Update

[Guest guest]

-- Thanks Elaine. The last doctor I went to in my area (a few weeks

ago) was a neurosurgeon and my hope was to do the same as you did.

However, he wasn't willing to follow me b/c he felt sure there'd be a

qualified surgeon at Emory in Atlanta. But hearing that you found

someone willing to do that gives me hope, so thanks for the

feedback. And I've heard nothing but praise about Dr. Ondra. I'm

glad you were able to go to him.

If I just keep my head up and keep doing the foot work, I'll end up

right where I'm supposed to be......(sounds good anyway!!!).

camille

- In , elaine Mackey

<shevfar@...> wrote:

>

> Camille:

> While you are looking for a doctor in your area have you looked at

neurosurgeons. I saw a really good one here in Oklahoma. He told me

he was not qualified or experienced enough to do a revision surgery

but refered me to Dr. Ondra in Chicago. I did have revision surgery

with Dr. Ondra and the doctor here followed me when I got back. I

think a relly good surgeon should know his limits and be willing to

refer you on.

> Elaine

>

>

>

> update

>

> The Pain Relief Center was a blow-out. It was a chiropractor, which

> was not mentioned in the ad or on the phone when I called to make

the

> appt. I am not against chiropractors. ......make note! However,

> that's not what I'm looking for now. He told me I could go to a

> medical pain mgmt clinic and get doped up, but that it looked like

I

> was on plenty of meds already (referring to my 3 anti-depressants,

> asthma meds, and cholesterol meds). So anyway, live and learn. I've

> already been down the chiropractor on several occasions throughout

> the years.

>

> As a follow-up from my previous postings, searching for a revision

> specialist. I had hoped that I could find a doc to follow me after

> having revision surgery elsewhere. I saw a spine surgeon in Athens

> (closer to home than Atlanta) and he said he had never even seen

> anything like the hardware in my back (referring to the Dwyer

> Instrumention: screws, pins, and cables...some of which is broken),

> so I quickly realized that I barking up the wrong tree. He's

> referring me to Emory.....someone other than Horton. Now, Horton

> wanted to do surgery 5 yrs. ago, but I wasn't ready and he was very

> disrespectful and rude to me. I went thru the injections and PT and

> anti-inflamatories. .....all of which only gave me a little

temporary

> relief.

>

> While I'm on a roll, I'll just keep hogging the message board!

> Horton is supposively the most experienced in GA, however, he's not

> in the line-up with Boachie, Rand, Bridwell, etc. (just my opinion

> based on years of research).

> Chances are....and I'm speculating here, a surgeon who feels he is

> qualified to do revision surgery is not likely to follow me if I

> choose to go out-of-state for " the surgery " . Does that make sense?

>

> Maybe I don't need to go out of state, maybe I don't need the

> surgery, maybe I'm just plain worn out and want relief.....NOW. I

> was " gung-ho " about the surgery in the beginning, now I'm in a rut

> and don't have the energy or motivation to take on such an

endeavor.

> I recently had bronchitis for a month (requiring prednisone), now I

> have a bad sinus infection, requiring a month of strong anti-

> biotics. So now that I'm writing this all down, it makes a little

> more sense why I'm wiped out.

>

> May the Powers that BE show me the way, one moment at a time.

>

> Thanks for letting me ramble on again,

> camille

>

>

>

>

>

>

______________________________________________________________________

______________

> Be a better friend, newshound, and

> know-it-all with Mobile. Try it now.

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

>

[Guest guest]

For what it's worth, I haven't had much need to see anybody other

than Dr Bridwell. It is only an 8 hour drive, so it hasn't been too

bad getting to see him every 3 - 4 months for the first year. I did

fall one day and it scared me, so I went to the orthopedic doctor I

had been seeing for a shoulder problem just to let him look and be

sure that I hadn't broken or loosened anything. Dr Bridwell's nurse

had told me that I was unlikely to have damaged anything, but I felt

better after having the shoulder guy take a look.

>

>>

> As a follow-up from my previous postings, searching for a revision

> specialist. I had hoped that I could find a doc to follow me after

> having revision surgery elsewhere. I saw a spine surgeon in Athens

> (closer to home than Atlanta) and he said he had never even seen

> anything like the hardware in my back (referring to the Dwyer

> Instrumention: screws, pins, and cables...some of which is broken),

> so I quickly realized that I barking up the wrong tree. He's

> referring me to Emory.....someone other than Horton. Now, Horton

> wanted to do surgery 5 yrs. ago, but I wasn't ready and he was very

> disrespectful and rude to me. I went thru the injections and PT

and

> anti-inflamatories......all of which only gave me a little

temporary

> relief.

>

>>

> Thanks for letting me ramble on again,

> camille

>

[Guest guest]

Camille,

Congrats on making that appt, and I hope that you like Dr Hey. I've

heard very nice things about his personality, as well as his

expertise. It may be wise to ask for patient referrals if you'd like

to talk to some of his patients who have also been thru this.

