Guest guest Posted December 13, 2004 Report Share Posted December 13, 2004 klcs2250, Hi...I guess before anyone would hazard a guess of what might be helpful it might be useful to tell us a little more....maybe past surgical history or where you live? For the most part, this board is very helpful for those with Harrington Rod induced flatback and other similar problems...are you just in the early stages of thinking this might be your problem? You probably will find it useful to spend some time going through back posts here...there are about 4-5 years worth..even if you don't do it in a systematic way you will find out tons of info. Check out the files and links on the main page as well. Welcome, well, actually I guess I am sorry you have to be here but you will find support and info here should you need it! Cm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2005 Report Share Posted January 24, 2005 Colleen, Oh my gosh, in the years I've been reading the site, I think you are the first person I've come across like me. Originally fused from T5 to the sacrum, S curve with two Harrington Rods. I was a little older than you, though (age 17 then, now age 45 with flatback syndrome). Welcome to the group, but I'm so sorry you are having problems. Good luck with your appt. with Dr. Farcy. His office staff sent me some helpful emails a couple of years back. I'll read with interest any other details you share on this site in the future! Take care, loriann > > > Hi Everyone, > > My name is Colleen, I've been hanging around here a week or so > checking things out. > > In a nut shell, I was diagnosed with an S curve at 11, operated on at > 12...2 H rods and fusion fron T5-sacrum. Now facing revision surgery. > Am terrified. I have an appoitment with Dr. Farcy on 2/10 and will > let youknow how it goes. I feel in my heart that this is the surgeon > for me, I have been changing my mind and cancelling appointments for > 5-6 years now. > > Glad to know there is a place I can turn where people understand from > experience, and I am also sorry that there are so many of us. Hope I > can help you as well. > > Colleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2005 Report Share Posted January 27, 2005 Welcome to the group, Colleen! Yes, I think we do understand. Terror before revision surgery is totally normal. In fact, it is probably the only normal emotion to feel. I'm glad you have found a surgeon you feel good about. We are here for you. > > > Hi Everyone, > > My name is Colleen, I've been hanging around here a week or so > checking things out. > > In a nut shell, I was diagnosed with an S curve at 11, operated on at > 12...2 H rods and fusion fron T5-sacrum. Now facing revision surgery. > Am terrified. I have an appoitment with Dr. Farcy on 2/10 and will > let youknow how it goes. I feel in my heart that this is the surgeon > for me, I have been changing my mind and cancelling appointments for > 5-6 years now. > > Glad to know there is a place I can turn where people understand from > experience, and I am also sorry that there are so many of us. Hope I > can help you as well. > > Colleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2005 Report Share Posted February 7, 2005 Amy - nice to have you with us - we try to focus on issues of general interest, although, of course, we wind up discussing individual cases as well - we have formed a parallel, " off-internet " group (CIG - CLL Information Group) to try to raise the CLL voice and get more attention - Our first event will be a teleconference with Dr. Mort on March 3 - Balan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2005 Report Share Posted February 9, 2005 Hi Amy, Thanks for posting. Can you say anything about research funded by the LRF that is specifically for CLL? Thanks again! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2005 Report Share Posted February 10, 2005 Dan - welcome to the group - can I add your name to our " off-Internet " group, CIG, CLL Information Group? We have our first teleconference with Dr. Mort in March - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2005 Report Share Posted March 4, 2005 In a message dated 3/4/2005 7:26:51 PM Eastern Standard Time, cljgawa@... writes: I guess my first question would be is what can I eat when I have a craving for something yummy? Boiled egg, egg salad, tuna fish salad, salad, beef jerky, beef hotdogs, almonds, pecans, pumpkin seeds, walnuts, broccoli, celery, carrots, sliced bell peppers, olives, leftovers, bananas, blueberries, apples, cherries, grapes, strawberries, plums, prunes, raisin, cubed watermelon, cubed pineapple. Keep ready food on hand to put in your mouth. Chop up veggies, fruit, and protein sources and keep them in a container. Don't overdo the fruit and nuts. A handful of nuts and a big glass of water should cut the cravings or an apple and a big glass of water etc. If you're eating enough protein and fat, you should satisfy most of the cravings. