Re: Help us create a World Wide Register of Counterexamples to T4-only therapy

[Guest guest]

Thanks Keri, the answer is NO. This is for patients who were

prescribed levothyroxine ONLY and continued with symptoms, who then used some

form of T3 and their symptoms were reduced or disappeared completely

Luv - Sheila.

From: thyroid treatment

[mailto:thyroid treatment ] On Behalf Of Keri

Caswell

Sent: 08 July 2010 16:29

thyroid treatment

Subject: Re: Help us create a World Wide

Register of Counterexamples to T4-only therapy

Hi

Sheila

I

went from armour to T3 and then the nhs took over my prescription. Can I

help here?

Love

Keri

From: SheilaT

<sheila@...>

thyroid treatment

Sent: Wed, 7 July, 2010 17:19:26

Subject: Help us create a World Wide Register

of Counterexamples to T4-only therapy

Dear Member

If your health has been

affected because you continued to suffer the symptoms of hypothyroidism when

treated with T4- only - yet you fared better when given a synthetic

or natural T3 hormone containing product, please will you give just

5 minutes of your time to help TPA create the much needed World-Wide

Register of Counterexamples to the levothyroxine- only therapy. You will be

helping yourself and you will be helping tens of thousands of others in the UK

alone, and millions world-wide.

The objective of this

questionnaire is to draw to the attention of those responsible authorities

(i.e. the RCP, BTA et al in the UK) the dire need for an urgent

re-examination of the existing protocol for the diagnosis and management of the

symptoms of hypothyroidism.

This Register (which we hope

will eventually contain thousands of names) will then be sent to all the

Medical Boards/Schools throughout the world to show them that not every

sufferer of the symptoms of hypothyroidism gets back their normal health on

levothyroxine only, which they would have all our doctors believe.

So far, it is extremely

disappointing that only 37 of you have completed the survey to date. I do not

believe that only 37 members out of a possible 1752 did not fare

well on T4 only yet only fared well when they started taking a T3

hormone product.

If you really truly want

to help yourself and the tens of thousands of others in the UK who are

still suffering symptoms of hypothyroidism on T4 only therapy - and you want to

also help the millions world-wide in the same situation, then PLEASE, PLEASE,

PLEASE, do complete this survey, otherwise, we are never going

to be in a position to help bring about the necessary changes this

appalling situation is crying out for. All that we are asking is that

you answer only four very short questions which we need an answer

either 'Yes' or 'No'.

You joined this Forum because

you obviously needed help and support, and we try to give you this where

we can, so please, will you now help us http://www.tpa- uk.org.uk/ register_

of_counterexampl es.php

Sheila and Lee

List Owners

No virus

found in this incoming message.

Checked by AVG - www.avg.com

Version: 8.5.439 / Virus Database: 271.1.1/2988 - Release Date: 07/07/10

18:38:00

[Guest guest]

Hi , for the moment, you neither reply in English or French

because Question 2 has proved to be a right plonker. It has to be rewritten (so

guess what I am going to ask you????). Once This new question has been agreed,

can I rely on you again please to translate it for me. Also, will your friend

also translate it onto her language too (can't remember which one it was - was

it Italian?) Sorry about this, but at least, I am not asking you to translate a

whole new document.

Luv - Sheila

Sheila,

Do I reply to the French

questionnaire or the English one?

MacG.

From: SheilaT

<sheila@...>

thyroid treatment

Sent: Wed, 7 July, 2010 18:19:26

Subject: Help us create a World Wide Register

of Counterexamples to T4-only therapy

Dear Member

If your health has been

affected because you continued to suffer the symptoms of hypothyroidism when

treated with T4- only - yet you fared better when given a synthetic or

natural T3 hormone containing product, please will you give just 5

minutes of your time to help TPA create the much needed World-Wide

Register of Counterexamples to the levothyroxine- only therapy. You will be

helping yourself and you will be helping tens of thousands of others in the UK

alone, and millions world-wide.