If, after you see him, you are still wanting another opinion, I would

highly recommended an opinion here in Chicago with Dr Ondra or his

partner Dr Koski. If you are interested in making an appointment,

please let me know. If you just call the office, it is about a 6-

month wait time to get in, but if you send in a copy of an xray

report (and maybe a short note explaining your symptoms), you can

usually get into their complex spine clinic usually in 1-3 weeks

time, depending on their schedule.

Good luck with your appt in March, be sure to let us know how it goes!

>

> Hi, it's Camille again. I have an appt. with Dr.Lloyd Hey in

Raleigh,

> NC on March 14. It's a 5-6 hour drive so that's not too bad. I'll

> find someone to do most of the driving.

>

> They accept Humana (Medicare) and I didn't have to have a referral,

> which was nice. She said he'll take x-rays that day in his office

and

> will send me next door for an MRI if needed.

>

> After that appt., I'll decide who the second opinion will be,

probably

> Dr. Ondra in Chicago.

>

> One step at a time.

> camille

>

[Guest guest]

Hi ,

I just wanted to extend my wishes to you for a very speedy recovery!!

I hope you will be back to bowling again real soon!

Orlando, Florida

>

> Hi All,

>

> Just wanted to give a quick update. I had my Myotomy and partial

> wrap May 19th. I had my almost three week check up on Friday and

my

> doctor says I'm doing great. I got to stop taking the Nifedipine

and

> in three weeks I get to try to wean myself off of the Nexium.

>

> The surgery went well, except for some breathing problems and the

> fact that my liver is higher up than what he had thought, there

were

> no complications. I had a lot of spasms immediatly out of surgery

so

> they put me on Nifedipine. I ended up staying in the hospital an

> extra day because my oxygen level was too low. The stay wasn't

that

> bad, and I got to visit a bowling mom (I have my bowling family

back

> home) who was just down the hall from me because she found out she

> has Leukemia really bad, stage four I believe.

>

> Still no bread for me for at least three weeks, and no bowling,

that

> sucks the most. I went back to work last week Monday and took it

> easy, so at least I wasn't sitting at home bored out of my mind.

>

> I would like to thank everyone for their emails and thoughts, it

> means a lot to me.

>

> Thank you,

> ~Steph

>

[Guest guest]

Hey all Im catching up sorry for the delay!

I went to my treating dr because I needed a referral for the new pain mgmt dr.

When I told my treating dr what happened post-op, he was very upset. In fact, he

was the one who told me the scs wasn't a good idea, that I should try more

conservative measures first. He said he didn't want to say I told you so,

but.....

Oh, and what happened yesterday. I went to get my staples out, I was happy

because I thought I would feel so much better once I got them out. So I get

there and the PA took my staples out and I mentioned to him that I didn't want

to go back to the pm that referred me to him because of how they treated me

post-op. He said he had to talk to the office. Basically I said I was looking

for a new pm and all I needed from them was post-op care while I was looking.

He came back and said they didn't feel comfy taking me because they didn't want

to make my pm mad because that's where they get their referrals. They were

making such a big deal out of post op care, I told them not to worry because I

would find another pm. Then the dr told the pm that they would see me but if

they did he would be withdrawing all of my meds asap, I wouldn't be treated like

other patients, that's all he would do. I mentioned the rsd in my arm and that I

would need something, albeit not everything I am on now. I also mentioned how

the cymbalta helped me and I wished to stay on it. He said, sorry we will take

you off everything and we wont look at your arm because that's not what you came

here for. Then he said I could get a cervical stim from them.

For one, it was like I was being punished for not wanting to go back to Dr H,

they wouldn't even examine me or treat me like other patients.

I also felt like they were trying to deter me from staying with them. Grr,  I

felt so little like I was doing something wrong because I didn't feel comfy with

my pm anymore. I could not believe the treatment I received, I was getting

program readjustments and I was just sitting there crying.

I asked about my post-op care and basically, even though they implanted the

stim, they wouldn't touch me anymore. So I have no one for post-op care now.

Ugh. I feel so used, I feel like these people just wanted to implant an

expensive device and then they wanted to do away with me.

Although I am enjoying the stim because I can walk without pain, I am only

receiving 50% relief, when the stim offered 75%. Why didn't any dr ask what kind

of pain I had? No one asked me what relief I was receiving, they all assumed I

was getting 100% relief because I had a stim and thought I shouldn't need pain

relief in any form. Are you kidding me?

So I have been stressed, sorry Im venting!

Thanks for listening, Im so lucky to have so many friends!

Hugs,

[Guest guest]

They are REQUIRED to treat you now that they have taken you as a patient by

LAW!!!! They cannot get rid of you unless they send you a written notice and

give you 30 days to find another doctor. They are required to treat you until

that time. I would tell them they would be hearing from my attorney due to them

refusing me medical treatment due to the fact I did not want to continue with

their cohort. That is medical malpractice!

Even if you do not even have an attorney and believe me you can get one for no

money up front for something like this, they will sit up and take notice and do

something for you!

The last thing a dr's office wants to hear is that someone is about ready to sue

them. They turn on all the charm and do everything they can to keep it from

happening. Dr's do not want their malpractice insurance to increase premiums on

them and they will if they get a case.

Even if it is settled out of court!

