Guest guest Posted January 1, 2010 Report Share Posted January 1, 2010 Cheers, Here are some notes on how we might optimize our consults - which is our main opportunity to positively influence how well we are treated and monitored. o Bring a trusted friend Into the consult (not to wait in the waiting room)! This to raise the level of the consult. Ask that he or she be an active listener or take notes. o Provide concise information (in writing) for your doctor so he or she can quickly get up to speed on your clinical circumstances, questions, and treatment goal. Treatment goals? Observation? Management? Curative Intent? Durable remission? (often based on your clinical circumstances) Clinical circumstances? The unique factors that determine how to best monitor or treat the lymphoma: See Summary of factors http://www.lymphomation.org/treatment-decisions.htm#quick o Ask that he or she discuss at least ONE clinical trial! that could be appropriate to your clinical circumstance and treatment goal. o For indolent b-cell lymphomas, ask if radioimmunotherapy is available as a treatment option and when this option might be most appropriate for you. See also our Bring List http://www.lymphomation.org/bringlist.pdf " We all have to play the ball where it lies " ~ Bobby , golfing great All the best, ~ Karl Patients Against Lymphoma Patients Helping Patients Non-profit | Independent | Evidence-based www.lymphomation.org | Current News: http://bit.ly/f2A0T How to Help: www.lymphomation.org/how-to-help.htm Quote Link to comment Share on other sites More sharing options...
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