The objective of this

questionnaire is to draw to the attention of those responsible authorities

(i.e. the RCP, BTA et al in the UK) the dire need for an urgent

re-examination of the existing protocol for the diagnosis and management of the

symptoms of hypothyroidism.

This Register (which we hope

will eventually contain thousands of names) will then be sent to all the

Medical Boards/Schools throughout the world to show them that not every

sufferer of the symptoms of hypothyroidism gets back their normal health on

levothyroxine only, which they would have all our doctors believe.

So far, it is extremely

disappointing that only 37 of you have completed the survey to date. I do not

believe that only 37 members out of a possible 1752 did not fare

well on T4 only yet only fared well when they started taking a T3

hormone product.

If you really truly want

to help yourself and the tens of thousands of others in the UK who are

still suffering symptoms of hypothyroidism on T4 only therapy - and you want to

also help the millions world-wide in the same situation, then PLEASE, PLEASE,

PLEASE, do complete this survey, otherwise, we are never going

to be in a position to help bring about the necessary changes this

appalling situation is crying out for. All that we are asking is that

you answer only four very short questions which we need an answer

either 'Yes' or 'No'.

You joined this Forum because

you obviously needed help and support, and we try to give you this where

we can, so please, will you now help us http://www.tpa- uk.org.uk/ register_

of_counterexampl es.php

Sheila and Lee

List Owners

No virus

found in this incoming message.

Checked by AVG - www.avg.com

Version: 8.5.439 / Virus Database: 271.1.1/2988 - Release Date: 07/07/10

18:38:00

[Guest guest]

Hi Heidi, as you will no doubt have picked up by now, we are

having to re-write question 2, so you will need to respond again when I post

the new link. Many thanks though, and I apologise for putting you to this

trouble.

Luv - Sheila

Hi Shelia, I’m from the USA, and

signed the petition I hope that is OK. Thanks again for all of your help.

Heidi

[Guest guest]

Thanks Stacey, and the concrete, empirical evidence will come

through the (hopefully) thousands of names on the Register of Counterexamples

to T4 only therapy.

Luv - Sheila

HI All,

I urge you all to do this if you have counterexamples - this will hopefully

help those of us who have yet to experience whether T3 would be help and for

future people.

This is so important as these days the people that we need to influence want

concrete empirical evidence, not just anecdotal.

Thanks

Stacey

> Sheila and Lee

>

> List Owners

>

No virus

found in this incoming message.

Checked by AVG - www.avg.com

Version: 8.5.439 / Virus Database: 271.1.1/2988 - Release Date: 07/07/10

18:38:00

[Guest guest]

Dear Keri,

If you were doing fine on the armour or T3 and then did not do well on what I

assume was T4, then you are a counterexample.

The other question is how did you get on Armour?

Have a great day,

>

> Hi Sheila

>

> I went from armour to T3 and then the nhs took over my prescription.  Can I

help

> here?

>

> Love Keri

>

[Guest guest]

HI SHEILA,

I do not fare well on T4 on its own or T3 on its own, but have never been given

both together, and on my first attempt to answer this question there was no

provision to put this down or answer it correctly, so could not sign the

register. Has this question been altered so that I can answer the question

properly. It could be that some of us would do better on both T4 and T3, or

better still with replacing all the hormones that are produced by the thyroid

gland.

Kathleen

> From: SheilaT <sheila@...>

> thyroid treatment

> Sent: Wed, 7 July, 2010 18:19:26

> Subject: Help us create a World Wide Register of

Counterexamples to T4-only therapy

>

>

>

> Dear Member

>

> If your health has been affected because you continued to suffer the symptoms

of hypothyroidism when treated with T4- only - yet you fared better when given a

synthetic or natural T3 hormone containing product, please will you give just 5

minutes of your time to help TPA create the much needed World-Wide Register of

Counterexamples to the levothyroxine- only therapy. You will be helping yourself

and you will be helping tens of thousands of others in the UK alone, and

millions world-wide.

