Guest guest Posted July 21, 2009 Report Share Posted July 21, 2009 Hi South Quote Dr Colin Dayan of Bristol University (Head of Clinical Research) :- his paper last year is graphic on conversion of T4 to T3 Panicker VJ, Dayan C, et al 2008 Appeal the decision immediately on loss of benefit. putting doctors 'straight' is why we carry on.... best wishes Bob > > Hi, Can anyone show me a study or something written by one of the " experts " on thyroid disease, regarging T3. > > Why I'm asking is because, I have just lost my incapacity benefit, and I can't get any help from my GP, because, he says my thyroid is undertreated, because I won't or can't take T4. > He says T4 is the active thyroid hormone in the body. I agued with him that it was more of a storage hormone and that it has to be converted to T3. > I know it was stupid to argue with him, and he has already threatened to take me off his list, because I won't take thyroxine! but, I can't > help myself, I'm sooo angry with the idiot!! > Anyway I have nothing to lose, so I thought if I could shove some " expert advice " under his nose, it might make me feel a little bit better, lol. > TIA > SWoth. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2009 Report Share Posted July 21, 2009 > > Hi, Can anyone show me a study or something written by one of the " experts " on thyroid disease, regarging T3. > > Why I'm asking is because, I have just lost my incapacity benefit, Sorry to hear you have lost your incapacity benefit. Can you appeal? Ask a welfare officer to help you. I had applied for my daughters DLA to be 'looked at again' and hopefully increased. A welfare officer has told me that a lot of people are not getting benefits they apply for even though she thought they would get it. As they could reduce my daughters DLA if we ask them to look at it we have decided to leave it for now. Although she is much worse than she was when we first applied for it 18 months ago. It seems the government are trying to save money by not paying out on benefits as they should. Its hard enough being ill without the pressure of no money or very little. Judyx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2009 Report Share Posted July 21, 2009 On Tue, 21 Jul 2009 15:27:01 -0000, you wrote: >Anyway I have nothing to lose, so I thought if I could shove some " expert advice " under his nose, it might make me feel a little bit better, lol. Why are you staying with this Dr??? If he doesn't know how the thyroid system works you may be better off without him Nick Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2009 Report Share Posted July 21, 2009 Hi Nick, Sheer exhaustion!! I will be looking for another Doc, but, I'm not sure there is anything better out there! South > > On Tue, 21 Jul 2009 15:27:01 -0000, you wrote: > > >Anyway I have nothing to lose, so I thought if I could shove some " expert advice " under his nose, it might make me feel a little bit better, lol. > > Why are you staying with this Dr??? > > If he doesn't know how the thyroid system works you may be better off > without him > > Nick > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2009 Report Share Posted July 21, 2009 Hi That's what I was doing until he did a yearly thyroid test! I thought they would only do a TSH, which is what normally happens, but they did the T4 as well. It showed up without hardly any T4 in my blood, because I am on 75mcgs of T3, and no T4. He went mad at me on the phone and told me to start taking T4 immediately!! and to go back to him in three weeks time and he will take another blood test. He then slammed the phone down on me!! Believe it or not, he is the BEST Doc in the practice! He couldn't believe his ears when I went back a couple of weeks later and told him I will never take T4 again! I had my husband with me at the time and the Doc said I was very close to being taken off his list. The trouble is, everone I speak to in this area says he is the best Doc in the practice, which makes me look like I am being difficult! South > > >He says T4 is the active thyroid hormone in the body. I agued with him that it > was more of a storage hormone and that it has to be converted to T3. > > What an idiot! How can he be so ignorant? > > Why would he think you'd stay on a treatment that you didn't feel better/well on? > > Is it possible to go along with hiim and say that you will take his T4 as well as T3 but not take the t4? Does he test you? > > Chris > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2009 Report Share Posted July 21, 2009 Hi Bob, Thanks for that, I will look that up, and shove it under his silly nose!! South > > Hi South > > Quote Dr Colin Dayan of Bristol University (Head of Clinical Research) > :- his paper last year is graphic on conversion of T4 to T3 > Panicker VJ, Dayan C, et al 2008 > > Appeal the decision immediately on loss of benefit. > > putting doctors 'straight' is why we carry on.... > > best wishes > Bob > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2009 Report Share Posted July 21, 2009 > > Hi Judy, I have appealed, but the welfare rights officer that I have been seeing thinks I will not win because my Doctor won't back me up fully!! Which is why I'm not bothered about upsetting him anymore!! I'm in the process of applying for Job Seekers allowance, and I've only got a couple of years to go until I get my pension! thanks for all the replies. South > I had