ASA-ASO DIGEST: January 19, 2009

[Guest guest]

Dear Friend of ASA-ASO:

Visit ASA-ASO's website www.autismohio.org for an "easy to read" version if this does not come through clean on your listserv. Or sign up to receive your own copy by "registering" on the "login" section of ASA-ASO's homepage.

News From ASA-ASO:

- Comment on Proposed Ohio IEP Forms

- ASA-ASO forming Ohio Autism Advocacy Network - Join Now!

- Ohio BMV changes policy on Autism Awareness License Plate

- Federal Update/Alerts

111th Congress convened on January 6

Upcoming Events, Resources, etc:

- Save the Date - 4th Annual ASA-Greater Cleveland Chili Cookoff, Latest Newsletter

- News from the ASA-Greater Cincinnati

- Upcoming Workshops and other information from the ASA-Autism Society of NW Ohio

- Upcoming events from ASA-TriCounty (Youngstown)

- ASA-Dayton Tax Workshop rescheduled

- News from the ASA

Special Issue of "Autism Advocate" Available For Free Download on ASA Web Site Sensory Friendly Films Expand to New Markets UC M.I.N.D. Institute Study Shows California's Autism Increase not Due to Better Counting,

Diagnosis National Disability Rights Network Releases Report on Seclusion and Restraint in U.S. Schools 2009 ASA National Conference in St. , Ill., July 22-25 ABAI Hosts 3rd Annual Autism Conference Free Training for Parents and Professionals - Pittsburgh, PA Parenting an Adult with Disabilities or Special Needs Scholarships for Children of Parents with Disabilities SENSE Theater Program New Book Serves as a Guide for Teens Roundtable on Advancing Employment - ODMRDD Family Advisory Council Meeting, Columbus

- Defeat Autism Now! Spring Conference

- Sign up for free newsletter from OCECD

- Boy with autism writes film screenplay based on favorite books

- ARTICLE: THEY KNOW: Classmates and Asperger Syndrome

- Milestones Autism Organization: Adolescent to Adult Workshop Series, NE Ohio

- Book: Empowering Parents to Take On the Special Education System

- The GAPS Diet

- 2nd Annual West Central Ohio Autism Conference, Wapakoneta

- Article: Dr. Offit, Stomping Through A Medical Minefield

- BUILDING ON STRENGTHS: AUTISM CONFERENCE, Huron

- Upcoming Events from KidsLink, Akron

- Article: Course improves conversation skills of children with autism

- Article: Cartoons help children with autism learn nonverbal cues

- NATIONAL TRAINING INSTITUTE ON EFFECTIVE PRACTICE--ADDRESSING CHALLENGING BEHAVIOR CONFERENCE, Florida

- OAPSA OCASE WINTER WORKSHOP--FEB. 5-6, 2009, Columbus

- Webinar: Reducing Disproportionality in Special Education—Together We Can!!

- Autism & Alternative Treatments Conference, South Bend, IN

ASA-ASO is now posting all research opportunities on our website. For information on available opportunities, visit our webpage www.autismohio.org, click on "Information" along the left side of the home page and then click on "Studies/Surveys".

Have you purchased your Ohio Autism Awareness License Plate yet? To purchase yours, visit www.oplates.com and click on "Specialty Plates" or visit our website at www.autismohio.org for more information.

Sincerely,The Autism Society of America - Autism Society of Ohio Chapter701 S. Main St.Akron, OH 44311( 330) 376-0211fax: (330) 376-1226email: askASO@...web: www.autismohio.org Please note: This is provided for information purposes only. The ASA-ASO does not endorse or recommend any providers, methodologies or services. Providing this information should not be construed as an endorsement by the ASA-ASO, either explicit or implied.

News From ASA-ASO:

COMMENT ON THE DRAFT IEP AND ETR FORMS AND GUIDANCE DOCUMENT

We received hundreds of comments on the Guidance Document and the Draft IEP and ETR Forms. Thank you so much for taking the time to weigh in as your feedback is very important to the process. We will carefully review the comments and are targeting for February for the release of the new forms and Guidance Document. Those will be found at www.edresourcesohio.org.

State Legislative Update

Information provided to ASA-ASO by Dunn and Associates, a lobbying firm working with ASA-ASO pro bono:

The Senate opened its first session of the 128th General Assembly on Monday, with Sen. Bill (R-Ashland) beginning his third and final term as president with a call for civility and cooperation. House Democrats took control of the chamber Monday for the first time in 14 years, with former House Speaker Jon Husted (R-Kettering) passing the gavel to new Speaker Armond Budish (D-Beachwood), who gave a light-hearted acceptance speech with undertones of difficult issues ahead. Budish called a potential $7 billion hole in the state budget almost beyond belief. He also pledged to work in a bipartisan manner with House Republican Leader Batchelder (R-Medina), who seconded Budish's nomination. Senate President Bill (R-Ashland) continued his push for the governor to use the $200 million appropriated in the stimulus package from the Rainy Day Fund for road, bridge and sewer projects in the state. He said it does not make sense to hang on to the money when the jobs are needed now.

Both majority caucuses have said their priorities will be clear following retreats the week of Jan. 12. Also, following those retreats, committee structure and assignments will be released in both houses.

ASA-ASO forming Ohio Autism Advocacy Network - Join Now!

As you are aware, Autism Insurance Parity, HB170 is currently under consideration by the Ohio House Insurance Committee. The fall elections are coming and immediately following the elections it will be time to address next biennial budget for Ohio. Additionally, issues regularly come before the state legislature that impact individuals with autism, their families and those who work them throughout Ohio. And because of this, the Autism Society of Ohio needs your help.

We are in the process of putting together an autism advocacy network that has constituents in each of the districts of the members of the Ohio General Assembly, both the House and Senate. We are looking for advocates all around the state to help us with this effort.

You can volunteer to participate in two ways:

· Team Leader: Each Ohio district will have an assigned team leader who is responsible for carrying the key ASA-ASO/autism messages when meeting with the legislator (Representatives and Senators), coordinating testimony or letter writing for hearings, and for organizing the team members of their district, etc.

