Guest guest Posted October 1, 2001 Report Share Posted October 1, 2001 Hey there. I totall hear ya..... When i was 22 i kept thinking, man, its not supposed to be this way. AM i ever going to have anything or feel like a person again? Everybody putting all this pressure on you. You should be this way or that way or do this or be doing that. Why isnt your house clean, whey are you gonna have kids? Nobody gets it, cept you. And then you wanna pull your hair out cause you feel so alone. Im 26 now. and i still feel the same. But a little less sometimes. Especially when people arent putting their expectations on me and i can just worry about what i want myself to be. not much help huh.... Im on disability, i am lucky that my husband has a good job and i have insurance. I cant imagine not having any, it must be hell, and its so unfair. Hugs, hang in there. Melinda At 06:30 PM 10/1/01 +0000, you wrote: >hi again >I just got an email from one of my art professors (I'm an art major) >about a trip to Chicago for a Van Gogh/Gauguin show. He basically >said that he was disappointed that so few students were going and >that above all, we are art students and going on this trip should be >our priority. The trip costs a few hundred dollars, which I don't >have. I can't work or go to school because I'm too sick right now. >And even if I wasn't so sick, I can't legally drive because of my >seizure disorder, so I can't really get to a job. I am flat broke and >my days are filled with doctor appointments. And now, because I'm on >medical leave from school this semester, I'm getting kicked off my >parents' insurance. You don't know how badly I want to go on that >trip. My god, I'm 22-years-old. I'm supposed to be running around >having the time of my life, aren't I? >-b > > >~~~~ *** ~~~ *** ~~~ *** ~~~~ > The Being Sick Community > >Memorial Page >http://www.dreamwater.net/lovingmemory/ > >Message Archives and Digest Attachment Pictures:- >/messages > >Chat:- >Scheduled Daily Chats at # on IRC DALnet. >/files/chat.htm > >Bookmarks:- >Add a website URL you have found useful. >/links > >Personal Complaints or problems:- >Please contact a moderator >email: -owner > >Subscription Details:- >1) Individual email - means that every email sent to the list you receive. >2) Daily Digest - sends you 25 messages in one single email for you to >browse. This is an excellent option if you receive alot of email. >3) Web only/No mail - means that you can pop into eGroups at your >convenience and receive no email. > >To modify your subscription settings please visit:- >/join > >To subscribe or unsubscribe please email:- >-subscribe >-unsubscribe > >~~~~ *** ~~~ *** ~~~ *** ~~~~ > > " Hold on to what is good, even if it's a handful of earth. Hold on to what >you believe, even if it's a tree that stands by itself. Hold on to what >you must do even, if it's a long way from here. Hold on to your life, even >if it's easier to let go. " - Pueblo Prayer > >~~~~ *** ~~~ *** ~~~ *** ~~~~ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2001 Report Share Posted October 1, 2001 I hear where you're coming from. I'm 22 too, and in nursing school. I am expected to have boundless energy with many different disorders, and on many different medications. The drive one way to school is 45 minutes, and that is with no traffic. Such a small aspect, but an important one. If I get stuck in traffic, I have to pull off the road, because sitting in a car for more than 15 minutes just kills me. If I'm hurting really bad, there goes my whole day. This last weekend, Don and I went to go see the movie Hearts in Atlantis, and I hurt so very badly when it was over. (it was a great movie by the way) I really get my feelings hurt sometimes when people have such high expectations of me. My life is basically school, rest, and my online groups. I own 8 groups, this being the largest of them. Some people in my other groups get mad at me if I don't answer every single posting, or research their medical problems for hours, or if I'm not at the phone when they want support. I don't get angry, but I try so hard to be here for everyone, but I have to try to accomplish something in my life too. If you guys ever feel that way with me, that I'm not around, please know that I am, but sometimes I need a little break. Nothing personal, I love you all. Stress has been huge, because on every group I'm on, they are fighting. I'm so glad that this group has calmed down, but on some groups, they are still fighting hard. I'm so glad that you all have patience and tolerance, especially when we know this group is not all Americans, and we can all have different views. Wow...how did I come to this? This has been kind of a spasmodic venting....thanks for listening. errr....or reading! Hope you are all doing well. Peace, Love, and Hugs, ~~ To laugh often and much; to win the respect of intelligent people and the affection of children...to leave the world a better place...to know even one life has breathed easier because you have lived. This is to have succeeded. --- Ralph Waldo Emerson Re: frustration Hey there. I totall hear ya..... When i was 22 i kept thinking, man, its not