New member

[Guest guest]

Oh yes we can and please do send pictures. :-)

We can also send files of other sorts such as actitivites for educational purposes.

Make sure to go and check out the files section as there is already a lot there.

Interested in feedback and also thing to add.

Can also make up and entire homeschooling folder for those who homeschool if anyone would like that.

--Carol in IL

-------------- Original message -------------- From: pbeurrier@...

Hello everyone!

Looking forward to lively and informative discussions with old friends and new!

Can we send pictures to this list?

ette

mom to Tim(27)Joy(23)Faith(8)DS Nana to (23 mo)Dakota(7mo)

[Guest guest]

Hi ette!

Glad to see you here.

Yes, you can send pictures.

kathyR

From:

Down Syndrome Treatment [mailto:Down Syndrome Treatment ]

On Behalf Of pbeurrier@...

Sent: Sunday, June 11, 2006 7:09

PM

To:

Down Syndrome Treatment

Subject:

New Member

Hello

everyone!

Looking

forward to lively and informative discussions with old friends and new!

Can we

send pictures to this list?

ette

mom to

Tim(27)Joy(23)Faith(8)DS Nana to (23

mo)Dakota(7mo)

[Guest guest]

Hi & welcome to the group!

I have a 16 month old brother with Down Syndrome. He does not have any of the health problems that your son has had, so I can't help in that area. My brother did have oxygen the first 6 weeks of his life, but he doesn't have them anymore.

We give my brother NuTriVene-D (www.nutrivene.com). I have the book by Kent Macleod at Nutrichem on Down Syndrome & Vitamin Therapy. It has alot of good info in there, but I don't agree with *everything* in it. I'll just tell you what I've researched about the vitamin supplements:

From what I've researched, MSB Plus is not the best vitamin for someone with DS. I know it is one of the formulas recommended for someone with DS, but I believe NuTriVene-D is a better formula. MSB+ has a few ingredients in it, that I believe, should not be in it. It has Iron in it - you want to be *very* careful when supplementing with Iron, especially in DS. Too much Iron can cause more oxidative stress & cell death - it aids in the SOD process. I have just uploaded a file to the DSIE file section under the foler "Iron" that talks more about Iron & this subject.

MSB+ also has L-Cysteine in it. Due to a messed up SAM cycle & an overexpression of the CBS gene, that cycle is creating more cysteine. So, normally those with DS are high in cysteine, thus it is not good to give extra Cysteine.

You can see the ingredients of MSB & NTV-D at:

http://www.gotdownsyndrome.net/NTV.html

http://www.gotdownsyndrome.net/MSBplus.html

It seems like I'm missing something that is in MSB, but I don't remember right now!!

As far as your son's weak immune system - what are his homocysteine levels? What are his zinc & selenium levels? What is his MCV level?

Homocysteine is normally low in DS, due to the CBS gene stealing homocysteine and converting it to cysteine instead of homocysteine. If you supplement with Methylcobalamin B12 & TMG you can help bring those levels up to a normal/better range (we are doing this right now with my brother). If you get homocysteine levels normal, alot of the time, their immune system will start to get better/stronger.

MCV levels are normally high in DS. MCV levels mean Mean Corpalmuscular Value (I'm pretty sure). MCV is tested in a CBC. This kind of goes with the homocysteine - if you supplement Methylcobalamin B12 & TMG it brings these levels down. If MCV gets too high, it can lead to leukemia.

Zinc is normally deficient in DS & selenium can be also. Both of these play a vital role in the immune system, if they are deficient, then their immune system will not function properly.

I can give lots of info on this, if you'd like! Just let me know! Feel free to email me privately if you'd like too (qf@...) .

Qadoshyah

*Got Down Syndrome?

www.gotdownsyndrome.net

From: Down Syndrome Treatment [mailto:Down Syndrome Treatment ] On Behalf Of jo.elkanSent: Wednesday, June 14, 2006 2:11 AMDown Syndrome Treatment Subject: New Member

