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>Did anyone else have trouble breast feeding her child? I am now curious if

>this is a common problem among our children. Becky

My daughter would not breast feed. I now think it was a sensory overload

problem, probably caused or exacerbated by a dairy intolerance. I did

everything to get her to breast feed to no avail. The books all talked

about how babies would stare into mother's eyes, but my daughter made brief

eye contact, then looked away.

K.

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K,

After successfully breastfeeding the previous 2 children my now 4.5 y/o

AS son REFUSED to breastfeed. He would arch his body, cry and I remember

thinking that it must look like child abuse when I was attempting to

breastfeed him. Additionally he was born with two of his baby teeth (which

he still has) and I was in grad school SO I stopped and he did fine with a

bottle. I have always felt this was our first real symptom of his AS.

LD

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Hi Lynn!

My son Dean, who turned three on 8/5 was diagnosed with PDD-NOS in August.

He developed normally... language, very cuddly, good eye contact, he knew

most of his ABC's and then at 27 months started losing his speech and acted

as if deaf. It has been the most heartbreaking thing to see him so smart

and alert and then lose it. I know it must be terrible to have a child born

with these characteristics also, but to have them and then lose them... well

it's just so cruel. Dean is doing very well now, he has started talking

again! Not in full sentences, but he lets us know what he wants. He also

is alot more social and his eye contact is ALOT better. We are doing

floortime, and a modified ABA( which we started today!) He also goes to

speech, and has an OT that is working on his sensory integration problems.

How is your son doing and what therapies have you tried? I am trying to

get all of the paperwork filled out and bloodwork done to see Dr. Goldberg.

We live in Mississippi, so it won't be an easy task, but it is our next

step. Have you seen him? Sorry this is so long.. By the way, I didn't

breast feed any of my three sons, and Dean is the only one with problems.

Thanks !

Maranie

Re: Re: Breastfeeding

> From: LMMLYNN@...

>

> Hi All,

> I have been reading the list for the last month. This is the first time I

> have responded. My child has been diagnosed PDD-Atypical. He developed

> normally for the first 2 1/2 year of his life. He had language, reciting

> ABC's, Colors, and counting 1 to 10. Then he regressed to no language and

> autistic characteristics. I just thought that it would be of interest for

> you to know that he sucessfully and lovingly breastfed for 8 months. It

was

> a wonderful time for both of us. Did anyone else's child on the list

develop

> normally then regress.

> Lynn

>

>

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Hi All,

I have been reading the list for the last month. This is the first time I

have responded. My child has been diagnosed PDD-Atypical. He developed

normally for the first 2 1/2 year of his life. He had language, reciting

ABC's, Colors, and counting 1 to 10. Then he regressed to no language and

autistic characteristics. I just thought that it would be of interest for

you to know that he sucessfully and lovingly breastfed for 8 months. It was

a wonderful time for both of us. Did anyone else's child on the list develop

normally then regress.

Lynn

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Yes--

My child developped normally except he was hyperirritable--I took him to a

Brazelton trained developmental pediatrician at age 14 mos. because his sleep

was erratic. Otherwise he was ahead with physical milestones, and age

appropriate with everything else, including language, UNTIL AGE 2 1/2 WHEN HE

WAS WEANED--then he fell apart and regressed . Ultimately he was diagnosed

with autism.

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my son developed normally until age 13 months when he suddenly stopped

talking,(he had been saying 2-3 word sentences, like go bye-bye, time to eat,

lets play, ) stopped making eye contact, stopped playing. He was diagnosed

with autism at age 3. The youngest of four children, all breastfed until age

2, he was breastfed until age 3.

loujeann

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i forgot to mention that my normal, typical, breastfed children all are

gifted, on the accelerated program at school, and extremely beautiful just

like my autistic son.

Breastfeeding contributes to all of this, i am sure.

loujeanne

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Lynn,

Our daughter also progressed normally and lost everything. At the point

when my wife thought something was wrong, she asked our pediatrician if

Jessie was autistic and he responded that there was nothing autistic

about our daughter.

She did have ear infections which required double doses of antibiotics

to clear up. I believe she had/has candidas induced autism and have just

recently taken her to she Dr. Goldberg. I have a new daughter, although

she is not normal yet.

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Good Luck-it appears you are doing the right therapies-they worked for us.

Goldberg is the missing piece-I would highlt recommend him. Floor time is

really good-it made a real difference with our child. The variety of

therapies is worth a lot, I think. Stick with what is working!.