>

> The objective of this questionnaire is to draw to the attention of those

responsible authorities (i.e. the RCP, BTA et al in the UK) the dire need for

an urgent re-examination of the existing protocol for the diagnosis and

management of the symptoms of hypothyroidism.

>

> This Register (which we hope will eventually contain thousands of names) will

then be sent to all the Medical Boards/Schools throughout the world to show them

that not every sufferer of the symptoms of hypothyroidism gets back their normal

health on levothyroxine only, which they would have all our doctors believe.

>

> So far, it is extremely disappointing that only 37 of you have completed the

survey to date. I do not believe that only 37 members out of a possible 1752

did not fare well on T4 only yet only fared well when they started taking a T3

hormone product.

>

> If you really truly want to help yourself and the tens of thousands of others

in the UK who are still suffering symptoms of hypothyroidism on T4 only therapy

- and you want to also help the millions world-wide in the same situation, then

PLEASE, PLEASE, PLEASE, do complete this survey, otherwise, we are never going

to be in a position to help bring about the necessary changes this appalling

situation is crying out for. All that we are asking is that you answer only

four very short questions which we need an answer either 'Yes' or 'No'.

>

> You joined this Forum because you obviously needed help and support, and we

try to give you this where we can, so please, will you now help us

<http://www.tpa-uk.org.uk/register_of_counterexamples.php> http://www.tpa-

uk.org.uk/ register_ of_counterexampl es.php

>

> Sheila and Lee

>

> List Owners

>

>

>

>

>

> No virus found in this incoming message.

> Checked by AVG - www.avg.com

> Version: 8.5.439 / Virus Database: 271.1.1/2988 - Release Date: 07/07/10

18:38:00

>

[Guest guest]

Hi Sheila

I'm probably just misunderstanding this but what I meant was you seem to be

asking if people have taken T3 containing products, found their symptoms

relieved and then been put onto T4 only and found they returned, but are you

only looking for feedback from people that have done it that way round? That

was how I read Question 2 anyway - maybe I'm just reading it wrong.

Do you not want feedback from people who have taken T4 only initially - found

some symptoms remained and then were given a T3 containing product and found

those same symptoms relieved?

I probably shouldn't be asking this question as I'm feeling too confused to make

any sense - so don't worry about answering, you've probably got it all sorted by

now anyway.

Bunny

>

> We are re-writing the first two questions Bunny and will let all our members

> have a link once this has been done, so don't worry about the present

> questionnaire There should not be a question asking whether you were first

> prescribed T4 - this questionnaire is ONLY for those who were prescribed T4

> only and still had symptoms, but they then tried either synthetic or natural

> T3 and their symptoms got better. The Register is to find out how many

> COUNTEREXAMPLES there are to T4 only therapy.

>

> Luv - Sheila

[Guest guest]

Hi Kathleen, you are not a counterexample to the T4 only

therapy, This survey is only for those who have had relief from their symptoms

when T3 has been added to T4, or they started taking T3 on its own. Until you

try T4 and T3 together, either synthetic or with natural thyroid extract and

find your symptoms going away, you will then be able to complete the questions

appropriately which will then show you ARE a counterexample. The questions are

being re-written, but even then, they will not help your situation.

Luv - Sheila

HI SHEILA,

I do not fare well on T4 on its own or T3 on its own, but have never been given

both together, and on my first attempt to answer this question there was no

provision to put this down or answer it correctly, so could not sign the

register. Has this question been altered so that I can answer the question

properly. It could be that some of us would do better on both T4 and T3, or

better still with replacing all the hormones that are produced by the thyroid

gland.

Kathleen

[Guest guest]

Hi Heidi, Yes- that is why is is a worldwide register! thyroid treatment From: sunnysaratoga@...Date: Thu, 8 Jul 2010 08:05:13 -0700Subject: RE: Help us create a World Wide Register of Counterexamples to T4-only therapy

Hi Shelia, I’m from the USA, and signed the petition I hope that

is OK. Thanks again for all of your help.