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2005 Report Share Posted March 4, 2005 A pitfall I fell into that I may be able to spare you from is that I kept finding " substitutes " for avoids. Unfortunately most of the substitutes are neutrals and you need to load up on beneficials. Base your diet on meat, fat, and vegetables then look to bread, potato, milk, etc. substitutes in small portions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2005 Report Share Posted March 4, 2005 Hi Carol, Welcome to the group. Let us know if you have any other questions. One of the things we need to know is what do you call something yummy? Like for me that could be anything from chocolate, cookies, cakes, cottage cheese, cheese cake, etc. New Member Hi: My name is Carol. I live in Ontario, Canada with my husband of almost 39 years. We have two grown daughters but no grandchildren. My baby is a 16 mo. old German Shepherd female pup. I have a lot of health problems and am overweight so have to do something. I just joined because I bought the book Eat Right 4 Your Type and I will definitely need some help on this one. I just looked at my fridge and cupboard and I can't believe how much food I have that I'm not supposed to eat. I plan on going out tomorrow and doing some shopping. I guess my first question would be is what can I eat when I have a craving for something yummy? A carrot stick won't do it!! Carol http://myownboss.ownanewbusiness.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2005 Report Share Posted March 4, 2005 Hi Carol, Welcome to the BTD! A compliant snack that is good when you're starting out is plain Rice Crackers (I like & Son's) with almond butter and cherry jam (I like St. Dalfour's, I think it's called). Be sure to pick up lots of beef and other beneficials as well, and some neutral cheese like feta or mozzarella. New Member Hi: My name is Carol. I live in Ontario, Canada with my husband of almost 39 years. We have two grown daughters but no grandchildren. My baby is a 16 mo. old German Shepherd female pup. I have a lot of health problems and am overweight so have to do something. I just joined because I bought the book Eat Right 4 Your Type and I will definitely need some help on this one. I just looked at my fridge and cupboard and I can't believe how much food I have that I'm not supposed to eat. I plan on going out tomorrow and doing some shopping. I guess my first question would be is what can I eat when I have a craving for something yummy? A carrot stick won't do it!! Carol http://myownboss.ownanewbusiness.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2005 Report Share Posted March 5, 2005 Hi Carol, Welcome to the list ! I found 'yummy replacements' hard too [and still do sometimes] but found walnuts and pumpkin seeds handy - you might need to rework your thinking a bit as to what constitutes 'yummy' - sometimes it can be as much a mental thing as a taste thing ) I also like thinly sliced, fried sweet potato - that is probably my fav. yummy treat altho I don't have it often as I too am trying to lose weight. I enjoy a nice piece of celery every so often too. We have GSD's too - I bet she's georgous ! Good to have you here. all the best ) Be a Transformer, Not a Conformer, Observe the Masses, And then do the Opposite ! http://www.freewebs.com/inspire/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2005 Report Share Posted March 5, 2005 I also like rice crackers (not cakes) from Sesmark. (Brown Rice or Sesame). I have used almond butter, tahini, or ghee - either plain or with blackstrap molasses or honey. If anybody likes honey you should splurge on Tupelo Honey - it is lower glycemic And Blackstrap molasses is low glycemic and full of minerals. KM <bloggertypeo@...> wrote: Hi Carol, Welcome to the BTD! A compliant snack that is good when you're starting out is plain Rice Crackers (I like & Son's) with almond butter and cherry jam (I like St. Dalfour's, I think it's called). Be sure to pick up lots of beef and other beneficials as well, and some neutral cheese like feta or mozzarella. New Member Hi: My name is Carol. I live in Ontario, Canada with my husband of almost 39 years. We have two grown daughters but no grandchildren. My baby is a 16 mo. old German Shepherd female pup. I have a lot of health problems and am overweight so have to do something. I just joined because I bought the book Eat Right 4 Your Type and I will definitely need some help on this one. I just looked at my fridge and cupboard and I can't believe how much food I have that I'm not supposed to eat. I plan on going out tomorrow and doing some shopping. I guess my first question would be is what can I eat when I have a craving for something yummy? A carrot stick won't do it!! Carol http://myownboss.ownanewbusiness.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2005 Report Share Posted March 5, 2005 Carol Gawa wrote: <<<My name is Carol. I live in Ontario, Canada with my husband of almost 39 years. We have two grown daughters but no grandchildren. My baby is a 16 mo. old German Shepherd female pup.