Guest guest Posted January 22, 2008 Report Share Posted January 22, 2008 Hi Everyone, new member here. I haven't been diagnosed with thyroid problems, but 18 months ago I was diagnosed with Fibromyalgia. The problem I have is that alot of my symptoms match with those of thyroid problems, also Hypothyroidism runs in my family. I'm so desperate to sort my health out that I won't believe it's 'all in my head' as my doctor puts it until I've searched every avenue. They have passed my on to a psychologist at the moment and I am so low as I feel like they've now written me off and I have no hope of finding the answers. A question I would like to know is whether people have symptoms that come and go. I had a flare up with all of my symptoms last year which lasted for about six months. I then got better, I had the occasional symptoms but nothing compared to previously. Then in July last year it all happened again, I start to get tingling arms and legs and then everything goes down hill from there. My body seems to loose all ability to temperature control, I'm either too hot or too cold, my memory is non existent, I loose the ability to think, I suffer from insomnia, anxiety, thirsty all the time especially at night, urgency incontinence, I'm completely exhausted all the time, with no energy or inclination to do anything, I suffer from severe muscle pains to the point it is difficult for me to actually physically move sometimes. My stomach has been terrible, really bad constipation, stomach cramps and pains under my ribs. Before the first flare, I had my gallbladder out, could this be connected? Any advice or help would be very very gratefully received. Angie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2008 Report Share Posted January 22, 2008 Hi Angie, I found the Myhill's book (free online) on CFS/ Fibromyalgia very useful. http://www.drmyhill.co.uk/article.cfm?id=362 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2008 Report Share Posted January 23, 2008 Hi Angie, Maybe it is Hashimoto's thyroiditis. The autoimmune attacks on the thyroid come in waves, so this may explain why your symptoms come and go. It can take 90% of the thyroid to be destroyed before it fails to produce enough thyroid hormone which would raise TSH enough to put you outside the range. A TPO antibodies test should show if this is the problem. Have you seen http://www.drlowe.com very good on fibromyalgia- he believes it is wholly thyroid related. Take you basal body temp before you get out of bed. If it is low it is one of the signs of hypo. I haven't been diagnosed with thyroid problems, but 18 months ago I was diagnosed with Fibromyalgia. The problem I have is that alot of my symptoms match with those of thyroid problems, also Hypothyroidism runs in my family. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2008 Report Share Posted January 23, 2008 Dear , Thanks for that. It's been great joining the group, I have renewed hope again. I'm going to get some blood tests done and go from there. My last TSH and T4 that was tested were in range apparently but I wasn't given the actual numbers. I've taken my basal body temperature and it is around 35.9 deg. Is this low enought to indicate thyroid problems? Once again, thank you for your reply Angie > > Hi Angie, > Maybe it is Hashimoto's thyroiditis. The autoimmune attacks on the > thyroid come in waves, so this may explain why your symptoms come and go. It > can take 90% of the thyroid to be destroyed before it fails to produce > enough thyroid hormone which would raise TSH enough to put you outside the > range. > A TPO antibodies test should show if this is the problem. > Have you seen http://www.drlowe.com very good on fibromyalgia- he believes > it is wholly thyroid related. > Take you basal body temp before you get out of bed. If it is low it is one > of the signs of hypo. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2008 Report Share Posted January 23, 2008 Don't you EVER give up Angie. There is life out here and it might take a little while for you to travel the road back to normal health, but we will do everything we can to help you. So many of our members came to this forum in desperation and so many are now back at work or getting on with their life elsewhere now. So, keep your chin up and read, read, read and if there is anything you don't understand, just shout. Luv - Sheila Dear Sheila,Thank you so much for your kind welcome and reply. Reading a number of the posts on here has made me realise that I am not the only one!! I think I am going to pay and get all the blood tests done and then go from there. I just pray something shows up because living like this for the rest of my life is an unbearable thought. You have given me renewed hope, as I had just about given up.Thank you againAngie >> Hi Angie - and welcome to our very busy forum. I hope you get all the help and support you need. Unless you want your Inbox over-flowing however, I would opt to receive Daily Digests so you get up to 25 messages in one email - but that is up to you. Somebody recently left the group because they couldn't cope with the volume of messages, which was a shame, because I know we could have helped her greatly. Symptoms of Fibromyalgia do match those of hypothyroidiosm and it has been found in many cases that treatment with thyroid hormone (especially T3) works miracles. Don't DARE let any doctor tell you "it's all in your head". What an insult to both our intelligence and his roll as a doctor!