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klcs2250,

Hi...I guess before anyone would hazard a guess of what might be

helpful it might be useful to tell us a little more....maybe past

surgical history or where you live?

For the most part, this board is very helpful for those with

Harrington Rod induced flatback and other similar problems...are you

just in the early stages of thinking this might be your problem?

You probably will find it useful to spend some time going through

back posts here...there are about 4-5 years worth..even if you don't

do it in a systematic way you will find out tons of info.

Check out the files and links on the main page as well.

Welcome, well, actually I guess I am sorry you have to be here but

you will find support and info here should you need it! Cm

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  • 1 month later...

Colleen,

Oh my gosh, in the years I've been reading the site, I think you are

the first person I've come across like me. Originally fused from T5

to the sacrum, S curve with two Harrington Rods. I was a little

older than you, though (age 17 then, now age 45 with flatback

syndrome).

Welcome to the group, but I'm so sorry you are having problems. Good

luck with your appt. with Dr. Farcy. His office staff sent me some

helpful emails a couple of years back.

I'll read with interest any other details you share on this site in

the future!

Take care,

loriann

>

>

> Hi Everyone,

>

> My name is Colleen, I've been hanging around here a week or so

> checking things out.

>

> In a nut shell, I was diagnosed with an S curve at 11, operated on

at

> 12...2 H rods and fusion fron T5-sacrum. Now facing revision

surgery.

> Am terrified. I have an appoitment with Dr. Farcy on 2/10 and will

> let youknow how it goes. I feel in my heart that this is the

surgeon

> for me, I have been changing my mind and cancelling appointments

for

> 5-6 years now.

>

> Glad to know there is a place I can turn where people understand

from

> experience, and I am also sorry that there are so many of us. Hope

I

> can help you as well.

>

> Colleen

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Welcome to the group, Colleen!

Yes, I think we do understand.

Terror before revision surgery is totally normal. In fact, it is

probably the only normal emotion to feel.

I'm glad you have found a surgeon you feel good about.

We are here for you.

>

>

> Hi Everyone,

>

> My name is Colleen, I've been hanging around here a week or so

> checking things out.

>

> In a nut shell, I was diagnosed with an S curve at 11, operated on

at

> 12...2 H rods and fusion fron T5-sacrum. Now facing revision

surgery.

> Am terrified. I have an appoitment with Dr. Farcy on 2/10 and will

> let youknow how it goes. I feel in my heart that this is the

surgeon

> for me, I have been changing my mind and cancelling appointments

for

> 5-6 years now.

>

> Glad to know there is a place I can turn where people understand

from

> experience, and I am also sorry that there are so many of us. Hope

I

> can help you as well.

>

> Colleen

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  • 2 weeks later...

Amy - nice to have you with us - we try to focus on issues of general

interest, although, of course, we wind up discussing individual cases as well -

we

have formed a parallel, " off-internet " group (CIG - CLL Information Group) to

try to raise the CLL voice and get more attention - Our first event will be a

teleconference with Dr. Mort on March 3 - Balan

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  • 4 weeks later...
Guest guest

In a message dated 3/4/2005 7:26:51 PM Eastern Standard Time,

cljgawa@... writes:

I guess my first question would be is what can I eat when I have a craving

for something yummy?

Boiled egg, egg salad, tuna fish salad, salad, beef jerky, beef hotdogs,

almonds, pecans, pumpkin seeds, walnuts, broccoli, celery, carrots, sliced bell

peppers, olives, leftovers, bananas, blueberries, apples, cherries, grapes,

strawberries, plums, prunes, raisin, cubed watermelon, cubed pineapple.

Keep ready food on hand to put in your mouth. Chop up veggies, fruit, and

protein sources and keep them in a container. Don't overdo the fruit and nuts.

A handful of nuts and a big glass of water should cut the cravings or an

apple and a big glass of water etc. If you're eating enough protein and fat,

you

should satisfy most of the cravings.

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A pitfall I fell into that I may be able to spare you from is that I kept

finding " substitutes " for avoids. Unfortunately most of the substitutes are

neutrals and you need to load up on beneficials. Base your diet on meat, fat,

and

vegetables then look to bread, potato, milk, etc. substitutes in small

portions.

