IMPORTANT: TPA Mini-Newsletter. PLEASE READ

[Guest guest]

NEW QUESTIONNAIRE FOR WORLD WIDE REGISTER OF COUNTEREXAMPLES TO T4 ONLY THERAPY

I apologise for the great confusion many of you experienced in trying to answer three short questions in the survey we set up online, in order to help us create the FIRST world-wide Register of Counterexamples to Levothyroxine Sodium-only Therapy. We had 108 responses to date, and about as many other members telling me they could not complete it because they didn't know how to answer. Many thanks to all who did write to me pointing out the confusing issues, because this saved me sending it out world-wide, which would have proved a waste of our time and effort and the project would have got nowhere. Embarrassment all round.

You will be pleased to hear that the original questionnaire has been changed and the 'old' version has been removed from the web site, so apologies to those of you who had already completed it, but will you now go to our new link and complete this one. Please clear out any cached versions you may have, otherwise, this will cause confusion for you again. You will find the revised questions are easily understood so you should have no problem in giving a simple YES or NO response this time.

PLEASE NOTE that this questionnaire is ONLY for those people who were prescribed a T4-only containing thyroid hormone replacement and who fared badly because they continued with symptoms of hypothyroidism - but who then tried a T3 containing hormone replacement (Liothyronine/Cytomel/Natural thyroid extract), either officially prescribed, or purchased from Internet Pharmacies or elsewhere, and your symptoms got better. http://www.tpa-uk.org.uk/register_of_counterexamples.php

IT IS VERY IMPORTANT THAT ALL WHO HAVE TAKEN T4 AND T3 SHOULD COMPLETE THIS IF WE ARE TO CONVINCE THE MEDICAL BOARDS THROUGHOUT THE WORLD THAT LEVOTHYROXINE ALONE DOES NOT WORK FOR EVERYBODY AS THEY WOULD HAVE US BELIEVE. There has never been such a world-wide register before, this is a FIRST and this is the one thing that might finally convince the BTA and RCP et al in the UK that they are wrong, and, at last, have been proved to be wrong....but only you can help us!

If you have not already done so, please sign the Hypothyroid Patient's Petition for a better diagnosis and treatment protocol (with a choice of treatment) Petition on the above World Wide Register Form.

******************************************************************

"THE GOVERNMENT SPENDING CHALLENGE - HELP US GET MORE FOR LESS"

You are no doubt all aware of what has happened over the past few days to our previous idea(s) and comments that were submitted via the Government web site asking for our ideas on how we see they could save money and our ideas on how they could do this. On no less than three occasions, we have had all our original message 'HYPOTHYROIDISM - URGENT PUBLIC ENQUIRY CALLED FOR', plus all the many comments with the 5 star high ratings removed. Nobody from the government, the administrators or the moderators have yet responded to our requests when asking them for an explanation. For all those who wrote the original idea and those who wrote comments, we found our password, username and now, it appears, our IP No. blocked, so none of us could gain access to the Spending Challenge web site anymore.

We are still investigating what happened and hope to get an answer soon, but meanwhile, because of the problems, we are all being given another chance (I think!!!!) as they are now asking us to complete an online form, and will take the most suitable ideas into consideration. Be sure that you read their information before writing and write it in the way they have requested http://spendingchallenge.hm-treasury.gov.uk/?PRO=sc & CRE=rhm . You can all go to this link and give your idea - but these will NOT be followed with further comments or star ratings, but if they get enough comments about how badly those suffering with the symptoms of hypothyroidism are treated by the NHS and how many millions of pounds could be saved if patients were diagnosed and treated correctly, the more chance our 'ideas' will attract the attention of the Chancellor.

PLEASE NOTE: THIS IS VERY IMPORTANT - WE HAVE NEVER BEFORE HAD SUCH AN OPPORTUNITY TO APPROACH THE GOVERNMENT DIRECT WITH OUR PROBLEMS - WE MUST MAKE THEM LISTEN AND REALISE HOW MANY MILLIONS OF POUNDS (AND MILLIONS OF LIVES THEY COULD SAVE) IF THEY STARTED LISTENING TO THOSE SUFFERING, AS WELL AS THE ROYAL COLLEGE OF PHYSICIANS AND THE BRITISH THYROID ASSOCIATION ET AL.

If any of you would like some ideas, take another look at my original message to the Chancellor as this may help you. You may wish to expand on some of them with your own ideas. You can find my original message in the FILES SECTION of the forum web site or go direct here http://f1.grp.fs.com/v1/8FRBTGFceHOv7dnuq8hYN9OHRqnRGVvs7ZWtgkAh5TD66T08R7DY_oRAzgC8JhfoBzqDWrlfkkKOJp7m2ClapQ/IDEA%20FOR%20GOVT.%20TO%20SAVE%20MONEY.doc Please pass this new link onto everybody you know, including Twitter, Face book other thyroid groups etc.

***********************************************************

DR GORDON SKINNER'S WORLD-WIDE THYROID REGISTER

As you are aware from our Spring/Summer TPA Newsletter, Dr Gordon Skinner is in the process of creating a the worlds first THYROID REGISTER, which needs the support of each and every one of us. It can be accessed via the following link http://www.worldthyroidregister.com/ and the covering letter says it all. Please think about signing it and passing this e-mail onto all your family, friends and contacts so that they each have the opportunity to sign it too. Again, I cannot emphasise the importance of signing this.

**********************************************************

PLEASE DO NOT DELETE THIS MINI-NEWSLETTER UNTIL YOU HAVE DONE WHATEVER YOU CAN TO HELP YOURSELF AND YOUR FELLOW SUFFERERS. It is only by each one of us doing our little bit (which will take perhaps five minutes of your time) that we are going to make a difference.

Finally: If you are wanting to attend our next TPA Conference to be held in Birmingham (details in last newsletter http://www.tpa-uk.org.uk/newsletters/newsletter_june10.pdf) to be held on Saturday 2nd October and you have not yet booked a place, please let Galathea@... know if you will be attending and how many guests you will be bringing with you. We can only seat 130 and places are already being snapped up. The meeting starts at 12.00 Noon sharp with lunch, to be followed by speeches from Dr Peatfield, Dr Skinner and Dr Mantzourani.

We will again be holding a raffle once again for prizes donated by some of our members, so if you would be happy to donate something, please will you contact Marie holloway.marie@... and let her know. At our April conference, our raffle raised over £400 for TPA which was wonderful. Many thanks to all who contributed.

Many thanks

Sheila and Lee

www.tpa-uk.org.uk