>> Hi Carol - Welcome. I'm Irene in Spokane WA with a houseful of feline companions of the Norwegian Forest Cat persuasion :-) Two kids, four grand kids so far :-) << I have a lot of health problems and am overweight so have to do something. I just joined because I bought the book Eat Right 4 Your Type and I will definitely need some help on this one. I just looked at my fridge and cupboard and I can't believe how much food I have that I'm not supposed to eat. I plan on going out tomorrow and doing some shopping.>>> Good for you - the best way to start is to have the right foods handy :-)) <<I guess my first question would be is what can I eat when I have a craving for something yummy? A carrot stick won't do it!! >> A giant cup of green tea plus: * A salmon pattie with a slice of cheese and an egg on it. (Pattie cooks in 3 mins in microwave; egg poaches in 22 secs) * Chunks of beef microwaved 90 seconds with curry powder added. * Handful of walnuts or hazelnuts plus some sheets of nori. * Quick 3-egg omelette. Cooks in 1.5 minutes ion the microwave and you can add all kinds of fillings - whatever you'd put on a pizza - just put it in an omelette instead. (Get one of those microwave omelette devices - they are magic. Get the poaching one as well. Make it a *protein* snack with lots of flavour - add spices and such. Protein will remove " yummy " cravings - carbs will not. Alternate above with a new food-incompatible hobby such as: sewing, ropework, decorative knots, macramé, beading, t-shirt painting, knitting, crochet, colouring in, zigsaw puzzle, journal writing, drawing, walking, yoga, volunteer work, making custom cards for b'days etc, meditation, doing a garden or house project, take a course, singing and/or dancing to a CD, calligraphy, graphology, antique clock repair, antique browsing, embroidery, crazy-quilting, walk the dog, learn chinese, read a useful or fun book, make a scrap book, have fun on an exercise ball, do origami, teach your dog a new trick, build a sailboat (real or model), write to a magazine about something, visit the museum, the Japanese garden, play with model trains, go to the snake park, the zoo, the crocodile farm or whatever a tourist would do in your city. DO almost anything :-)) YOu had a good answer - you said: " ....so have to do something. " Absolutely DO something - make a list of things you'd *like* to DO and just do it :-) If you are hungry, eat. Skip carbs (insulin turns them top fat) - but eat whatever else you want that is okay by blood type, any time that you are hungry - no need to go hungry. So far I lost 70 pounds eating BTD food only but without carbs, any time when I am hungry, as much as I want. Typical meal: Steak and eggs with mushroom and tomato, green tea and red wine. Yum. Namaste, Irene -- Irene de Villiers, B.Sc; AASCA; MCSSA; D.I.Hom. P.O.Box 4703, Spokane, WA 99220-0703. http://www.angelfire.com/fl/furryboots/clickhere.html Veterinary Homeopath and Feline Information Counsellor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 Hi Jen Welcome! It's good to meet someone else who had stenosis start when they were quite young. I suppose your doctor told you that stenosis usually comes with age. I started having severe back pain when I was 29 years old. The problem is that back then (early eighties) they didn't do MRI's except in extraordinary situations. I was just told by doctor after doctor that it was just a little strain and I was just exaggerating the pain :-p It was so frustrating...I thought I was going mad! Finally in 2000 a doctor believed me and had an MRI done. The problem now is that the stenosis is so severe and my pain receptors are so messed up with living with the pain for so long that surgery is not an option any more. Dr. said it would correct the mechanics but the pain wouldn't go away and might even increase because of the permanent nerve damage. Sounds like you have gone through some of the same stuff!! {{hugs}} Please, keep us posted and let's chat and keep each other company, ok? > Hey all, just wanted to introduce myself. I am a new member, not sure what > to say. I am 22 years old and has suffered with back pain for bout 3 years > now. For 2 years, I was told that there was nothing wrong, so I went to a > chiropractor after almost 3 years of pain. The chiropractor sent me for and MRI, > and I had 3 bulging disks, and one badly ruptured disk with bone spurs in the > lumbar spine also. I had surgery in October, 2004. Since then, I have lost > feeling on the right part of my right leg below the knee, causing permanent foot > drop. This is frustrating. I had another MRI last week, due to a sharp > increase in pain recently. They say I have spinal stenosis caused from spinal > spondylolysis. I am not sure what all this means, but he says it is a waiting > game to see if it does get any worse. Just lookin for some advice and to talk to > others with this problem. I am a full time student, 20 hours a week, and > also work 40 hours a week. How can I minimize the pain to keep going? I hope to > hear from you all soon. > > Thanks, > Jeri Leigh R. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2005 Report Share Posted March 12, 2005 Don't try to do that all at once. You don't want to be so soar you can't hardly move. That is a good goal to reach for. Wish there were a YMCA near here. New Member Hello Everyone, I have read about this diet for some time but never got into it. Heard so many mixed reviews about it but after reading some of the facts on it I am convinced that it is right. I am a type O and have always been very sensitive to wheat and I do have a bit low numbers in the thyroid area so you can see that everything makes sense to me when I look at this diet. I do very well on high protein diets that are lean proteins such as tuna, and turkey. I'm not crazy about beef. I am convinced that I do need to exercise twice as much as the average person to lose weight. My problem is that I am a procrastinator and just lazy about working out. So I've decided that when I get home I will feed my children then I will take them to the gym with me and work out for 1.5 hours. Our gym which is a YMCA has great programs for kids so I should really use them so that I won't have excuses. I am currently 104 pounds overweight and have gained this in the past 7 years. I really need to make major changes before my health goes down the drain. I look forward to speaking to everyone. Pennsylvania Start Weight 234 2nd Weigh In 3/13/2005: 3rd Weigh In 3/20/2005: Goal Weight 130 (104 pounds to lose) FAT: 46% Goal FAT: 17% " Your no good to anyone if you aren't good to yourself! " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2005 Report Share Posted March 13, 2005 mirancs8 wrote: > Our gym which is a > YMCA has great programs for kids so I should really use them so that > I won't have excuses. Welcome - I shall " join " you with some Y work in the evening - and some weight loss attempting. I have a membership to the YWCA and they have open swim at 7.30pm. I have been " meaning " to go for ages. So I'll see if I can start with Mon and Thursday evenings as a starting place. > I am currently 104 pounds overweight and have gained this in the > past 7 years. I really need to make major changes before my health > goes down the drain. I started a bit ahead of you in that I was 300 lbs a year ago but I am near your weight now - 230 actually. I do not know where my ideal weight is, I thought it might be 195 but a chart I saw recently says 170 and I was 165 when I got married and thought I was overweight then - but I used to be a very skinny long kid. (I'm 6 foot 3 - or actually they tell me I have shrunk - and am only 6 foot 2 now.) SO I shall aim for 195 to start with and then see where I need to go next. :-))) I also promise myself a new outfit (albeit from the 2nd hand store) for each ten pounds lost. My current problem is that I am at a plateau and have been stuck at 230 for a couple months. Maybe you will inspire me to get off it :-)) Namaste, Irene -- Irene de Villiers, B.Sc; AASCA; MCSSA; D.I.Hom. P.O.Box 4703, Spokane, WA 99220-0703. http://www.angelfire.com/fl/furryboots/clickhere.html Veterinary Homeopath and Feline Information Counsellor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2005 Report Share Posted March 13, 2005 I assume you have checked out s web site www.dadamo.com Also check out this site www.foodforyourblood.com has good info and books and products for good prices. Good for you on starting before you are in serious trouble. KM mirancs8 <mirancs8@...> wrote: Hello Everyone, I have read about this diet for some time but never got into it. Heard so many mixed reviews about it but after reading some of the facts on it I am convinced that it is right. I am a type O and have always been very sensitive to wheat and I do have a bit low numbers in the thyroid area so you can see that everything makes sense to me when I look at this diet. I do very well on high protein diets that are lean proteins such as tuna, and turkey. I'm not crazy about beef. I am convinced that I do need to exercise twice as much as the average person to lose weight. My problem is that I am a procrastinator and just lazy about working out. So I've decided that when I get home I will feed my children then I will take them to the gym with me and work out for 1.5 hours. Our gym which is a YMCA has great programs for kids so I should really use them so that I won't have excuses. I am currently 104 pounds overweight and have gained this in the past 7 years. I really need to make major changes before my health goes down the drain. I look forward to speaking to everyone. Pennsylvania Start Weight 234 2nd Weigh In 3/13/2005: 3rd Weigh In 3/20/2005: Goal Weight 130 (104 pounds to lose) FAT: 46% Goal FAT: 