supposed to be this way. AM i ever going to have anything or feel like a person again? Everybody putting all this pressure on you. You should be this way or that way or do this or be doing that. Why isnt your house clean, whey are you gonna have kids? Nobody gets it, cept you. And then you wanna pull your hair out cause you feel so alone. Im 26 now. and i still feel the same. But a little less sometimes. Especially when people arent putting their expectations on me and i can just worry about what i want myself to be. not much help huh.... Im on disability, i am lucky that my husband has a good job and i have insurance. I cant imagine not having any, it must be hell, and its so unfair. Hugs, hang in there. Melinda At 06:30 PM 10/1/01 +0000, you wrote: >hi again >I just got an email from one of my art professors (I'm an art major) >about a trip to Chicago for a Van Gogh/Gauguin show. He basically >said that he was disappointed that so few students were going and >that above all, we are art students and going on this trip should be >our priority. The trip costs a few hundred dollars, which I don't >have. I can't work or go to school because I'm too sick right now. >And even if I wasn't so sick, I can't legally drive because of my >seizure disorder, so I can't really get to a job. I am flat broke and >my days are filled with doctor appointments. And now, because I'm on >medical leave from school this semester, I'm getting kicked off my >parents' insurance. You don't know how badly I want to go on that >trip. My god, I'm 22-years-old. I'm supposed to be running around >having the time of my life, aren't I? >-b > > >~~~~ *** ~~~ *** ~~~ *** ~~~~ > The Being Sick Community > >Memorial Page >http://www.dreamwater.net/lovingmemory/ > >Message Archives and Digest Attachment Pictures:- >/messages > >Chat:- >Scheduled Daily Chats at # on IRC DALnet. >/files/chat.htm > >Bookmarks:- >Add a website URL you have found useful. >/links > >Personal Complaints or problems:- >Please contact a moderator >email: -owner > >Subscription Details:- >1) Individual email - means that every email sent to the list you receive. >2) Daily Digest - sends you 25 messages in one single email for you to >browse. This is an excellent option if you receive alot of email. >3) Web only/No mail - means that you can pop into eGroups at your >convenience and receive no email. > >To modify your subscription settings please visit:- >/join > >To subscribe or unsubscribe please email:- >-subscribe >-unsubscribe > >~~~~ *** ~~~ *** ~~~ *** ~~~~ > > " Hold on to what is good, even if it's a handful of earth. Hold on to what >you believe, even if it's a tree that stands by itself. Hold on to what >you must do even, if it's a long way from here. Hold on to your life, even >if it's easier to let go. " - Pueblo Prayer > >~~~~ *** ~~~ *** ~~~ *** ~~~~ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2001 Report Share Posted October 1, 2001 I would be Very Frustrated too!!! That is terrible! See if you can get SSI or something right away so you can keep up with your medical help you so need!!! Yes, you should be able to enjoy life right now...Life just seems so unfair at times... ( Kepp us posted!!! {{{ Healing Hugs }}} Helen hi againI just got an email from one of my art professors (I'm an art major)about a trip to Chicago for a Van Gogh/Gauguin show. He basically said that he was disappointed that so few students were going and that above all, we are art students and going on this trip should be our priority. The trip costs a few hundred dollars, which I don't have. I can't work or go to school because I'm too sick right now. And even if I wasn't so sick, I can't legally drive because of my seizure disorder, so I can't really get to a job. I am flat broke and my days are filled with doctor appointments. And now, because I'm on medical leave from school this semester, I'm getting kicked off my parents' insurance. You don't know how badly I want to go on that trip. My god, I'm 22-years-old. I'm supposed to be running around having the time of my life, aren't I? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2001 Report Share Posted October 1, 2001 Hi, Just want to let you know that you are not alone.... I am 23, just one year older than you are. I am presently in a teacher training college. Life gets horrid for me too, where I often have to miss classes due to my chronic pain and diabetes. Can't afford to be too active too, I will end up crying in pain... so as compared to my peers, I can be a real spoilsport at times. ALthough such things get in my way, I try to tell myself that things are not at their worst possible stage yet - I can still make the situation better, by doing things that i CAN do and feel COMFORTABLE with. It may sound too good to be true, but do go and try to look for that one thing you can do to make yourself happy. As for myself, teaching and chatting with the children is what I am enjoying right now. I have also joined the young adults diabetes support group organised by my local diabetes society. [i'm from Singapore] I have benefited alot from this group. If there are such support groups in your area, may