New member

[Guest guest]

I personally am not buying this explanation. I think if there is a

prevalence of a virus it is an opportunistic infection and not the

cause. It's better to treat fibro, at least, as an immune system

failure. Speaking as someone with fibro.

--

At 05:32 PM 9/27/2010, you wrote:

>CFS and FM are both being linked to a rhetro virus called XVRM this year

>by several different institutions from both East coast and Nevada.There is

>a 4% incidence in normal population and 95% in those diagnosed. Lyme can

>imitate many different diseases and conditions.

>

>On Mon, Sep 27, 2010 at 10:36 AM, ido zahavi

><<mailto:zahavi100@...>zahavi100@...> wrote:

>

>

>CFS does not have to be <http://lyme.it>lyme.it can be viral problem

>

>

>On Mon, Sep 27, 2010 at 7:10 PM, jacqui butterworth

><<mailto:jacquibutterworth@...>jacquibutterworth@...> wrote:

>

>

>Hi

>Thanks for reply and yes ME is classed along with CFS and fibro but I

>believe they are all Lyme disease. A lot of people with these illness's

>along with MS are now found to have Lyme disease or co-infections, have

>you? Will try <http://vitacost.com/>vitacost.com

>Regards, Jacqui

>

>

>

>

>

>

>

>

>No virus found in this incoming message.