Heidi

From:

thyroid treatment

[mailto:thyroid treatment ] On Behalf Of SheilaT

Sent: Wednesday, July 07, 2010 9:19 AM

thyroid treatment

Subject: Help us create a World Wide Register

of Counterexamples to T4-only therapy

Dear Member

If your health has been

affected because you continued to suffer the symptoms of hypothyroidism when

treated with T4- only - yet you fared better when given a synthetic

or natural T3 hormone containing product, please will you give just

5 minutes of your time to help TPA create the much needed World-Wide

Register of Counterexamples to the levothyroxine-only therapy. You will be

helping yourself and you will be helping tens of thousands of others in the UK

alone, and millions world-wide.

The objective of this

questionnaire is to draw to the attention of those responsible authorities

(i.e. the RCP, BTA et al in the UK) the dire need for an urgent

re-examination of the existing protocol for the diagnosis and management of the

symptoms of hypothyroidism.

This Register (which we hope

will eventually contain thousands of names) will then be sent to all the

Medical Boards/Schools throughout the world to show them that not every

sufferer of the symptoms of hypothyroidism gets back their normal health on

levothyroxine only, which they would have all our doctors believe.

So far, it is extremely

disappointing that only 37 of you have completed the survey to date. I do not

believe that only 37 members out of a possible 1752 did not fare

well on T4 only yet only fared well when they started taking a T3

hormone product.

If you really truly want

to help yourself and the tens of thousands of others in the UK who are

still suffering symptoms of hypothyroidism on T4 only therapy - and you want to

also help the millions world-wide in the same situation, then PLEASE, PLEASE,

PLEASE, do complete this survey, otherwise, we are never going

to be in a position to help bring about the necessary changes this

appalling situation is crying out for. All that we are asking is that

you answer only four very short questions which we need an answer

either 'Yes' or 'No'.

You joined this Forum because

you obviously needed help and support, and we try to give you this where

we can, so please, will you now help us http://www.tpa-uk.org.uk/register_of_counterexamples.php

Sheila and Lee

List Owners

Get a new e-mail account with Hotmail – Free. Sign-up now.

[Guest guest]

Hi bunny, We are rewording the questionnaire so that there is no more confusion we hope! We'll let you know ASAP. > thyroid treatment > From: karen.liff@...> Date: Thu, 8 Jul 2010 20:50:46 +0000> Subject: Re: Help us create a World Wide Register of Counterexamples to T4-only therapy> > Hi Sheila> > I'm probably just misunderstanding this but what I meant was you seem to be asking if people have taken T3 containing products, found their symptoms relieved and then been put onto T4 only and found they returned, but are you only looking for feedback from people that have done it that way round? That was how I read Question 2 anyway - maybe I'm just reading it wrong.> > Do you not want feedback from people who have taken T4 only initially - found some symptoms remained and then were given a T3 containing product and found those same symptoms relieved?> > I probably shouldn't be asking this question as I'm feeling too confused to make any sense - so don't worry about answering, you've probably got it all sorted by now anyway.> > Bunny> > > > >> > We are re-writing the first two questions Bunny and will let all our members> > have a link once this has been done, so don't worry about the present> > questionnaire There should not be a question asking whether you were first> > prescribed T4 - this questionnaire is ONLY for those who were prescribed T4> > only and still had symptoms, but they then tried either synthetic or natural> > T3 and their symptoms got better. The Register is to find out how many> > COUNTEREXAMPLES there are to T4 only therapy.> > > > Luv - Sheila> > > > > ------------------------------------> > TPA is not medically qualified. Consult with a qualified medical practitioner before changing medication.> >

[Guest guest]

Dear Sheila, thank you so much for the survey and the well-written, well-researched letter you sent to Parliament. Speaking as a non-UK member of your thyroid patient advocacy forum, I think your work is magnificent. I would have filled out the survey, had I previously been on T4. But I've never taken T4 and so I have to abstain from the survey. I can only applaud your efforts.