Hi everyoneI would just like to introduce myself. My name is Jo and I have 2lovely boys - Dylan 4 yrs and Conor 2 yrs. Conor has DS, prostheticheart valve after 4 operations to repair AVSD, chronic lung disease ashe has had pneumonia 4 times, repaired coarctation of aorta andrepaired PDA. He also had to have his diagragm plicated after it wasdamaged in surgery and his ribs re-sutured after his aorta repair. Healso got MRSA twice in his wound but managed to fight it off - he is astrong little boy. Conor is the smallest baby to get a prostheticheart valve at 9lbs.Conor is on oxygen at night and sometimes during the day when he getschesty and I check his blood at home every few days as he is onwarfarin. I am separated from my husband so it can be tough sometimes.Apart from his health problems Conor is a happy little boy who iswalking and says a few words. Everybody loves him. He has been tocreche 4 times but hasn't been well enough to go more. Its hard forme to decide whether to take him as a simple cold can put him back on o2.It would be nice to hear from anybody with similar problems. Conor isalso on MSBPlus vitamin supplement for over a year but it doesn't seemto be helping his immunity at all.Hope to hear from you all.Jo x

[Guest guest]

Hi Jo!

Glad you are here. Connor sounds pretty amazing. was sick forever it seemed when she started school. I am not sure what improved things for her because I have tried more then a couple of things. :-) We were using NVD and it didn't help her immunity much at all once she went to school.

We stopped using it when we started the Specfic Carb Diet and started on my own 'protocol' and things started to improve so much.

This past year I added topical glutathione cream from Kirkmans and it's been our best year yet.

Could just be she has finally caught up on all the bugs, could be the cream. We'll never know. :-)

But might be worth a try for Connor.

--Carol in IL

[Guest guest]

Hi Debbie -- I am on this list as well!! This is from DSANI in Fort Wayne!

:-)

Fort Wayne - mom to , 8, Ds and Hannah, 7

=====================

From: & Debbie <slaterjo@...>

Date: Thu Jun 15 13:21:26 CDT 2006

Down Syndrome Treatment

Subject: New Member

Good Afternoon!

My name is Debbie McCoy and my Husband and I live in Daleville with our two

sons, Carson who is 4 years old (ds) and Colton who is 2 years old (undiagnosed

overgrowth syndrome, kidney issues).

I was wondering if there is anyone on this list from Delaware or any of the

surrounding counties.

I started a group called Carson's Clubhouse to stir up some interest for anyone

dealing with any type of disability.

 

[Guest guest]

Hi Debbie and welcome to the group! Good luck with your support group there.

Have you ever heard of GiGi's playhouse?

Carson's Clubhouse 'sounds' like that...

http://www.gigisplayhouse.com/

--Carol in IL

[Guest guest]

Hi Carol,

Yes I have heard of Gigi's playhouse. I'd like to start the same

thing here as soon as I figure out how to get started. For now I

figured I'd start with the listserv, a friend of mine is building a

website and who knows after that. My goal is to have an actual

building for Carson's Clubhouse!

> Hi Debbie and welcome to the group! Good luck with your support

group there.

>

> Have you ever heard of GiGi's playhouse?

> Carson's Clubhouse 'sounds' like that...

> http://www.gigisplayhouse.com/

>

> --

> Carol in IL

>

[Guest guest]

Debbie,

Yes, the stimulator surgery requires usually just one over night. However,

because I had my battery/receiver unit implanted in my buttock, I didn't

have to stay over night. Some people have more pain that requires

monitoring and pain management more than other.

Welcome to the group.

( Mass.)

_____

From: Stimulator [mailto:Stimulator ] On

Behalf Of iForget@...

Sent: Saturday, August 26, 2006 1:34 PM

Stimulator

Subject: new member

Thank you

I have been reading all the posts to obtain information before I take the

final steps for a stimulator. I have little confidence in docs these days

and need your members information to take the next step.

I do have one question \ the final implanting of the unit... do you have to

stay in the hospital or is it done in the outpatient facilities for

surgeries?

I wont go into a hospital unless absolutely necessary

Debbie Clause

New Jersey

With Golden love

Debbie, Misty and Molly too

www.porthole2.com

[Guest guest]

Welcome Debbie,

My doc doesn't require an overnight. I'll tell you from experience

tho, I wish I HAD stayed in the hospital for pain management. The

first three days are awful. So just be prepared for a lot of pain

afterwards. If it doesn't hurt too badly - Yeahhh, but if it does at

least you are ready for it.

Take care and let us know how you do?

Best to you and my prayers are with you.

Ruth

>

> Thank you

> I have been reading all the posts to obtain information before I

take the final steps for a stimulator. I have little confidence in

docs these days and need your members information to take the next

step.