I would call an attorney in the morning and see what they recommend. I would

also call the office and tell them you are consulting an attorney due to them

refusing you care after they operated on you and that they will be hearing from

him so expect it!

You will get some results then!

Re: Update

Hey all Im catching up sorry for the delay!

I went to my treating dr because I needed a referral for the new pain mgmt dr.

When I told my treating dr what happened post-op, he was very upset. In fact, he

was the one who told me the scs wasn't a good idea, that I should try more

conservative measures first. He said he didn't want to say I told you so,

but.....

Oh, and what happened yesterday. I went to get my staples out, I was happy

because I thought I would feel so much better once I got them out. So I get

there and the PA took my staples out and I mentioned to him that I didn't want

to go back to the pm that referred me to him because of how they treated me

post-op. He said he had to talk to the office. Basically I said I was looking

for a new pm and all I needed from them was post-op care while I was looking.

He came back and said they didn't feel comfy taking me because they didn't

want to make my pm mad because that's where they get their referrals. They were

making such a big deal out of post op care, I told them not to worry because I

would find another pm. Then the dr told the pm that they would see me but if

they did he would be withdrawing all of my meds asap, I wouldn't be treated like

other patients, that's all he would do. I mentioned the rsd in my arm and that I

would need something, albeit not everything I am on now. I also mentioned how

the cymbalta helped me and I wished to stay on it. He said, sorry we will take

you off everything and we wont look at your arm because that's not what you came

here for. Then he said I could get a cervical stim from them.

For one, it was like I was being punished for not wanting to go back to Dr H,

they wouldn't even examine me or treat me like other patients.

I also felt like they were trying to deter me from staying with them. Grr, I

felt so little like I was doing something wrong because I didn't feel comfy with

my pm anymore. I could not believe the treatment I received, I was getting

program readjustments and I was just sitting there crying.

I asked about my post-op care and basically, even though they implanted the

stim, they wouldn't touch me anymore. So I have no one for post-op care now.

Ugh. I feel so used, I feel like these people just wanted to implant an

expensive device and then they wanted to do away with me.

Although I am enjoying the stim because I can walk without pain, I am only

receiving 50% relief, when the stim offered 75%. Why didn't any dr ask what kind

of pain I had? No one asked me what relief I was receiving, they all assumed I

was getting 100% relief because I had a stim and thought I shouldn't need pain

relief in any form. Are you kidding me?

So I have been stressed, sorry Im venting!

Thanks for listening, Im so lucky to have so many friends!

Hugs,

[Guest guest]

You go girllllll....i will just call you squeeekkky>>>

Deb

From: Stimulator [mailto:Stimulator ] On

Behalf Of kimleach

Sent: Tuesday, December 02, 2008 12:20 PM

Stimulator

Subject: update

OK

Today I have called the nurse at the pain mgt office, I have called the

insurance company who states they have no knowledge of the upcoming

procedure. The guy I talked to there was a royal butt hole so I could not

get much out of him. He expected me to have CPT codes etc. He treated me

like a dummy SIGH.

OH well, so now I have called my Medtronics rep stating hey I have called

all these people and no one is calling me back. If I am not supp to be

calling you I am sorry but at least call me back and let me know who the

heck to call.

I must have let him know how frustrated I was he just called and said he was

on his way back here from Texas. He had been gone for THanksgiving holidays.

He told me he had calls in to who schedules and Dr Schooley to see when

they could get me in and he would call me tomorrow and let me know something

for sure.

So yeah the squeaky wheel gets the grease. I told him sorry but I was

getting so frustrated because no one was calling me back and telling me

anything.

Thanks for listening

Kim

Kim

Freelance Copywriter and Blogger

Articles on Suite 101

http://ghosts-hauntings.suite101.com/article.cfm/the_haunting_of_carnton_man

sion

http://psychic-abilities.suite101.com/article.cfm/live_online_psychic_readin

gs_guide

My Blogs

http://dealwithchronicpain.org

http://naturalcuresreview.org

http://msfrugalmcdougal.org

My Ehow Articles

http://www.ehow.com/members/starchild47.html

[Guest guest]

Just call me the squeaky old crab!!!! now lets see if they actually call me back

tomorrow! LOL I am NOT holding my breath but at least Peyton knows if he does

not call me back I will sure as heck be calling him.

Kim

update

OK

Today I have called the nurse at the pain mgt office, I have called the

insurance company who states they have no knowledge of the upcoming

procedure. The guy I talked to there was a royal butt hole so I could not

get much out of him. He expected me to have CPT codes etc. He treated me

like a dummy SIGH.

OH well, so now I have called my Medtronics rep stating hey I have called

all these people and no one is calling me back. If I am not supp to be

calling you I am sorry but at least call me back and let me know who the

heck to call.

I must have let him know how frustrated I was he just called and said he was

on his way back here from Texas. He had been gone for THanksgiving holidays.

He told me he had calls in to who schedules and Dr Schooley to see when

they could get me in and he would call me tomorrow and let me know something

for sure.

So yeah the squeaky wheel gets the grease. I told him sorry but I was

getting so frustrated because no one was calling me back and telling me

anything.