>Checked by AVG - www.avg.com

>Version: 9.0.856 / Virus Database: 271.1.1/3163 - Release Date: 09/27/10

>12:56:00

~~~ There is no way to peace; peace is the way ~~~~

--A.J. Muste

[Guest guest]

Hi JacquiThere is an excellent company in the UK- Regenerative Nutrition which carries Lugol's solution. They have excellent information on the supplements they carry and on various health conditions. Shipping is free either within the UK or outside. I have ordered both for myself in Canada and for my daughter when she was in Scotland. They are wonderful people!Kathy

---------

Kathy - Can you please send the link. I tried to google Regenerative Nutrition and didn't find it. But then my ISP is French. Thanks. Fibrojay

[Guest guest]

http://www.regenerativenutrition.com

Re: NEW MEMBER

Hi JacquiThere is an excellent company in the UK- Regenerative Nutrition which carries Lugol's solution. They have excellent information on the supplements they carry and on various health conditions. Shipping is free either within the UK or outside. I have ordered both for myself in Canada and for my daughter when she was in Scotland. They are wonderful people!Kathy

---------

Kathy - Can you please send the link. I tried to google Regenerative Nutrition and didn't find it. But then my ISP is French. Thanks. Fibrojay

[Guest guest]

Hi again Jacqui

Sorry for taking so long to reply- we were out of town all week.

Here's the website for Regenerative Nutrition

http://www.regenerativenutrition.com

Kathy

>

> Hi Jacqui

> There is an excellent company in the UK- Regenerative Nutrition which

> carries Lugol's solution. They have excellent information on the supplements

> they carry and on various health conditions. Shipping is free either within

> the UK or outside. I have ordered both for myself in Canada and for my

> daughter when she was in Scotland. They are wonderful people!

> Kathy

>

> ---------

>

> Kathy - Can you please send the link. I tried to google Regenerative

> Nutrition and didn't find it. But then my ISP is French. Thanks. Fibrojay

>

[Guest guest]

Thanks for your post Ray. As a newby here I'm not sure what to expect, but it is

good to find other people who understand what I'm experiencing.

I lived in Seattle for about a year (1968). My step-father worked for Boeing. We

lived east of SeaTac airport. I think the area was called McMicken Heights.

Seattle's a beautiful place -- very green; much different than the Canadian

prairie where I live now.

So you have suffered with RS for over fifty years! Wow. You must have developed

a stalwart nature to have endured such a burden. Today is my eighth anniversary;

The illness first hit me 01 October 2002. I've had no reprieve since. I've read

that about sixty percent of cases are self-limiting; about thirty percent are

recuring; and ten percent are chronic. Aren't we lucky!

God bless

Craig

RE: New member

Welcome Craig. I’ve had RS/ReA since age 10. I’m now 61. Chronic form has

complicated my life but I continue to thrive.

A recent kidney problem has resulted in my no longer being able to take

NSAIDs. My new rheumatologist here in Seattle is going to put me on one of the

new biological drugs: Remicade or similar. He has high hopes of reducing my

constant state of inflammation. I’m encouraged. I’m actually enjoying some

of the best health I’ve ever had, even better than my 30’s and 40’s in

into my early 50’s. Once upon a time they wanted to put me into leg braces and

a wheel chair. I said, no, and the horrible flare up did subside and I was able

to walk again without assistance. I’ve often said, “Like the weather in

Chicago, if you don’t like the symptoms you have right now, wait a few weeks

or months, they will change.â€

The entire left side of my body in inflamed right now, especially shoulder,

hip, knee and foot. I’ve lost some ability to turn my neck to the left

compared to the right side. My feet are so tender I can’t stand anyone to

touch them and can only wear a couple pairs of shoes that don’t cause extra

pain. My hands are tender and I often stuff them under my arm pits to keep them

warm and comfortable making people feel I’m closed off to them when I’m not.

I’ll keep all of you posted on the new biological drug treatment and whether

or not it makes a difference to me.

Ray in Seattle

[Guest guest]

Hi Jacqui

I only have thyroid problems, no other major issues. I do take Lugol's and the

supplements in the protocol.

>

> Hi Cornfields

> Thanks for the info will try them.

> Have you got problems with ME/Lyme or just Thyroid problems. There are so many

suppliments etc I am getting a little confused, must be taking about 12

differant ones includind antibiotics prescribed by Dr D at Breakspear.

>  take care Jacqui

>

[Guest guest]

Hi , are you hypo or hyper thyroid?

Konstantine

From: cornfielduk <jennyre@...>iodine Sent: Sun, October 3, 2010 9:32:19 AMSubject: Re: NEW MEMBER