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Hi Carol,

Welcome to the group. Let us know if you have any other questions. One of the

things we need to know is what do you call something yummy? Like for me that

could be anything from chocolate, cookies, cakes, cottage cheese, cheese cake,

etc.

New Member

Hi:

My name is Carol. I live in Ontario, Canada with my husband of almost 39

years. We have two grown daughters but no grandchildren. My baby is a 16 mo.

old German Shepherd female pup.

I have a lot of health problems and am overweight so have to do something. I

just joined because I bought the book Eat Right 4 Your Type and I will

definitely need some help on this one. I just looked at my fridge and cupboard

and I can't believe how much food I have that I'm not supposed to eat. I plan

on going out tomorrow and doing some shopping.

I guess my first question would be is what can I eat when I have a craving for

something yummy? A carrot stick won't do it!! :)

Carol

http://myownboss.ownanewbusiness.com/

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Hi Carol, Welcome to the BTD!

A compliant snack that is good when you're starting out is plain Rice

Crackers (I like & Son's) with almond butter and cherry jam (I like

St. Dalfour's, I think it's called). Be sure to pick up lots of beef and

other beneficials as well, and some neutral cheese like feta or mozzarella.

New Member

Hi:

My name is Carol. I live in Ontario, Canada with my husband of almost 39

years. We have two grown daughters but no grandchildren. My baby is a 16

mo. old German Shepherd female pup.

I have a lot of health problems and am overweight so have to do something.

I just joined because I bought the book Eat Right 4 Your Type and I will

definitely need some help on this one. I just looked at my fridge and

cupboard and I can't believe how much food I have that I'm not supposed to

eat. I plan on going out tomorrow and doing some shopping.

I guess my first question would be is what can I eat when I have a craving

for something yummy? A carrot stick won't do it!! :)

Carol

http://myownboss.ownanewbusiness.com/

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Hi Carol,

Welcome to the list !

I found 'yummy replacements' hard too [and still do sometimes] but found walnuts

and pumpkin seeds handy - you might need to rework your thinking a bit as to

what constitutes 'yummy' - sometimes it can be as much a mental thing as a taste

thing :o)

I also like thinly sliced, fried sweet potato - that is probably my fav. yummy

treat altho I don't have it often as I too am trying to lose weight. I enjoy a

nice piece of celery every so often too.

We have GSD's too - I bet she's georgous !

Good to have you here.

all the best

:o)

Be a Transformer, Not a Conformer,

Observe the Masses, And then do the Opposite !

http://www.freewebs.com/inspire/

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I also like rice crackers (not cakes) from Sesmark. (Brown Rice or Sesame).

I have used almond butter, tahini, or ghee - either plain or with blackstrap

molasses or honey.

If anybody likes honey you should splurge on Tupelo Honey - it is lower glycemic

And Blackstrap molasses is low glycemic and full of minerals.

KM

<bloggertypeo@...> wrote:

Hi Carol, Welcome to the BTD!

A compliant snack that is good when you're starting out is plain Rice

Crackers (I like & Son's) with almond butter and cherry jam (I like

St. Dalfour's, I think it's called). Be sure to pick up lots of beef and

other beneficials as well, and some neutral cheese like feta or mozzarella.

New Member

Hi:

My name is Carol. I live in Ontario, Canada with my husband of almost 39

years. We have two grown daughters but no grandchildren. My baby is a 16

mo. old German Shepherd female pup.

I have a lot of health problems and am overweight so have to do something.

I just joined because I bought the book Eat Right 4 Your Type and I will

definitely need some help on this one. I just looked at my fridge and

cupboard and I can't believe how much food I have that I'm not supposed to

eat. I plan on going out tomorrow and doing some shopping.

I guess my first question would be is what can I eat when I have a craving

for something yummy? A carrot stick won't do it!! :)

Carol

http://myownboss.ownanewbusiness.com/

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Carol Gawa wrote:

<<<My name is Carol. I live in Ontario, Canada with my husband of

almost 39 years. We have two grown daughters but no grandchildren. My

baby is a 16 mo. old German Shepherd female pup.>>

Hi Carol - Welcome.