> I do have one question \ the final implanting of the unit... do

you have to stay in the hospital or is it done in the outpatient

facilities for surgeries?

> I wont go into a hospital unless absolutely necessary

> Debbie Clause

> New Jersey

>

> With Golden love

> Debbie, Misty and Molly too

> www.porthole2.com

>

>

>

[Guest guest]

Thank you so much.

I am still getting ready mentally to take the final steps. I am glad I found

this site!!

Debbie

Re: new member

Stimulator

> Welcome Debbie,

> My doc doesn't require an overnight. I'll tell you from

> experience

> tho, I wish I HAD stayed in the hospital for pain management.

> The

> first three days are awful. So just be prepared for a lot of

> pain

> afterwards. If it doesn't hurt too badly - Yeahhh, but if it

> does at

> least you are ready for it.

>

> Take care and let us know how you do?

>

> Best to you and my prayers are with you.

> Ruth

>

>

> >

> > Thank you

> > I have been reading all the posts to obtain information before

> I

> take the final steps for a stimulator. I have little confidence

> in

> docs these days and need your members information to take the

> next

> step.

> > I do have one question \ the final implanting of the

> unit... do

> you have to stay in the hospital or is it done in the outpatient

> facilities for surgeries?

> > I wont go into a hospital unless absolutely necessary

> > Debbie Clause

> > New Jersey

> >

> > With Golden love

> > Debbie, Misty and Molly too

> > www.porthole2.com

> >

> >

> >

[Guest guest]

Debbie

I know many people and have talked with many people who have had an

SCS implanted and none of them stayed in the hospital overnight.

Thats not to say there aren't doctors that feel otherwise. I know

when I had my surgery, I was in pain, but it wasn't anything compared

to what I deal with on an everyday basis. The first few days I

stayed in bed the majority of the time and kept ice on my back. I

took my normal pain medicine and my doctor made sure I had enough for

the surgical pain and I made it through it. I actually had the

surgery done twice because my lead moved. Knowing how the recovery

was after the first surgery I had no reservations about not staying

in the hospital overnight after the second one. If you are having

the more invasive version of the Spinal Cord Stimulator put in they

you will definitely require a hospital stay, most likely a few day.

If you don't mind some personal advice I have found from personal

experience and from talking to people that people who have their

stimulators implanted in their buttocks seem to be more comfortable

and do better than people who have them put in their abdomens.

By the way where in NJ do you live I also live in NJ. I'm in

County/ Passaic County. (My house is literally right on the

border.) If you want to email me or have other questions feel free

my email address in Jaci81@...

Good luck

Jaci

On Aug 26, 2006, at 1:33 PM, iForget@... wrote:

> Thank you

> I have been reading all the posts to obtain information before I

> take the final steps for a stimulator. I have little confidence in

> docs these days and need your members information to take the next

> step.

> I do have one question \ the final implanting of the unit... do you

> have to stay in the hospital or is it done in the outpatient

> facilities for surgeries?

> I wont go into a hospital unless absolutely necessary

> Debbie Clause

> New Jersey

>

> With Golden love

> Debbie, Misty and Molly too

> www.porthole2.com

>

>

[Guest guest]

ty for contacting me ,,,i have so many ?'s on this procedure & i dont know where

to begin. the dr cant give me a % that it will even work for me but i do know im

tired of living on pain meds just to be comfortable.

Ruth <umpoopydo@...> wrote: First of all Welcome. I'm Ruth and

I'm also just 43. I have had 5

back surgeries and multiple others. Injections galore and all the

other stuff including nerve burning. All didn't work. Pain meds just

make the pain a little managable. So took the chance after many many

sleepless nights of debate and lots of ? like you have and had the

trial done. If you go back into the posts around May, June and July

you'll find all of my questions and others questions and the answers.

There were people here who were wonderful and let me call them and they

answered my questions and made me feel better about all of this. I had

mine put in in June. It is a lot better now and does help with a lot

of the pain. I have not been able to get off my meds BUT I don't have

the excruciating pain anymore that I can't control. I turn my unit up

when it gets that way and it takes the pain away. If you would like to

call me, email me and I will give you my number. I'm sure at least a

couple of the others will offer also. Just make sure you keep posting

so that we can all help you.

