We should form a foundation or something like to research better treatments

[Guest guest]

I wonder how come there's no organization or foundation that is

dicticated to research better treatments and non surgery treatments

for scoliosis like others such as AIDS, Cancers....

Maybe we need to form a powerful foundations to find the cure for

us. With the technology and the DNA and all other new info going

on, we should be able to find out more about why scoliosis occur and

better treatment than surgry...

[Guest guest]

Hi Prisilala...

Who told you there was no organization dedicated to the research of

scoliosis? :-) The Scoliosis Research Society (http://www.srs.org)

funds all sorts of spinal deformity studies, including many on the

genetics of scoliosis.

You can read about helping to fund research here:

http://www.scoliosis.org/resources/callforaction2.php

Regards,

> I wonder how come there's no organization or foundation that is

> dicticated to research better treatments and non surgery treatments

> for scoliosis like others such as AIDS, Cancers....

>

> Maybe we need to form a powerful foundations to find the cure for

> us. With the technology and the DNA and all other new info going

> on, we should be able to find out more about why scoliosis occur and

> better treatment than surgry...

[Guest guest]

> As another person mentioned that we need to have a celebrity to be

> spokesperson to attract more people's attention. I think we should

> do that, lots foundations has celebrities do the PR for them to

> raise the fund and the awareness of the diseases which help them to

> find the newsest treatments. It still seems like they could not

> figure out a way to " cure " and treat scoliosis effectively without

> surgery. And I'd really like to have the medical research focus on

> none surgery part instead of doing surgery.

Rene Russo has scoliosis. So does the cellist Yo Yo Ma. Offhand, I can't

think of any other celebs who have been open about it, but I'm sure there

are some out there who have it. Has anyone else heard of any?

D.

[Guest guest]

Galler (not sure if it's the correct spelling) the actress

from " Buffy " has scoliosis too..

I have some resources to the celebrites and I can probably find one

of them to be spokesperson. However, I have no idea about how to set

and run the foundations. If anyone is very serious about doing this

and helping it please email me at prisilala@... maybe we can

really set one for ourselves. I'm interested in findng the non

surgery treatments for scoliosis. Does anyone know are there any

similar organizations out there already?