· Team Member: Each Ohio district will have several team members that are available to share their own personal ASA-ASO/autism story, to write letters when needed, and to ask from help from their neighbors/families/friends. Team members may choose specialize on certain topics – ie. autism insurance parity topic, special education funding, etc.

ASA-ASO is also developing a Legislative Advocacy Manual and will provide local training to constituent volunteer advocates.

If you are interested in participating in this effort, please send your Name, address, city,zip+4, phone, email address, House District Number and Senate District number and whether you are interested in being a “Team Leader†or a “Team Member†to askASO@.... Please put AUTISM ADVOCACY NETWORK in the subject line. To find your district numbers, visit www.legislature.state.oh.us and follow the directions under "Locating Legislators".

For more information, visit our website at www.autismohio.org

Ohio BMV changes policy on Autism Awareness License Plate

Because of privacy concerns, the Ohio BMV will no longer be releasing the names and addresses of those who purchase the Ohio Autism Awareness License Plate to the ASA-Autism Society of Ohio. $25 from the purchase of each plate benefits the ASA-ASO and we have been sending thank you notes to all those who have purchased a plate. However, we will no longer be able to do so. The BMV is currently looking into options to add customer consent to the special license plate process so hopefully we will be able to go back to thanking folks formally in the future. But whether we are able to send a formal "thank you" or not, please know that the purchase of an autism awareness license plate makes a big difference and helps us help individuals with autism, their families and those who work with them throughout Ohio.

Federal Update

The 111th Congress convened on January 6 and immediately began working on establishing the rules under which the House and Senate will operate, holding hearings on Obama Administration nominees that require Senate approval and appointing new members to committees. The House voted 242-181 to adopt its new rules. The Republican minority was upset with new rules that restrict the minority party's ability to try to send bills back to committee for further review. The Democratic majority considers many motions to recommit as obstructionist tactics to prevent or delay votes on bills. The "Pay as you go' (PAYGO) requirement for additional entitlement spending is maintained but with emergency triggers that allow some entitlement modifications to be made without "pay fors" in certain emergency situations (e.g. natural disasters, act of terrorism). The House Democratic majority also abolished the 3 term limit for committee and subcommittee chairmen.

ASA Meets with Presidential Transition TeamOn January 2, 2009, Lee Grossman, ASA President and CEO, and Barbara Newhouse, ASA Chief Operating Officer, were invited to participate along with representatives from Easter Seals, TASH, Autistic Self Advocacy Network, Autism Speaks and the Dan Marino Foundation, in a meeting with members of President-Elect Obama's transition team to share policy issues and concerns that are important to the autism community. Read more: http://www.autism-society.org/site/R?i=koUeGyv0EbxwwrBgEyJIKQ..

Upcoming Events, Resources, etc.:

Save the Date - 4th Annual ASA-Greater Cleveland Chili Cookoff

"4th Annual Chili Cook-off"! The date is set for April 2, 2009 at 6:00 PM. The event will be held at The Terrace Club of Progressive Field. More to follow. For additional information, visit www.asgc.org.

Please click here http://www.admail.net/file/5763/9f09/ to view our February, 2009, newsletter. We look forward to seeing everyone at our regular monthly meeting on MONDAY, FEBRUARY 2, 2009, at 6:30 PM at THE CITY OF INDEPENDENCE CIVIC CENTER, 6363 Selig Drive, Independence, OH 44131. We will hold our monthly meetings the first Monday of every month at our new location.(Please note day & location change). Free childcare is available. Please RSVP at least 7 days prior to our meeting to take advantage of the childcare.

Please plan on joining us at our "Sensory Friendly Movie" "Hotel For Dogs" on Saturday, January 31, 2009, at 10:00 AM at AMC's Ridge Park Square,4788 Ridge Road, Brooklyn OH 44144. Admission is reduced to $4.25.

Finally, please save the date for our "4th Annual" Greater Cleveland Chili Cook-off for Autism on Thursday, April 2, 2009, at The Terrace Club in Progressive Field. Tickets are only $20.00. Donations and Corporate and Personal Sponsorships are gladly accepted. For more information, tickets or to make a donation, please contact us at (216) 556-4937 or support@.... Thank you.

News from the ASA-Greater Cincinnati

For a copy of their latest newsletter, visit: http://www.autismcincy.org/pdf/current_newsletter.pdf

Classes presented by The O’Leary Center for Autism Spectrum DisordersThe O’Leary Center for Autism Spectrum Disorders (TKOC) in the Division of Developmental and Behavioral Pediatrics at Cincinnati Children’s Hospital Medical Center, with support from Hamilton County Board of MRDD and The Autism Society of Greater Cincinnati, presents a number of classes on Autism Spectrum Disorders (ASD). For information or to register for a class contact Brown at jennifer.brown@... or call (513) 636-8684.Introduction to The O’Leary CenterThis class is provided for families and professionals who would like more information on services provided by The O’Leary Center and how those services can be accessed. Sessions are on the first Thursday of the month.New to the Diagnosis ClassesClasses are conducted by staff members from TKOC and by other outstanding autism professionals from our community.-Sensory Issues and ASD – February 2nd-Enhancing Communication in the Young Child with ASD (focus is on children with limited verbal communication) – March 2ndClasses are at Drake Center, 151 W. Galbraith Rd, from 7 to 9 PM. There is no charge to attendNext StepsThis five-week series is for families who want strategies for working with their child with ASD, including a focus on positive strategies for dealing with behaviors. Participants are expected to attend all five classes as each class builds on the next. Classes are on five consecutive Tuesday evenings – February 24, March 3, 10, 17, & 24. Classes will be held at Cincinnati Children’s Mason Location. Class size is limited. There is a small fee to cover the cost of materials.Asperger Syndrome WorkshopThis workshop is for families and professionals and will include information on diagnosis and characteristics of Asperger Syndrome with a focus on intervention strategies. The workshop will be February 27th from 9:30 to 3:30 at Cincinnati Children’s Hospital, Burnet Avenue location. Cost is $25.00.