A thousand thanks. You are helping so many!

Y. Miranthis.

From: SheilaT <sheila@...>Subject: Help us create a World Wide Register of Counterexamples to T4-only therapythyroid treatment Date: Wednesday, 7 July, 2010, 16:19

Dear Member

If your health has been affected because you continued to suffer the symptoms of hypothyroidism when treated with T4- only - yet you fared better when given a synthetic or natural T3 hormone containing product, please will you give just 5 minutes of your time to help TPA create the much needed World-Wide Register of Counterexamples to the levothyroxine- only therapy. You will be helping yourself and you will be helping tens of thousands of others in the UK alone, and millions world-wide.

The objective of this questionnaire is to draw to the attention of those responsible authorities (i.e. the RCP, BTA et al in the UK) the dire need for an urgent re-examination of the existing protocol for the diagnosis and management of the symptoms of hypothyroidism.

This Register (which we hope will eventually contain thousands of names) will then be sent to all the Medical Boards/Schools throughout the world to show them that not every sufferer of the symptoms of hypothyroidism gets back their normal health on levothyroxine only, which they would have all our doctors believe.

So far, it is extremely disappointing that only 37 of you have completed the survey to date. I do not believe that only 37 members out of a possible 1752 did not fare well on T4 only yet only fared well when they started taking a T3 hormone product.

If you really truly want to help yourself and the tens of thousands of others in the UK who are still suffering symptoms of hypothyroidism on T4 only therapy - and you want to also help the millions world-wide in the same situation, then PLEASE, PLEASE, PLEASE, do complete this survey, otherwise, we are never going to be in a position to help bring about the necessary changes this appalling situation is crying out for. All that we are asking is that you answer only four very short questions which we need an answer either 'Yes' or 'No'.

You joined this Forum because you obviously needed help and support, and we try to give you this where we can, so please, will you now help us http://www.tpa- uk.org.uk/ register_ of_counterexampl es.php

Sheila and Lee

List Owners

[Guest guest]

Thank you very much for your kind words from all the TPA Team -

without them, we would be nothing. We WILL get there one day because the

medical boards cannot continue to turn a deaf ear (or a blind eye) to what is

going on out here - we simply will not let them.

Luv - Sheila

Dear Sheila, thank you so much for the survey and the

well-written, well-researched letter you sent to Parliament. Speaking as a

non-UK member of your thyroid patient advocacy forum, I think your work

is magnificent. I would have filled out the survey, had I previously been on

T4. But I've never taken T4 and so I have to abstain from the survey. I can

only applaud your efforts.

A thousand thanks. You are helping so many!

Y. Miranthis.

Dear Member

If your

health has been affected because you continued to suffer the symptoms of

hypothyroidism when treated with T4- only - yet you fared better when

given a synthetic or natural T3 hormone containing product,

please will you give just 5 minutes of your time to help TPA create the

much needed World-Wide Register of Counterexamples to the levothyroxine-

only therapy. You will be helping yourself and you will be helping tens of

thousands of others in the UK alone, and millions world-wide.

The

objective of this questionnaire is to draw to the attention of those

responsible authorities (i.e. the RCP, BTA et al in the UK) the dire

need for an urgent re-examination of the existing protocol for the

diagnosis and management of the symptoms of hypothyroidism.

 

No virus

found in this incoming message.

Checked by AVG - www.avg.com

Version: 8.5.441 / Virus Database: 271.1.1/2988 - Release Date: 07/08/10

18:36:00

[Guest guest]

HI SHEILA

All I can say is that when I do finally get referred to Chelsea and Westminster

that they also look into the thyroid problem, and perhaps try a combination of

T4 and T3, so I hope you keep the register going for a while.

By looking at the link you gave on PROPANOL, and that is one that I was put on

once, but it did not do me anygood.

I also got carried away further and found a link to the skin condition that has

been diagnosed as ICHTHYOSIS that in fact it can be caused by hypothyroidism,

but he has foxed his test results by smoking, so there could be many more like

him, but his lungs and heart are not in a good state.