be you can consider joining them? Hope this helps! Feel free to email me privately if I can be of any help. Ling --- shcully@... wrote: > hi again > I just got an email from one of my art professors > (I'm an art major) > about a trip to Chicago for a Van Gogh/Gauguin show. > He basically > said that he was disappointed that so few students > were going and > that above all, we are art students and going on > this trip should be > our priority. The trip costs a few hundred dollars, > which I don't > have. I can't work or go to school because I'm too > sick right now. > And even if I wasn't so sick, I can't legally drive > because of my > seizure disorder, so I can't really get to a job. I > am flat broke and > my days are filled with doctor appointments. And > now, because I'm on > medical leave from school this semester, I'm getting > kicked off my > parents' insurance. You don't know how badly I want > to go on that > trip. My god, I'm 22-years-old. I'm supposed to be > running around > having the time of my life, aren't I? > -b > ____________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2002 Report Share Posted May 17, 2002 Sandi, I have an idea. . .do you have an agency in your community that does advocacy work for persons with disabilities? They would be more than happy to help you fill out these forms & provide you with tips on how to deal with the insurance companies. Plus, they'll assign someone to you to do case management & you'll be able to go to them throughout the year with any other issues that you may need help with. Most of these agencies are non-profits and charge minimal, if any fees for services. Depending on where you live, I may be able to find this agency for you if you don't know where to start. Email me offline if you don't want to give out your personal info onlist. Ray, mother to Tabitha (age 6), Autumn, age 4 (IgG def., asthma, chronic sinusitis, and allergies), and Duncan (12 months) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2002 Report Share Posted May 17, 2002 Sandi - I'm sorry to hear that the powers at SSI are being such a pain in the rear. I wish you were feeling better. Insurance companies are slowly learning that just going ahead and buying the machine can actually come out cheaper than renting one for the kids so maybe this will be your luck. Let us know how the treatments go. Ursula Holleman Macey's mom (7 yr. old with CVID, asthma, sinus disease, GERD, Sensory Integration Disorder, Diabetes Insipidus, colonic inertia) http://maceyh.home.att.net / Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2004 Report Share Posted April 13, 2004 Sorry I don't have a serious solution, but I am starting week 8 and everytime I start doubting that I'll see results, I start driving my husband absolutely nuts!! He's been great about it though, always telling me I'm doing great, etc. etc. All the things a husband is supposed to say. Try to have faith, as long as you are following everything and really going at it 100%, you will see results (and yes, they will be the ones you are hoping for). AMyC > How do you guys push through the frustration when you don't think > things are happening? I know, scales are evil, but mine is > particularly mean-hearted...it hasn't moved in 6 weeks! I'm on week > 7 and it's so hard to feel like pushing myself lately when I'm not > sure if things are even working. My jeans that were too tight I > started to get back into at one point a couple weeks ago, but now > they are tight again? What?! Nothing has changed to cause it at > all. My old jeans have gotten looser, though. But so little seems > to be happening in comparison to some of the drama I've seen in some > of your pictures. > > I am quite honestly frightened that I won't get any results at the > end of 12 weeks. I'm not expecting this to be the end of > my 'journey', but would like some changes! I worked out pretty > regularly all last year, just not in this way, and plateu'd exactly > where I still am now (lost 15 pounds then). I'd hoped this would > push me through that. I'm about 5'3 or so, 152 lbs at 29% body fat > when I had the guy at the gym test it about 5 weeks ago. > > I know my metabolism is all goofed up from the years and years of > dieting, from anorexia as a teenager to nearly 200 pounds 7 years > ago. > > I could use some hope and/or ideas! > > Thank you! > > Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2004 Report Share Posted April 13, 2004 > How do you guys push through the frustration when you don't think > things are happening? I know, scales are evil, but mine is > particularly mean-hearted...it hasn't moved in 6 weeks! I'm on week > 7 and it's so hard to feel like pushing myself lately when I'm not > sure if things are even working. The first thing I do is have a heart to heart with myself. Ask myself has my food been 100%, could I make better choices? Have I gone " all out " in my workouts? Have I gotten my water in? Then I also reassure myself that even if I am not seeing changes on the outside, I am definitely healthier. I also don't go by the scale. Have your measurements changed? The last challenge I think I lost 4 lbs maybe 