I'm Irene in Spokane WA with a houseful of feline companions of the

Norwegian Forest Cat persuasion :-) Two kids, four grand kids so far :-)

<< I have a lot of health problems and am overweight so have to do

something. I just joined because I bought the book Eat Right 4 Your

Type and I will definitely need some help on this one. I just looked at

my fridge and cupboard and I can't believe how much food I have that I'm

not supposed to eat. I plan on going out tomorrow and doing some

shopping.>>>

Good for you - the best way to start is to have the right foods handy :-))

<<I guess my first question would be is what can I eat when I have a

craving for something yummy? A carrot stick won't do it!! :) >>

A giant cup of green tea plus:

* A salmon pattie with a slice of cheese and an egg on it.

(Pattie cooks in 3 mins in microwave; egg poaches in 22 secs)

* Chunks of beef microwaved 90 seconds with curry powder added.

* Handful of walnuts or hazelnuts plus some sheets of nori.

* Quick 3-egg omelette. Cooks in 1.5 minutes ion the microwave and you

can add all kinds of fillings - whatever you'd put on a pizza - just put

it in an omelette instead. (Get one of those microwave omelette devices

- they are magic. Get the poaching one as well.

Make it a *protein* snack with lots of flavour - add spices and such.

Protein will remove " yummy " cravings - carbs will not.

Alternate above with a new food-incompatible hobby such as:

sewing, ropework, decorative knots, macramé, beading, t-shirt painting,

knitting, crochet, colouring in, zigsaw puzzle, journal writing,

drawing, walking, yoga, volunteer work, making custom cards for b'days

etc, meditation, doing a garden or house project, take a course, singing

and/or dancing to a CD, calligraphy, graphology, antique clock repair,

antique browsing, embroidery, crazy-quilting, walk the dog, learn

chinese, read a useful or fun book, make a scrap book, have fun on an

exercise ball, do origami, teach your dog a new trick, build a sailboat

(real or model), write to a magazine about something, visit the museum,

the Japanese garden, play with model trains, go to the snake park, the

zoo, the crocodile farm or whatever a tourist would do in your city. DO

almost anything :-))

YOu had a good answer - you said:

" ....so have to do something. "

Absolutely DO something - make a list of things you'd *like* to DO and

just do it :-) If you are hungry, eat. Skip carbs (insulin turns them

top fat) - but eat whatever else you want that is okay by blood type,

any time that you are hungry - no need to go hungry.

So far I lost 70 pounds eating BTD food only but without carbs, any time

when I am hungry, as much as I want.

Typical meal:

Steak and eggs with mushroom and tomato, green tea and red wine.

Yum.

Namaste,

Irene

--

Irene de Villiers, B.Sc; AASCA; MCSSA; D.I.Hom.

P.O.Box 4703, Spokane, WA 99220-0703.

http://www.angelfire.com/fl/furryboots/clickhere.html

Veterinary Homeopath and Feline Information Counsellor.

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Hi Jen :)

Welcome! It's good to meet someone else who had stenosis start when

they were quite young. I suppose your doctor told you that stenosis

usually comes with age. :(

I started having severe back pain when I was 29 years old. The

problem is that back then (early eighties) they didn't do MRI's

except in extraordinary situations. I was just told by doctor after

doctor that it was just a little strain and I was just exaggerating

the pain :-p It was so frustrating...I thought I was going mad!

Finally in 2000 a doctor believed me and had an MRI done. The

problem now is that the stenosis is so severe and my pain receptors

are so messed up with living with the pain for so long that surgery

is not an option any more. Dr. said it would correct the mechanics

but the pain wouldn't go away and might even increase because of the

permanent nerve damage.

Sounds like you have gone through some of the same stuff!! {{hugs}}

Please, keep us posted and let's chat and keep each other company,

ok? :)

> Hey all, just wanted to introduce myself. I am a new member, not

sure what

> to say. I am 22 years old and has suffered with back pain for bout

3 years

> now. For 2 years, I was told that there was nothing wrong, so I

went to a

> chiropractor after almost 3 years of pain. The chiropractor sent

me for and MRI,

> and I had 3 bulging disks, and one badly ruptured disk with bone

spurs in the

> lumbar spine also. I had surgery in October, 2004. Since then, I

have lost

> feeling on the right part of my right leg below the knee, causing

permanent foot

> drop. This is frustrating. I had another MRI last week, due to a

sharp

> increase in pain recently. They say I have spinal stenosis caused

from spinal

> spondylolysis. I am not sure what all this means, but he says it

is a waiting

> game to see if it does get any worse. Just lookin for some advice

and to talk to

> others with this problem. I am a full time student, 20 hours a

week, and

> also work 40 hours a week. How can I minimize the pain to keep

going? I hope to

> hear from you all soon.