Hi JacquiI only have thyroid problems, no other major issues. I do take Lugol's and the supplements in the protocol.>> Hi Cornfields> Thanks for the info will try them.> Have you got problems with ME/Lyme or just Thyroid problems. There are so many suppliments etc I am getting a little confused, must be taking about 12 differant ones includind antibiotics prescribed by Dr D at Breakspear.> take care Jacqui>

[Guest guest]

Hi

I'm hypo with a suppressed TSH.

> >

> > Hi Cornfields

> > Thanks for the info will try them.

> > Have you got problems with ME/Lyme or just Thyroid problems. There are so

many

> >suppliments etc I am getting a little confused, must be taking about 12

> >differant ones includind antibiotics prescribed by Dr D at Breakspear.

> >  take care Jacqui

> >

>

[Guest guest]

Craig, where in Southern Alberta are you. I am in Medicine Hat. If you are

here, we should get together some time.

Fr. Dave

-- New member

[Guest guest]

Dave

I live in Cardston. I have a son who lives in Medicine Hat. He works in the oil

patch.

It's a small world.

Craig

New member

[Guest guest]

Very small world Craig that is for sure. A lot of folks that live in

Medicine Hat work in the Oil Patch. I live on Aberdeen St. Which is on the

SE Hill, just two blocks from downtown. We will have to get together

sometime whenever you are up this way. I don't get down to Cardston as they

do not want me driving since my mini strokes Last year. Alberta is a bit

sticky when it comes to medical problems like that and driving.

Blessings

Fr. Dave

-- Re: New member

Dave

I live in Cardston. I have a son who lives in Medicine Hat. He works in the

oil patch.

It's a small world.

Craig

[Guest guest]

Write a letter to your GP telling him that you are no longer

prepared to remain ill without being given a proper diagnosis and a choice of

treatment that will help alleviate your symptoms.

First, list all of your symptoms and signs. Check these against

those in our web site under 'Hypothyroidism' www.tpa-uk.org.uk

Next, take your basal temperature for 4 or 5 mornings before

getting out of bed in a morning and list these. If your temperature is 97.8

degrees F or much less, this is an indication your metabolism isn't functioning

properly and is likely to be due to hypothyroidism.

Next, list any members of your family who have a thyroid or

autoimmune disease.

Next, list the blood tests you need doing and do point out that

the British Thyroid Association and the Royal College of Physicians recommend

that at least TSH, and a measure of free T4 are measured, including testing for

antibodies. You could also ask for free T3 to be tested. Other tests needed are

serum ferritin, vitamin B12, vitamin D3, magnesium, folate, copper and zinc.

The last two might need the recommendation to come from an endocrinologist so

now is the time to ask also for your GP to refer you to a thyroid specialist of

your choice. You are allowed to go outside of your area if there is no such

specialist in your area, and you are quite likely to find that the

endocrinologists in your area are all specialists in diabetes. I will send you a

list of doctors you might like to see.

Next, ask for your letter of requests to be placed into your

medical notes in case you need to refer to these at a later date and send a

copy to the Head of Practice. Remember to keep a copy of the letter yourself.

Once you start to be assertive (and I know how difficult this

can be) you are likely to find your doctor will be much more forthcoming,

because they know if they don't comply with your requests and it is later found

you have been left to suffer unnecessarily, they are likely to find themselves

in hot water.

I would not take up a referral to a Chronic Fatigue Specialist

at this time - as CFS is often a 'dustbin' diagnosis doctors give you when they

are incapable of diagnosing hypothyroidism. Once the majority of CFS patients

start getting treated with thyroid hormone replacement, they find the symptoms

of CFS and fibromyalgia disappear.

Luv - Sheila

,

I'm not used to using a forum so please bear with me. I'm saving up to see Dr P

in the new year as I've had worsening symptoms for years, and my TSH has risen,

and I'm hypo for sure. After months of visits to my GP, and being offered

anti-depressants that made me worse, I was referred to General Medicine where

I'm waiting to have a short Synacthen Test and then see a Chronic Fatigue

specialist. I am going to take my temperature and continue persisting with my

GP. Can someone advise me what I can be doing in the meantime to help myself?

It takes weeks and months to get anywhere at my practice, and I'd like to be

helping myself instead of wasting time.

_._,___

[Guest guest]

You are on the right track to contact - so many wonderful people that can direct you....good luck on your journey!!!!

From: esapour tribe <esapour@...>CHILDRENWITHCHALLENGESGROUPS (DOT) COMSent: Mon, November 29, 2010 9:30:45 PMSubject: New member