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Hi Lynn. Yes, my son (Aspergers) was breastfed for almost 20 months. It

was also wonderful. He began regressing in his attention and what speech

he had (he had numbers, colors and some counting also) after a series of

viral infections at 18-24 months. My older NT daughter had breastfed for 1

year and quit when I was about 4 months pregnant with my son. Another

success story for breasfeeding. -- J.Ross

>a wonderful time for both of us. Did anyone else's child on the list develop

>normally then regress.

>Lynn

>

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I breastfed my son (PDD/NOS) for only 4 months. He began to regress around

16-18 months with speech and attention. He has improved somewhat with

weekly speech therapy, however, much of his speech is garbled and

unintelligible (except to him!)

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Yes, my son was fine until chronic ear infections started at 7 mos. He was

breastfed (as were all 4 of my kids) for nearly 2 years; however, I did

start supplementing around the time the ear infections started, and in my

opinion the dairy caused the problems with some sort of allergic reaction.

Anyway, he didn't develop language, and quit looking at people and started

doing things over and over again. He also quit eating solid food at about

20 months after feeding himself fine for several months - it was really

strange. He has now had 3 sets of ear tubes. With aggressive intervention

with all kinds of therapy and dietary measures his autistic behaviors

improved; he is in Kindergarten now with no aid and is doing so well that

the teacher has him in a 1st grade reading class. His last psychological

tests still diagnosed PDD-NOS, and his IQ is 141; he is able to make it so

far in regular school. So I don't know how he will be in the future, he

seems to be completely fine at times, explosive at other times, a bit of the

rituals and other behaviors remain. He has some problems with pragmatics

but really, I feel so blessed compared with what other parents on this list

are dealing with.

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Dear Listmates:

Although breastfeeding is a factor- it can't be the only or in my opinion, a

major factor. I am the mother of 5 year old twin boys. I attempted to

breastfeed both of them- it was quite a feat. Especially since my one son would

not latch on. So, I pumped breast milk for him and breastfed the other. This

lasted about 1 ½ months- it was too painful (as they were c-section and I was in

agony) and needed to take painkillers. So, the breastfeeding stopped. The

child who happily latched on and got the most benefit developed typically until

about age 2 ½ to 3. He was diagnosed after a severe regression at age 3 ½ with

PDD:atypical autism. HIs twin brother, is still developing typically (age 5).

They are fraternal twins so the genetic aspect of autism interests me greatly.

The fact that they were both in the same " environment " at the same time, rules

out, at least in my mind, those factors unless there is a genetic predisposition

that only my one child has ( or, has severe enough) to result in autism. I

thought this might be of interest.

>>> " the adams' " <adams6@...> 09/28/99 03:46PM >>>

From: " the adams' " <adams6@...>

Hi Lynn!

My son Dean, who turned three on 8/5 was diagnosed with PDD-NOS in August.

He developed normally... language, very cuddly, good eye contact, he knew

most of his ABC's and then at 27 months started losing his speech and acted

as if deaf. It has been the most heartbreaking thing to see him so smart

and alert and then lose it. I know it must be terrible to have a child born

with these characteristics also, but to have them and then lose them... well

it's just so cruel. Dean is doing very well now, he has started talking

again! Not in full sentences, but he lets us know what he wants. He also

is alot more social and his eye contact is ALOT better. We are doing

floortime, and a modified ABA( which we started today!) He also goes to

speech, and has an OT that is working on his sensory integration problems.

How is your son doing and what therapies have you tried? I am trying to

get all of the paperwork filled out and bloodwork done to see Dr. Goldberg.

We live in Mississippi, so it won't be an easy task, but it is our next

step. Have you seen him? Sorry this is so long.. By the way, I didn't

breast feed any of my three sons, and Dean is the only one with problems.

Thanks !

Maranie

Re: Re: Breastfeeding

> From: LMMLYNN@...

>

> Hi All,

> I have been reading the list for the last month. This is the first time I

> have responded. My child has been diagnosed PDD-Atypical. He developed

> normally for the first 2 1/2 year of his life. He had language, reciting

> ABC's, Colors, and counting 1 to 10. Then he regressed to no language and

> autistic characteristics. I just thought that it would be of interest for

> you to know that he sucessfully and lovingly breastfed for 8 months. It

was

> a wonderful time for both of us. Did anyone else's child on the list

develop

> normally then regress.

> Lynn

>

>

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  • 1 year later...

> hi all,

>

> I have a friend who is pregnant with her 3rd child and due soon.

Her second

> child is autistic. She formula fed both her sons. Her child with

autism

> showed a regression after 15 months so she is a strong believer in

the

> vaccine theory.