I also think there could be quite a few in my family who have not been diagnosed

correctley.

I have also come acrossed something interesting as regards calcium and sodium.

>

> Hi Kathleen, you are not a counterexample to the T4 only therapy, This

> survey is only for those who have had relief from their symptoms when T3 has

> been added to T4, or they started taking T3 on its own. Until you try T4 and

> T3 together, either synthetic or with natural thyroid extract and find your

> symptoms going away, you will then be able to complete the questions

> appropriately which will then show you ARE a counterexample. The questions

> are being re-written, but even then, they will not help your situation.

>

> Luv - Sheila

>

>

>

> HI SHEILA,

> I do not fare well on T4 on its own or T3 on its own, but have never been

> given both together, and on my first attempt to answer this question there

> was no provision to put this down or answer it correctly, so could not sign

> the register. Has this question been altered so that I can answer the

> question properly. It could be that some of us would do better on both T4

> and T3, or better still with replacing all the hormones that are produced by

> the thyroid gland.

> Kathleen

>

[Guest guest]

HI SHEILA

All I can say is that when I do finally get referred to Chelsea and Westminster

that they also look into the thyroid problem, and perhaps try a combination of

T4 and T3, so I hope you keep the register going for a while.

By looking at the link you gave on PROPANOL, and that is one that I was put on

once, but it did not do me anygood.

I also got carried away further and found a link to the skin condition that has

been diagnosed as ICHTHYOSIS that in fact it can be caused by hypothyroidism,

but he has foxed his test results by smoking, so there could be many more like

him, but his lungs and heart are not in a good state.

I also think there could be quite a few in my family who have not been diagnosed

correctley.

I have also come acrossed something interesting as regards calcium and sodium.

I have already informed Doctors that Calcium can cause me to have an upset

stomache, cause me to do more which then causes bruising, and I do not have

sodium, but due to all the info on rock salt etc I have been having sea salt,

and my BP has gone up.

Now to a part of this article where it says that a reduced sodium intake (which

is what my body naturally leads me to do) reduces calcium excretion, so do I

deduce from this that too much calcium going through my system can then cause

upset stomach, but there is a problem to this as ones bones need calcium. When

my GP gave me some sodium pills for constipation resulted in an angry phone call

to him, as it causes a bad upset stomach and all I got was that he had overdone

the dosage and to leave it off.

Now perhaps you should think what the sodium in all that lemonade did to me,

because increasing sodium also increases calcium excretion, but I inform you

privatley on this one, and think about sodium in pills and the anhydrous sodium

connection.

Can you tell me the ingrediants of T3 especially the type of sodium

My Brother would not have milk and little meat, and his bones have suffered, but

he too has not been diagnosed with thyroid problem.

Kathleen

>

> Hi Kathleen, you are not a counterexample to the T4 only therapy, This

> survey is only for those who have had relief from their symptoms when T3 has

> been added to T4, or they started taking T3 on its own. Until you try T4 and

> T3 together, either synthetic or with natural thyroid extract and find your

> symptoms going away, you will then be able to complete the questions

> appropriately which will then show you ARE a counterexample. The questions

> are being re-written, but even then, they will not help your situation.

>

> Luv - Sheila

>

>

>

[Guest guest]

The

Register of Counterexamples will be running constantly, probably for years

Kathleen adding more and more names - at least, we will keep it running until such

organisations as the RCP, BTA and other medical boards throughout the world

start to take notice of the number of people who are not regaining their normal

health on thyroxine only.

Luv - Sheila

All I can say is that when I do finally get referred to Chelsea and Westminster

that they also look into the thyroid problem, and perhaps try a combination of

T4 and T3, so I hope you keep the register going for a while.

By looking at the link you gave on PROPANOL, and that is one that I was put on

once, but it did not do me anygood.