Upcoming Workshops from the ASA-Autism Society of NW Ohio

Workshop Title: Handling Difficult Moments: Tantrums, Rages, and MeltdownsPresenter: Myles, Ph. D.Location on 2/11/09: Toledo Hospital Education Center AuditoriumLocation on 2/12/09: Toledo Hospital Croxton Memorial AuditoriumPresentation: Myles has been acknowledged as the second most productive applied researcher in ASD in the world from 1997 to 2004. In this presentation she will provide practical solutions for handling the explosive behavior that is sometimes seen in individuals with ASD including: characteristics of ASD and their impact on behavior; stages of the rage cycle; strategies that promote social skills development, including self-awareness, self-calming, and self-management; and solutions for parents, including organization and support, daily routines, etc.

Workshop Title: Introduction to Sensory IntegrationPresenter: McBrideLocation on 2/25/09: Toledo Hospital Croxton Memorial AuditoriumLocation on 2/26/09: Toledo Hospital Education Center - Room KPresentation: This presentation will provide an opportunity to learn what sensory integration is, how it can benefit an individual with autism therapeutically, and how parents and family members can use it at home. This is an introductory level workshop.

Workshop Title: Understanding Your Rights: Whose IDEA is This?Presenter: Lynn Mielnik, M.S., CCC-SLPLocation: Toledo Hospital Education Center AuditoriumPresentation: You get one at every special education meeting. But have you ever read Whose IDEA is This?: A Parent’s Guide to the Individuals with Disabilities Education Improvement Act of 2004 (IDEA)? Lynn will cover parent’s rights under special education law including changes that were made to Ohio’s Operating Standards for Ohio Educational Agencies serving Children with Disabilities in July 2008.

Workshop Title: 7 Evidence Based Strategies for an Effective Early Intervention ProgramPresenter: Dr. BallLocation for 3/25/09: Toledo Hospital Croxton Memorial AuditoriumLocation for 3/26/09: Lucas County Board of MR/DD Family First ZonePresentation: This presentation will discuss 7 systematic techniques for working with children with an autismspectrum disorder. It will focus on teaching specific skills, enhancing motivation, and generalization training. A step by step demonstration will be presented using real life examples. Modifications will be explored that allow this particular program to be effective with students significantly challenged with autism, as well as those students with Asperger Syndrome. Myths and facts about Applied Behavior Analysis will also be covered. A question and answer period will be provided.

Workshop Title: A Land We Can Shareâ€: Access to the Literate Community for ALLPresenter: a Kluth Ph. D.Location: Education Center AuditoriumPresentation: Come and learn about how we can give all students-including those with significant disabilities-access to the literate community. Dr. Kluth will explore how many learners have been excluded from literacy experiences that are inclusive, rich, and challenging. Participants will also learn some strategies for including and supporting students with disabilities in reading, writing, speaking, and listening activities. Ideas for enhancing skills in comprehension, fluency, and vocabulary will be highlighted.

Presentations on the first day are from 6:30-9:00pm and the second day from 9:30-noon.

For more information or to register visit www.asno.org or contact the ASA-Autism Society of NW Ohio at 419-578-2766 or asno.org@....

Support Group reminder

This is a reminder that our Parents of Adults Support Group will meet at our office, 4848 Dorr Street, next Tuesday, January 20, 2009 from 11:30 am to 1 pm. We are in the house with the red door.

Website down

Much to our chagrin, our website is down. We are trying to address the problem, so please bear with us until we can get the web host to fix the problem.

Ability Center organizing meeting to address Toledo Public’s lack of speech therapists

Many parents have expressed concerns regarding the lack of provision of speech therapy in certain schools in the Toledo Public School District. The Ability Center is interested in pursuing this as a systemic issue. They are asking for your input. They will be hosting a meeting at 7:00 pm on January 22nd at The Ability Center and are asking that you plan to attend, and that you let families who are facing this issue know about the meeting. If you wish to attend, please RSVP to Watts at the Ability Center by calling her at 419-885-5733 ext 264. You can also email her at nwatts@.... Questions? Contact Kirby Educational Advocacy Manager 419-885-5733.

5. Events in Seneca County

Grandparent Cheryl Filipkowski who lives in Seneca County is working on some events out that way. Here is what she has planned. You can contact Cheryl Filipkowski 419-638-1051 for more information or to make reservations.

January 9, 2009 Kick Off of GREAT SCOT SHOPPING SPREE RAFFLE tickets are 10.00 each

February 14, 2009 Special Needs Discount Day at KALAHARI indoor waterpark

( water park pass only 10 am -close)

Tickets are 24.00 ea. or 29.00 ea which includes pizza pkg. must be paid by January 30, 2009

March 2009 Guest Speaker Sondra Presentation "BAIT THE HOOK"

Date and Location to be announced

April 22, 2009 P.L.A.Y. project 1day workshop featuring Adam Brode

Tickets are $50.00 each (breakfast and lunch provided)

8am till 4 pm at Journeys Family Amusement Center in

Fremont, Ohio (directly behind Kmart)

June 6,2009 Autism Resource Expo Fundraiser - Booths available

10 am till 6pm @ Sandusky County Fairgrounds in Fremont, Ohio

Special Issue of "Autism Advocate" Available For Free Download on ASA Web Site

In order to reach as many professionals as possible in the behavioral field, ASA has just made the December 2008 issue of its quarterly magazine, the Autism Advocate, entitled “Applied Behavior Analysis: A Powerful Tool for Improving the Lives of People with ASD,†available for free download on our Web site. This seminal issue on ABA describes the many exciting developments in the field that are improving the lives of individuals on the spectrum and their families. To obtain your free copy, visit, www.autism-society.org/autismadvocate_aba. For those without computer access, call 1-800-3AUTISM, x120, or e-mail editor@... for your free printed copy (while supplies last.)