4.5 but inches all over. And definitely the pants fit looser. Colleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2004 Report Share Posted April 14, 2004 If you feel like you're stuck, the first thing to look at is free day, then portion sizes and carb choices, then exercise intensity. If you have more than 10-15 pounds to lose and it's not going anywhere, figure out what you could improve upon and where you could create more of a calorie deficit. The fact that the scale is stalled doesn't necessarily mean that you're doing anything wrong but there's probably something that you could do better in order to blast past this sticking point. Take a look at everything you're doing and pick out three things you could work on. It doesn't have to be huge. It might be things like: 1) I'll have a giant salad for lunch instead of a sandwich on bread. 2) I'll get more recreational activity by walking for 30 minutes most evenings. 3) I'll have one spectacular restaurant meal and a couple of mind-blowing treats on free day instead of grazing all day on stuff I don't really like. Be creative. Have fun! You're in complete control here so don't fall into any kind of a " woe is me " trap. The fastest way out of your frustration is to kick it up a little and get some noticeable results. We all make a jillion little decisions a day about how hard to push it on cardio, how much food to put on the plate, whether to have a vegetable or bread, whether to hit the candy jar on a co-worker's desk. Every time you're faced with a decision, ask yourself which choice will help you reach your goals and which one will hold you back. A lot of times we just muddle around, not giving things much thought and hoping for the best. Make a conscious decision to kick ass. Frustration How do you guys push through the frustration when you don't think things are happening? I know, scales are evil, but mine is particularly mean-hearted...it hasn't moved in 6 weeks! I'm on week 7 and it's so hard to feel like pushing myself lately when I'm not sure if things are even working. My jeans that were too tight I started to get back into at one point a couple weeks ago, but now they are tight again? What?! Nothing has changed to cause it at all. My old jeans have gotten looser, though. But so little seems to be happening in comparison to some of the drama I've seen in some of your pictures. I am quite honestly frightened that I won't get any results at the end of 12 weeks. I'm not expecting this to be the end of my 'journey', but would like some changes! I worked out pretty regularly all last year, just not in this way, and plateu'd exactly where I still am now (lost 15 pounds then). I'd hoped this would push me through that. I'm about 5'3 or so, 152 lbs at 29% body fat when I had the guy at the gym test it about 5 weeks ago. I know my metabolism is all goofed up from the years and years of dieting, from anorexia as a teenager to nearly 200 pounds 7 years ago. I could use some hope and/or ideas! Thank you! Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2005 Report Share Posted November 4, 2005 I am only 20 years old. For those of you who took the time to read this, I thank you, and I hope that you are all feeling better than I am! ~ Vent away . We all go through times we would like to stand in the middle of a very big city and scream loud enough to be heard within a 20 mile radius of us. Twenty years old is very young when it comes to spondyloarthropathies as it usually waits till we just hit the prime of life in our 30's to 40's. I am not sure which one of these darling illnesses you have, I may have missed an email or two. One thing in your favour is the fact that you are so young. With all the advances in treatments in the last 30 years or so bode well for the future. You may be the generation to be cured and you are sure in the right generation for better treatments. We pray that your frustration eases and the aches and pain will go away. Blessings +Dave dewi@... webfriar@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2005 Report Share Posted November 4, 2005 I was diagnosed with " undifferentiated spondyloarthropathy " when I was 13, because I was HLA-B27 negative. A nice, nonspecific diagnosis, eh? Unfortunately the one rheumatologist I had that actually listened to me moved across the country and the replacement children's rheumy treated me very rudely. I have gone to a few different rheumys after I was too old to go to the children's hospital, but they still treated me like I was a child and didn't listen (I may be 20, but I look like I'm about 13 or 14 because I'm very small and sometimes people treat me like I am that age because of it). Tuesday I have an appointment with the rheumatology department at my college, and they are supposed to be very good, so hopefully they will do something for me! I want to try Remicade, I've already tried methotrexate and Humira and couldn't handle them. Thanks so much for your reply. ~ > > > Vent away . We all go through times we would like to stand in the middle of a very big city and scream loud enough to be heard within a 20 mile radius of us. Twenty years old is very young when it comes to spondyloarthropathies as it usually waits till we just hit the prime of life in our 30's to 40's. I am not sure which one of these darling illnesses you have, I may have missed an email or two. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2005 Report Share Posted November 4, 2005 , I am so sorry to hear about your condition. You are very young to be dealing with such an overwhelming situation. You are juggling so many things. My heart goes out to you. I do not know what University you are attending but this is the time to speak up. I imagine your University has a both Health and Counseling services for students. I hope you have used them both. Please consider telling your instructors what you are experiencing... they should be working with you and making allowances to help you get thru this ordeal. If your instructors are not sympathetic and supportive then consider seeing the Dean of the Dept....see the President if you must! The more people who know about your situation the more help you will get. This is one of those time where you just have to " holler " and get some attention. I will keep you in my prayers. in CA Frustration I am in so much pain and so stiff that I can hardly walk... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2005 Report Share Posted November 4, 2005 Hi again You sound very much like my youngest daughter , who was a member of this list a couple of years back. She still has problems relating to looking her age. She too was and is still very small and you would never know she had 3 kids. They had several diagnoses' for her and I am not sure what they ended up with. More than likely undiff Spondy. She is doing well now in her second marriage which got off to a rocky start. She still has problems sitting for long times as she found out flying to Hawaii, but she is a glutton for punishment as they are flying to Italy next spring visiting Rome, Florence and Venice. They will be renewing their vows at the main Anglican Church in Rome during the trip. Actually , you are lucky as a Rheumatologist for me is a 4 hour drive away. I do have an Internal Medicine doctor with a secondary interest in Rheumatology but we do lack a full Rheumy Clinic setting and staff. Blessings +Dave Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2005 Report Share Posted November 4, 2005 : I'm up in the middle of the night due to pain and I feel yours. My prayers are with you. Please be in constant prayer that you will be healed as I will pray for you and you for me...there is power there. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2005 Report Share Posted November 5, 2005 , you will be very happy that you look younger than you are when you are in your late 30s. My daughters had the same trouble when they were young and now they have young men whistle at them. One daughter has 6 children and looks like she is a young 20 year old! \Hope you find a medication that will help you. I was on Humira for a couple of years and it helped tremendously in the beginning. Many who have tried one anti-TNF drug without benefit and change to another get results. Best regards, Connie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2005 Report Share Posted November 5, 2005 Dave, I can relate to the flying problems with our disease. I don't think I will be flying unless it is an emergency situation. The seats in the planes now....are so tight fitting and you can't move around...and by the time you get to your destination....you are completely frozen and can't get up out of the seat or walk. At least, that is what happens to me. It's worst than getting out of bed in the morning. A few years ago...I flew alone and it was so embarrassing....trying to get the carry on luggage out of the overhead bins. I would rather drive four times as long....in a car. At least, you can stretch out and stop at rest stops. Your daughter is just in denial. I did for so many years and my girls are doing the same. Sometimes that is best. She'll have enough time later on to finally come to terms with the disease. Best regards, Connie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2005 Report Share Posted November 5, 2005 Thanks Connie. Worse than the flying itself were the transfers from the main carrier hubs to the regional aircraft. Usually their check in counters were at the opposite end of the airport and they did not transfer your luggage. Went through Chicago like that in 01 our main flight was caught in a storm and we had 15 minutes to get from gate to gate with all our luggage. It took me days to recover from that, only to have 9/11 happen while in New Jersey. I will say though, American Airlines was very good and it only cost us 54.00 each to fly from Philly to Chicago and change flights there. By the time we got to Calgary we grabbed our car and headed right home, a further 3.5 hour drive. I think I slept for a couple of days after that. I do think that she is in denial because she has all the symptoms even if she will not admit the pain. She is like her Old Man, grin and bear it, let nobody see your pain. As I mentioned before she had remarried and it got off to a very rocky