my introduction

[Guest guest]

Hi everyone, my first introduction got lost in the mail or something

so I will start over.

Hi I'm and I'm 43f from NY. I have many relative on my dads

side of the family that have CMT. I don't know them well since my

dad is from Nebraska and we hardly got together over the years. One

of my dads brothers had CMT he recently passed away. Three of his

children all girls have CMT. One had numerous operations.

My dads sister still living. Was diagnosed at 60 her daughter was

diagnosed first at 37 she had a surgery on her feet. She said she

waited too long. She wears braces. I've been told if my dad didn't

have CMT that I probably don't have it. Although he has never been

tested. Seems alot of people have gone through life with mild cases

and never knew it. My siblings are ok and my children seem to have

inherited my husbands EEE wide feet. So far they are ok. They are

20, 17 and 13 year old boys.

I read about he disease alittle awhile back then recenlty had some

strange symptoms and started emailing my cousin.

I think that my arches are high. I'm having problems with cold feet

and some spasms in my feet and ankles. My hands have been bothering

me a bit. Its ironic but my mom has very high arches and terrible

hammer toes. They wanted to operate and she didn't want them too.

She is 86 my dad is 82. My mom seems to be having symptoms of

restless leg syndrome. So maybe she has another form of the disease.

My dads family has type 1A.

If my problem continues I guess I will have to visit my doctor and

share my concerns meanwhile I will continue to do my homework.

The things thats been bothering me the most is the cold feet and now

spasms and I believe I've read alot of people with CMT have cold

feet. It used to be just at night but its alot of times all day now.

Keep changing my socks alot. Guess I will browsing at the old

posts. I hope I don't have it of course but its good to know there

are so great organizations and support groups out there.