Guest guest Posted July 2, 2007 Report Share Posted July 2, 2007 I order the 30guage and 1 inch needles from researchsupply.net I received 100 so I'll have them in my second go around New Member> > > Hello:> > I am just getting the hcg from a lab--after paying more than your > suggested places 8~(. Next time, I will do it differently. However, > I am okay with it though maybe will wish I had done it differently > later. 8~)> > I have been overweight since 1996 when I had my last child. As I've > gone through menopause, I found I gained more and more, and now I am > up well over 200#. I should weigh about 140.> > I HATE the weight, and I have been so depressed with my weight, I have > felt like life was not worth living. I tried Atkins, but of course, I > couldn't stay on that kind of eating plan for more than 30-45 days. > Once I plateaued at 190 each time I tried it again, I couldn't get my > weight down past that, and I just started cheating on the diet. I > tried Weight Watchers, but that was worthless for me. Every time I > eat bread, I put on a pound, and they allow me to have some starch > (which seems to make me gain). I've tried starving, and of course, > that didn't work. I've considered Craig, but I get bad > headaches when I don't eat food, so I am scared of that diet.> > Knowing you have more than 60 pounds and suggested a year to do it is > too discouraging and disheartening to stay with it. And I have been > scared out of my mind about looking like a bag when I'm done--i.e. > drooping skin, hanging from a bag of bones. People said, "Oh, you're > skin will adjust." Sure! When? After menopause? Okay...> > When I saw this protocol, I thought it was the answer to my dreams.> > Now I've ordered the hcg, and it is due Monday, and I'm scared to > death of injecting myself! Gosh, I'm sitting here in a cold sweat > thinking about it. I'm not sure I can do it, and NOBODY else can do > it for me either. I don't have anyone who would.> > So how did you get past the self injecting?> > And does it work, really work?> > Thanks.> > Kay> > > > > > > ---------------------------------------------------------------------> > > No virus found in this incoming message.> Checked by AVG Free Edition. > Version: 7.5.476 / Virus Database: 269.9.14/883 - Release Date: 7/1/07 12:19 PM> No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.476 / Virus Database: 269.9.14/883 - Release Date: 7/1/07 12:19 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2007 Report Share Posted August 5, 2007 Hi Earline, My name is Dennis. I am a 56 year old male (retired one year ago) and was diagnosed with spinal stenosis about a year ago but have had symptons for over 2 years now. I only have pain when I stand or walk. No pain when I sit or lay down. It is getting steadily worse now and I can no longer even stand long enough to cook myself any breakfast or shop for groceries without using the little handicapped cart. I had a cortizone shot the end of May which only somewhat helped for about 3 weeks. I really dont want to have any surgery if I dont have to but my doctor says that's about the only option last. I really hate this disease. It takes away your quality of life and makes you feel 100 year old. I hope I haven't scared you off now. You might want to try to cortizone shots next. Good Luck. DennisGet a sneak peek of the all-new AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2007 Report Share Posted August 28, 2007 Dear Pat, I would like to help welcome you to the group. I have Reiter's Syndrome and I too am HLA-B27 positive. I am a 30 year old female that was diagnosed with this disease a year ago this month. Apparently from my medical record since I was not what my doctor called a text book case-I have most likely have had this disease for many years. Yea, there are times that I get that weird look too from people that have a hard time understanding why I have difficulty standing or walking some days. Mine has never gone into remission. Apparently so far I am not one of the lucky ones-however, I do know that it could be a lot worse. There are people that have had this disease for years and years and have never had any remission. You stated that you were told that you were HLA-B27 positive-do you have a diagnoses of which disease that you may have? They are the same in some ways while they are also different. You speak of neck and shoulder pain. I can totally relate. There are times that I have hard time raising my arm because of it-I haven't had a problem like that in a while-which I count as a blessing. I hope that now that you are a part of the group that you realize that you are not alone in dealing with this. There are several people here that can relate to the pain, the embarrassment when you realize that you can't do like you could before and the depression that you may suffer from at times because you feel that it is hopeless that you are not going to get any better. But, some of us get better and go into full remission and with it-a spark of hope for the rest of us. I hope to hear from you again soon and if you have any questions or feel like just whinning and complaining sometime-believe me I have done the same on many occassions-feel free to contact me. Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2007 Report Share Posted August 29, 2007 Hi Pat Welcome to our merry bunch of travellers on life's journey. I am Fr. Dave, the Vice President of the RISG and co moderator on the list. I have had this junk for over 30 years. I am also HLA B7 positive. I automatically sit at the head of the table at our house, of course being a round table, the head depends on where you orient your postion from. But most folks let me sit there anyway. Fr. Dave Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2007 Report Share Posted August 29, 2007 Hi Barbara - thank you for the welcome. It occurred to me last night that I misstated the year of diagnosis. I was found positive in 1991. And I'm thinking that clarified will make my answers make more sense? My diagnosis was through the back door and it didn't seem that there was a whole lot of info out there at the time. I was working as an accountant for a law firm - lots of time (too much) on the computer with a mouse in my hand! My arm swelled and shoulder got so painful that they put me on workman's comp. It was discovered that I had a torn rotator cuff and many spurs in my shoulder, plus the expected wrist complications. They sent me to therapy. After several months and no improvement (working only a couple of hours a day) - they decided that perhaps I had bone cancer as I had all the symptoms. My doctor was a sports med guy. He of course ran tests and no - no cancer. But he found other factors that led to a referral to a rheumatologist. At that appointment he (rheum) decided that he was sure I had AS based on multiple questions regarding history of pain and joint problems. He ran the test and I was B27 positive. At that point, based on Xrays, he didn't find any fusing - so spondyloarthropothy was the official diagnosis. He told me that I would eventually have AS. At that time there wasn't a whole lot of information about AS. And I don't know if there was info that it could be something other than that. I had the impression from him that B27=AS. :-) Now of course there's plenty of evidence to the contrary. He also diagnosed some gout on occasion, fibro, etc but said that to always seek treatment for the AS as it was the primary problem. I have never been pain free - and that would be true back to at least adolescence if not before. I'm now 52. So I guess no remission for me either, although as with all of us - good days and bad days. The good days usually are a result of pain meds! :-) I live in a fairly small town, not a lot of specialists and have the limitation of no insurance. I wish there was a definite diagnosis. That might help. I've been told (by GP's) that the shoulder/neck problems would indicate something other than AS. I have reached the point where my feet and legs are tingly/numb almost all of the time (including sleeping) and in pain. Funny thing - when one says " numb " most folks don't understand that there's extreme pain in that huh? :-) You're so right about the depression. Usually I'm able to keep that under control. I would put all of the " I'm not the same. " stuff under that umbrella. And of course there are the side effects of meds that leave us out of the norm, huh? But it sure is nice to have others who understand! Thanks again for the warm welcome! Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2007 Report Share Posted August 29, 2007 Hi, . I took a year to get diagnosed, and my dx was made based on X-ray and the fact that I had elevated sedimentation and no rheumatoid factor. Ankylosing spondylitis runs in my family, and the X-ray was done to rule it out. I had inflammation in my sacroiliac joints, but up until the last few months most of my symptoms have been in my peripheral joints. I took NSAIDs for several years but had a reaction to Daypro in March and have been on Vicodin since then. Going to Vicodin for pain management really rearranged my life. It keeps me awake rather than sedating me. I am a full-time seminary student, and I have had to learn the art of doing my homework when I am awake and catching naps when I am not medicated. I am visually impaired due to premature birth. This means that I do a lot of walking and a lot of other things that are probably aggravating my condition. I scan all of my books into the computer so that I can read them with synthetic speech output. This is great in terms of accessibility but very hard on my upper body--it's like doing a whole lot of photocopying. I have been on Prednisone since May, but I'm not tolerating it well in the long term due to CNS side effects. It has allowed me to have the stamina I needed to keep doing normal things for a while. I started Sulfasalazine a couple of months ago, and I don't know whether this will help or not. I have a whole lot of pain lately that I have not had in the past... I feel very much like a drama queen whenever I write or talk about all of this; so usually I don't. But I am now finding myself griping because Vicodin doesn't do much for me. That is scary. J. Blake Personal mail to: sjblake@... http://www.growingstrong.org I'm protected by SpamBrave http://www.spambrave.