start she and Murray's 16 yer old daughter clashed a tad. is a very nice young lady but is the apple of her daddy's eye. There were a couple of other things, my having a genetic illness and Murray not knowing much about Spondy's he came to me for some help to understand it. He also wondered why had no contact with her birth mother. I told him to read up on Munchhausen's By Proxy Disease. Then I asked for permission to let Murray see that part of her health files I rescued from Halifax. It detailed the investigation and reports of what went on in the first 14 months of 's life. I do not know what is wrong with me lately, I seem to be rambling on and on. Must be the shape of our world as this life plays out. Blessings to all +Dave Re: Re: Frustration Dave, I can relate to the flying problems with our disease. I don't think I will be flying unless it is an emergency situation. The seats in the planes now....are so tight fitting and you can't move around...and by the time you get to your destination....you are completely frozen and can't get up out of the seat or walk. At least, that is what happens to me. It's worst than getting out of bed in the morning. A few years ago...I flew alone and it was so embarrassing....trying to get the carry on luggage out of the overhead bins. I would rather drive four times as long....in a car. At least, you can stretch out and stop at rest stops. Your daughter is just in denial. I did for so many years and my girls are doing the same. Sometimes that is best. She'll have enough time later on to finally come to terms with the disease. Best regards, Connie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2006 Report Share Posted November 7, 2006 Willow. i have insomia to for some reason i keep playing the day over and over in my head, i have been on trazdone for years and its not working anymore. i sleep for a few hours then iether the pain in my body startshurting so bad i have to get up ,like now its only 3.30am and i'm wide awake I asked my doc to change my meds but he only increased the dose which makes me feel droopy no matter when i get up .i have to chiawawa (spelled it wrong hope you understand) and they are my best buddy one is 12yrs her name is daisy and her baby name is lulu and she is fat but so cute and she has a little curly tail. but they too keep me up to ometimes lulu gets hunrgy at 2am and she takes her sweet time to eat her mama is tiny she 7 pound. I dreesed her like a bat at halloween when giving out candy i was funny. o.k i got side tracked .If you have any suggetion on a better med to take to sleep please let me know cause i'm tired i hope all goes good .i also know about the demons of the past. but i'm learning that i cant change that i have been in couseling for two years. and i really helping me ,but i also suffer a fear of leaving the house and i dont always get there .but i make it at least 2 times a month .well take care WillowWillow <writewillow@...> wrote: Good Evening ; )Like a lot of you I have trouble with insomnia.Sometimes it is because of pain. Sometimes I slept toomuch during the day. Sometimes demons from the pastrear their ugly heads. Sometimes I don't know why, Ijust know when I lie down that I am not going to beable to sleep until the sun starts to come up.I always have trouble sleeping when I have anappointment the next day. When I finally so sleep Isleep so sound that alarm clocks, phone calls, beinghit with a pillow - nothing wakes me up. I try tolimit my outside comittments to 1/day and I scheduleit late in the afternoon. I try to not schedulecommitments two days in a row.Last night, I knew I was going to try to get both dogsto the vet today. I was worried about managing thatand I couldn't go to sleep. In fact, I took all theextra pain and sleep meds that I have 'as needed'doses of. I ended up with a migraine. I went to sleepabout sunup.My neighbor whom I pay a small amount a week to helpme with chores, came over and stayed with a repairmanwho was coming to work on my furnace while I slept. Ihad to cancel the trip to the vets, scheduling it totomorrow. I slept until 4:30pm. How do other people handle their sleep problems andmaking appointments? Do other people have a problemlike this or is it just me?I'd appreciate your feedback.; )Willow Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2006 Report Share Posted November 7, 2006 I used to play the day over and over as well. What finally helped me might seem a bit strange, but it worked. I've been diagnosed with adult ADD. I was given a non=stimulant med called Straterra for it. It comes in 40mg capsules and I take 2 a day - both at the same time. I started taking my Straterra at bedtime to see if it would shut my mind off from it's non-ceasing bouncing around over the days events. It worked like a charm. I don't know if yur MD would be willing to try that for you or not. That is what has made a huge difference in my sleep. Best of Luck, Willow --- Terri <collins.terri@...