Guest guest Posted June 2, 2001 Report Share Posted June 2, 2001 Hi , I was on MTX from age 16 to about age 28. It DOES slow the progression of the disease. I stopped it bcs I could no longer deal with the side effects. Just feeling flu like every week. I was on a dose of 10mg a week. I think I went as high as 15 or 20 on a few occasions. ~Rainy ----- Original Message ----- From: <cwade@...> < > Sent: Wednesday, May 23, 2001 9:08 AM Subject: [ ] Re: Kieth > a, > I know this message isn't for me, but I was curious. You said you > were on a low dose of MTX (7.5 mg). My Rheumy told me that the > highest dose of MTX was 9 the lowest was 3. Is she not telling me > the truth. She also said that she doesn't want to use Enbrel or > Remicade because it is too new of a drug, the side effects are too > great, and they just don't know enough about the drug. My Mom says I > should find another doctor. She said the MTX doesn't prevent damage > and that I shpuld ne on Remicade or Enbrel. Now I am not sure > whether or not I am getting the treatment I need. > > > > > Kieth, > > How is the mtx going? Are you still having problems with > > sores? Are they healing any better? I'm still on a really > > low dose (7.5mg) and haven't had any noticeable problems. > > My liver enzymes elevated immediately, but hopefully the > > increase in folic acid will help. I go next week to see > > the rheumy, so I'll find out if the increased folic acid > > worked. I hope your doctor gave you something to stop the > > itching. You can get an infection from the open sores, and > > that is the last thing you need. > > Hope you are pain free. > > a > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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