Take care,

Ruth

---------------------------------

Get your email and see which of your friends are online - Right on the new

.com

[Guest guest]

Thanks, .

I have heard about your important work in Illinois and I am grateful to have you among us at IPADDU. I would be interested in hearing about your son's current status; his daily activities, his living arrangements, thoughts for the future, if you are comfortable sharing that with the group.

Ellen

Ellen Garber Bronfeldegskb@...

New Member

I am H. Farley, Jr., an attorney and father of a 23 year old autistic son. I have filed numerous lawsuits against the State of Illinois in order to obtain funding for community based services (CILA residential and day programming) for adults with developmental disabilities. If any person is seeking day programming and/or CILA residential services and are being denied services, then they may want to talk to me. I have set up web sites to provide information to persons at www.illinoisclassaction.com and at www.illinoispunswatch.comDo not accept people telling you that your disabled adult son or daughter is not entitled to services. You have a legal entitlement to services. Those parents are are assertive and agressive have a tendency to get services. "Knowledge is Power" and I will try to assist you in any manner in which I can. Bob Farleyfarleylawaol630-369-0103

[Guest guest]

It is good to see you on this group. Cindi Swanson

[Guest guest]

HI Dani,

Welcome to the group! You've had your rod for quite a few years- are you

having any new problems that you think might need treatment? I suppose most

folks who are doing well don't seek support groups! When I was doing well I

wasn't active and didn't tend to keep up with the postings. I hope you are doing

OK, but find the info you need here. I wish I had had this resource prior to

having surgery 10 years ago!

Good luck!

Bea

gypsymoon_01 <danib60@...> wrote:

Hi all,

My name is le, and I'm on Long Island, NY. I had Scoliosis

surgery back when I was 13 (I'm 40 now). I had a Harrington Rod

implanted (I think it goes from T-1 to L-4). I'm not a big poster,

but I wanted to check out the info here and maybe gather some info

about new treatments. My daughters (10 & 11) are being monitored for

scoliosis for the time being.

~ Dani

[Guest guest]

Hi Kathy:

72 D funding is for children under the age of 18 who are exhibiting a high level of need and who are in danger of being needed to be place outside of the home. It is funding to help families meet the needs of their child without having to place him/her out of the home. It typically provides about 15 hours of respite per week, but the respite is not traditional baby-sitting. There are social/community goals, etc...

Ellen

Ellen Garber Bronfeldegskb@...

New Member

My name is Kathy Lipke. I'm the mom of a 25 y/o daughter with Syndrome. is a fairly high functioing young woman. But, non-the-less, as she gets older her deficits become more glaring. She is currently living at home. She had been in an apt. in ton for several months but it didn't work out for various reasons. She works three days a week at a law firm in the city - takes the train and bus to get there. I've been following the conversations about 72d funding. I'm unclear what those services are. Also, we're trying to find someone to stay at our house with while we are out of town. Anyone have any ideas? We live in Northbrook. I'm enjoying the energy of this group and hope to learn more from all of you. Thanks.

[Guest guest]

One area where I have found good people for respite is SRAs. If you can

create a relationship with some of the coaches /staff that help facilitate

recreation, you will know who wold be a good candidate for respite. Often

(always) the SRAs staff dont make a lot of money and are looking for ways

to supplement. I have done this only three times. but each time was

successful. Good luck. Cindi

[Guest guest]

(now 23) received funding from Illinois for an out-of-state residential placement at Bancroft in New Jersey when he was 13. I consider Bancroft one of the best programs for persons with autism and behavioral issues in the country.

When 's funding was going to run out at the end of the school year when he turned 21, my wife and I had agreed that we wanted to continue to receive services at Bancroft in their adult program. With a little persuasion on my part, the State of New Jersey funded 's adult services program at Bancroft where he lives in a group home with 4 other adults with developmental disabilities and attends a vocational program during the week. needs a 1:1 to aide and his residential and day program costs approximately $155,000 a year which is paid by New Jersey and the federal government contributes to part of the costs through Medicaid.