> wrote: > Willow. i have insomia to for some reason i keep > playing the day over and over in my head, i have > been on trazdone for years and its not working > anymore. i sleep for a few hours then iether the > pain in my body startshurting so bad i have to get > up ,like now its only 3.30am and i'm wide awake I > asked my doc to change my meds but he only increased > the dose which makes me feel droopy no matter when i > get up .i have to chiawawa (spelled it wrong hope > you understand) and they are my best buddy one is > 12yrs her name is daisy and her baby name is lulu > and she is fat but so cute and she has a little > curly tail. but they too keep me up to ometimes lulu > gets hunrgy at 2am and she takes her sweet time to > eat her mama is tiny she 7 pound. I dreesed her like > a bat at halloween when giving out candy i was > funny. o.k i got side tracked .If you have any > suggetion on a better med to take to sleep please > let me know cause i'm tired i hope all goes good .i > also know about the demons of the > past. but i'm learning that i cant change that i > have been in couseling for two years. and i really > helping me ,but i also suffer a fear of leaving the > house and i dont always get there .but i make it at > least 2 times a month .well take care Willow > > Willow <writewillow@...> wrote: Good > Evening ; ) > > Like a lot of you I have trouble with insomnia. > Sometimes it is because of pain. Sometimes I slept > too > much during the day. Sometimes demons from the past > rear their ugly heads. Sometimes I don't know why, I > just know when I lie down that I am not going to be > able to sleep until the sun starts to come up. > > I always have trouble sleeping when I have an > appointment the next day. When I finally so sleep I > sleep so sound that alarm clocks, phone calls, being > hit with a pillow - nothing wakes me up. I try to > limit my outside comittments to 1/day and I schedule > it late in the afternoon. I try to not schedule > commitments two days in a row. > > Last night, I knew I was going to try to get both > dogs > to the vet today. I was worried about managing that > and I couldn't go to sleep. In fact, I took all the > extra pain and sleep meds that I have 'as needed' > doses of. I ended up with a migraine. I went to > sleep > about sunup. > > My neighbor whom I pay a small amount a week to help > me with chores, came over and stayed with a > repairman > who was coming to work on my furnace while I slept. > I > had to cancel the trip to the vets, scheduling it to > tomorrow. I slept until 4:30pm. > > How do other people handle their sleep problems and > making appointments? Do other people have a problem > like this or is it just me? > > I'd appreciate your feedback. > > ; ) > > Willow > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2006 Report Share Posted November 7, 2006 well you are definately not alone. i can not sleep at night and am very sleepy during the day. i try to get all the most important things done first thing in the morning because i know i am gonna be tired in the after noon. so then i try to nap when my almost two year old naps. and then the older two are home from school and my son is on so many meds now there is no break until bed time. i feel for ya, and if you ever find something that works please let me know. you will be in my thoughts. evelynWillow <writewillow@...> wrote: Good Evening ; )Like a lot of you I have trouble with insomnia.Sometimes it is because of pain. Sometimes I slept toomuch during the day. Sometimes demons from the pastrear their ugly heads. Sometimes I don't know why, Ijust know when I lie down that I am not going to beable to sleep until the sun starts to come up.I always have trouble sleeping when I have anappointment the next day. When I finally so sleep Isleep so sound that alarm clocks, phone calls, beinghit with a pillow - nothing wakes me up. I try tolimit my outside comittments to 1/day and I scheduleit late in the afternoon. I try to not schedulecommitments two days in a row.Last night, I knew I was going to try to get both dogsto the vet today. I was worried about managing thatand I couldn't go to sleep. In fact, I took all theextra pain and sleep meds that I have 'as needed'doses of. I ended up with a migraine. I went to sleepabout sunup.My neighbor whom I pay a small amount a week to helpme with chores, came over and stayed with a repairmanwho was coming to work on my furnace while I slept. Ihad to cancel the trip to the vets, scheduling it totomorrow. I slept until 4:30pm. How do other people handle their sleep problems andmaking appointments? Do other people have a problemlike this or is it just me?I'd appreciate your feedback.; )Willow Sponsored Link Free Uniden 5.8GHz Phone System with Packet8 Internet Phone Service Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2006 Report Share Posted November 8, 2006 Good > > Evening ; ) > > > > Like a lot of you I have trouble with insomnia. > > Sometimes it is because of pain. Sometimes I slept > > too > > much during the day. Sometimes demons from the past > > rear their ugly heads. Sometimes I don't know why, I > > just know when I lie down that I am not going to be > > able to sleep until the sun starts to come up. > > > > I always have trouble sleeping when I have an > > appointment the next day. When I finally so sleep I > > sleep so sound that alarm clocks, phone calls, being > > hit with a pillow - nothing wakes me up. I try to > > limit my outside comittments to 1/day and I schedule > > it late in the afternoon. I try to not schedule > > commitments two days in a row. > > > > Last night, I knew I was going to try to get both > > dogs > > to the vet today. I was worried about managing that > > and I couldn't go to sleep. In fact, I took all the > > extra pain and sleep meds that I have 'as needed' > > doses of. I ended up with a migraine. I went to > > sleep > > about sunup. > > > > My neighbor whom I pay a small amount a week to help > > me with chores, came over and stayed with a > > repairman > > who was coming to work on my furnace while I slept. > > I > > had to cancel the trip to the vets, scheduling it to > > tomorrow. I slept until 4:30pm. > > > > How do other people handle their sleep problems and > > making appointments? Do other people have a problem > > like this or is it just me? > > > > I'd appreciate your feedback. > > > > ; ) > > > > Willow > > > > willow i have a doctor appointment today and i'm going to ask about that med because i'v been up since 4am again. thank you so much for the info . i'll let you know how it goes have a great day terri > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2006 Report Share Posted November 8, 2006 Good > > Evening ; ) > > > > Like a lot of you I have trouble with insomnia. > > Sometimes it is because of pain. Sometimes I slept > > too > > much during the day. Sometimes demons from the past > > rear their ugly heads. Sometimes I don't know why, I > > just know when I lie down that I am not going to be > > able to sleep until the sun starts to come up. > > > > I always have trouble sleeping when I have an > > appointment the next day. When I finally so sleep I > > sleep so sound that alarm clocks, phone calls, being > > hit with a pillow - nothing wakes me up. I try to > > limit my outside comittments to 1/day and I schedule > > it late in the afternoon. I try to not schedule > > commitments two days in a row. > > > > Last night, I knew I was going to try to get both > > dogs > > to the vet today. I was worried about managing that > > and I couldn't go to sleep. In fact, I took all the > > extra pain and sleep meds that I have 'as needed' > > doses of. I ended up with a migraine. I went to > > sleep > > about sunup. > > > > My neighbor whom I pay a small amount a week to help > > me with chores, came over and stayed with a > > repairman > > who was coming to work on my furnace while I slept. > > I > > had to cancel the trip to the vets, scheduling it to > > tomorrow. I slept until 4:30pm. > > > > How do other people handle their sleep problems and > > making appointments? Do other people have a problem > > like this or is it just me? > > > > I'd appreciate your feedback. > > > > ; ) > > > > Willow > > > > willow i have a doctor appointment today and i'm going to ask about that med because i'v been up since 4am again. thank you so much for the info . i'll let you know how it goes have a great day terri > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2006 Report Share Posted November 10, 2006 I can relate to your frustration with not sleeping. I've had problems sleeping since '99. And it's taken it's toll on me emotionally and physically. Everytime I think I finally had it under control, it reappeared. I can't go to sleep alot of times until the morning hours. I've tried different medications but most cause me severe headaches, and I have to function during the day. Hang in there and just try to take a hot bath, or a long walk in the evening. Have you tried any medications like Lunesta or Ambien CR? I woke up last night with a panic attack, they STINK!! If you come up with something that works plz let me know as well. If we can bottle it maybe we'll become millionaires!! LOL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2006 Report Share Posted November 10, 2006 OH yeah, another suggestion, don't think about that you aren't going to sleep when you go to bed. Try using reverse psychology on your thoughts. It's not easy to do when you're so frustrated, but try to meditate a little, pretend you're in a quiet soothing place and your extremely tired...extremly tired. Try almost to hypnotize your mind. Sometimes this helps me when my body wants to sleep but my mind doesn't. Try to analyze your dreams if you can, you may need some " additional therapy " to help you work thru your " bad thoughts " . My body aches alot of times and my legs are restless if my mind isn't....hense the warm bath/nightly walk. (just wish I had someone to walk with! lol)Have you been tested for any kind of sleeping disorder? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2006 Report Share Posted November 12, 2006 I would like to suggest that people might consider trimming posts down to size before sending them. I think it makes for less confussion. Sue For a REALLY HOT time check out http://www.peternoone.com and http://www.mikesmith1964.com Quote Link to comment Share on other sites More sharing options...
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