applied for my daughters DLA to be 'looked at again' and hopefully increased. A welfare officer has told me that a lot of people are not getting benefits they apply for even though she thought they would get it. As they could reduce my daughters DLA if we ask them to look at it we have decided to leave it for now. Although she is much worse than she was when we first applied for it 18 months ago. > > It seems the government are trying to save money by not paying out on benefits as they should. Its hard enough being ill without the pressure of no money or very little. > > Judyx > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2009 Report Share Posted July 21, 2009 I'd hate to see what the worst doc was like if he is the best! which part of the country are you in? Can you see somoene like dr skinner maybe? i just wonder if he'd be willing to listen to the opinion of a specialist? Sounds like he caught you out with the t4. was your tsh ok? i guess it probably wasn't if you had little t4 in your system. did he say you could carry on taking t3 as well as t4? i guess he did not listen to reason that you (presumably) were feeling better on t3 only. Have you tried google scholar to see if there are any relevant articles on there? I did a quick search but all i could find was one from 1975 and i have no idea how relevant it was as only read first page. http://arjournals.annualreviews.org/doi/abs/10.1146/annurev.me.26.020175.002303 Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2009 Report Share Posted July 21, 2009 Most endocrinologists subscribe to the practice guidelines of the American Association of Clinical Endocrinologists. When a patient such as you sees one of these endocrinologists, he’s likely to take her off T3 and switch her to T4-replacement. As many patients have told us, when an endocrinologist switched them to T4-replacement, they became ill and dysfunctional again. These reports are consistent with studies that show the ineffectiveness and potential harm of T4-replacement. The studies show that T4-replacement leaves many patients suffering chronically from hypothyroid symptoms[1][2][3][4][5][6][7] and gaining weight they can't lose through dieting and exercise.[8] The patients are also likely to use more drugs and develop one or more of several potentially-fatal diseases.[9]Potential harm from T4-replacement has thus been scientifically documented. In view of the risks, you must consider for yourself whether you'll permit your therapy to be changed from Cytomel to T4-replacement. If you decide not to permit it, you can seek out an alternative doctor who understands how ineffective and harmful T4-replacement is for many patients. Alternative doctors are generally more cooperative than conventional doctors, and most of them take the time to learn the cause of troubling symptoms. Because of this, you should be able to find one who'll help you ferret out and correct what's causing your occasional symptoms of overstimulation. Whole article: http://www.drlowe.com/QandA/askdrlowe/t3.htm Lilian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2009 Report Share Posted July 21, 2009 Hi I do see Dr P when I can afford it. I phoned the office today to see if he could write a letter for me, but his secretary said you have to be a practising Doctor that is recognised by the GMC. One of the reasons I chose to see Dr. P is because I have adrenal problems, and I don't think Dr. S deals with those!! I am in the north east, in a little town called Saltburn by the Sea. I'ts lovely, but the Dr's are not!! I really don't think he understands the part that T3 plays in thyroid health! The last time I tried to discuss the subject with him, my husband had to intervene because voices were being raised. My TSH was the best I've seen it in a while it was 0.2 (it's usually very supressed). Thanks for your reply South > Sounds like he caught you out with the t4. was your tsh ok? i guess it probably wasn't if you had little t4 in your system. > > did he say you could carry on taking t3 as well as t4? i guess he did not listen to reason that you (presumably) were feeling better on t3 only. > > Have you tried google scholar to see if there are any relevant articles on there? I did a quick search but all i could find was one from 1975 and i have no idea how relevant it was as only read first page. > > http://arjournals.annualreviews.org/doi/abs/10.1146/annurev.me.26.020175.002303 > > Chris > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2009 Report Share Posted July 21, 2009 Thanks Lilian, that looks like a good article. South. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2009 Report Share Posted July 22, 2009 It is well worth appealing about the incapacity benefit. In ME circles people are often refused initially, but are awarded the benefit on appeal. This may be because the form doesn't give much scope for explaining how the illness affects you, but at appeal you can present much more evidence. Miriam > > Why I'm asking is because, I have just lost my incapacity benefit, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2009 Report Share Posted July 23, 2009 Hi Miriam, yes, I am in the process of appealing. South. > > Miriam > > > > > > Why I'm asking is because, I have just lost my incapacity benefit, > Quote Link to comment Share on other sites More sharing options...
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