Hi My name is Klajaque and I am a Mum of 5 kiddies. Max who is 7 yrs old has spastic quad CP, he is an identical twin. We did conductive up until he went to school and we have also tried acupuncture and Osteopathy. I would love to hear from anyone in the Australian area how I can find out where I go to find out and do some courses in Masgutova, also what is the cost and how often would I have to attend courses as you can imagine my hands are quite full!! I would love any info on anybodies experience or contacts etc have emailed the main web site several times with no reply! Anyway anything that anyone thinks is useful I would love to hear from anyone.

thank you

[Guest guest]

Welcome! I wish you much success. I believe you know Dr. S did not advocate mixing vegetables (since you metioned you are doing it for variety/better tasting food). I have read about various diet plans where specific foods are recommended that it is easier to digest and burn one kind of vegetable at a time. I do not know if mixing will upset the resetting of the hypo. Perhaps someone with a lot of eperience here can clarify that part for you.

I would like to thank you for posting about the cron-o-meter! I moved recently and haven't found the food list book that goes with my food scale yet. I've been looking up calories per gram weight of everything I eat online. This program makes it much easier to track and insure that I get in my full 500 calories.

So thanks and again welcome. I hope your weight loss will provide a relief from some of your health problems!

Cat

From: Kari <klemons22@...>Subject: New Member Date: Friday, December 3, 2010, 8:24 PM

Greetings,I started the injection HCG diet 13days ago and have lost 12lbs. Starting weight 335. I am very happy so far with how this going. I have lots of health issues and my doctor has been pressuring me to have the weight-loss surgery but I dont want to do that. I like the science behind this and how it works in my body, and the fact that it makes total sense. Mentally and Emotionally I am at a place right now to do this for the long term. I am planning five 30 day phases. I am using the free opensource software CRON-O-METER to track my food, weight and exercise, plan my meals, and create recipes. I love this software and it is making this diet easier then without it. I am putting the recipes I do make on my Allrecipe.com page, http://allrecipes.com/Cook/13263418/Profile.aspx. I am mixing my veggies within a meal to be able to have

better tasting food, but am staying within the 500 calories a day.I made announcement on my facebook page about what I was doing so that my friends and family could hold me accountable and support me. I am so glad I did this because the support so far has been great.I also use brain stimulation (Brain Massage) MP3's for relaxation and focus. They really help me get to sleep and stay asleep better.I like sublimination CD's to help stay focused, and to envision what I want to look like and who I will be when I get there. I imagine my new body doing the things I want to do, riding my bike, playing tennis, hiking in the mountains, playing baseball with my boys.I am looking now for a CD that will help me change the negative chatter in my brain so that I am not so hard on me and that my mothers voice about my weight might be lessened.I am going to be buying a pedometer to track my steps per day. I used to do this and was

extreemly helpful to set goals to work towards.A person in shape averages 10,000 steps a day. I know from before when I had an office job I averaged 3000-5000 steps a day at work. Now I am probably lucky to get 1000 with my bum knee and cane.I am trying to address all the bases for my weightloss; Support, Emotions, Diet, and Excercise.Glad this group is here!

[Guest guest]

someone else will answer,because i think it depends also on how toxic you are ,but maybe this book will also help

Breast Cancer and Iodine : How to Prevent and How to Survive Breast Cancer

On Sun, Dec 5, 2010 at 12:22 PM, Marie Lafortune <everonward11@...> wrote:

 

I am a new member and a breast cancer survivor who is trying to stay in good health. I have used Lugols occasionally and now want to try Iodoral.  Can someone suggest how many capsules to take a day?  Thanks so much.

 

Marie

 

[Guest guest]

In my opinion you should really be following the whole Iodine Protocol, taking selenium and Celtic Sea Salt at least. Go to www.breastcancerchoice.org or www.optimox.com to find out about the Iodine Protocol.

My mother died of breast cancer (in both breasts, which is unusual I believe). Because I don't want that to happen to me and because I have fibrocystic breast disease and cysts, I take 50 mg/day of Lugols. I started at 12.5mg/day and worked up over about a month to six weeks. I also have Hashimoto's disease which can be aggravated by taking iodine without selenium. This is why I think it is better to follow the whole Iodine Protocol than to take just iodine alone.

There is a growing body of statistical evidence that there is a link between thyroid disease and breast cancer/disease because both are iodine deficiency diseases. I have also read that selenium and iodine are complementary and taking one without the other can be harmful. I know from personal experience that taking one without the other makes me feel very bad. So I stick to the Iodine Protocol.