>

> Thanks,

> Jeri Leigh R.

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Guest guest

Don't try to do that all at once. You don't want to be so soar you can't hardly

move. That is a good goal to reach for. Wish there were a YMCA near here.

New Member

Hello Everyone,

I have read about this diet for some time but never got into it.

Heard so many mixed reviews about it but after reading some of the

facts on it I am convinced that it is right.

I am a type O and have always been very sensitive to wheat and I do

have a bit low numbers in the thyroid area so you can see that

everything makes sense to me when I look at this diet. I do very

well on high protein diets that are lean proteins such as tuna, and

turkey. I'm not crazy about beef.

I am convinced that I do need to exercise twice as much as the

average person to lose weight. My problem is that I am a

procrastinator and just lazy about working out. So I've decided

that when I get home I will feed my children then I will take them

to the gym with me and work out for 1.5 hours. Our gym which is a

YMCA has great programs for kids so I should really use them so that

I won't have excuses.

I am currently 104 pounds overweight and have gained this in the

past 7 years. I really need to make major changes before my health

goes down the drain.

I look forward to speaking to everyone.

Pennsylvania

Start Weight 234

2nd Weigh In 3/13/2005:

3rd Weigh In 3/20/2005:

Goal Weight 130 (104 pounds to lose)

FAT: 46%

Goal FAT: 17%

" Your no good to anyone if you aren't good to yourself! "

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mirancs8 wrote:

> Our gym which is a

> YMCA has great programs for kids so I should really use them so that

> I won't have excuses.

Welcome - I shall " join " you with some Y work in the evening -

and some weight loss attempting.

I have a membership to the YWCA and they have open swim at 7.30pm. I

have been " meaning " to go for ages. So I'll see if I can start with Mon

and Thursday evenings as a starting place.

> I am currently 104 pounds overweight and have gained this in the

> past 7 years. I really need to make major changes before my health

> goes down the drain.

I started a bit ahead of you in that I was 300 lbs a year ago but I am

near your weight now - 230 actually. I do not know where my ideal weight

is, I thought it might be 195 but a chart I saw recently says 170 and I

was 165 when I got married and thought I was overweight then - but I

used to be a very skinny long kid. (I'm 6 foot 3 - or actually they tell

me I have shrunk - and am only 6 foot 2 now.)

SO I shall aim for 195 to start with and then see where I need to go

next. :-)))

I also promise myself a new outfit (albeit from the 2nd hand store)

for each ten pounds lost. My current problem is that I am at a plateau

and have been stuck at 230 for a couple months. Maybe you will inspire

me to get off it :-))

Namaste,

Irene

--

Irene de Villiers, B.Sc; AASCA; MCSSA; D.I.Hom.

P.O.Box 4703, Spokane, WA 99220-0703.

http://www.angelfire.com/fl/furryboots/clickhere.html

Veterinary Homeopath and Feline Information Counsellor.

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I assume you have checked out s web site www.dadamo.com

Also check out this site www.foodforyourblood.com has good info and

books and products for good prices.

Good for you on starting before you are in serious trouble.

KM

mirancs8 <mirancs8@...> wrote:

Hello Everyone,

I have read about this diet for some time but never got into it.

Heard so many mixed reviews about it but after reading some of the

facts on it I am convinced that it is right.

I am a type O and have always been very sensitive to wheat and I do

have a bit low numbers in the thyroid area so you can see that

everything makes sense to me when I look at this diet. I do very

well on high protein diets that are lean proteins such as tuna, and

turkey. I'm not crazy about beef.

I am convinced that I do need to exercise twice as much as the

average person to lose weight. My problem is that I am a

procrastinator and just lazy about working out. So I've decided

that when I get home I will feed my children then I will take them

to the gym with me and work out for 1.5 hours. Our gym which is a

YMCA has great programs for kids so I should really use them so that

I won't have excuses.