Director will be the keynote speaker at the Lucas County Board of MR/DD’s Annual Meeting

, the Director of the Ohio Department of MR/DD, will be the keynote speaker at the Lucas County Board of MR/DD Annual Meeting, January 20. The meeting will be held at Larc Lane Center, 1155 Larc Lane, and begin with a social time at 6:00. The meeting will start promptly at 6:30.

Cordially,

Linell

Linell Weinberg, MSWExecutive DirectorAutism Society of Northwest Ohio4848 Dorr Street Suite 1Toledo, OH 43615phone: 419-578-2766 (419-578-ASNO)fax: 419-536-5038e-mail: asno.org@...website: www.asno.org

Upcoming events from ASA-TriCounty (Youngstown)

Special EventJanuary 21st, 2009 @ 7:00 pmHampton Inn,6690 Ironwood BoulevardCanfield, Ohio 44406 Guest SpeakersBarb YavorcikExecutive Director ASA-ASO & HenryExecutive DirectorOhio Center for Autism and Low Incidence (OCALI JANUARY 21 2009Regular Meeting @ Hampton InnTime: 5:30 p.m. Officer ElectionsCurrent Nominations President – T. Chapin and C. Vice President– J. and F. Aiello Treasurer – Bo Cencia and L. McLellanSecretary – D. Houghton and S. Aldridge Additional nominations can be made at the meetingMust be an active member to be able to vote 12th Annual GOLF OutingYankee Run Golf CourseBrookfield, OHJune 22, 20089:00 AM Contact Chuck or Sue Aldridge for additional information at 330- 856-7338

www.triautism.com

ASA-Dayton Tax Workshop rescheduled

The Special Needs Tax Workshop planned for this evening has been rescheduledfor 2/19/09 at 6:30 PM at the Miami Valley Regional Center, 4801 SpringfieldStreet, Riverside, OH 45431. Our speaker has laryngitis. If you havealready RSVP'd, you do not need to do so again unless you are unable to makethe 2/19/09 workshop.Thanks! Bernotaitis bernofam@... Autism Society of America-Dayton Chapter

News from the ASA

Special Issue of "Autism Advocate" Available For Free Download on ASA Web SiteIn order to reach as many professionals as possible in the behavioralfield, ASA has just made the December 2008 issue of its quarterlymagazine, the "Autism Advocate," entitled "Applied BehaviorAnalysis: A Powerful Tool for Improving the Lives of People withASD," available for free download on our Web site. Read more:http://www.autism-society.org/site/R?i=gLsrrjFnVg8KpXgcIOb6RQ.. Sensory Friendly Films Expand to New MarketsThe next ASA-AMC Sensory Friendly Film will be "Hotel for Dogs" onJanuary 31, at 10 a.m. local time. Visitwww.autism-society.org/sensoryfilms to find a theatre near you, and besure to look for our new locations in Boston; Charlotte, N.C.;Chicago; Cincinnati; Columbus, Ohio; Dallas; Denver; Detroit; Ft.Lauderdale, Fla.; New York, N.Y.; Orlando, Fla.; Philadelphia;Seattle; and St. Louis.UC M.I.N.D. Institute Study Shows California's Autism Increase not Due to Better Counting, DiagnosisA study by researchers at the UC M.I.N.D. Institute has foundthat the seven- to eight-fold increase in the number of children bornin California with autism since 1990 cannot be explained by changes inhow the condition is diagnosed or counted--and the trend shows nosign of abating. Read more:http://www.autism-society.org/site/R?i=AIK6dKdnhQFYgmB5GIgsjA..National Disability Rights Network Releases Report on Seclusion andRestraint in U.S. SchoolsThe National Disability Rights Network (NDRN) has unveiled a nationalreport that shows an unsettling use of seclusion and restrainttactics, which resulted in physical and emotional injuries as well asdeaths, in schools affecting students in grades K-12. Read more:http://www.autism-society.org/site/R?i=i3i3d5jJ1QJAZtYw1MmhCg.. 2009 ASA National Conference in St. , Ill., July 22-25The 2009 ASA National Conference will be held in St. , Ill., atthe Pheasant Run Resort July 22-25. We will be opening registration inthe next week or so. Please visit the Frequently Asked Questions onthe conference Web site: www.autism-society.org/conference.We anticipate 2,000 attendees this year and more than 150 exhibitors,plus speakers from around the globe. We are planning for expandedprogram offerings, including more Continuing Education opportunitiessuch as a Continuing Medical Education track and a science track.Almost 70 exhibit booths have already sold for this year'sevent. To participate as an exhibitor, program guide advertiser orsponsor, please contact Meg Ellacott at Ellacott@...or (302) 260-9487. The Exhibitor Prospectus will be available online byJanuary 16. Visit www.autism-society.org/conference and click onexhibit information to learn more.If you have any questions, please don't hesitate to contact us atconference@....ABAI Hosts 3rd Annual Autism ConferenceThe Association for Behavior Analysis International (ABAI), along withits Autism and Parent Professional Partnership Special InterestGroups, will be hosting its Third Annual Autism Conference Friday,Feb. 6, to Sunday, Feb. 8, in ville, Florida. Read more:http://www.autism-society.org/site/R?i=_6a-ShzDjvlDOCEZaEyndQ.. Free Training for Parents and Professionals - Pittsburgh, PAThe Autism Society of America--Pittsburgh will present a freetraining workshop for parents and professionals, "Structuring'Crush' Behaviors in Adolescents and Teens withAsperger's or High Functioning Autism," on Tuesday,February 10, at 9 a.m.-12 p.m. at the Monroeville Public LibraryCommunity Room. Read more:http://www.autism-society.org/site/R?i=gXrWVoZWccEblQhHhWiMAg.. Parenting an Adult with Disabilities or Special NeedsOver three decades of working with individuals with disabilities,author Peggy Lou has become an expert on policies, programs,services, funding, and setting and achieving realistic goals. In"Parenting an Adult with Disabilities or Special Needs: Everything YouNeed to Know to Plan for and Protect Your Child's Future," sheshares a wealth of information, advice and strategies to help parentsprovide their son or daughter with a solid foundation for a fulfillinglife--even after they can no longer be there for them. Read more:http://www.autism-society.org/site/R?i=Br4OSAuY-w_fN_L0DqM6eA.. Scholarships for Children of Parents with DisabilitiesThrough the Looking Glass and its National Center for Parents withDisabilities and their Families recently announced new scholarshipsspecifically for high school seniors and college students who haveparents with disabilities. Read more:http://www.autism-society.org/site/R?i=JvyBeCQKVrcvHPS0CXpThw.. SENSE Theater ProgramFor children with autism, simple communication with others can beextremely challenging. Now, a program called SENSE Theater is helpingthose with the neurodevelopmental disorder that affects approximatelyone in 150 American children. Read more:http://www.autism-society.org/site/R?i=8CXfushRZq5B7AjDs27Hvg.. New Book Serves as a Guide for TeensIn "Growing Up on the Spectrum: A Guide to Life, Love, and Learning forTeens and Young Adults with Autism and Asperger's," Dr. Lynn KernKoegel, of the renowned Koegel Autism Research Center, and LaZebnik, whose son has autism, tackle the issues that families withteenagers on the spectrum face. Read more:http://www.autism-society.org/site/R?i=JXZRie1CBq-g_e8BWNSogw.. Roundtable on Advancing Employment The Office of Disability Employment Policy convened a Roundtable on Advancing Employment and Economic Self-Sufficiency for People with Intellectual and other Developmental Disabilities on October 30-31, 2008. Read more: http://www.autism-society.org/site/R?i=a0Iwu-5UFHtA7kt1-8edQw..