Thanks for listening

Kim

Kim

Freelance Copywriter and Blogger

Articles on Suite 101

http://ghosts-hauntings.suite101.com/article.cfm/the_haunting_of_carnton_man

sion

http://psychic-abilities.suite101.com/article.cfm/live_online_psychic_readin

gs_guide

My Blogs

http://dealwithchronicpain.org

http://naturalcuresreview.org

http://msfrugalmcdougal.org

My Ehow Articles

http://www.ehow.com/members/starchild47.html

[Guest guest]

Great news and I am very glad that you were able to find someone who was willing

to work with you! I know from my own experience it takes some doing to find

someone who will take the extra time and patience to really work with chronic

pain patients period.

Update

Hey everyone. I'm so excited. I saw my physical therapist Monday

and my leg is slowly getting stronger. My PT tested the strength in

my RSD leg and I had almost made it to the goal he had set. It has

taken several years to get there and I still can't walk without

crutches, but at least things seem to be improving. My therapist

doesn't know if I'll ever get off crutches, but seeing improvements

gives us hope.

I'm now on 6 month appointments with my pain management doctor and

orthopedic and my physical therapist only sees me every three to four

months now. I have all the equipment at home that I use at therapy,

so he doesn't see a reason for me to drive two hours to see him. As

long as I don't show signs of muscle loss, I don't have to go see him

as often.

I probably pass 8-10 physical therapy places on my way to see my PT

but I've flunked out of all of them. I don't know if anyone else has

had this experience, but I've seen over a dozen physical therapist

and this is the first one who hasn't given up on me. The other

physical therapists gave up because progress was so slow because of

the RSD. I've been seeing this PT two hours from home for 6-8

years. He seems more like family now than a physical therapist.

[Guest guest]

Have you ever tried exercising your leg in the water? At one point I was wearing

braces on both legs but after a year of water exercises I was able to throw the

braces away.

Dorothy

[Guest guest]

Hi Dorothy, I swim just about every day.. I spent many years not being able to

walk, this past Feb I received my scs then in July I started swimming at the

YMCA. I have seen a big difference . I can tell when I don't swim much,, The

holidays made it rough to go everyday,,, so starting Fri I'm gonna try to get

back into it..I have been having a real bad pain day today.. I do have an

appointment with my PM next wed... But I'm gonna try to get in Fri..

 hope you have a wonderful new year !!!

               soft hugs

                     T

 lisa

From: Dorothy Ratz <dotratz@...>

Subject: Re: Update

Stimulator

Date: Wednesday, December 31, 2008, 9:41 PM

Have you ever tried exercising your leg in the water? At one point I was wearing

braces on both legs but after a year of water exercises I was able to throw the

braces away.

Dorothy

[Guest guest]

I love water therapy. The only problem is getting there. The nearest

indoor pool is an hour away. During the summer I do exersize in the

pool though. My primary care doctor has an inground pool and I'm

welcome to use it anytime I want.

>

> Have you ever tried exercising your leg in the water? At one point I

was wearing braces on both legs but after a year of water exercises I

was able to throw the braces away.

>

> Dorothy

>

>

>

>

[Guest guest]

Hi Kim,

As I had mentioned, my son-in-law was attacked by 5 men. When the police

arrived, he was unconscious and they thought he was dead. So, I guess this is

procedure, they immediately called out a detective who, after checking the

attack location, met the ambulance at the hospital. He was not dead, and it is

unclear to us whether they had to bring him back several times in the ambulance

and the ER, we are getting conflicting reports. But they did not expect him to

survive and the detective stayed and collected all his possessions & clothing

hoping for evidence if he did not survive. That explains why my daughter was

not contacted for 10 hours (even though I would think the detective would have

looked thru his cell phone and tried some numbers.....he has his home # in there

listed as " home " since my daughter works and he has multiple #'s for her. But

that's behind us. When we arrived at the hospital, he was in Trauma ICU on a

ventilator breathing for

him and they let us in even though visiting hrs were over. His face was

completely unrecognizable, the doctor said his injuries on his face looked

consistent with his already being on the ground and being repeatedly kicked in

the face. They originally thought he had multiple broken bones in his face but

his nose was completely shattered and the pieces were spread throughout is face.

He had plastic surgery Friday. At that point, they were saying they were going

to try to wean him off the ventilator and once removed he only had to stay 12

hours. We all know things don't go as planned, when they would try to lower the

vent he would start to crash. And then over the weekend, they did not tell us

this until Monday, when they would stop the sedation, he was completely

unresponsive, prior to surgery, he would respond with a thumbs up/down to

questions.

I've gone on too long, I know you all don't want to read this. But they did get

him off the ventilator yesterday and he woke up, but there are new problems.

They now say there could be brain damage. Sometimes he can communicate,

sometimes he can't. My daughter just called me about an hour ago and he can not

stand up, he is disoriented, and they are telling her (now) that his brain is

bruised, he has some memory loss and they obviously can't release him until he

can stand. I told her to check to see if he can be transferred to a hospital up

here by Dallas. And to call her insurance to see if they have home nursing

care. I am sick that I had to leave her. She runs out of leave Friday. I

don't know if his cousins have managed to reopen his restaurant. It's just one

thing after another. They have a house payment, all the regular bills we all

have, they can't have no income. She needs to get back to work and her baby

doesn't understand where mommy

is.