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2007 Report Share Posted August 30, 2007 Dear Pat, I can totally relate to the feeling of being outside the norm. I am not working-even though I have tried getting a sit down job like my doctor has suggested since his opinion is plus because of the pain- that I can no longer work standing on my feet. That was pretty crushing since as a single parent of many years that is all that I have ever known. Plus it doesn't help that I was born into a family of women that raised me to believe that just because I was a girl didn't mean I couldn't work like a man. Well, it was a blow to the pride since I have worked many jobs over the years such as yard maintenace, rebuilt boat docks, worked on cars, cashier, and so on. At one time it is hard to believe that I could work 80-90 hours a week standing on my head. LOL! Not anymore! And I will have to admitt and agree with you a good day is usually the result of pain meds! I know that when I have to cook dinner I really have to have them then. I cannot stand for long peroids or sit for long peroids. I can also relate to the fact dealing with insurance and such. I do not have medical insurance since I had just started a new job when I had a full blown flare. And because of my pervious back history they would not pay. I don't qualify for medicaid since my ex husband pays childsupport which is a little over $200 a month-the money cut off to qaulify is $163.00 a month. So I make due with what I can get paid if anything. Most of the time I have to scrape just to be able to buy my meds. I just recently gotten a new doctor at the clinic that I attend. My other doctor had moved to Tenn. I am already having problems with this new doc. I have been trying to get my new refill on my pain meds for three days. It took two days for the refill nurse there to get it into the computer-then he refused the request. I thought well I will talk with him to find out what the problem is when I go to the appointment that I was suppose to have yesterday morning. I get to the clinic and they loose all power to the computers and to the building so everyone had to leave which meant I couldn't get in to see him. Tell me about luck. Well, I ended up saying " screw it " . And I went to the minor E.R. for my pain relief since I woke up that morning with my sciatic nerve dancing on me. So at least for the next couple of days I have some pain meds to help me until I can talk with this doc. I have applied for my disabililty. They turned me down the first time saying that in their opinion that I was not disabled enough to get my benefits and that I could back to work working fast food which was supposely my last job. First of all, the last job that I had was working as a cashier in a convience store and second, I can not stand for long peroids of time-even my pervious doc states no standing for more than two hours a day. When I asked him what he meant-he explained to me that I would have to sit down from time to time in that two hours peroid so I would not aggervate my condition and increase my pain level. Apparently none of those people who reviewed my app has ever worked fast food and last time I worked it- you have to stand on your feet for hours and I can't do that. Makes you wonder who in the world do we have making these decisions. I have appealed my app. I am hoping in the next few weeks to hear back from them. If I get turned down again I am getting a lawyer. I have to get something going for me-because I have two children to raise. And last time I checked - a family of three living off of less than a $1000 a month ( my oldest girl gets disability due to the cancer that she used to have )doesn't cut it. I do live with my boyfriend, who helps as much as he can-he works and it is taking every dime that he is making to help pay the bills around here plus help me as much as he can with buying my meds. I just wished that when I had turned 30 that someone had warned me that my warranty was going to run out. LOL! I guess I better quit complaining and get off of here. You mentioned that you had a high sed rate. I didn't it was a little over 20, even though I was walking like the hunchback off that Disney movie and dragging a leg behind me. When I was diagnosed, it was mainly my legs and my back that was a problem- however, over the last several months I have started having problems with my neck as well as my hands but I am walking more up right except most days I wobble or hobble to and from. For me to drive my boyfriend bought a really thick steering wheel cover to make it easier for me to grip the wheel when I drive. Best $5 bucks he ever spent! LOL!! Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2007 Report Share Posted August 30, 2007 Hi - I'm thankful to have found this group as well. I'm sure everyone else knows, but what is USpA?? I have a reaction to NSAIDs - did within a year or two of my diagnosis. Ocassionally they try to put me back on them. I can get away with one here and there - but continuous dosages for a couple of days and I'm way out in space - the make me so dizzy the world is upside down. :-) I was told that steroids wouldn't help - but that was way back when. I certainly don't want to get that started if I can avoid it. I too take pain meds as sparingly as possible. There's all the side effects and the threat that eventually one develops a tolerance. So I play games to stretch them out for longer than prescribed. But there are days that I wouldn't function without them sadly. I bet you really miss nursing. That's one of those jobs I believe people are called to - those are the toughest to give up. How old is your daughter? I pray that she's not showing signs of inheritance???? Yes this does cause us to have a different view of suffering. I'm not able to work a full time job anymore, but was blessed with a couple of skills that allow me to freelance. While it doesn't have the $ or security, it's better than nothing & I'm fortunate to be able for the most part to set my own schedule. Not everyone has that freedom of course. One thing - it has allowed me to do some things that a 9 to 5 job wouldn't in terms of volunteer stuff. That's been fun and again I can generally make it work because it's flexible! Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2007 Report Share Posted August 31, 2007 Hi - I'm like you - Vicodin is the ultimate keep me awake drug. And doesn't stop the pain. I tried to explain to the doc (when I refused to take it anymore) - that she had no idea what it was like to still be in pain and now artificially, totally wide awake!!! :-) Where are you a seminary student? I certainly admire your determination and can only imagine that scanning the books to help read is an irritation to your joints! I just today delivered a bunch of papers to a non-profit for shredding. It makes me nervous - they were old tax forms, etc. Stuff that could be trouble. But I'm just no longer able to keep my shoulder suspended to feed the papers through the shredder at home. So trust, huh? (Prayers as well :-)) Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2007 Report Share Posted August 31, 2007 Barbara, I relate to everything you said. You sound like me. Hang in there girl you are not alone. There's a BUNCH of us in the same boat with you. I just try to keep rowing but sometimes I just cant row. YES a good day for me is the pain meds mostly. It amazes me that the medical community (mostly) is completely ignorant to our afflictions. I cant work any more either & am applying for SSI next week. We scrape by also.I just wanted to let you know that your not alone in this battle! Marty ************************************** Get a sneak peek of the all-new AOL at http://discover.aol.com/memed/aolcom30tour Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2007 Report Share Posted August 31, 2007 Hi, Pat. I am at University, just northeast of Indianapolis. Keeping going is about the only thing that is keeping me sane. I cannot deal emotionally with the iea of being too disabled to work and being single, so I keep going as long as I can... I had a bit of a breakthrough with my pain yesterday. I had run out of some of my vitamin supplements, and I found when I restarted them that they made enough difference that Vicodin took most of the pain away. I was very surprised since I had been questioning whether they were really very helpful. I don't mind the wide awake part if there is a good reason. I just alter my sleep schedule. J. Blake Personal mail to: sjblake@... http://www.growingstrong.org I'm protected by SpamBrave http://www.spambrave.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2007 Report Share Posted October 28, 2007 Barbara, I know this is kind of a few months later, but I wondered if you got your money and insurance problems taken care of? Or did you have to get an attorney? I have been feeling out of the norm for years. Looking really good, but can't do much with this body. Even the ex husbands thought I was faking it, until the dr put me in the hospital for months at a time. Then they left me. What duds, If they had been sick, I would have taken care of them. Oh well, they are gone, and I will stay single. I was wondering about the insurance deal, because the Social Services can't use your child support as your income. I use to work for the government in that dept. and that is counted as their income, not yours. Anyway, I hope you got all of that taken care of. Life is tough when you are sick and have to fight to get your meds and see a dr., and the government knows that. Keep trying. D. in Oregon Re: new member Dear Pat, I can totally relate to the feeling of being outside the norm. I am not working-even though I have tried getting a sit down job like my doctor has suggested since his opinion is plus because of the pain- that I can no longer work standing on my feet. That was pretty crushing since as a single parent of many years that is all that I have ever known. Plus it doesn't help that I was born into a family of women that raised