ODMRDD Family Advisory Council Meeting

AgendaJanuary 21, 2009CDC Training Room10:00 a.m. – 3:00 p.m. 10:00 -12:00 The Advocates Video Diary Story of three families Produced and Developed by Wynema Mebane/parent Stories by: April Plummer and son J.C. Plummer iel and Holly Dull Arthur, Sherry and son Stauber 12:00-12:30 Lunch/Donated by County Board Association 12:30-1:30 Review from Budget Discussion Forum’s Director 1:30-2:30 Impact of Budget to Agencies/Services Plouck, Deputy Director Ohio office of Budget and Management 2:30-3:00 Wrap Up Please be prompt as we need to start on time!!! Thank you and drive safely. RSVP to Michele Kanode at Michele.kanode@... or (614) 644-0265.

Defeat Autism Now! Spring Conference Atlanta, GeorgiaApril 16-19 SAVE THE DATE!!The Defeat Autism Now! Approach Defeat Autism Now! is a bold project title, and the doctors and researchers involved have an equally bold goal: to find, test, and promote safe and effective treatments for a disorder that many medical professionals still consider untreatable. This transformative concept-that autism is treatable-is altering the field of autism research. It's not surprising that this project was the brainchild of a researcher who had already revolutionized the field of autism research not once, but twice. In 1964, Dr. Bernard Rimland-a clinical psychologist and the father of a child with autism-shocked the medical field by publishing Infantile Autism: The Syndrome and its Implications for a Neural Theory of Behavior. The book created a firestorm of controversy at a time when doctors blamed autism on bad parenting. In his book, Dr. Rimland single-handedly changed the focus of the field, from “What is emotionally wrong with the mother?†to “What is biologically wrong with the child?†His findings were exciting, but Dr. Rimland chafed at the slow progress made while so many children were suffering. In 1995, determined to jump-start research into the causes and treatment of autism, he and two associates, Drs. Sidney Baker and Jon Pangborn, convened the first international think tank on autism. Thirty clinicians and researchers from around the world met for a day and a half to share ideas on what might be the most promising areas of autism research. Dr. Rimland and his colleagues formalized their efforts in the form of the “Defeat Autism Now!â€project, the exclamation point stressing the urgency of finding effective treatments for this devastating disorder. The Defeat Autism Now! project has grown exponentially, and now involves hundreds of researchers and practitioners worldwide. Practitioners using the Defeat Autism Now! approach largely focus on normalizing the functions of the GI system, immune system, and brain.Special diets, treatment of dysbiosis, and interventions to enhance normal methylation and reduce oxidative stress and inflammation are proving to be remarkably effective. For more information, visit ARI's website: www.Autism.com

Sign up for free newsletter from OCECD

Sign up for our free newsletter. We'll keep you updated on trainings in your area, what's going on in special education, and we'll also send you tips on IEP meetings and how to work with the school. Don't miss out on a great newsletter! NEWSLETTER SIGN UP Sincerely,Ohio Coalition for the Education of Children with Disabilities

Boy with autism writes film screenplay based on favorite booksKeaton Bicknell, 11, who has autism, is determined to become a screenwriter. So he received permission from the author of his favorite children's books to turn her work into a script, and with the help of his father, who is in the film business, and his 13-year-old sister, Keaton hoped to shoot the 15- to 20-minute film this past weekend. For complete story, visit: http://r.smartbrief.com/resp/ojtEmrbGsZysmoCicecWXnoC

ARTICLE: THEY KNOW: Classmates and Asperger Syndrome

By Dan Coulter

I’ve heard it too often. The teasing and rejection that many children with Asperger Syndrome face in school from classmates who don’t understand why they act different. The frustration and impatience from teachers who assume that these students are simply being disrespectful, stubborn, or lazy.

I’ve also often heard about how much things have improved for children with Asperger Syndrome when teachers and classmates learn about AS.

Parents who were concerned that they’d make things worse for their children if they disclosed the facts, have told me how those disclosures made things better.

If you’re the parent of a child with AS worried about what will happen if other students find out, here’s a thought: they already know.

They know they have a classmate who has different and difficult behaviors. But they don’t realize the reasons. And the reasons they imagine are much worse than the facts.