The good news, they do know who did it. But I was shocked that they haven't

arrested them. My son-in-law has to identify them and say he wants to press

charges. I think that is ridiculous!!! But, that's the law I guess. And it

turned out to be 5 guys with shaved heads who are members of the Aryan group

down there (they hate everyone who is not like them). My son-in-law is

European. Wrong place, wrong time. But things are changing with him it seems

hourly, so who knows. But I appreciate any and all prayers at this time.

Take Care,

B. in TEXAS

________________________________

From: kimleach <kimleach@...>

Stimulator

Sent: Tuesday, January 6, 2009 1:02:56 PM

Subject: Re: Please remove me from " No Mail "

HI

I was just thinking about you wondering if anyone had heard from you and how

your son in law is doing.

Has his health improved? What kind of prognosis do they give him? I am sorry

that your pain levels have gone up so much. I know that has to be so frustrating

for you. I know it is for me when I need to do something and cannot.

If you want to talk I am here.

Kim L

Please remove me from " No Mail "

Hi All,

I am back, arrived Sunday evening. I had to return, my physical condition

deteriorated so bad down in Beaumont, I just can not watch my 2 year old

grandson without assistance. I had a pain mgt appt yesterday, but canceled

because the roads were bad. I really needed to go (need a shot in both knees

really bad), but I rescheduled for Thursday.

I don't know if anyone is interested in what has transpired in Beaumont, so I

won't go in to details unless you ask. I am more than willing to explain....it

is not good, we (my family here) are in shock for the most part, my daughter is

still in Beaumont, and just when things seem to improve, there is something

new/worse to heap on the problems.

But I am ready to receive emails. I need something to take my mind off the

current problems. I am glad to be back, but I hated to leave my daughter alone.

Take Care,

B. in TEXAS

[Guest guest]

WOW....that is some story, and yes I read the whole thing. I am glad u gave some

details, I was wondering how he was doing. I will be continuing to pray for a

full n speedy recovery.

Deanna

Sent from my iPhone

On Jan 6, 2009, at 11:50 AM, B <muttsmom55@...> wrote:

Hi Kim,

As I had mentioned, my son-in-law was attacked by 5 men. When the police

arrived, he was unconscious and they thought he was dead. So, I guess this is

procedure, they immediately called out a detective who, after checking the

attack location, met the ambulance at the hospital. He was not dead, and it is

unclear to us whether they had to bring him back several times in the ambulance

and the ER, we are getting conflicting reports. But they did not expect him to

survive and the detective stayed and collected all his possessions & clothing

hoping for evidence if he did not survive. That explains why my daughter was not

contacted for 10 hours (even though I would think the detective would have

looked thru his cell phone and tried some numbers.....he has his home # in there

listed as " home " since my daughter works and he has multiple #'s for her. But

that's behind us. When we arrived at the hospital, he was in Trauma ICU on a

ventilator breathing for

him and they let us in even though visiting hrs were over. His face was

completely unrecognizable, the doctor said his injuries on his face looked

consistent with his already being on the ground and being repeatedly kicked in

the face. They originally thought he had multiple broken bones in his face but

his nose was completely shattered and the pieces were spread throughout is face.

He had plastic surgery Friday. At that point, they were saying they were going

to try to wean him off the ventilator and once removed he only had to stay 12

hours. We all know things don't go as planned, when they would try to lower the

vent he would start to crash. And then over the weekend, they did not tell us

this until Monday, when they would stop the sedation, he was completely

unresponsive, prior to surgery, he would respond with a thumbs up/down to

questions.

I've gone on too long, I know you all don't want to read this. But they did get

him off the ventilator yesterday and he woke up, but there are new problems.

They now say there could be brain damage. Sometimes he can communicate,

sometimes he can't. My daughter just called me about an hour ago and he can not

stand up, he is disoriented, and they are telling her (now) that his brain is

bruised, he has some memory loss and they obviously can't release him until he

can stand. I told her to check to see if he can be transferred to a hospital up

here by Dallas. And to call her insurance to see if they have home nursing care.

I am sick that I had to leave her. She runs out of leave Friday. I don't know if

his cousins have managed to reopen his restaurant. It's just one thing after

another. They have a house payment, all the regular bills we all have, they

can't have no income. She needs to get back to work and her baby doesn't

understand where mommy

is.

The good news, they do know who did it. But I was shocked that they haven't

arrested them. My son-in-law has to identify them and say he wants to press

charges. I think that is ridiculous!!! But, that's the law I guess. And it

turned out to be 5 guys with shaved heads who are members of the Aryan group

down there (they hate everyone who is not like them). My son-in-law is European.

Wrong place, wrong time. But things are changing with him it seems hourly, so

who knows. But I appreciate any and all prayers at this time.

Take Care,

B. in TEXAS

________________________________

From: kimleach <kimleach@...>

Stimulator

Sent: Tuesday, January 6, 2009 1:02:56 PM

Subject: Re: Please remove me from " No Mail "

HI

I was just thinking about you wondering if anyone had heard from you and how

your son in law is doing.

