Re: The New Fibromyalgia Remedy

[Guest guest]

>

this is what carla sent us by Bella online you might be up to

something with this. read below. I Copied nad psted it. hugs heidi

Hi everyone,

I receive a number of emails regarding solutions to fibromyalgia.

This week, I

reviewed the book, The Fibromyalgia Solution. I have found the

information

therein to be the solution for me, and maybe you will too.

Enjoy,

Here's the latest article from the Fibromyalgia and CFS site at

BellaOnline.com.

The Fibromyalgia Solution Book Review

Book Review: The Fibromyalgia Solution by Dryland, MD

http://www.bellaonline.com/articles/art29965.asp/zzz

> Has anyone read the book by Dr. Dantini called, The New

> Fibromyalgia Remedy? Dr. Dantini suffered from fibromyalgia and

CFS.

> He believes that the cause of Fibro and CFS are four common

viruses:

> Epstein-Barr, cytomegalovirus, herpesvirus 6, and parvovirus. He

also

> suspects delayed food allergies. Has had their Fibro treated by

going

> on antivirals? I would appreciate hearing from you.

> Thanks,

>

>

[Guest guest]

I went to amazon.com and read the reviews on this book, The

Fibromyalgia Solution, By Dr. Drylan. It received 3 stars of

affermation. It sounds like the drug mentioned has lots of bad side

effects. Drugs are drugs! They are foreign to our body and

therefore are body tries to reject them with side effects. The one

review stated she was taking Lyrica and tolerating it. If she can

tolerate Lyrica, I can't imagine what the side effects were of the

Meripex. (she was a patient of Dr. Drylan when put on Mirepex) This

lady was later in the clinical trials of the Milcinipan (anti-

depressant), a new drug being tested for FMS. She has Chronic

Myofascial Pain as I do. She became pain free while in the trials

and after the trial ended her symptoms came back. She said that

Milcinipan should be available in October.

Dopamine may be the problem. I feel it is nuerological. I am taking

the low dose Naltrexone, which causes the body to make endorphins. I

am doing well. Maybe this LDN also affects Dopamine? I have

absolutely no side effects from the LDN. I can't say that when I was

taking Lyrica.

Elaine

> >

>

> this is what carla sent us by Bella online you might be up to

> something with this. read below. I Copied nad psted it. hugs heidi

>

>

>

>

>

[Guest guest]

>My girlfriend is on Milcinipan and loves it .told me it helps her bi-

polar and depression.

Her Shrink is already giving it to her too.

My mom in Germany were on the clinical trials for this when we met

her in 1983 in Germany.

Her Dr told me she Had Fibroitis the Milcinipan can help take away

the pain.

as for now I am only one one drug for my Fibro :)Gabapentin. 300 mg

one inAm and one in afternoon and 2 at 10 p.m. with my liptor. Got

of of elavil for sleep so what i do is warm bath or shower at 9-9:30

hot cup of chamomile tea at 10 P.M. with my meds two calcium with

vitamin D3 in along with 800 mg of magnesium and I sleep with no

more waking up so much to go to the bathroom.Sometimes through the

night. Yet thuogh i still wake up hurting. But not as many heart

palpitations.

But yes what works fro one person might not work fora another on

either.

Next to Milcinipan my girlfriend is also on Cymbalta too.

Hugs Heidi

> I went to amazon.com and read the reviews on this book, The

> Fibromyalgia Solution, By Dr. Drylan. It received 3 stars of

> affermation. It sounds like the drug mentioned has lots of bad

side

> effects. Drugs are drugs! They are foreign to our body and

> therefore are body tries to reject them with side effects. The one

> review stated she was taking Lyrica and tolerating it. If she can

> tolerate Lyrica, I can't imagine what the side effects were of the

> Meripex. (she was a patient of Dr. Drylan when put on Mirepex) This

> lady was later in the clinical trials of the Milcinipan (anti-

> depressant), a new drug being tested for FMS. She has Chronic

> Myofascial Pain as I do. She became pain free while in the trials

> and after the trial ended her symptoms came back. She said that

> Milcinipan should be available in October.

>

> Dopamine may be the problem. I feel it is nuerological. I am

taking

> the low dose Naltrexone, which causes the body to make endorphins.

I

> am doing well. Maybe this LDN also affects Dopamine? I have

> absolutely no side effects from the LDN. I can't say that when I

was

> taking Lyrica.

>

> Elaine

>

>

>

> > >

> >

> > this is what carla sent us by Bella online you might be up

to

> > something with this. read below. I Copied nad psted it. hugs heidi

> >

> >

> >

> >

> >

>

[Guest guest]

Here is the link to his study, A pdf file. I have not read over the

file yet.

Reduced Presynaptic Dopamine Activity in Fibromyalgia

Syndrome Demonstrated With Positron Emission Tomography: A

Pilot Study

http://www.fms-sas.co.uk/PDF/Wood_JPain_2007.pdf

I am also going to add this into the file section on the home page,

listed as (Wood_JPain_2007) .

" Live well and feel good " ...

> >

>

> this is what carla sent us by Bella online you might be up to

> something with this. read below. I Copied nad psted it. hugs heidi

>

>

>

>

> Hi everyone,

>

> I receive a number of emails regarding solutions to fibromyalgia.

> This week, I

> reviewed the book, The Fibromyalgia Solution. I have found the

> information

> therein to be the solution for me, and maybe you will too.

>

> Enjoy,

>

>

>

> Here's the latest article from the Fibromyalgia and CFS site at

> BellaOnline.com.

>

> The Fibromyalgia Solution Book Review

> Book Review: The Fibromyalgia Solution by Dryland, MD

>

> http://www.bellaonline.com/articles/art29965.asp/zzz

> > Has anyone read the book by Dr. Dantini called, The New

> > Fibromyalgia Remedy? Dr. Dantini suffered from fibromyalgia and

> CFS.

> > He believes that the cause of Fibro and CFS are four common

> viruses:

> > Epstein-Barr, cytomegalovirus, herpesvirus 6, and parvovirus. He

> also

> > suspects delayed food allergies. Has had their Fibro treated by

> going

> > on antivirals? I would appreciate hearing from you.

> > Thanks,

> >

> >

>

[Guest guest]

Hi ,

I am going to Dr. (fmtlc.com) in Sacramento, and I am on a high

dose of Valtrex (antiviral) right now. I'm in month two of doing six

months of it. (1 gram twice a day) They have had good success with

it, and I tested at a high titer load for most of those viruses below

plus a few others. I am going through a bad " die off " reaction since

I started it, though, so it is a rough road. I am having hope because

I am told that this " feeling worse " is a good sign that it will

eventually get better. I have been really sick this month, though..it

gets worse before it gets better.

He starts his patients off initially trying to balance the methylation

cycle before he treats with antivirals. These are supplements that

everyone should be on right now: Folapro (a form of folate that our

bodies can process because we cannot process " normal " folate well),

methylcobalamin sublinguals, glutathione 40% cream that you rub on

your foot, it is compounded at certain pharmacies (or SAM-e can be

substituted), molybdenum, and phosphatidyl serine.

Take care, and let me know if you have any questions.

Jen

>

> Has anyone read the book by Dr. Dantini called, The New

> Fibromyalgia Remedy? Dr. Dantini suffered from fibromyalgia and CFS.

> He believes that the cause of Fibro and CFS are four common viruses:

> Epstein-Barr, cytomegalovirus, herpesvirus 6, and parvovirus. He also

> suspects delayed food allergies. Has had their Fibro treated by going

> on antivirals? I would appreciate hearing from you.

> Thanks,

>

>