So children who have AS are routinely misunderstood by unprepared teachers and classmates. Their school lives can be torture. They’re friendless and under constant stress. No matter how hard they try, they can’t make things better. Often, they don’t tell parents the worst of it. From shame, or because they stop believing anything can be done for them.

Disclosure may not be the best approach in every situation, but I’d urge parents to consider it carefully before ruling it out. Again, I’ve heard stories of dramatic improvement from parents who’ve chosen to share information about their children’s condition with school staff and classmates. Children making real progress with help from patient teachers. Children making friends for the first time and being invited to parties. Children being protected from bullying by other students. Children leading class sessions on topics of special interest or tutoring other students. Children feeling like they belong.

I recently heard from a father who said, in addition to the many other benefits of disclosure, that the parents at his son’s new school don’t treat him and his wife like they’re the worst parents in the world.

I’d love to have us all make 2009 the year of Asperger Syndrome awareness.

You can get help making decisions about disclosing AS from support groups, school counselors, or psychologists who specialize in AS. The magic is not simply in telling others your child has Asperger Syndrome. The magic is in sharing appropriate information in a way that allows them to understand your child’s thought processes and shows how they can make allowances and help him interact and progress. It’s also important to talk about your child’s strengths and what he has to offer, and not focus only on his challenges.

A mother just wrote me to ask how old classmates need to be to understand about Asperger Syndrome. Great question. In the youngest grades, you may determine that you don’t need to discuss the diagnosis. Maybe you just address behaviors. Everybody’s brain works differently. is very enthusiastic. He has trouble remembering to take his turn and raise his hand so we need to be patient with him. is smart, but she has trouble remembering to be polite. She doesn’t mean to hurt your feelings when she says things about how you look. We need to tell her when she says something that hurts our feelings so she can learn how friends talk to each other.

You need to make determinations about what to say based on your child and his or her classmates, but I think the earlier children hear the words Asperger Syndrome and what AS does and doesn’t mean, the more accepting they’re likely to be from that point forward. And children are never too young to learn that we’re all different and that we need to treat each other with patience, kindness and understanding.

If you’re the parent of a child who has Asperger Syndrome and you’re conflicted about disclosing his or her condition to teachers and classmates, consider how great it would be to feel relieved and glad that…they know.

ABOUT THE AUTHOR -- Dan Coulter is the producer of the Intricate Minds series of DVDs, which help students understand classmates who have Asperger Syndrome and similar conditions. You can find more articles on his website: www.coultervideo.com.

Copyright 2009 Dan Coulter . Used by Permission.

Milestones Autism Organization: Adolescent to Adult Workshop Series

Autism Workshops for Families:

Adult Workshop Series I: Supporting Adolescents and Adults: Using Schedules for Leisure Skills and Self Help Skills

Presented by Autism Services for Kids

Date: January 18, 2009

Location: Old Town Hall

18825 Royalton Road Strongsville, OH

Time: 1:30 – 4:30 pmCost: $30.00/person or $45.00 for two family members/caregivers

Topics: Learn how to create and implement pre-adolescent to adult schedules to promote leisure and self help skills for independence

Please Note: Onsite respite care included in registration cost for the first 15 registrants (sponsored by Autism Services for Kids)

Adult Workshop Series II: Transition Planning or After High School: Part I

Presented by OCALI

Date: February 8, 2009

Location: Solon Community Center

35000 Portz Parkway Solon, OH 44139

Time: 1:30 – 4:30 pmCost: $30.00/person or $45.00 for two family members/caregivers

Topics: Requirements of the federal law (IDEIA) related to transition planning and services for students with disabilities leading to successful outcomes following high school

Adult Workshop Series III: Transition Planning for Adulthood: Part II

Presented By OCALI

Date: March 8, 2009

Location: Solon Community Center

35000 Portz Parkway Solon, OH 44139

Time: 1:30 – 4:30 pmCost: $30.00/person or $45.00 for two family members/caregivers

Topics: Eligibility requirements for MRDD, BVR, SSI and Medicaid; How to access adult services and supports for employment and housing

For more information about locations, dates and topics to be covered, please visit www.milestones.org or call 216-371-4765. Professional development credit and scholarships are available for all Milestones programs. Online Registration Available

Book: Empowering Parents to Take On the Special Education SystemNew Book Helps Parents of Kids with Special Needs Build Positive Relationships with SchoolsA Guide to Special Education Advocacy [February 2009, Kingsley Publishers, 304 pages, hardback, 978-1-84310-893-1, $28.95] gives strategies for advocating for better provision of special education in schools. Despite the many services and accommodations that have been made for students with disabilities, such as the use of Braille or providing specialized education in a regular or special classroom, many children with disabilities do not get the services they need and are not placed in appropriate programs or settings. Because of this, the perception of disability often remains unchanged. For more information, or to purchase this book, please visit: http://www.jkp.com/catalogue/book.php/isbn/9781843108931

Conference: ADHD: Comprehensive Psychosocial, Pharmacological, and Combined Treatments, Bowling Green

Thursday, March 12, 2009 9:00 am – 4:30 pm

Sponsored by Bowling Green State University at

Stone Ridge Golf Club1553 Muirfield DriveBowling Green, OH, 43402

For complete details and to register, visit: http://pace.bgsu.edu/container.php?x=ullman

The GAPS Diet

The Gut and Psychology Syndrome Diet has its foundation on the Specific Carbohydrate Diet (SCD) created by Dr. Sidney Valentine Haas to heal digestive disorders. SCD gained great popularity after a mother, Elaine Gottschall, healed her own child and became an advocate for SCD. Elaine Gottschall is also the author of the popular book Breaking the Vicious Cycle. Intestinal Health Through Diet.