> > Whether you take up the referral to a psychologist or not is up to you, but had you been referred to a psychiatrist, I would say =- jump at the chance. Many psychiatrists know whether what you are suffering is "all in your head" and often diagnose hypothyroidism. I would seriously ask your GP though to refer you to an endocrinologist rather than a psychologist.> > You should get a full thyroid function test and this would include thyroid stimulating hormone (TSH), Free thyroxine (FT4), Free triiodothyronione (FT3) and you should get checked to see if you have antibodies to your thyroid. If you test positive for antibodies, this means the antibodies see your thyroid as public enemy number one and set about its destruction. such attacks by the antibodies can come and go - and you often feel hypo at one time and hyper at another. Has your GP tested to see if you have diabetes? Would you be able to see a private consultant - one who knows all about thyroid disease. There are many things we can help you wish by a process of elimination, and these would be finding out if you are also suffering with low adrenal reserve, finding out if you suffer from Candida Albicans, getting your doc to check if you have low ferritin (stored iron). You will have to do a lot of reading, (of necessity) and start by reading 'Hypothyroidism' from our website www.tpa-uki.org.uk and then click on 'Related Illnesses' and yes, there is a lot to read and it can be a bit perplexing, but don't rush it, anything you don't understand, just shout and somebody here will help you. There is light at the end of the tunnel - but it might take a little time to get there. First thing, get the blood tests I mentioned, post the results on the forum with the reference range for each one. These results are yours by law.> > Luv - Sheila> > > > > Hi Everyone, new member here.> > I haven't been diagnosed with thyroid problems, but 18 months ago I > was diagnosed with Fibromyalgia. The problem I have is that alot of > my symptoms match with those of thyroid problems, also Hypothyroidism > runs in my family. I'm so desperate to sort my health out that I > won't believe it's 'all in my head' as my doctor puts it until I've > searched every avenue. They have passed my on to a psychologist at > the moment and I am so low as I feel like they've now written me off > and I have no hope of finding the answers. > > A question I would like to know is whether people have symptoms that > come and go. I had a flare up with all of my symptoms last year which > lasted for about six months. I then got better, I had the occasional > symptoms but nothing compared to previously. Then in July last year > it all happened again, I start to get tingling arms and legs and then > everything goes down hill from there. My body seems to loose all > ability to temperature control, I'm either too hot or too cold, my > memory is non existent, I loose the ability to think, I suffer from > insomnia, anxiety, thirsty all the time especially at night, urgency > incontinence, I'm completely exhausted all the time, with no energy > or inclination to do anything, I suffer from severe muscle pains to > the point it is difficult for me to actually physically move > sometimes. My stomach has been terrible, really bad constipation, > stomach cramps and pains under my ribs. Before the first flare, I had > my gallbladder out, could this be connected? Any advice or help would > be very very gratefully received.> > Angie> > > > > > > --------------------------------------------------------------------> > > No virus found in this incoming message.> Checked by AVG Free Edition. > Version: 7.5.516 / Virus Database: 269.19.7/1234 - Release Date: 20/01/2008 14:15> No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.19.9/1237 - Release Date: 22/01/2008 11:04 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2008 Report Share Posted January 23, 2008 If you ask your doctor, he will give you your numbers, but be sure to get the reference range for each test as well. These results are yours and nobody can stop you from gettng a copy of them. Luv - Shiela Dear ,Thanks for that. It's been great joining the group, I have renewed hope again. I'm going to get some blood tests done and go from there. My last TSH and T4 that was tested were in range apparently but I wasn't given the actual numbers. I've taken my basal body temperature and it is around 35.9 deg. Is this low enought to indicate thyroid problems? Once again, thank you for your replyAngie>> Hi Angie,> Maybe it is Hashimoto's thyroiditis. The autoimmune attacks on the> thyroid come in waves, so this may explain why your symptoms come and go. It> can take 90% of the thyroid to be destroyed before it fails to produce> enough thyroid hormone which would raise TSH enough to put you outside the> range.> A TPO antibodies test should show if this is the problem.> Have you seen http://www.drlowe.com very good on fibromyalgia- he believes> it is wholly thyroid related.