>

> She now wants to breastfeed this third child but would also like a

plan for

> formula if her attempts are not successful. She has started to

investigate

> this and now has learned that some formulas contain mercury. I also

pointed

> out that her own mercury in her fillings could pass through the

breastmilk

> although I am a strong supporter of breastfeeding.

>

> She will avoid thimerisol and all vaccines with this third child but

I don't

> think she would consider having her fillings removed . Are there

any studies

> that can quantify the mercury in breastmilk with a mother who has

mercury

> fillings?

There are. Hopefully Bernie will post them for you. If not he did it

on the amalgam listserver 6 months or so ago.

On balance she is better off breast feeding, and better off not

removing the amalgams until after she is done breast feeding.

If she has to use formula the major lack is omega 3 fatty acids, so

some fish or flax oil can be mixed in.

> Is there mercury in formula? Are some forumulas better then

> others? Any advice I can pass along would be helpful.

>

> tha

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  • 11 months later...

Roxanne,

My daughter never learned to breastfeed. I am convinced now that it was due

to her apraxia. I did use a pump because I wanted her to have it versus

formula. Had I known about apraxia at that point a red flag would have been

raised. This was my first child, so I was very inexperienced but, I was

doing every thing that the lactation specialist told me to do to no avail.

Thank you,

Sheila

>From: " garflick " <rflick@...>

>Reply-

>

>Subject: [ ] breastfeeding

>Date: Fri, 01 Feb 2002 17:08:05 -0000

>

>My baby is one month old. this is my third child but the first one I

>could nurse. I'm having horrible sore nipples and pain. the ibclc I

>went to said I had to go a speech path b/c from what she saw I was

>doing everything right. the speech path has given me oral motor

>activities to do . I still have the pain though. has anyone else

>had to do this or have any suggestions? I haven't had to pump yet

>and give a bottle but I have to take a motrin every 6 hours from the

>pain.

>

>

>my second child also did this and I quit and bottlefed her. she has

>been diagnosed with apraxia and is in speech. I've been told that if

>I do the oral motor exercises with baby number 3 and continue bfing

>that her speech will develop normally.

>

>Roxanne

>

>

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---

Have you tried Lansinoh (can't remember if that's how you spell it) I

sent my husband to CVS he asked the pharmacist and its what he

recommended it worked great. I tried to breastfeed my oldest

child ,Sam, and he just couldn't latch on, I thought it must be me.

But 13 months later had my daughter and she breast fed without any

effort. Later when Sam was diagnosed with apraxia it explained his

inability to breast feed. He didn't have the oral muscle strength

reqiured to be successful. Don't assume (or let someone tell you)

your other child has apraxia from being bottle fed, I'm sure there

are plenty of breast fed children with speech disorders.Good luck.

In @y..., " garflick " <rflick@h...> wrote:

> My baby is one month old. this is my third child but the first one

I

> could nurse. I'm having horrible sore nipples and pain. the ibclc

I

> went to said I had to go a speech path b/c from what she saw I was

> doing everything right. the speech path has given me oral motor

> activities to do . I still have the pain though. has anyone else

> had to do this or have any suggestions? I haven't had to pump yet

> and give a bottle but I have to take a motrin every 6 hours from

the

> pain.

>

>

> my second child also did this and I quit and bottlefed her. she has

> been diagnosed with apraxia and is in speech. I've been told that

if

> I do the oral motor exercises with baby number 3 and continue bfing

> that her speech will develop normally.

>

> Roxanne

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Roxanne,

I feel for you mine bleed with my daughter. With my son who has apraxia they

were very sore. I nursed him until he was two. Then came the problem nurser you

would think with all the experience I had it would be easy. Not. I would not of

made it had it not been for the help I got from the local La Leche League

Leaders. They are great have lots of experience helping moms and can ask other

leaders for ideas if you are still having problems. With my daughter every thing

looked fine but she was turning her tongue up and that was the problem. She

appeared to be latched on fine. The leader was able to watch as she was latching

on and caught what she was doing. My advice would be to call your local La Leche

League you can also look on line at www.lalecheleague.org to find a leader in

your area. You may even try to see if the hospital has a number for La Leche

League. Do not give up it does get better and a lot easier. Also the benefits

are worth it and as the speech path it wll help with the muscles and jaw

development. Also get some lanolin put it on your nipples after nursing it is

safe for the baby and will help the nipples heal. Some walmarts have it in the

baby section under the name " Lanisoh " I can not remember how to spell it. Sorry

or again check with the hospital.

