Guest guest Posted October 1, 2005 Report Share Posted October 1, 2005 In a message dated 10/1/2005 8:30:18 A.M. Eastern Standard Time, karriemom@... writes: You all are one of my most cherished blessings as you are to us Sue. Your insight and humor are so precious. Each one of us brings something different and unique to the table, that is what is so great about this group. We are all blessed! Loree Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2005 Report Share Posted October 1, 2005 Sue I am so happy Karrie is doing well, and that you are too. I agree, the support we get from this list is immeasureable. Sharon H. Mom to , (14, DS) and , (10) South Carolina this morning Karrie came in to talk with me while I was getting my makeup on this morning As we were talking, it hit me just how far she has come. Two years ago (heck two months ago), Karrie was a very, very unhappy little girl. Her mood disorder wasn't responding to medications, she had gained a horrible amount of weight because of the meds, she was miserable at school and had no friends. Her speech was very difficulty for me to decipher. She didn't sleep much and cried a lot. She is now on a new med, with adjustments made to two other ones. She is talking much clearer (she has 2 hours of extra speech since June). She giggles appropriately. The striking out has all but stopped (thank God and Dr. Capone!). She is in Girl Scouts, has friends at lunch and recess. She had all 24 kids in the reg ed 3rd grade class volunteer to be in her circle of friends. She is a hoot again! The personality of my little girl was being gobbled up by bipolar disorder and medication. She is back now and life is getting pretty darned wonderful. Thank you all for all the support, encouragement and friendship you have all offered over the past several years. My life was rugged, with the bad marriage, the divorce, struggling to finish college, then all the medical problems that hit Karrie seemingly at once. Through all of this, you all have been my lifeline. If I don't seem to answer emails quickly, please know that it is due to the 60+ hours a week I work to support my kids that is the issue. You all are one of my most cherished blessings. Thanks! Sue mom to Kate 15 (16 on Monday) and Karrie 9 w/ds and other controllable issues Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2005 Report Share Posted October 1, 2005 I know this situation has nothing at all to do with bi-polar and other behaviors that needs meds, but we have discovered that has Natasha's allergy/sensitivity to the preservative 282 that we have in bread here in OZ. When Natasha was about 18 months old her tantrums started to get really bad. My mother lin law suggested changing our bread. Eventually we did and within 2 days the tanrums had stopped completly. Well we have found the behaviours of the 2 lil ones increasing over past few motnhs. I assumed it was because of all the change in our lives over past 3 months. Then it hit Trent. The chicken he gives the kids a few nights a week has the preservative 282 in the breadcrumbs. So we will stop giving themthe chicken and see howe that goes. Chat soon guys- Im off to turn off more lights...... Sue Brown wrote: >, Karrie was a very, very unhappy little >girl. Her mood disorder wasn't responding to medications, she had gained a >horrible amount of weight because of the meds, she was miserable at school >and had no friends. Her speech was very difficulty for me to decipher. She >didn't sleep much and cried a lot. > > -- Aussie Leis- mum to BJ - Nearly 8yrs - Oh my Gosh!!, Natasha 3.5 - my precious lil princess who can speak the legs off a chair and a table and 23 months - lil hellion on 2 legs- but with gorgeous smile A positive attitude may not solve all your problems, but it will annoy enough people to make it worth the effort. Herm Albright (1876 - 1944) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2005 Report Share Posted October 2, 2005 In a message dated 10/2/2005 8:44:20 A.M. Eastern Standard Time, aedevaux@... writes: I have several friends who's kids are sensitive food dyes, in particular red dye #40. One child has aspergers and when all dye was removed from her diet a lot of the behaviours (hand flapping..) went away. She's so sensitive she can't even use the hand washing soap in public restrooms that are pink. What we found with Caleb at a very early age was anything with salicilaytes in it would set off his hyperactivity to the nth degree. Salycilates are what is used in aspirin. it is found in fruits and vegetables naturally but to a greater and lesser degree. We went through a trial and error period of removing everything and adding it back one at a time for a one week period. Grapes and grape juice was rocket fuel for Caleb. We also figured out that eggs made him aggressive. Every single time he had eggs he would go off and lash out. Remove the eggs, he was fine (and he looooves eggs) we have found that we can now give them to him once in a while with no ill effects but not more than once in a while. It is amazing what foods do the body, even healthy ones if you are allergic. Loree Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2005 Report Share Posted October 2, 2005 > I know this situation has nothing at all to do with bi-polar and other > behaviors that needs meds, but we have discovered that has > Natasha's allergy/sensitivity to the preservative 282 that we have in > bread here in OZ. When Natasha was about 18 months old her tantrums > started to get really bad. My mother lin law suggested changing our > bread. Eventually we did and within 2 days the tanrums had stopped > completly. Intresting, I have several friends who's kids are sensitive food dyes, in particular red dye #40. One child has aspergers and when all dye was removed from her diet a lot of the behaviours (hand flapping..) went away. She's so sensitive she can't even use the hand washing soap in public restrooms that are pink. Anne in GA with Nicky just turned 3! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2005 Report Share Posted October 2, 2005 Myah has thrown up from red dye from 6 weeks (which was the first time we had to give her Tylenol after a surgery). The hardest part is medication. Most have red dye-even most purple colored meds and some orange. BUT-she's still a pain in the butt (lol). I never thought of going farther than her food and drinks. Interesting. , mom to Myah 4 DS and Shianne 1 Re: this morning > I know this situation has nothing at all to do with bi-polar and other > behaviors that needs meds, but we have discovered that has > Natasha's allergy/sensitivity to the preservative 282 that we have in > bread here in OZ. When Natasha was about 18 months old her tantrums > started to get really bad. My mother lin law suggested changing our > bread. Eventually we did and within 2 days the tanrums had stopped > completly. Intresting, I have several friends who's kids are sensitive food dyes, in particular red dye #40. One child has aspergers and when all dye was removed from her diet a lot of the behaviours (hand flapping..) went away. She's so sensitive she can't even use the hand washing soap in public restrooms that are pink. Anne in GA with Nicky just turned 3! Click reply to all for messages to go to the list. Just hit reply for messages to go to the sender of the message. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2005 Report Share Posted October 2, 2005 We found out years ago that could not drink coke regularly. Never have known what is in there, NOT the caffeine as everyone says. It is also in Dr. Pepper but I don't know of anything else. It would make him sick to his stomach. I used to have terrible headaches, not migraines, but so bad sometimes I couldn't get out of bed. I decided to see if it was a food allergy so I tried dairy products first. Did not eat anything like that for 4 days and it was wonderfu. I didn't even go back to it to see. Now I know I can drink some skim milk if I stay away from butter , and I can eat some cheese, and a little ice cream but not all on the same day. Ice cream is the hardest, but it's worth it to not have those headaches. I never thought of it being a food allergy till I read a book about it. I was lucky it was the first food I tried. I am also violently allergic to walnuts of all things. No problems with peanuts as so many do but the same kind of thing with walnuts. Isn't life crazy? Jessie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2010 Report Share Posted April 6, 2010 I expect you know but thought I'd just mention http://www.itv.com/lifestyle/thismorning/reallife/mythyroidhell/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2010 Report Share Posted April 6, 2010 Yes, she is one and the same, and NO, she didn't mention T3. Seems she is a good converter and is doing fine on T4 only. She mentioned the number of emails she received after the article in the Daily Mail - I remember writing to her at that time. Luv - Sheila Ali Jagger. It's the same person who did an interview for the daily mail TPA Message #57312. Be interesting if she mentions taking T3. recording it to watch later. > > I expect you know but thought I'd just mention http://www.itv.com/lifestyle/thismorning/reallife/mythyroidhell/ > No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.5.437 / Virus Database: 271.1.1/2791 - Release Date: 04/05/10 18:32:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2010 Report Share Posted April 6, 2010 HI al How do I get to see the clip I cant seem to get it via the link it doesnt open up the programme clip Thanks regards Mandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2010 Report Share Posted April 6, 2010 http://www.itv.com/lifestyle/thismorning/reallife/mythyroidhell/ Here is the link to the interview. I watched it just now, but didn't see it on TV. It was a start that the doctor mentioned about ME/CFS/Fibromyalgia/coeliacs because there are so many of us who have suffered, and have been more ill than necessary. I do believe patients assume that if their bloods are fine, then their thyroid is fine, so at least it's a push in the right direction. At least it's a positive that he mentioned that if you have the thyroid symptoms, doctors should listen to the patient and that there are other tests you can have to clinch your diagnosis. However in practice such tests seem to be outside of the NHS and then the NHS doesn't want to believe you have a thyroid problem. Well done for spotting it was the same lady who had the article in the Daily Mail, I didn't link the two. Of course no mention of T3, or Armour Thyroid etc and no mention of the name of tablets that she takes for life, so I assume it's Levothyroxine and she's fully recovered on that, despite the hellish wait for treatment. I wasn't aware that she added in T3 to her treatment! Interesting but a shame that there was no mention of this today! Annoying in fact that if this is the case there was no mention!!! It's a step in the right direction and better than expected, but still a crucial omission! Fiona. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2010 Report Share Posted April 6, 2010 I'm not surprised they didn't mention T3, as the difference between T4 and T3 would be too much info for most viewers. I'm impressed with what Dr said though - it's a shame more GPs aren't as clued up as he is. in Kent Quote Link to comment Share on other sites More sharing options...
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