I am currently 104 pounds overweight and have gained this in the

past 7 years. I really need to make major changes before my health

goes down the drain.

I look forward to speaking to everyone.

Pennsylvania

Start Weight 234

2nd Weigh In 3/13/2005:

3rd Weigh In 3/20/2005:

Goal Weight 130 (104 pounds to lose)

FAT: 46%

Goal FAT: 17%

" Your no good to anyone if you aren't good to yourself! "

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Hi!

I'm a little worried about you jumping in to 1.5 hours of work out.

If you haven't been exercising regularly, you are likely to hurt

yourself. Even more likely, you are going to burn out

psycologically. I'm going to guess that your problem is not laziness

but perfectionism. " If you can't do it right, don't do it at all " is

a mantra that haunts a lot of us. It will doom you to failure.

I'm going to be radical and say skip the YMCA for now. Take your

kids for a twenty minute walk every day for the next four weeks.

Make exercise a part of your daily routine. Make it part of your

life. You didn't get 104 pounds overweight overnight, you aren't

going to lose it overnight. In fact, at a healthy loss rate of two

pounds per week, you probably shouldn't even lose it in a year.

I'm going to go out on a limb here and say you probably also allow

perfectionism to sabatoge other areas of your life. Do you have

trouble keeping your house as clean as you want it? (you don't have

to answer that) Do you have a fancy day planner or palm pilot yet

still miss appointments? Do you have a garage full of stuff you keep

meaning to organize? Do you feel like martyr when people don't seem

to appreciate all the mundane things you do like mop the floor, or

when your husband/boyfriend fails to get you the right thing for

Valentines Day? Is your laundry pile nicknamed " Mount Washmore " ?

In case you haven't guessed, I'm describing myself a couple of years

ago and to a certain extent, I still am that way. Thanks to some

extra help from www.flylady.net (free site on home organizing) and

the good people on this board, I'm doing much better. I do not eat

beef, but I don't allow my perfectionism to stop me from getting all

the other benefits of this diet and way of life. I only had about 20

pounds to lose, but it's been gone for over a year. No more yo-yo

weight loss and gain, not even at Christmas. It's soooo liberating!

Love your signature quote!

-Robin

My problem is that I am a

> procrastinator and just lazy about working out. So I've decided

> that when I get home I will feed my children then I will take them

> to the gym with me and work out for 1.5 hours. Our gym which is a

> YMCA has great programs for kids so I should really use them so

that

> I won't have excuses.

> " Your no good to anyone if you aren't good to yourself! "

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Hi Robin,

Thank you for writing. Yes that's all me. Everything you said is

me. The strange thing is that when I was thin I was ontop of

everything. It's as if the weight is making me act this way. I

wasn't like this before trust me but I am so bad. Do you think I

went to the gym at all this week? NO!

Hopefully I'll be able to get my head out of the clouds.

Thank you

C+

>

> My problem is that I am a

> > procrastinator and just lazy about working out. So I've decided

> > that when I get home I will feed my children then I will take

them

> > to the gym with me and work out for 1.5 hours. Our gym which is

a

> > YMCA has great programs for kids so I should really use them so

> that

> > I won't have excuses.

>

> > " Your no good to anyone if you aren't good to yourself! "

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I urge you to start walking 20 minutes everyday and to go to

FlyLady.net! She'll help with the walking and getting your house back

the way it used to be.

BTW, did you have kids when you were thin? Being organized is much

easier when you aren't trying to keep track of the little folks as

well as yourself!

-Robin

> >

> > My problem is that I am a

> > > procrastinator and just lazy about working out. So I've

decided

> > > that when I get home I will feed my children then I will take

> them

> > > to the gym with me and work out for 1.5 hours. Our gym which

is

> a

> > > YMCA has great programs for kids so I should really use them so

> > that

> > > I won't have excuses.

> >

> > > " Your no good to anyone if you aren't good to yourself! "

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Try to find time for some exercise and when things don't work out, don't put a

burdon of blame on your shoulders. Take it one day at a time. I don't know if

you work, or what time you get up. Are you home all day, or do you work out of

the home? I'm in SE Oklahoma. if you are up at 6 and get the channel Life on

your TV, you might want to try working out with Austin. I try to either

spend time working in the yard or walking when my road is dry. This week, I

rearranged the cinder blocks for my flower bed, and then did very little because

it made me so soar. I did do some stretches, but even that hurt. So today I

started all over with a short walk and some streching, and if it rains tomorrow,

I'll try to be up at 5:30 so I can record Austin and so what I can, just

to be active with more than housework.