I also got carried away further and found a link to the skin condition that has

been diagnosed as ICHTHYOSIS that in fact it can be caused by hypothyroidism,

but he has foxed his test results by smoking, so there could be many more like

him, but his lungs and heart are not in a good state.

I also think there could be quite a few in my family who have not been

diagnosed correctley.

I have also come acrossed something interesting as regards calcium and sodium.

>

>

[Guest guest]

Dear Sheila

I was going to fill in the questionnaire but found that the wording of it did not quite fit my experience. I spent a number of years on thyroxine only, then a while on T4 & T3 combined, then switched to Armour thyroid, and have since also tried Nature-throid and Erfa. I certainly began to feel much better once T3 was added to T4, and better still on natural dessicated thyroid. However, my doctors (thankfully) are still willing to prescribe T3 and natural thyroid, although supply problems re the latter have prompted me to buy it myself from pharmacies abroad.

I feel sure that a lot of other people would find that, although they want to give their support, the wording of the questons puts them off.

Best wishes

Lorraine

From: SheilaT <sheila@...>Subject: Help us create a World Wide Register of Counterexamples to T4-only therapythyroid treatment Date: Wednesday, July 7, 2010, 12:19 PM

Dear Member

If your health has been affected because you continued to suffer the symptoms of hypothyroidism when treated with T4- only - yet you fared better when given a synthetic or natural T3 hormone containing product, please will you give just 5 minutes of your time to help TPA create the much needed World-Wide Register of Counterexamples to the levothyroxine- only therapy. You will be helping yourself and you will be helping tens of thousands of others in the UK alone, and millions world-wide.

The objective of this questionnaire is to draw to the attention of those responsible authorities (i.e. the RCP, BTA et al in the UK) the dire need for an urgent re-examination of the existing protocol for the diagnosis and management of the symptoms of hypothyroidism.

This Register (which we hope will eventually contain thousands of names) will then be sent to all the Medical Boards/Schools throughout the world to show them that not every sufferer of the symptoms of hypothyroidism gets back their normal health on levothyroxine only, which they would have all our doctors believe.

So far, it is extremely disappointing that only 37 of you have completed the survey to date. I do not believe that only 37 members out of a possible 1752 did not fare well on T4 only yet only fared well when they started taking a T3 hormone product.

If you really truly want to help yourself and the tens of thousands of others in the UK who are still suffering symptoms of hypothyroidism on T4 only therapy - and you want to also help the millions world-wide in the same situation, then PLEASE, PLEASE, PLEASE, do complete this survey, otherwise, we are never going to be in a position to help bring about the necessary changes this appalling situation is crying out for. All that we are asking is that you answer only four very short questions which we need an answer either 'Yes' or 'No'.

You joined this Forum because you obviously needed help and support, and we try to give you this where we can, so please, will you now help us http://www.tpa- uk.org.uk/ register_ of_counterexampl es.php

Sheila and Lee

List Owners

[Guest guest]

Hi Lorraine, obviously you have been away from the forum for a while.

We had so many members telling us they had problems with the questions that we

have removed them from the web site and now have re-written them had now they

are easily understood, and yes, you can answer them to show that you most

definitely ARE a counterexample to the levothyroxine sodium-only therapy. I am

waiting for Lee to upload the new questions onto our web site and I am stuck

until this has been done. However, as soon as it has been done, I will write to

you all and let you know, then you can go and complete them.

Luv - Sheila

Dear Sheila

I was going to fill in the questionnaire but found that

the wording of it did not quite fit my experience. I spent a number of

years on thyroxine only, then a while on T4 & T3 combined, then switched

to Armour thyroid, and have since also tried Nature-throid and Erfa. I

certainly began to feel much better once T3 was added to T4, and better still

on natural dessicated thyroid. However, my doctors (thankfully) are

still willing to prescribe T3 and natural thyroid, although supply problems

re the latter have prompted me to buy it myself from pharmacies abroad.

I feel sure that a lot of other people would find that,

although they want to give their support, the wording of the questons

puts them off.

Best wishes

Lorraine

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