Has his health improved? What kind of prognosis do they give him? I am sorry

that your pain levels have gone up so much. I know that has to be so frustrating

for you. I know it is for me when I need to do something and cannot.

If you want to talk I am here.

Kim L

Please remove me from " No Mail "

Hi All,

I am back, arrived Sunday evening. I had to return, my physical condition

deteriorated so bad down in Beaumont, I just can not watch my 2 year old

grandson without assistance. I had a pain mgt appt yesterday, but canceled

because the roads were bad. I really needed to go (need a shot in both knees

really bad), but I rescheduled for Thursday.

I don't know if anyone is interested in what has transpired in Beaumont, so I

won't go in to details unless you ask. I am more than willing to explain....it

is not good, we (my family here) are in shock for the most part, my daughter is

still in Beaumont, and just when things seem to improve, there is something

new/worse to heap on the problems.

But I am ready to receive emails. I need something to take my mind off the

current problems. I am glad to be back, but I hated to leave my daughter alone.

Take Care,

B. in TEXAS

[Guest guest]

It sounds as if your whole family has gone through more than any one should. I

am glad that your son in law is making progress. I am no expert but from what I

remember about recovering from head wounds and brain trauma, people could go

back and forth a bit in the recovery process. Sort of like one step forward two

steps back. I know my dad when he had his brain tumor removed surgically had a

hard time recovering. His behavior would be fine one minute and bizarre the

next. We never know what he was going to do. It made things really hard for all

of us.

I know it has to be so frustarting to your whole family wondering why on earth

anyone would hurt and do to another human being what has been done to him. I

cannot understand why on earth the cops have to wait until he is able to press

charges? That makes NO sense as it sounds like that could be attempted murder

which is a felony in any state and can be prosecuted without the victims

consent.

I will continue to pray and send up healing thoughts for you and your family.

Kim

Please remove me from " No Mail "

Hi All,

I am back, arrived Sunday evening. I had to return, my physical condition

deteriorated so bad down in Beaumont, I just can not watch my 2 year old

grandson without assistance. I had a pain mgt appt yesterday, but canceled

because the roads were bad. I really needed to go (need a shot in both knees

really bad), but I rescheduled for Thursday.

I don't know if anyone is interested in what has transpired in Beaumont, so I

won't go in to details unless you ask. I am more than willing to explain....it

is not good, we (my family here) are in shock for the most part, my daughter is

still in Beaumont, and just when things seem to improve, there is something

new/worse to heap on the problems.

But I am ready to receive emails. I need something to take my mind off the

current problems. I am glad to be back, but I hated to leave my daughter alone.

Take Care,

B. in TEXAS

[Guest guest]

Thank you so much Kim. I agree about the charges.....it was definitely

attempted murder, but they are only calling it aggravated assault!!

Unbelievable. And you're right, my daughter said one time he wakes up and is

calm and knows where he is and what is going on,and other times he wakes up and

is angry and doesn't understand what is going on. He did describe the 5 men to

my daughter and the detective is bringing photos for him to look at and

hopefully identify. But he is so frustrated because he claims it happened in

one place (which was across town and could never have happened) and doesn't

believe the true story. I just talked to my daughter about 10 minutes ago and

she is hoping tomorrow he will show some improvement. I know I will never feel

safe outside alone after dark again.....fortunately that rarely happens with me.

Take Care,

B. in TEXAS

________________________________

From: kimleach <kimleach@...>

Stimulator

Sent: Tuesday, January 6, 2009 6:08:14 PM

Subject: Re: Update

It sounds as if your whole family has gone through more than any one should. I

am glad that your son in law is making progress. I am no expert but from what I

remember about recovering from head wounds and brain trauma, people could go

back and forth a bit in the recovery process. Sort of like one step forward two

steps back. I know my dad when he had his brain tumor removed surgically had a

hard time recovering. His behavior would be fine one minute and bizarre the

next. We never know what he was going to do. It made things really hard for all

of us.

I know it has to be so frustarting to your whole family wondering why on earth

anyone would hurt and do to another human being what has been done to him. I

cannot understand why on earth the cops have to wait until he is able to press

charges? That makes NO sense as it sounds like that could be attempted murder

which is a felony in any state and can be prosecuted without the victims

consent.

I will continue to pray and send up healing thoughts for you and your family.

Kim

Please remove me from " No Mail "

Hi All,

I am back, arrived Sunday evening. I had to return, my physical condition

deteriorated so bad down in Beaumont, I just can not watch my 2 year old

grandson without assistance. I had a pain mgt appt yesterday, but canceled

because the roads were bad. I really needed to go (need a shot in both knees

really bad), but I rescheduled for Thursday.

I don't know if anyone is interested in what has transpired in Beaumont, so I

won't go in to details unless you ask. I am more than willing to explain....it

is not good, we (my family here) are in shock for the most part, my daughter is

still in Beaumont, and just when things seem to improve, there is something

new/worse to heap on the problems.