For more information, visit: http://www.gapsdiet.com/

2nd Annual West Central Ohio Autism Conference, Wapakoneta Saturday, March 7, 2008 Wapakoneta High SchoolWapakoneta, OH 9:00 a.m.- 3:00 p.m. Our Keynote speaker will be Dr. Pratt Dr. Pratt is the Director of the Indiana Resource Center for Autism at the Indiana Institute on Disability and Community located at Indiana University. Dr. Pratt is on faculty at Indiana University, and presents internationally. Dr. Pratt serves on numerous Advisory Boards, including the Advisory Boards of Maap Services, Inc., the College Internship Program, and the Autism Society of Indiana. She currently serves as Chair of the Board for the National Autism Society of America. Dr. Pratt also serves on the Panel of Professional Advisors for the Autism Society of America and is co-director of NATTAP (Network of Autism Training and Technical Assistance Programs). Currently, Dr. Pratt serves on the advisory board for the National Professional Development Center on Autism Spectrum Disorders grant funded through the US Department of Education. She has been involved with the Institute on Rehabilitation Issues focused on Autism; the Interagency Autism Coordinating Committee as a member of the Expert Working Group on Services; and served on the Scientific Advisory Board for IMFAR (International Meeting for Autism Research). She also served as a member of the public review committee for the Research Roadmap of the Interagency Autism Coordinating Committee. Dr. Pratt has been honored by the Autism Society of America with the Individual Achievement Award, with the 2005 Princeton Fellowship Award, and with various awards through NYFAC (New York Families for Autistic Children, Inc.), including recognition from the New York State Senate, New York City Council, and the United States House of Representatives. She has written numerous articles and presents on the following topics: autism spectrum disorders, functional behavior assessment/positive behavior supports, instructional approaches, systems change, and policy. Prior to pursuing her doctorate at Indiana University, Dr. Pratt worked as a classroom teacher for students across the autism spectrum and with other disabilities. Registration Materials to follow. This conference is a collaborative effort between West Central Ohio Autism Community and Auglaize County ESC. For more information, contact:

Carlson Schattschneider M. Ed. Autism Coordinator Auglaize County ESC 1045 Dearbaugh, Suite #2 Wapakoneta, OH 45895 (419)738-3422 X.46 kschattschneider@...

Article: Dr. Offit, Stomping Through A Medical MinefieldThe author of a new book about autism says exactly what he thinks about vaccines and other hot topics.

http://www.newsweek.com/id/165644

BUILDING ON STRENGTHS: AUTISM CONFERENCE FEBRUARY 19 + 20, 2009 Sawmill Creek Resort400 Sawmill CreekHuron, Ohio 44839Map & Directions online at: http://www.sawmillcreek.com/map.html400 Sawmill CreekSpeakers and topics such as: Just Give Him the Whale - Dr. a Kluth Visual Strategies for Improving Communication: Helping Students Participate Successfully - Hodgdon M. Ed., CCC-SLP Time Travel and Transitions Using Visual Strategies for Student Success - Hodgdon M. Ed., CCC-SLP The Hidden Curriculum - Dr. Myles The Incredible 5 Point Scale - Kari Dunn Buron Other sessions include: Implementing the Ziggurat Model in Your School - Joan Lunsford, Kathy Beatty, Lenora Oeftering, Joan Social Skills and Autism: Learning the Pieces & Parts - Lynn Dudek M.A., CCC-SLP The Great 8 for SLPs and ASD - Lynn Dudek M.A., CCC-SLP Finding the Right Fit in Blending Methodologies: Put the Child First by Creating Research-basedAll-Day Preschool Programs for Children with ASD - Deborah Dennis, Arnold, DiRando, e Meade, Kristal Austin, Beth Koss OCALI AIM Modules/Comprehensive Program Planning - Ohio Center for Autism & Low Incidence Staff Positive Behavioral Interventions & Supports for Students with ASD: ACommunity of Practice ForumFacilitated by: Dr. Murdock How Do I Know? Helping Parents and Practitioners to Navigate the Array of Treatments, and Practices for Individuals with Autism.Facilitated by: Dr. Palumbo For more info, contact:Moira ErwineRegion 2 State Support Team440-324-5777 ext 1156erwine@...

Upcoming Events from KidsLink, Akron

*TEEN GROUP (ages 14-18); Wednesday evenings 6:00-7:00 P.M.* * for TEENs diagnosed with Asperger’s Disorder or High Functioning Autism * for TEENS in middle and high school * designed to improve friendship behaviors and social skills * designed to provide support for teens who may be isolated from peers * designed to promote self-esteem through success experiences * designed to help improve the teen’s ability to act positively and effectively with others * designed to have a maximum of 8 teens per group * developed and directed by DePolo, Psy.D., Child/Pediatric Psychologist; co-facilitated by Rob Dempster, M.A., (Ph.D. Candidate in Clinical Psychology) * *Center-Based*-(8 groups) provides direct and indirect instruction about targeted social behaviors, coping, problem solving and emotions through formal and informal group discussions and activities * *Community-Based*-(4 groups) provides opportunities (“incidental teaching momentsâ€) for teens to practice their skills in community settings such as bowling, lasertag, snow tubing, rockwall climbing, going out to dinner, etc.*YOUNG ADULT GROUP (ages 18-25); Wednesday evenings 7:15 P.M.-8:30 P.M.* * for young adults diagnosed with Asperger’s Disorder or High Functioning Autism * for young adults who have graduated from high school * designed to improve social, friendship and relational skills * designed to provide support to young adults who may be isolated from peers or have few opportunities for social interaction * designed to discuss young adult issues such as independent living, interviewing for jobs, dating/relationships, relationships with co-workers, coping with job stress, managing finances * designed to promote self-esteem through successful social interactions * designed to help improve the young adult’s ability to act positively and effectively with others * designed to have 7-8 individuals per group * developed and directed by DePolo, Psy.D., Child/Pediatric Psychologist; co-facilitated by Rob Dempster, M.A., (Ph.D. Candidate in Clinical Psychology) * *Center-Based*-(8 groups) provides direct and indirect instruction about targeted social behaviors, coping, problem solving and emotions through formal and informal group discussions and activities * *Community-Based*-(4 groups) provides opportunities (“incidental teaching momentsâ€) for young adults to have fun with others and practice skills in the community setting through group outings such as bowling, restaurants, snow tubing, rock-wall climbing, etc.