me to believe that just because I was a girl didn't mean I couldn't work like a man. Well, it was a blow to the pride since I have worked many jobs over the years such as yard maintenace, rebuilt boat docks, worked on cars, cashier, and so on. At one time it is hard to believe that I could work 80-90 hours a week standing on my head. LOL! Not anymore! And I will have to admitt and agree with you a good day is usually the result of pain meds! I know that when I have to cook dinner I really have to have them then. I cannot stand for long peroids or sit for long peroids. I can also relate to the fact dealing with insurance and such. I do not have medical insurance since I had just started a new job when I had a full blown flare. And because of my pervious back history they would not pay. I don't qualify for medicaid since my ex husband pays childsupport which is a little over $200 a month-the money cut off to qaulify is $163.00 a month. So I make due with what I can get paid if anything. Most of the time I have to scrape just to be able to buy my meds. I just recently gotten a new doctor at the clinic that I attend. My other doctor had moved to Tenn. I am already having problems with this new doc. I have been trying to get my new refill on my pain meds for three days. It took two days for the refill nurse there to get it into the computer-then he refused the request. I thought well I will talk with him to find out what the problem is when I go to the appointment that I was suppose to have yesterday morning. I get to the clinic and they loose all power to the computers and to the building so everyone had to leave which meant I couldn't get in to see him. Tell me about luck. Well, I ended up saying " screw it " . And I went to the minor E.R. for my pain relief since I woke up that morning with my sciatic nerve dancing on me. So at least for the next couple of days I have some pain meds to help me until I can talk with this doc. I have applied for my disabililty. They turned me down the first time saying that in their opinion that I was not disabled enough to get my benefits and that I could back to work working fast food which was supposely my last job. First of all, the last job that I had was working as a cashier in a convience store and second, I can not stand for long peroids of time-even my pervious doc states no standing for more than two hours a day. When I asked him what he meant-he explained to me that I would have to sit down from time to time in that two hours peroid so I would not aggervate my condition and increase my pain level. Apparently none of those people who reviewed my app has ever worked fast food and last time I worked it- you have to stand on your feet for hours and I can't do that. Makes you wonder who in the world do we have making these decisions. I have appealed my app. I am hoping in the next few weeks to hear back from them. If I get turned down again I am getting a lawyer. I have to get something going for me-because I have two children to raise. And last time I checked - a family of three living off of less than a $1000 a month ( my oldest girl gets disability due to the cancer that she used to have )doesn't cut it. I do live with my boyfriend, who helps as much as he can-he works and it is taking every dime that he is making to help pay the bills around here plus help me as much as he can with buying my meds. I just wished that when I had turned 30 that someone had warned me that my warranty was going to run out. LOL! I guess I better quit complaining and get off of here. You mentioned that you had a high sed rate. I didn't it was a little over 20, even though I was walking like the hunchback off that Disney movie and dragging a leg behind me. When I was diagnosed, it was mainly my legs and my back that was a problem- however, over the last several months I have started having problems with my neck as well as my hands but I am walking more up right except most days I wobble or hobble to and from. For me to drive my boyfriend bought a really thick steering wheel cover to make it easier for me to grip the wheel when I drive. Best $5 bucks he ever spent! LOL!! Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2007 Report Share Posted October 29, 2007 Dear , I have yet to resolve my money and insurance issues. The good news is that my ex husband has stop making childsupport payments for the moment which is a good thing due to the fact that will drop me below the income level since the state doesn't count my daughter's SSI. This should allow me to get my medicaid which will be able to help me purchase several of the medications that my doctor has wanted to put me on but I could not afford to purchase. I was in the appeal process when I recieved a set of papers that I had already filled out and thought that it was the extra set that I had lost and requested which I later found and turned in. Come to find out it was a set that I needed to fill out again - why I don't know since I had already filled them out twice before. But, anyways, apparently a letter came in telling me there was a certain date that these papers