Guest guest Posted June 28, 2008 Report Posted June 28, 2008 Hi I have never heard of SAPHO, but I do have cea which is very much like acne. I was first dx with Reiter's and Spondy in 1986 when I was 38. ThenI developed what looked like acne during my mid 40's and when we moved here to Tucson I was about 48 and the acne turned out to be cea. My derm doc said I was her 2nd worst case she had ever seen. It was difficult to treat but now it is under control and only flares when I am under extreme stress or in a major flare. I take Metrogel lotion at night and on worst days take Westcort or Elocon creams. I see my derm doc 2 to 3 times a year as my skin is always up to something. Hope you can get some good relief on yours. God bless Priscilla Quote
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