You can also apply Lugol's externally if you have any cysts or other anomalies in your breast tissue as well as taking it internally.

I hope this answers your questions.

MacGilchrist

From: Marie Lafortune <everonward11@...>iodine Sent: Sun, 5 December, 2010 12:22:08Subject: new member

I am a new member and a breast cancer survivor who is trying to stay in good health. I have used Lugols occasionally and now want to try Iodoral. Can someone suggest how many capsules to take a day? Thanks so much.

Marie

[Guest guest]

Welcome Marie! Go to our groups web site and just start reading. I think there are files marked new member info. I joined over a year ago and I'm sure things have changed a bit. A lot more info has been up since. And the best thing you could do since you've joined is to go individual e-mails and read everyone of them that goes to your in box. The are companion nutrients, and wealth of information on how to start and what you also have to do while you start. After reading all of the info, then start asking questions with stuff you don't understand. That way the moderators and other group members aren't feeling like they are repeating themselves. Also, go through of all of the old e-mails and read too.Once again welcome and yes, you are a survivor. from

IllinoisFrom: ido zahavi <zahavi100@...>iodine Sent: Sun, December 5, 2010 5:26:47 AMSubject: Re: new member

someone else will answer,because i think it depends also on how toxic you are ,but maybe this book will also help

Breast Cancer and Iodine : How to Prevent and How to Survive Breast Cancer

On Sun, Dec 5, 2010 at 12:22 PM, Marie Lafortune <everonward11@...> wrote:

I am a new member and a breast cancer survivor who is trying to stay in good health. I have used Lugols occasionally and now want to try Iodoral. Can someone suggest how many capsules to take a day? Thanks so much.

Marie

[Guest guest]

Thanks to everyone who responded. I appreciated the helpful book tip from Ido and the reminder from that I need to study the Iodine Protocol. Since I already use selenium and celtic sea salt, I think I am off to a good start. I will follow 's suggestion to read the old posts and the group files so I can get up to speed with the group.

If I missed thanking anyone, it's because I haven't read your post yet because I get the Digest once a day, not the individual posts.

Wishing everyone good health,

Marie

[Guest guest]

,

With the free shipping, Iodoral purchased from

http://www.pureformulas.com/optimox-corporation.html

is $10 a bottle cheaper than breastcancerchoices. That is a significant saving. I prefer to give to other charities.

-Marie

[Guest guest]

, the tests your daughter is most likely to have done within

the NHS are TSH and possibly free T4. The CORRECT thyroid function tests she

needs to get a full picture of how her thyroid and pituitary gland are

performing are TSH, free T4 and Free T3. She also needs to be tested to see

whether she has antibodies to her thyroid, especially if there is anybody in

the family who also has a thyroid disease or autoimmune problem.

It's a good idea if taking blood to also ask the GP to check her

ferritin, vitamin B12, vitamin D3, magnesium, folate, copper and zinc and to do

a FULL iron test. If your daughter is suffering with low levels of any of

these, her thyroid hormone cannot be properly utilised in the cells.

When the results come through, DO NOT allow the GP to tell you

that y our daughter doesn't have a thyroid problem because all the results have

come back within the normal reference range. I say this because a lot of

doctors have no idea how to read thyroid function tests. You need to get the

actual results, together with the reference range for each of the tests done

and post them here on the forum, and we will help with interpretation. We need

to know whether the results are at the bottom, the middle, or the top of the

reference range (or even outside the reference range). Doctors cannot withhold

these results from you.

Luv - Sheila

Hi,

I have joined this list as my daughter's GP wants to run blood tests for

Thyroid function. Could someone please advise what blood tests are likely to be

run, whether these will be sufficient and any advice about what I can do to

help my daughter (she is 12).

Thankyou.

[Guest guest]