needed to be in by. Thanks to either the kiddo's or the boyfriend I didn't know about the letter until after the deadline. So I am going (I guess) to have to refile all over again. Barbara > > > Barbara, I know this is kind of a few months later, but I wondered if you got your money and insurance problems taken care of? D. in Oregon > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2007 Report Share Posted December 11, 2007 I like your slogan... " Fibromites Unite!! " Sounds like a winner to me! > > Hello everyone! I am so excited about this support group! I was > diagnosed with FMS about 5 years ago but I am sure I had it much > earlier.I have been to several different doctors and have been given > the usual RXs- Elavil at night, Xanax for anxiety (which is a big > problem for me)Lexapro which I don't take anymore because it did > nothing to help, Trazadone which put me on another planet-scary! > Anyway, my symptoms are complicated by menopause(I'm 46)which doesn't > help matters! The hardest part for me is the total lack of > understanding from my family-I have begged my husband to read some of > the info I have compiled but I guess he can't be bothered.He has even > said that he is married to a " cripple " .I am very happy to be > surrounded by understanding new friends with the same type of issues > and concerns as mine.As of yesterday my doctor has given me the new RX > drug Lyrica(FDA approved for FMS). Anyone else taking that? I'll > keep you posted on how it works for me.Thank you so much Dominie and > to you for a forum to network and make new friends! > Fibromites Unite!!! (lol.. my new slogan) ~Beth > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2007 Report Share Posted December 11, 2007 I love the slogan too. here is another one - BEWARE ! THE FIBROTISED FIBROMITES ARE HERE! SHELLY <funny_dumplin@...> wrote: I like your slogan..."Fibromites Unite!!" Sounds like a winner to me! >> Hello everyone! I am so excited about this support group! I was> diagnosed with FMS about 5 years ago but I am sure I had it much> earlier.I have been to several different doctors and have been given> the usual RXs- Elavil at night, Xanax for anxiety (which is a big> problem for me)Lexapro which I don't take anymore because it did> nothing to help, Trazadone which put me on another planet-scary!> Anyway, my symptoms are complicated by menopause(I'm 46)which doesn't> help matters! The hardest part for me is the total lack of> understanding from my family-I have begged my husband to read some of> the info I have compiled but I guess he can't be bothered.He has even> said that he is married to a "cripple".I am very happy to be> surrounded by understanding new friends with the same type of issues> and concerns as mine.As of yesterday my doctor has given me the new RX> drug Lyrica(FDA approved for FMS). Anyone else taking that? I'll> keep you posted on how it works for me.Thank you so much Dominie and> to you for a forum to network and make new friends! > Fibromites Unite!!! (lol.. my new slogan) ~Beth> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2007 Report Share Posted December 11, 2007 That's a good one too! Brecker <davidbrecker@...> wrote: I love the slogan too. here is another one - BEWARE ! THE FIBROTISED FIBROMITES ARE HERE! SHELLY <funny_dumplin@...> wrote: I like your slogan..."Fibromites Unite!!" Sounds like a winner to me! >> Hello everyone! I am so excited about this support group! I was> diagnosed with FMS about 5 years ago but I am sure I had it much> earlier.I have been to several different doctors and have been given> the usual RXs- Elavil at night, Xanax for anxiety (which is a big> problem for me)Lexapro which I don't take anymore because it did> nothing to help, Trazadone which put me on another planet-scary!> Anyway, my symptoms are complicated by menopause(I'm 46)which doesn't> help matters! The hardest part for me is the total lack of> understanding from my family-I have begged my husband to read some of> the info I have compiled but I guess he can't be bothered.He has even> said that he is married to a "cripple".I am very happy to be> surrounded by understanding new friends with the same type of issues> and concerns as mine.As of yesterday my doctor has given me the new RX> drug Lyrica(FDA approved for FMS). Anyone else taking that? I'll> keep you posted on how it works for me.Thank you so much Dominie and> to you for a forum to network and make new friends! > Fibromites Unite!!! (lol.. my new slogan) ~Beth> Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2007 Report Share Posted December 12, 2007 Hi - I too was just diag. with fibromyalgia. My dr. says possible fibro and will not commit to a diag. as I am finding out alot of drs. will not diag. fibro. I have been on Lyrica for about a month now and do see a little improvement. Still have those good days [ rare ] but do still have my bad days. I am experiencing some side affects of Lyrica - light headed, dizzy, extreme fatigue , blurred vision - although my dr says these shouls subside. I was also started on Cymbalta at the same time , so this may be the cause also. Let me know how this works for you - I am curious to see if any one else experiences these side affects. Thanx and have a great holiday. See AOL's top rated recipes and easy ways to stay in shape for winter. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2007 Report Share Posted December 12, 2007 I have been taking Lyrica for a couple of months now and I'm getting very good results. In fact, I feel better than I've felt in months--maybe even years. Pam New member Hello everyone! I am so excited about this support group! I wasdiagnosed with FMS about 5 years ago but I am sure I had it muchearlier.I have been to several different doctors and have been giventhe usual RXs- Elavil at night, Xanax for anxiety (which is a bigproblem for me)Lexapro which I don't take anymore because it didnothing to help, Trazadone which put me on another planet-scary!Anyway, my symptoms are complicated by menopause(I'm 46)which doesn'thelp matters! The hardest part for me is the total lack ofunderstanding from my family-I have begged my husband to read some ofthe info I have compiled but I guess he can't be bothered.He has evensaid that he is married to a "cripple".I am very happy to besurrounded by understanding new friends with the same type of issuesand concerns as mine.As of yesterday my doctor has given me the new RXdrug Lyrica(FDA approved for FMS). Anyone else taking that? I'llkeep you posted on how it works for me.Thank you so much Dominie andto you for a forum to network and make new friends! Fibromites Unite!!! (lol.. my new slogan) ~Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2007 Report Share Posted December 12, 2007 HI Cymbalta put me in the hospital with a serious migraine. Migraines are part of Fibro too. I have had migraine for 22 years. msmithmuskegon@... wrote: Hi - I too was just diag. with fibromyalgia. My dr. says possible fibro and will not commit to a diag. as I am finding out alot of drs. will not diag. fibro. I have been on Lyrica for about a month now and do see a little improvement. Still have those good days [ rare ] but do still have my bad days. I am experiencing some side affects of Lyrica - light headed, dizzy, extreme fatigue , blurred vision - although my dr says these shouls subside. I was also started on Cymbalta at the same time , so this may be the cause also. Let me know how this works for you - I am curious to see if any one else experiences these side affects. Thanx and have a great holiday. See AOL's top rated recipes and easy ways to stay in shape for winter. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2007 Report Share Posted December 12, 2007 Hi , I have only taken it for 2 nights but I seem to be fatigued(more than usual) no dizziness but my dr is starting with a low dose(50mg) and gradually increasing it.She says all of her patients on Lyrica have seen improvement and feel better. I guess we'll see.Bethmsmithmuskegon@... wrote: Hi - I too was just diag. with fibromyalgia. My dr. says possible fibro and will not commit to a diag. as I am finding out alot of drs. will not diag. fibro. I have been on Lyrica for about a month now and do see a little improvement. Still have those good days [ rare ] but do still have my bad days. I am experiencing some side affects of Lyrica - light headed, dizzy, extreme fatigue , blurred vision - although my dr says these shouls subside. I was also started on Cymbalta at the same time , so this may be the cause also. Let me know how this works for you - I am curious to see if any one else experiences these side affects. Thanx and have a great holiday. See AOL's top rated recipes and easy ways to stay in shape for winter. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 I'd get her in a specialized exercise program right away. There's a DVD called Yoga for Scoliosis that gives instructions as to how to do the exercises depending on the direction(s) of the curve(s). Also, there are a number of different therapies that can be beneficial especially when she's young and hasn't progressed. Now is the time. New Member OUr 12 year was diagnosed 4 months ago with a 28 degree. Besides her follow up appts I have no experience with scoliosis and am trying to figure out what our options are. Her Dr said he doesn't start bracing till 35 degrees-standard? Also she does have a undefined muscular myopathy-leads us to be concerned about lungs and heart. She is quite well with the exception of tiring a bit quickly. Hoping to get some great advice and options. Thanks Diane ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2008 Report Share Posted January 9, 2008 Diane, How frequently are you seeing the doc for monitoring the curve? Has he sent you to physical therapy? In all of the research I've done over the years, bracing slows down the progression and doesn't correct a curve. Some curves do not progress beyond a certain degree and do not require further treatment. Whether he's gotten you in pt or not, I'd have her be very active and build up her muscles as much as she can. At least a few times of PT is good if you don't plan to go on a regular basis. That way, they