Re: New Member

Hi Robin,

Thank you for writing. Yes that's all me. Everything you said is

me. The strange thing is that when I was thin I was ontop of

everything. It's as if the weight is making me act this way. I

wasn't like this before trust me but I am so bad. Do you think I

went to the gym at all this week? NO!

Hopefully I'll be able to get my head out of the clouds.

Thank you

C+

>

> My problem is that I am a

> > procrastinator and just lazy about working out. So I've decided

> > that when I get home I will feed my children then I will take

them

> > to the gym with me and work out for 1.5 hours. Our gym which is

a

> > YMCA has great programs for kids so I should really use them so

> that

> > I won't have excuses.

>

> > " Your no good to anyone if you aren't good to yourself! "

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In a message dated 3/20/2005 3:50:09 PM Eastern Standard Time,

mirancs8@... writes:

Do you think I

went to the gym at all this week? NO!

Don't be so hard on yourself. The beauty of this diet is you just start over

again tomorrow. Ridding yourself of the habit of living on starches and

carbs for years is not easy. Losing weight and developing new eating habits

takes

time. For what it's worth, I don't think meat is nearly as chemically

tainted as some people would like you to believe. PETA, animal rights lovers,

and

agricultural companies have good lobbies. There are no scientific studies I

have found that indicate that meat is tainted. Sensationalized articles are not

scientific research. If you eat enough protein, you won't get hungry and eat

carbs. Take it a day at a time. We all go through this.

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  • 3 months later...
Guest guest

Hi!

I'm from Iowa, too! I live in Davenport. Where are you located?

Welcome to our family......

Kilpatrick

~~~~~~

Guard well your spare moments. They are like uncut diamonds. Discard them

and their value will never be known. Improve them and they will become the

brightest gems in a useful life. Ralph Waldo Emerson

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

EMAIL: juliette@...

PERSONAL HOMEPAGE PAGE http://members.tripod.com/~LizK

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

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HEy Gena,

I don't have Rieter's but my son-in-law does and I have seen what it

can do to you rlife and the life of your family.

This is a great site filled with caring thoughtful people that are

going threough what you are and willing to share.

Check back often and you will start to fill differently about yourself.

My son-in-law Andy heard about enbrel from this site and started on it

3 weeks ago. It has made a huge differnece in his quality of life. His

eyes have cleared up, his jonts have little to no pain and his

flexibility has increased greatly. Because of this his bright cheery

personality has returned.

True not all medicines workj for everyone but give the enbrel a try.

There is hope out there so don't give up-for you or your children.

luv ya, Kathi

Hope to see y'all in MT. Vernon,IL June 15,16,17,2007

____________________________________________________

Sports

Rekindle the Rivalries. Sign up for Fantasy Football

http://football.fantasysports.

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Hi Gena,

I am very sorry that you have to change your life like you do. I am

50 years old and am going through all of the same stuff. I was diagnosed with

Reiter's when I was 24, and my Rheumatologist at that time told me I would

become disabled in the future so I should just stay active. I managed to make it

to 45 before the pain became unbearable and I sought help. I had to retire from

a job that I enjoyed for 22 years, like you, and also in a factory with

concrete floors. That caused my feet to suffer from permanent bone damage, and

without even asking for it I was prescribed pain killers, which I am taking now

and forever. I thought you might like to hear from someone who's life mirrors

your own. I also applied for Social Security Disability and after a year of

waiting I was accepted. After I was rejected the first try, I hired a lawyer

who

handles only Soc Sec disability cases. I live in metro Detroit, and there are

LOTS of these lawyers, they even advertise on daytime TV. I would recommend

you try it that way. I hope this helps you, and it's good that you found this

site. It sure helps to know that you are not alone. Way back when I got this

lousy disease I really suffered in silence. You know how tough it is to explain

to people what we are going through. Now you can just copy this info to

explain.

Hope you get better, Harv

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