Hi , The usual test is TSH- thyroid stimulating hormone, but a good doc should also do FT4 and FT3- the latter however important is seldom done where hypothyroid is suspected. the T4 measure is of the almost inactive pro hormone- which has to conver to the active T3 hormone. NHS practice is to replace T4 only as it assumes that everyone can convert T4 into T3- which is not necassarily the case. But at this stage if docs suspicions are confirmed then starting T4 therapy is a sensible option. there are a number of vits an minerals that are vital to the proper utilisation of thyroid hormone- such as iron, zinc and selenium, vit D is also required as is B12. A good doc should aslo test for good levels of these. As low thyroid tends to cause heavy periods low iron is often found and it vital to correct this. Have a look at http://www.endocrineweb.com for a short clear explanation of how it is supposed to sork. > thyroid treatment > From: m.kidson60@...> Date: Mon, 3 Jan 2011 13:19:40 +0000> Subject: New Member> > Hi,> > I have joined this list as my daughter's GP wants to run blood tests for Thyroid function. Could someone please advise what blood tests are likely to be run, whether these will be sufficient and any advice about what I can do to help my daughter (she is 12).> > Thankyou.> > > > > > ------------------------------------> > TPA is not medically qualified. Consult with a qualified medical practitioner before changing medication.> >

[Guest guest]

Thankyou for the replies. I've made a note of the tests ready to take to the GP.

My daughter is showing no sign of moving into puberty, but, there is definitely

something going on with low iron.

I have heard forms everal different sources that the NHS does not treat thyroid

issues in children - does anyone know anything about this?

Reading the posts, I can see that I need to get myself looked at as I have

Fibromyalgia and lots of other things going on.

>

>

> Hi ,

> The usual test is TSH- thyroid stimulating hormone, but a good doc

should also do FT4 and FT3- the latter however important is seldom done where

hypothyroid is suspected. the T4 measure is of the almost inactive pro hormone-

which has to conver to the active T3 hormone. NHS practice is to replace T4 only

as it assumes that everyone can convert T4 into T3-

[Ed]

> > TPA is not medically qualified. Consult with a qualified medical

practitioner before changing medication.

> >

> >

[Guest guest]

Hi , Remind you doc you are not a lab report, you are a suffering human being. Write a letter asking to be referred back to the hospital, as you cannot continue as you are. Keep a copy and ask for the letter to be kept on record. Ask for TSH FT4 and FT3 tests. remind your doc that having been hyperthyroid you are now permantently desensitised to thyroid hormones and will continue to need larger than average doses. Ask for ferritn selenium zinc, vit B12 and D3 to be tested as all can affect how thyroid hormone is used. The chances are that you are unable to convert all that thyroxine ( T4) into the active hormone liothyronine (T3) T4 is almost inactive as it is a storage hormone, and need to convert in the body to become any use at all. A healthy thyroid produces about 10% T3 which in it's absence strains the conversion mechanism to breaking point. > thyroid treatment > From: billp@...> Date: Mon, 7 Feb 2011 23:00:30 +0000> Subject: New member> > Hello all. I have just joined this group. I had a total thyroidectomy in December 2009 after several years of Grave's disease, and an unsuccessful radio iodine which didn't reduce my thyroid hormone at all.> > My doctor decided that 250 Mcg Levothyroxine daily was too high a dose, even though I was doing fairly well on it. > legs ache, I have an almost constant headache, I spend half the day asleep and my weight is ballooning. Before he reduced my dose I was cycling 150 miles a week. Now I can't do 5 miles before exhaustion sets in. When I told him this all I got was "Well your test reults are OK" I am due a blood test next week so hopefully that will indicate I need a higher dose.> I wish I hadn't had the surgery, but too late now!> > > > > ------------------------------------> > TPA is not medically qualified. Consult with a qualified medical practitioner before changing medication.> >

[Guest guest]

I would like to start treating my

hypothyroidism naturally can you all direct me to foods, supplements and iodine

that is good for me. Keeping in mind I don’t do

gluten/dairy/soy/processed foods/preservatives/dyes/sugar/starches. Might be

a few others that I am missing but those are my basic avoidances. Doctor just

increased my synthoid to 40mmg. Not happy about the increase in meds

especially when she said eventually I will be on 75 mmg. (also on Coumadin therapy

if this makes a difference)

Looking for a brand name of iodine that I

can hopefully get at a health store vs online.

Theresa

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of Use

..

[Guest guest]

Hi !Nice to meet you! Best wishes on meeting your goal. Are you on drops or injections?andra S. andra Nutt, M.A.Mill Valley, CALife Coach/CounselingLife Transitions, Relationships, Spiritual Emergence, Life PathHolistic Health Consultant/HCG CoachAsk me how to lose 30-40 pounds in 40 days!Resource MistressCreating Beauty, Flow and Organization in your lifehttp://www.flickr.com/photos/46218424@N07/From: jennifer <heavenlylil1@...> Sent: Fri, April 1, 2011 1:41:00 PMSubject: New Member

Hi there, I'm new to this group and fairly new to the hcg diet/protocol. I have researched hcg for the last 2 months, ordered, and now am on day 7. I have lost 5 lbs this far. I joined the group for support in my hcg journey, but also hoping to possibly find others who have had thyroid problems, or like myself, have no thyroid. Thanks