can show you appropriate exercises. If you build up the muscles at the ends of the curve they can actually pull the curve into a greater degree. ~Moonbeam ________________________________________________________________________________\ ____ Looking for last minute shopping deals? Find them fast with Search. http://tools.search./newsearch/category.php?category=shopping Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2008 Report Share Posted January 9, 2008 Thank you- the orthopedic specialist said that if the scoliosis was " idopathic " which he thought it was, then there is absolutely nothing to do for it. He said PT or stretching was good for comfort level but would not prevent further curvature or correct anything- sounds like there are other approaches then what he offered. I will look into it. Thanks Diane New Member OUr 12 year was diagnosed 4 months ago with a 28 degree. Besides her follow up appts I have no experience with scoliosis and am trying to figure out what our options are. Her Dr said he doesn't start bracing till 35 degrees-standard? Also she does have a undefined muscular myopathy-leads us to be concerned about lungs and heart. She is quite well with the exception of tiring a bit quickly. Hoping to get some great advice and options. Thanks Diane ____________ _________ _________ _________ _________ _________ _ Be a better friend, newshound, and know-it-all with Mobile. Try it now. http://mobile. / ;_ylt=Ahu06i62sR 8HDtDypao8Wcj9tA cJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2008 Report Share Posted January 9, 2008 Get yourself to a good scoliosis specialist. I have scoliosis and had 3 surgeries. The last one with Dr. Boachie in NYC. Thank God for him. Anyway I was keeping a close eye on my kids and my daughter at around 12 was diagnosed with scoliosis. In October it was 15 degrees thoracic and 5 lumbar. When she was x-rayed again 3 months later she had progressed to 21 degrees/15 degrees. That is when I took her to Dr. Boachie. He had explained to me you need to brace a child before they complete puberty and their bones are completely done growing. The object in bracing is to keep the curve from getting worse while they are in this stage. The theory is that if you can keep a curve below 35 degrees after reaching puberty, the curve should not progress into adulthood. Not only did he keep her curve from progressing he got it back down to 12 degrees/0 degrees. She wore a Spinecore brace for 2 years. I did a lot of research and everything he said is the true opinion of most scoliosis specialists. Don't wait until your daughter is worse. Get her to someone who really knows this disease - not just an orthopedist. Sometimes even bracing won't keep a curve from progressing. He said he would know that within 6 months if the brace was working or not. It was definitely worth doing the research and the pain in the neck of riding into the city every month. We both go for check-ups with Dr. Boachie in 2 weeks. He is still monitoring her but so far so good. Good luck, Kathy **************Start the year off right. Easy ways to stay in shape. http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2008 Report Share Posted January 9, 2008 PT is a bit complicated for our child- she has an undefined myopathy- basically, she really doesn't build muscle well, I suspect that has been partly responsible for the scoliosis, but I think the Dr is not ready to concede. She very mildly affected. She has a couple refresher appts with a PT every few years for more stretching then building- Currently, the Dr wants to see her every 6 months. It is fortunate that she was an early bloomer- she past the starting point about 2 years ago... It seemed like from what he said, if it is idiopathic,then when she is done growing odds are it should stabilize? THe big question- she complains of hurting really in all her muscles and joints, however a lot in her hands- they are stiff and weak especially after inactivity, also one of her hips hurts horribly after walking- he did xray her hip and found nothing, also have seen the podiatrist and Rheumy who found nothing. At 28 degrees, can that cause pain? The Orthopedic thinks there is something else going on and not the scoliosis... Should we get a second opinion? Thanks Diane Re:New Member Diane, How frequently are you seeing the doc for monitoring the curve? Has he sent you to physical therapy? In all of the research I've done over the years, bracing slows down the progression and doesn't correct a curve. Some curves do not progress beyond a certain degree and do not require further treatment. Whether he's gotten you in pt or not, I'd have her be very active and build up her muscles as much as she can. At least a few times of PT is good if you don't plan to go on a regular basis. That way, they can show you appropriate exercises. If you build up the muscles at the ends of the curve they can actually pull the curve into a greater degree. ~Moonbeam ____________ _________ _________ _________ _________ _________ _ Looking for last minute shopping deals? 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