If had returned to Illinois at 21, there would have been 2 major problems facing him. First, the State of Illinois through their rate structure would have only approved approximately $50,000 for funding for a group home and day program. This sum is inadequate to put in place an appropriate program for him. Secondly, no agency would be able to put together an appropriate program for him at a cost of $50,000. Many agencies in Illinois will not accept persons with behavioral issues, not because they are insensitive, but because they are not in a position to put in place an appropriate program when the State of Illinois will only commit a fraction of the total cost of the necessary program. Nevertheless, from a legal perspective, I am confident that if a developmentally disabled in Illinois needs an appropriate program that costs more than the State of Illinois is willing to commit and if an agency is willing to work with the family to put together an appropirate program, that with some persuasion or litigation on my part, an appropriate funding level for that person can be obtained. (I was not interested in going this route with in Illinois, given his success at Bancroft and given the State of New Jersey's commitment to fund an appropriate program) We do visit often as I tell people that a flight to the East Coast takes about as long as driving the son in the morning during rush hour.

Bob Farley

Re: New Member

Thanks, .

I have heard about your important work in Illinois and I am grateful to have you among us at IPADDU. I would be interested in hearing about your son's current status; his daily activities, his living arrangements, thoughts for the future, if you are comfortable sharing that with the group.

Ellen

Ellen Garber Bronfeld

egskbsbcglobal (DOT) net

New Member

I am H. Farley, Jr., an attorney and father of a 23 year

old autistic son. I have filed numerous lawsuits against the State of

Illinois in order to obtain funding for community based services (CILA

residential and day programming) for adults with developmental

disabilities. If any person is seeking day programming and/or CILA

residential services and are being denied services, then they may want

to talk to me. I have set up web sites to provide information to

persons at www.illinoisclassaction.com and at www.illinoispunswatch.com

Do not accept people telling you that your disabled adult son or

daughter is not entitled to services. You have a legal entitlement to

services. Those parents are are assertive and agressive have a

tendency to get services. "Knowledge is Power" and I will try to

assist you in any manner in which I can.

Bob Farley

farleylawaol

630-369-0103

Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more.

[Guest guest]

Thank you for sharing this story. I have a feeling you may be getting lots of calls after this...

I am so happy for you that your son is living the life that he wants and that you are obviously quite satisfied with.

Ellen

Ellen Garber Bronfeldegskb@...

New Member

I am H. Farley, Jr., an attorney and father of a 23 year old autistic son. I have filed numerous lawsuits against the State of Illinois in order to obtain funding for community based services (CILA residential and day programming) for adults with developmental disabilities. If any person is seeking day programming and/or CILA residential services and are being denied services, then they may want to talk to me. I have set up web sites to provide information to persons at www.illinoisclassaction.com and at www.illinoispunswatch.comDo not accept people telling you that your disabled adult son or daughter is not entitled to services. You have a legal entitlement to services. Those parents are are assertive and agressive have a tendency to get services. "Knowledge is Power" and I will try to assist you in any manner in which I can. Bob Farleyfarleylawaol630-369-0103

Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more.

[Guest guest]

I do not have many suggestions, to be honest, other than to start visiting large businesses and corporations in the area and bring along a portfolio of this young man's work history. It sounds like he is quite capable. Of course, determining what he would ideally enjoy doing would be the first place to start...

Your community and your work sound wonderful!

Ellen

Ellen Garber Bronfeldegskb@...

new member

Hi, everyone.I am the director of a small, faith-based intentional residential community where adults with DD live with live-in companion assistants in a family-like setting. This community is part of an international network of such communities, but of course, each must deal with its local setting. Illinois is a challenge. My first of many information searches involves our newest and youngest resident who is 29 and on the autism spectrum. Since he moved in with us 18 months ago, we have not been able to find him a job. When he still lived with his parents, he had a number of community jobs (with job coaches). Most were short-lived, although he did well at one. We have been working with JVS for six months, but with no results--not even an interview. We, ourselves, found him a couple of volunteer positions, but they are only for a short time each day and he needs more. We are looking into Community Support Services, which I know to be a good agency, but am afraid they will not extend to us geographically. We are on the Chicago side of Austin, just east of Oak Park and North of Cicero. Any suggestions?

[Guest guest]

Hi Bea,

Thanks for the welcome! I think I'm doing pretty good. I had also

joined a group for people who wound up with flatback (because I had

been having a problem with that awhile ago), but compared to the

problems that they had, I'm doing very well. I consider myself very

lucky. About a dozen years ago, I was having a lot of problems. I

was bent over and unable to straighten, as well as having a lot of

pain down my leg. The doctor I saw recommended major revision

surgery and fusion to my hips. When he found out that I had not

tried physical therapy yet, he said to try that first. Luckily, the

therapy worked wonders! I was able to have two children and I am

still doing well, even though I haven't really done the exercise in

many, many years. The biggest help that I have found is the use of

lumbar rolls all of the time (while seated at work, sitting in the

car, at my home computer, and even while sleeping at night).