But I am ready to receive emails. I need something to take my mind off the

current problems. I am glad to be back, but I hated to leave my daughter alone.

Take Care,

B. in TEXAS

[Guest guest]

Dear ...

I am so so sorry to hear about your son in law. I thought that your

previous mail about what happened in your town was due to a weather

problem...or

something like that...I haven't been online due to my own family issues.

I am so, so sorry that your daughter is going through this nightmare. How

is your son-in-law doing now? Dear God....what a horrible and horrendous

thing to happen. Some people (if you can call them humans) just do not

understand how precious life is.

I will keep you, your daughter and of course your son in law in the prayers

of my church. From more folks to God's ears....it has to help.

Please know that I am here if you need to chat. I know that I can't help

you too much, but please konw that I am here with some big shoulders and two

great ears.

Hang in.

Love,

Kathy G.

Co-Owner

(215) 783-9066

**************New year...new news. Be the first to know what is making

headlines. (http://www.aol.com/?ncid=emlcntaolcom00000026)

[Guest guest]

that is so cool of your doctor!!!! Great story when we are hearing of such

horror stories about some other doctors!!!!

**************New year...new news. Be the first to know what is making

headlines. (http://www.aol.com/?ncid=emlcntaolcom00000026)

[Guest guest]

? does the area you daughter and son-in-law live? have a financial support

for victims of crime? I know in some places there are groups that will help

victims and their families with things like utilities and food??? its worth a

try to look

? lisa r

Re: Please remove me from " No Mail "

HI

I was just thinking about you wondering if anyone had heard from you and how

your son in law is doing.

Has his health improved? What kind of prognosis do they give him? I am sorry

that your pain levels have gone up so much. I know that has to be so frustrating

for you. I know it is for me when I need to do something and cannot.

If you want to talk I am here.

Kim L

Please remove me from " No Mail "

Hi All,

I am back, arrived Sunday evening. I had to return, my physical condition

deteriorated so bad down in Beaumont, I just can not watch my 2 year old

grandson without assistance. I had a pain mgt appt yesterday, but canceled

because the roads were bad. I really needed to go (need a shot in both knees

really bad), but I rescheduled for Thursday.

I don't know if anyone is interested in what has transpired in Beaumont, so I

won't go in to details unless you ask. I am more than willing to explain....it

is not good, we (my family here) are in shock for the most part, my daughter is

still in Beaumont, and just when things seem to improve, there is something

new/worse to heap on the problems.

But I am ready to receive emails. I need something to take my mind off the

current problems. I am glad to be back, but I hated to leave my daughter alone.

Take Care,

B. in TEXAS

[Guest guest]

Hey !

I am so sorry that you have so much on your plate between your daughter and

you mom. I will certainly keep them both in my thoughts and prayers,

especially tomorrow for your Mom's surgery.

Know that I am here for you. I know the wonderful feeling that I got from

just being able to vent to some of my buddies here in the group. I think that

sometimes it is easier for us to chat with eachother here, then with our

loved ones, as we don't want to worry our loved ones more and we can truly

relate to one another's pain and frustration, you know?

Hang in, .

Gentle hugs to you an all.

I wish for us all pain free days and sleep filled nights.

Love,

Kathy G.

Group Co-Owner

**************New year...new news. Be the first to know what is making

headlines. (http://www.aol.com/?ncid=emlcntaolcom00000026)

[Guest guest]

...you are most welcome. I only wish tht I could do more for you.

xo

kathy g.

**************New year...new news. Be the first to know what is making

headlines. (http://www.aol.com/?ncid=emlcntaolcom00000026)

[Guest guest]

My daughter lives by Dallas. Her husband was in Beaumont because he had a

cousin there with a restaurant and the cousin wanted to start another one

because his was doing so well. My son-in-law had tried one up here but it

failed. So he went down there to start a new restaurant. So he has an

apartment down there, but they still have a house up here. I don't know what is

available down there or even up here for that matter. My daughter is a teacher

and I doubt they would qualify for assistance. I mean, they need it, because

they are supporting 2 households right now, but you know how those agencies

are....if you have an income they don't want to help you. I'm waiting to hear

from her, she was going to check about getting him back up here so she could go

to work, but I don't know if they would allow him to change hospitals or how

they would get him up here. She just doesn't want to leave him. I spoke with

her last night and told her she might not

have any choice. I don't mean to sound cruel, but her 2 yr old is having a

rough time with this whole thing and she needs to work. I told her if they

couldn't release him because more problems keep popping up, she is going to have

to explain to him when he is having a lucid moment that she has to leave. We

all do things that are difficult, things we don't want to do, but we have to do

what we need to survive. As far as I know, he is no longer in danger of

passing, and her baby needs her AND she needs to get back to work. I expect to

hear today what she plans to do. It's looking like she is going to have her

hands full though. My mother has her surgery tomorrow on a tumor which they are

saying is 50/50 chance of cancer. My stimulator is acting up. Where is it all

going to end?