*C.A.L.M. KIDS** and C.A.L.M. Teens ** (Calming your Anxiety and Lifting your Mood) *Middle Childhood (ages 8-11/12); Tuesdays -4:30-5:30 p.m.

Early Adolescent (ages 12/13-15); Tuesdays -5:45-6:45 p.m. * for children and teens diagnosed with Asperger’s Disorder or High Functioning Autism** * designed to build resilience from and lessen feelings of anxiety and depression** * designed to help children have fun and experience pleasant events** * designed to promote self-esteem through success experiences**

* developed and directed by DePolo, Psy.D., pediatric psychologist; co-facilitated by Elissa Lampe, M.A. (Ph.D. Candidate in Clinical Psychology)** * designed to have a maximum of 4-5 children per group * The program targets symptoms of anxiety and depression: * through empirically supported cognitive-behavioral interventions ** * through empirically supported strategies to calm physiological responses of anxiety/depression** * through group activities, discussions, and role-plays** * based on the “Therapeutic Exercises for Children†program (Friedberg & Friedberg) with adaptations specifically for children with Asperger’s Disorder and High Functioning Autism * Children are diagnosed with Asperger’s Disorder or High Functioning Autism

*SUCCESS! CLUB-FALL 2009 *(Social Skills, Understanding, Caring, Coping, Emotions, Self-Esteem & Success)

Age 7-9 Saturdays 9:00-10:30;

Age 10-11 Saturdays 10:45-12:15 p.m. * for children diagnosed with Asperger’s Disorder or High Functioning Autism ** * designed to improve friendship behaviors and social skills ** * designed to build resilience from anxiety and depression and improve overall coping** * designed to promote self-esteem through success experiences** * developed and directed by DePolo, Psy.D., pediatric psychologist; co-facilitate by Liz Goncy, M.A., (Ph.D. Candidate in Clinical Psychology)** * designed to have a maximum of 6-7 children per group * The program promotes social development, friendship skills, and self-esteem in two formats: * *TEACHING* (first 45 minutes) provides direct instruction about targeted social behaviors, coping, problem solving and emotions through group discussions, activities, video examples, and role-plays. * PRACTICING (second 45 minutes) provides unstructured opportunities (“incidental teaching momentsâ€) to practice their skills in a safe, low risk, atmosphere while receiving immediate coaching and feedback. **

For More Information about any of these programs and learn about other programs offered at KidsLink Neurobehavioral Center, please visit our website at http://www.kidslinkohio.com

Article: Course improves conversation skills of children with autismA course developed by researchers at Baltimore's Kennedy Krieger Institute is helping children with mild autism learn to avoid conversational detours, make eye contact and improve their listening skills. "One of the problems that kids with autism can run into is that when they're taught very rigid rules, they only stick to those rules," said psychologist Freedman. "So we try to help them understand some nuances within interaction." National Public Radio (text and audio) (1/15) http://www.npr.org/templates/story/story.php?storyId=98959992 & ft=1 & f=1013

Article: Cartoons help children with autism learn nonverbal cuesA video featuring cartoons of a trolley, a train and a ferry with faces is helping some children with autism better recognize smiles and other human emotions. The DVD http://www.thetransporters.com/, which was developed by a British autism researcher, is being sold for $57.50 in the U.S. beginning this week. It includes quizzes and instructions for teachers and parents. Education Week (premium article access compliments of Edweek.org)/The Associated Press (1/15) http://www.edweek.org/ew/articles/2009/01/15/224341eumedutismvideo_ap.html?tmp=1949186641

NATIONAL TRAINING INSTITUTE ON EFFECTIVE PRACTICE--ADDRESSING CHALLENGING BEHAVIOR CONFERENCE

The focus is on behavior challenges in early childhood settings. ADDRESSING CHALLENGING BEHAVIORNational Training Institute on Effective PracticeSupporting Young Children’s Social Emotional DevelopmentSheraton Sand Key Resort - Clearwater Beach, FloridaMarch 22-25, 2009 Additional information on the conference can be found here: www.addressingchallengingbehavior.org

OAPSA OCASE WINTER WORKSHOP--FEB. 5-6, 2009Ohio Association of Pupil Services Administrators and the Ohio Council of Administrators of Special Education Winter Workshop. To view information on the February 5th & 6th Winter Workshop at the Embassy Suites in Columbus use the following link: http://www.highlandschools.org/OAPSA/Calendar.html.

Reducing Disproportionality in Special Education—Together We Can!!RRC Program Disproportionality Webinar Series 2009: The RRC Program’s Disproportionality Priority Team is planning a series of Webinars on the topic of Disproportionality: Reducing Disproportionality in Special Education—Together We Can!!The first session is February 12, 2009, 1:00-2:30 PM Eastern time.Pre-registration for the Webinars is required. The announcement gives a link to the online registration. Once participants have registered, they will receive an email confirmation and the instructions for connecting to each of the calls. All calls are from 1:00-2:30 Eastern Time.Please join us in renewing our discussion and sharing of information and effective strategies about this important issue.Participation is Limited. Pre-registration Required. Registrants will receive connectioninformation and instructions prior to each Webinar.Registration Information - Click on the link below to register for any/all of theWebinar sessions:http://www.rrfcnetwork.org/component/option,com_symfony_conf_reg/symfony_conf_reg/conf_reg.php/registration/create/conference_id,169/Content Questions: Contact y at kreedy@....Questions about registration? Contract Norma Sheehan at nsheeha@....

Autism & Alternative Treatments ConferenceSouthbend, IndianaJanuary 30th & 31st 2/1 Parent RegistrationsCollege Student/Graduate Discounted Rates with ID cardFinancial Assistance Available – do not let the cost of the registration prevent you from attending.For more information, please contact at 517-420-3313 or by email assistance (at) disabilitygoto (dot) com <mailto:assistance@...> ASI members can attend for FREE but they must contact Angie at 695-0252 or at @... in order to get the Free registration.

Inauguration '09: Get complete coverage from the nation's capital.