Good Luck

Robyn

[ ] breastfeeding

My baby is one month old. this is my third child but the first one I

could nurse. I'm having horrible sore nipples and pain. the ibclc I

went to said I had to go a speech path b/c from what she saw I was

doing everything right. the speech path has given me oral motor

activities to do . I still have the pain though. has anyone else

had to do this or have any suggestions? I haven't had to pump yet

and give a bottle but I have to take a motrin every 6 hours from the

pain.

Roxanne

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Hi Roxanne! Don't give up on the breastfeeding!!! First, as one of the

posters already said, run don't walk and get " Lansinoh " which is pure

lanoilin to put on your nipple area for relief. If you can't find it,

ask your pharmacy if they have pure lanolin.

I have breastfed all 3 of my children and my last is the one with the

speech problems and other issues. When I breastfed my first, he

sucked really hard and I couldn't stand the pain. My pediatrician

told me to first get the lanolin and said it was safe for the baby. I

would put it on all the time and before feedings. I also took hot

showers to relieve the pain. Also, if you let air get at that area it

will help too. The dr. also told me to make sure enough of the

nipple and surrounding area get into the baby's mouth-this was a

something that my third baby who has possible apraxia, had a problem

with and she also had a soft suck.

My first son also preferred one breast over the other so that was the

one getting sore, while the other one was getting hard from

nonfeeding; so I had to alternate more.

Now, with my 3rd, my daughter with the soft suck, her pediatrician

who was different from the 1st, wanted me to supplement with formula

because he didn't think she was gaining enough weight. I got the pump

by was really bad at it and I refused to supplement. I worked really

hard at it. I found that if I kept on alternating breasts and tried

to expel milk by hand first so it was easier for her to suck, then it

got better and as she got stronger, her suck improved. I don't know

if your child's suck is soft too or if it's just that she is sucking

hard like my first child and you need the lanolin to get used to it.

DO NOT GIVE UP!!! YOU CAN DO THIS!! Please feel free to email me at

aigjr@... if you wish. Also, La Leche is a great breastfeeding

support place and you can call them at 1 800 la leche.

Hang in there, Carolyn

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Roxanne

With regard to pain from cracked nipples an 'old wives tale' from the UK is

to put white or green cabbage leaves (straight from the fridge is best)

inside your brassiere! I'm not kidding. My sister-in-law & I both had baby

girls within days of each other and we used to sit around looking like we'd

had accidents with the salad cart. LOL We were both given this advice from

our midwives and lots of our friends have used it too

London Uk

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yes I'm using lansinoh from what I understand her lip and jaw muscles are

weak so she is overcompensating by sucking harder with her tongue and

clamping down. with my apraxic child I had worse pain and had to stop

nursing to let my nipples heal. Iwas also sent to a speech path and that is

when they told me she would have speech problems later in life if I didn't

do the oral motor exercises for her when she was a baby. I didn't do them

due to being overwhelmed (had a three year old boy, plus I was in so much

pain due to mastitis and thrush). then of course later the child was

delayed and I found out she was apraxic.

the speech path told me that when the parents do the oral motor activities

in the new born period they don't' have to come back later for speech

therapy.

Roxanne

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  • 2 years later...
Guest guest

adam, you are right on, i couldn't have said it better. :-)

On Thu, 17 Jun 2004 14:06:58 -0700 " ADAM KINCH BRANDY KINCH "

<bakinch@...> writes:

Hi, I've never posted here before, just been lurking for a while. I was

just noting the breastfeeding discussion and the way I see it, nutrition

itself is only a tiny part of how you choose to feed your child. There

are a huge range of other issues involved, like attachment, proper

formation of teeth, reduced likelihood of breast cancer for mom,

antibodies that pass from mom to babe etc. that make breastfeeding an

obvious win over bottles even if mama's diet is a little lacking. From a

strict nutritional standpoint, I think there are slight differences, but

humans can thrive with less than perfect nutrition, and the other reasons

for breastfeeding are so important. No brainer.

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Guest guest

Here, here!!

breastfeeding

Hi, I've never posted here before, just been lurking for a while. I was just

noting the breastfeeding discussion and the way I see it, nutrition itself is

only a tiny part of how you choose to feed your child. There are a huge range of

other issues involved, like attachment, proper formation of teeth, reduced

likelihood of breast cancer for mom, antibodies that pass from mom to babe etc.

that make breastfeeding an obvious win over bottles even if mama's diet is a

little lacking. From a strict nutritional standpoint, I think there are slight

differences, but humans can thrive with less than perfect nutrition, and the

other reasons for breastfeeding are so important. No brainer.

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