Re: Speech Theraphy / Emotional Support

[Guest guest]

Hi Yin Hoe...

You may wish to contact the Scoliosis Association

(http://www.scoliosis-assoc.org). They are an umbrella organization for

support groups around the world.

I don't know about other support groups, but I've had no luck in getting

adolescents and teens to attend my meetings. At the most, I've had one or

two kids at any meeting over many years.

Good luck with your group.

Regards,

[Guest guest]

Hi !

Thanks for the suggestion! I'll try to contact scoliosis association

right away.

Do you hold meetings for adult patients? How do you conduct them? Are

there any materials which you specifically use for your sessions to

get the discussion going? How frequent do you organise such meetings?

How effective are they? How many people are there in each discussion

group?

We have so much to learn...

Regards,

Yin Hoe

> Hi Yin Hoe...

>

> You may wish to contact the Scoliosis Association

> (http://www.scoliosis-assoc.org). They are an umbrella

organization for

> support groups around the world.

>

> I don't know about other support groups, but I've had no luck in

getting

> adolescents and teens to attend my meetings. At the most, I've had

one or

> two kids at any meeting over many years.

>

> Good luck with your group.

>

> Regards,

>

[Guest guest]

Hi Yin Hoe...

My meetings are a mix of get-togethers with no speaker or topic, and events

with a specific topic and speaker. At one point, I was holding meetings

every month (except for summer). Because attendance has dropped

significantly in the last year or so, I'm now having just quarterly

meetings. Because forums such as this are now available, I don't think as

many people need real meetings.

I don't really have materials other than Scoliosis Association newsletters

and a resource pamphlet that I designed. I also have copies of Dave

Wolpert's excellent book, Scoliosis Surgery: The Definitive Patient

Reference available for sale. When I send out notices, I ask people to

RSVP if they're planning on attending, and cancel meetings if I don't get at

least 10-12 people. Attendees are mostly adult patients, but I usually have

at least 1 or 2 parents as well. Speakers are usually surgeons, but I

occasionally have non-surgeons (such as a physical therapist) speaking.

Regards,