> Take you basal body temp before you get out of bed. If it is low it is one> of the signs of hypo. No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.19.9/1237 - Release Date: 22/01/2008 11:04 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2008 Report Share Posted January 24, 2008 MODERATED TO REMOVE MESSAGES ALREADY READ. Please remember to messages already read by the members and just leave a small portion that you are responding to. Sheila _________________________________________ Do you know where the best place to get blood tests done is? Are there any places where you can actually get the phlebotomy service as well so you don't have to go to your GP's surgery? Also, I would like some advice on who the best person to see is. I've read about Dr Peatfield and Dr Skinner, are there any others? Also what is the best way to get a refferal from your GP to a private doctor? I doubt mine would let me have one. I'm feeling really unwell at the moment and struggling to carry on with work and really want to get things done. Any advice gratefully accepted. Angie xx > > Don't you EVER give up Angie. There is life out here and it might take a little while for you to travel the road back to normal health, but we will do everything we can to help you. So many of our members came to this forum in desperation and so many are now back at work or getting on with their life elsewhere now. So, keep your chin up and read, read, read and if there is anything you don't understand, just shout. > > Luv - Sheila > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2008 Report Share Posted January 24, 2008 Hi Angie You can get all the blood tests you need through NPTech Services. Go to our Files and scroll down until you see the file for NPTech Services. There you will see all the tests they do, the charges they charge and the hospitals you get your blood drawn. Dr Peatfield and Dr Skinner are both excellent. Dr Peatfield goes deeply into the adrenal connection but Dr Skinner' doesn't. Dr Skinner can prescribe medications for you, Dr Peatfield can only recommend. You only need a referral from your GP to see Dr Skinner, you don't need one to see Dr Peatfield - or the majority of other private doctors. Where about do you live. I have a clinic in my cottage in Ickornshaw, Nr Keighley , Yorkshire on 28th and 30th March if this is something you might be interested in. You could come and stay B and B in the village and come to our TPA-UK Yorkshire Get Together Day on the 29th - and make a great weekend of it. We have one day for members to meet up and get to know each other every Spring, and so far, they have been extremely successful. Anybody and everybody is welcome. Luv - Sheila Also, I would like some advice on who the best person to see is. I've read about Dr Peatfield and Dr Skinner, are there any others? Also what is the best way to get a refferal from your GP to a private doctor? I doubt mine would let me have one.I'm feeling really unwell at the moment and struggling to carry on with work and really want to get things done. Any advice gratefully accepted.Angie xx--- In thyroid treatment , "sheilaturner" .. No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.19.9/1237 - Release Date: 22/01/2008 11:04 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2008 Report Share Posted August 29, 2008 Welcome to the group. There are no rules for iodine. You just take it and the supporting nutrients. Magnesium, Vit C, Selenium and Celtic Salt are the keys to success. You can do an iodine loading test (resources in the files section of the group) if you want to know your saturation level. You can start at 6.25, 12.5, 50 or more mg/day. I started at 50 mgs. You probably want to get rid of the kelp. It has been shown to contain arsenic and high levels of toxic halides. It's not a good source of iodine. Sounds like you have a good start. You can learn more about other thyroid nutrients on my website at www.naturalthyroidchoices.com . Also go to www.breastcancerchoices.org and read the iodine section there. There are also iodine literate doctors listed there by state. help for a newbie > Dear and group, > I am new to this board. I have symptoms of hypothyroidism. I > suspect, maybe adrenal gland issues as well. I have tested in a gray > area, but towards the low thyroid side. Plus, I had a paternal > grandmother and aunt who took thyroid medications daily. My sister is > now on thyroid medication of some sort daily. She is a traditional > medicine type person despite my adversities to that so I don't know > what she is taking. I suspect it is an unnatural type of thyroid med. > I am just tired of being tired. I have broken my leg (three years > ago-took forever to heal), torn my meniscus ligament in my left > knee-this April-still hurts, still limping-I refused surgery I am > considering prolotherapy) and been rather miserable for several years > now. I take a variety of supplements such as C, multi vitamins, > co-q-10, omega 3, calcium, magnesium, herbs to help sleep, 3 mg. > melatonin, msm for pain, bromelain for pain, occasionally organic > apple cider vinegar, non-aluminum baking soda, black strap unsulphured > molasses, Mediterranean sea salt, lecithin, and a few other assorted > things. > I ordered and received Iodoral at 12.5 mg. I also bought World > Organic liqui-Kelp daily iodine containing purified water, decoction > of Atlantic kelp (fucus vesiculosus), potassium iodide (to standardize > potency,sodium benzoate. Four drops equals 150 mcg. I took that two > days in a row four drops each day. Nothing changed. I took one Iodoral > yesterday. Nothing happened in particular. > I would like to give iodine a true trial full speed ahead. But > since I haven't read what to do in a more organized fashion, I thought > I should post and hopefully someone could help me proceed. > I have gone to a holistic doctor,out of state,but he no longer > accepts our insurance. > Thank you so much. > jholl > > > ------------------------------------ > > > > > Quote Link to comment Share on other sites More sharing options...
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