17% " Your no good to anyone if you aren't good to yourself! " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2005 Report Share Posted March 14, 2005 Hi! I'm a little worried about you jumping in to 1.5 hours of work out. If you haven't been exercising regularly, you are likely to hurt yourself. Even more likely, you are going to burn out psycologically. I'm going to guess that your problem is not laziness but perfectionism. " If you can't do it right, don't do it at all " is a mantra that haunts a lot of us. It will doom you to failure. I'm going to be radical and say skip the YMCA for now. Take your kids for a twenty minute walk every day for the next four weeks. Make exercise a part of your daily routine. Make it part of your life. You didn't get 104 pounds overweight overnight, you aren't going to lose it overnight. In fact, at a healthy loss rate of two pounds per week, you probably shouldn't even lose it in a year. I'm going to go out on a limb here and say you probably also allow perfectionism to sabatoge other areas of your life. Do you have trouble keeping your house as clean as you want it? (you don't have to answer that) Do you have a fancy day planner or palm pilot yet still miss appointments? Do you have a garage full of stuff you keep meaning to organize? Do you feel like martyr when people don't seem to appreciate all the mundane things you do like mop the floor, or when your husband/boyfriend fails to get you the right thing for Valentines Day? Is your laundry pile nicknamed " Mount Washmore " ? In case you haven't guessed, I'm describing myself a couple of years ago and to a certain extent, I still am that way. Thanks to some extra help from www.flylady.net (free site on home organizing) and the good people on this board, I'm doing much better. I do not eat beef, but I don't allow my perfectionism to stop me from getting all the other benefits of this diet and way of life. I only had about 20 pounds to lose, but it's been gone for over a year. No more yo-yo weight loss and gain, not even at Christmas. It's soooo liberating! Love your signature quote! -Robin My problem is that I am a > procrastinator and just lazy about working out. So I've decided > that when I get home I will feed my children then I will take them > to the gym with me and work out for 1.5 hours. Our gym which is a > YMCA has great programs for kids so I should really use them so that > I won't have excuses. > " Your no good to anyone if you aren't good to yourself! " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2005 Report Share Posted March 20, 2005 Hi Robin, Thank you for writing. Yes that's all me. Everything you said is me. The strange thing is that when I was thin I was ontop of everything. It's as if the weight is making me act this way. I wasn't like this before trust me but I am so bad. Do you think I went to the gym at all this week? NO! Hopefully I'll be able to get my head out of the clouds. Thank you C+ > > My problem is that I am a > > procrastinator and just lazy about working out. So I've decided > > that when I get home I will feed my children then I will take them > > to the gym with me and work out for 1.5 hours. Our gym which is a > > YMCA has great programs for kids so I should really use them so > that > > I won't have excuses. > > > " Your no good to anyone if you aren't good to yourself! " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2005 Report Share Posted March 20, 2005 I urge you to start walking 20 minutes everyday and to go to FlyLady.net! She'll help with the walking and getting your house back the way it used to be. BTW, did you have kids when you were thin? Being organized is much easier when you aren't trying to keep track of the little folks as well as yourself! -Robin > > > > My problem is that I am a > > > procrastinator and just lazy about working out. So I've decided > > > that when I get home I will feed my children then I will take > them > > > to the gym with me and work out for 1.5 hours. Our gym which is > a > > > YMCA has great programs for kids so I should really use them so > > that > > > I won't have excuses. > > > > > " Your no good to anyone if you aren't good to yourself! " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2005 Report Share Posted March 20, 2005 Try to find time for some exercise and when things don't work out, don't put a burdon of blame on your shoulders. Take it one day at a time. I don't know if you work, or what time you get up. Are you home all day, or do you work out of the home? I'm in SE Oklahoma. if you are up at 6 and get the channel Life on your TV, you might want to try working out with Austin. I try to either spend time working in the yard or walking when my road is dry. This week, I rearranged the cinder blocks for my flower bed, and then did very little because it made me so soar. I did do some stretches, but even that hurt. So today I started all over with a short walk and some streching, and if it