I joined this group because it's nice to have contact with people

who know what you're going through... plus I want to stay up on the

current treatments, etc., because my daughters might need it.

Where are you located?

~ le

> Hi all,

> My name is le, and I'm on Long Island, NY. I had Scoliosis

> surgery back when I was 13 (I'm 40 now). I had a Harrington Rod

> implanted (I think it goes from T-1 to L-4). I'm not a big poster,

> but I wanted to check out the info here and maybe gather some info

> about new treatments. My daughters (10 & 11) are being monitored

for

> scoliosis for the time being.

> ~ Dani

>

>

>

>

>

>

>

[Guest guest]

Welcome Marie,

This is a great group of people!

[Guest guest]

Greetings! Thank you for the warm welcome. I have already appreciated

the group and the posts! I have polyarthritis, RA, OA and psoriatic

arthritis. I am currently on Endocet 5/325 x2 tabs every six hours. I

am very uncomfortable most of the time and just try to navigate around

the pain. Thank you all for this awesome group! Marie

[Guest guest]

Welcome,

I have Reactive arthritis, Fibromyalgia, Eye problems and PTSD. I

have been on MTX for a year, and it is not working well, pain pills

and anti-inflamatories besides the high BP and anxiety issues.

I just started Enbrel last week. And saw new Doc. I am leaving my

passive DR and changing to one who treats the whole me, and is going

to do his best to give me my life back. I got SSD my first time, in 6

weeks. And I never sent in my questions. Guess I have to admit being

so sick for over 2 years, and the Dr's reports sent were enough.

The Enbrel gave me less hand and finger pain, and a tad more energy.

It wore off Monday, and I am terrible today (wed). My dil is a med

asst and is coming to help me learn my shots. Don't have to pay $15

each week until I get the hang of it. New doc wants to double the mtx

and make it injectable.

I see you have many issues, and weighing each one takes practice to

balance the pain, movement and help in keeping us joint healthy.

Best of luck to you,

Kay

[Guest guest]

Rosemarie

I had Bell’s Palsy following a shingles attack prior to being diagnosed with

CLL. From what I remember, it was the left hand side of my face that was

affected. It was difficult to drink, and my eyes were difficult to close

and always watering especially when I was out side in a slight wind. It did

also go to my ear and caused vertigo which was an interesting experience.

Once again from memory, the attack lasted for a few weeks.

There was always a concern that the damage could be permanent, but I was

luck in this respect.

Regards

 

DEMOGRAPHICS: UK, Bournemouth. Dx May 2000. Age 51.

BLOODCOUNTS: Whites 6.7, Lymphocytes 1.3, Neutrophils 4.8, Hb 14.6,

Platelets 152.

GENES: Mutated IgVH (93%), Negative ZAP 70 (3%), CD38 Negative (1%).

IMMUNOPHENOTYPING: #11 11q22 and 11q23 - Normal, #13 - 13q14 - Normal, #17 -

17p13 - Normal. Trisomy 12 - Positive.

BONE MARROW: Heavily Compacted and Diffused.

TREATMENT: Oral Fludarabine 2002. 4 weeks of Rituxan 04 and 05. 05/06

monthly Rituxan (375mg/m/sq) and Chlorambucil (10mg per day for 14 days).

 

 

 

________________________________________

From: [mailto: ] On Behalf Of

rrdan829

Sent: 12 March 2007 15:29

Subject: New Member

Hello All:

        I am a 56-year-old female diagnosed with CLL 10 years ago.  Two

years later, I developed bilateral facial palsies (like a double Bell's

Palsy) that I still have.  I understand this is very unusual, and I would

like to know if anyone has been challenged with any kind of paralysis such

as this.

        I truly appreciate any information you may provide, and I wish you

all a wonderful day.  God bless.

                                                 Sincerely,

                                                 Rosemarie

--

No virus found in this outgoing message.

Checked by AVG Free Edition.

Version: 7.5.446 / Virus Database: 268.18.9/719 - Release Date: 12/03/2007

08:41