Take Care,

B. in TEXAS

________________________________

From: " crittersrose87@... " <crittersrose87@...>

Stimulator

Sent: Tuesday, January 6, 2009 10:59:07 PM

Subject: Re: Update

? does the area you daughter and son-in-law live? have a financial support

for victims of crime? I know in some places there are groups that will help

victims and their families with things like utilities and food??? its worth a

try to look

? lisa r

Re: Please remove me from " No Mail "

HI

I was just thinking about you wondering if anyone had heard from you and how

your son in law is doing.

Has his health improved? What kind of prognosis do they give him? I am sorry

that your pain levels have gone up so much. I know that has to be so frustrating

for you. I know it is for me when I need to do something and cannot.

If you want to talk I am here.

Kim L

Please remove me from " No Mail "

Hi All,

I am back, arrived Sunday evening. I had to return, my physical condition

deteriorated so bad down in Beaumont, I just can not watch my 2 year old

grandson without assistance. I had a pain mgt appt yesterday, but canceled

because the roads were bad. I really needed to go (need a shot in both knees

really bad), but I rescheduled for Thursday.

I don't know if anyone is interested in what has transpired in Beaumont, so I

won't go in to details unless you ask. I am more than willing to explain....it

is not good, we (my family here) are in shock for the most part, my daughter is

still in Beaumont, and just when things seem to improve, there is something

new/worse to heap on the problems.

But I am ready to receive emails. I need something to take my mind off the

current problems. I am glad to be back, but I hated to leave my daughter alone.

Take Care,

B. in TEXAS

[Guest guest]

I appreciate the prayers. I agree, the more the better. Thank you.

Take Care,

B. in TEXAS

________________________________

From: " KGAVI@... " <KGAVI@...>

Stimulator

Sent: Wednesday, January 7, 2009 2:33:33 AM

Subject: Re: Update

Dear ...

I am so so sorry to hear about your son in law. I thought that your

previous mail about what happened in your town was due to a weather

problem...or

something like that...I haven't been online due to my own family issues.

I am so, so sorry that your daughter is going through this nightmare. How

is your son-in-law doing now? Dear God....what a horrible and horrendous

thing to happen. Some people (if you can call them humans) just do not

understand how precious life is.

I will keep you, your daughter and of course your son in law in the prayers

of my church. From more folks to God's ears....it has to help.

Please know that I am here if you need to chat. I know that I can't help

you too much, but please konw that I am here with some big shoulders and two

great ears.

Hang in.

Love,

Kathy G.

Co-Owner

(215) 783-9066

************ **New year...new news. Be the first to know what is making

headlines. (http://www.aol. com/?ncid= emlcntaolcom0000 0026)

[Guest guest]

Hey Holly!!

I am so sorry to hear about your problems, hon. I am so glad that you are a

member with us.....our group is just so great....so many caring,

compassionate folks here....sounds like a cliche...but it is like a family.

Mike and I co-Own this group. Mike is the wonderful founder. He is so

caring and just a great guy. My name is kathy G. and I will do whatever I can

for any of the memers...aka friends of the group. I have had RSD now for 26

years. I have it in both legs and arms, and back. The left leg is the worst

by far. I have two stims, and am seriously considering yet another one

for my left leg. I also have had a pain pump, that while was implanted and

workin

I am sorry that you get those headaches and nausea.....I will keep you in my

prayers.

Hang in, and please know that I am always here if you need to chat...need an

ear or a strong shoulder.

Take care!

kathy G.

Co-Owner

**************A Good Credit Score is 700 or Above. See yours in just 2 easy

steps!

(http://pr.atwola.com/promoclk/100000075x1215855013x1201028747/aol?redir=http://\

www.freecreditreport.com/pm/default.aspx?sc=668072%26hmpgID=62%26bcd=De

cemailfooterNO62)

[Guest guest]

HI, Kim!

I am sorry that you had to endure the rudenss and unprofessionalism of yet

another uncaring, heartless and moranic doctor. It really gets me so angry

since there are so many loving and wonderful docs out there....and

unfortunately just as many idiots who have a diploma....who actually had the

nerve to

recite the medical oath " to first do no harm " ..what a damned joke to some of

them!

you really must feel lied to. I am sorry for that...God knows that we all

have enough going with the physical pain we must endure day to day....we sure

do not need nor desire to have our " healers " be verbally and emotionally

abusive to us!!!!

hang in, Kim. When I read your answers to folks posts, or read you heart

-warming and touching letters to those of us having a bad day...it really makes

me happy and smile...you are a real sweetheart. You certainly deserve

BETTER than this, Kim.

We are all here for eachother....no matter how we are feeling....we all try

to make the other person feel better...and you have a real knack for it, Kim.

My mom had the same problem with meds that you are having now...I will ask

her what she did to get it resolved.

OMG...You are so right about the cold.....brrrrr....It is freezing...which

is the worst for us right now...isnt't it?!?!?! Try to stay toasty warm and

comfy cozy!

Gentle hugs to you and all

kathy G.

Group Co-Owner

**************A Good Credit Score is 700 or Above. See yours in just 2 easy

steps!

(http://pr.atwola.com/promoclk/100000075x1215855013x1201028747/aol?redir=http://\

www.freecreditreport.com/pm/default.aspx?sc=668072%26hmpgID=62%26bcd=De

cemailfooterNO62)