rains tomorrow, I'll try to be up at 5:30 so I can record Austin and so what I can, just to be active with more than housework. Re: New Member Hi Robin, Thank you for writing. Yes that's all me. Everything you said is me. The strange thing is that when I was thin I was ontop of everything. It's as if the weight is making me act this way. I wasn't like this before trust me but I am so bad. Do you think I went to the gym at all this week? NO! Hopefully I'll be able to get my head out of the clouds. Thank you C+ > > My problem is that I am a > > procrastinator and just lazy about working out. So I've decided > > that when I get home I will feed my children then I will take them > > to the gym with me and work out for 1.5 hours. Our gym which is a > > YMCA has great programs for kids so I should really use them so > that > > I won't have excuses. > > > " Your no good to anyone if you aren't good to yourself! " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2005 Report Share Posted March 20, 2005 In a message dated 3/20/2005 3:50:09 PM Eastern Standard Time, mirancs8@... writes: Do you think I went to the gym at all this week? NO! Don't be so hard on yourself. The beauty of this diet is you just start over again tomorrow. Ridding yourself of the habit of living on starches and carbs for years is not easy. Losing weight and developing new eating habits takes time. For what it's worth, I don't think meat is nearly as chemically tainted as some people would like you to believe. PETA, animal rights lovers, and agricultural companies have good lobbies. There are no scientific studies I have found that indicate that meat is tainted. Sensationalized articles are not scientific research. If you eat enough protein, you won't get hungry and eat carbs. Take it a day at a time. We all go through this. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2005 Report Share Posted June 27, 2005 Hi! I'm from Iowa, too! I live in Davenport. Where are you located? Welcome to our family...... Kilpatrick ~~~~~~ Guard well your spare moments. They are like uncut diamonds. Discard them and their value will never be known. Improve them and they will become the brightest gems in a useful life. Ralph Waldo Emerson ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ EMAIL: juliette@... PERSONAL HOMEPAGE PAGE http://members.tripod.com/~LizK ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2005 Report Share Posted June 27, 2005 HEy Gena, I don't have Rieter's but my son-in-law does and I have seen what it can do to you rlife and the life of your family. This is a great site filled with caring thoughtful people that are going threough what you are and willing to share. Check back often and you will start to fill differently about yourself. My son-in-law Andy heard about enbrel from this site and started on it 3 weeks ago. It has made a huge differnece in his quality of life. His eyes have cleared up, his jonts have little to no pain and his flexibility has increased greatly. Because of this his bright cheery personality has returned. True not all medicines workj for everyone but give the enbrel a try. There is hope out there so don't give up-for you or your children. luv ya, Kathi Hope to see y'all in MT. Vernon,IL June 15,16,17,2007 ____________________________________________________ Sports Rekindle the Rivalries. Sign up for Fantasy Football http://football.fantasysports. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2005 Report Share Posted June 27, 2005 Hi Gena, I am very sorry that you have to change your life like you do. I am 50 years old and am going through all of the same stuff. I was diagnosed with Reiter's when I was 24, and my Rheumatologist at that time told me I would become disabled in the future so I should just stay active. I managed to make it to 45 before the pain became unbearable and I sought help. I had to retire from a job that I enjoyed for 22 years, like you, and also in a factory with concrete floors. That caused my feet to suffer from permanent bone damage, and without even asking for it I was prescribed pain killers, which I am taking now and forever. I thought you might like to hear from someone who's life mirrors your own. I also applied for Social Security Disability and after a year of waiting I was accepted. After I was rejected the first try, I hired a lawyer who handles only Soc Sec disability cases. I live in metro Detroit, and there are LOTS of these lawyers, they even advertise on daytime TV. I would recommend you try it that way. I hope this helps you, and it's good that you found this site. It sure helps to know that you are not alone. Way back when I got this lousy disease I really suffered in silence. You know how tough it is to explain to people what we are going through. Now you can just copy this info to explain. Hope you get better, Harv Quote Link to comment Share on other sites More sharing options...
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