has no polyps and has not exhibited asthma or aspirin allergy. Of course this

could change for them - I was in my 30's before I exhibited all 3 corners and

my brothers are quite a bit younger.

Hope that helps. I'm watching my 2 children carefully. I may have their sinuses

scoped when they are a bit older to make sure there are no functional issues

which will make them more susceptible to infection. Both my brother and I had

functional issues that if corrected earlier would have made life much nicer.

>

> I have read some material about Samters being hereditary. I would like to

know what the groups take is on it..not so much the medical findings, as that

seems to be split, Just some personal experiences and feelings...thanks

>

[Guest guest]

Hi there, I am 34, have had Samter's triad since the age of approximately,

18-22. I just was recently aspririn desensitized a few days ago by Dr. Bosso in

Nyack NY. First off, I am amazed on how in only a few days, I feel like a new

person...I feel like I am living in a new world.. and its not like being on

prednisone, its a sense of clearness I cannot explain, your eyes, nose, ears and

focus is magnifed times 100! anyway, my Mother who is 62, also has the triad

and has had it since she was in her 20's, If Dr. Bosso confirms she does in fact

have it too, then we will be the second Mother/daughter in the US to have this

condition. There is only 1 other reported case confirmed, mother/daughter who

share this condition.

My mom and I both have had 3 - 4 nasal polys removed surgically at different

times, we both have severe asthma through the years, and we both were not able

to take an aspirin. (although both my mom and I were able to at pne point as

children) I clearly remember her taking an anti inflammatory when I was just a

kid, and she looked like she was going to die and was rushed to the hospital..

as I got older and developed the triad in my 20's which I never thought would

have happened, I took an aspirin for cramps one day and my throat closed, eyes

swelled and had an asthma attack. I am sure that this condition is genetic but I

guess there is not enough research out there yet... I know our blood will be

going to Scripps clinic in California for research, I would do anything to help

someone who just went through the hell I have been going through for over 10

years with this condition. If anyone truly wants to feel better, that aspirin

desensitization program is a miracle. (so far at least!)

> >

> > I have read some material about Samters being hereditary. I would like to

> know what the groups take is on it..not so much the medical findings, as

> that seems to be split, Just some personal experiences and feelings...thanks

> >

>

[Guest guest]

Do you have a contact at Scripps who is conducting the study on the blood?

Since my father and I are both diagnosed, we could contact them if they want to

study family groups diagnosed with samters.

Jennie

> > >

> > > I have read some material about Samters being hereditary. I would like to

> > know what the groups take is on it..not so much the medical findings, as

> > that seems to be split, Just some personal experiences and feelings...thanks

> > >

> >

>

[Guest guest]

I am the only one in a huge family who has this issue. My mom is one of 7, my

dad is one of 8, and my grandpa was one of 12!!! I know every one of my 37 first

cousins. Not one of them has any Samters symptoms. My dad does extensive

geneology and has not found anyone with Samters. My uncle did have one sinus

surgery, but it was not due to polyps. I've read about a genetic link, but I

just don't see it.

I guess I am the lucky one!

Christy

>

> I have read some material about Samters being hereditary. I would like to know

what the groups take is on it..not so much the medical findings, as that seems

to be split, Just some personal experiences and feelings...thanks

>

[Guest guest]

I do not sorry. My Dr. said he will be sending the blood samples there in the future.

hope that helps.

From: gypsymouse@... <jratico@...>Subject: Re: samters being hereditary??samters Date: Wednesday, April 28, 2010, 9:56 AM

Do you have a contact at Scripps who is conducting the study on the blood? Since my father and I are both diagnosed, we could contact them if they want to study family groups diagnosed with samters.Jennie> > >> > > I have read some material about Samters being hereditary. I would like to> > know what the groups take is on it..not so much the medical findings, as> > that seems to be split, Just some personal experiences and feelings...thanks> > >> >>

[Guest guest]

I think that as matter of precaution we should all have our children stay away

from the usual triggers : NSAIDS, aspirin, airborne irritants, allergens, fungi,

etc.

> >

> > I have read some material about Samters being hereditary. I would like to

know what the groups take is on it..not so much the medical findings, as that

seems to be split, Just some personal experiences and feelings...thanks

> >

>