Guest guest Posted April 3, 2008 Report Share Posted April 3, 2008 Hi P, It sounds as though you will have a busy day today; I hope it all goes well. Sleep deprivation will be a risk factor when 'out', so you are being positive in recognising that problem. I've noticed that I need to get between three and four hours sleep to be able to reach the next 'sleep phase' (but that's much earlier than is usual). I put some information together on Sleep Deprivation in my folder (Amylase etc). Low ferritin and/or fluorinated drugs may also disrupt sleep phase. When you are rested, perhaps you can come back to this thread and I will take it from there. best wishes Bob > > hi folks, > > i've noticed that others have written when they are feeling lousy, > so today it is my turn ): > > the following message feels very self indulgent and 'poor me' but > i'm going ahead and will send it. i try to adhere to my plan to get > well and there aren't too many times when i feel like a sook, but > today is one of those days. > > i was supposed to be picking someone up about 20 minutes ago, but > called them 1/2 hr before i was supposed to go to let them know that > i was feeling shaky and quite unwell because i wasn't able to get to > sleep until 4am. I told them i intended on coming to get them but > needed more time because of the way i was feeling. the person i > called is another person who has hashimoto's and is hypo. > > she then started to ask whether i'd taken my electrolytes this > morning (for some reason she really pushes this since i told her > that the naturopath suggested this might be a good idea), then told > me that i shouldn't be eating so late into the night because it > might be affecting my sleep (when i told > her that i've been unable to sleep since about mid way through last > year and that i've eaten late for years and years [by the way, it is > quite normal in India to have dinner at 9pm - not that i'm Indian] > she said well it might > be affecting my sleeping and that she might stand on one leg for > years and then work out that she can't anymore so she has to stop > doing it - that didn't make too much sense to me but i think i know > what she meant), and then asked in a bit of an inpatient way what i > was doing differently and whether i was still taking certain > supplements etc. i felt like i was in the middle of a spanish > inquisition. she then told me not to go back to bed but to get in > the shower and i told her i had to lie down because i didn't feel > well enough to shower or drive to her place, but with a rest i > might. i then said that it sounded like she was angry with me. > she said no, not angry, just frustrated because she had planned to > do the thing that we had planned today and she was frustrated > because the plans were mucked up. i left it until half an hour > before we were supposed to go to call her because before that time i > was hoping that i might feel better. she sort of 'spat' her words > out at me and was really quite bossy. this might be a bit nasty of > me, but this person takes thyroxine and a supplement that i > suggested and doesn't really do anything else to help their own > health along despite having quite poor health. most days i really > love this person, but today they are giving me the #$%^ & > > this all sounds a bit of a jumble, mainly because it is. my brain > feels foggy today and i feel extremely tired on the outside and a > bit buzzy on the inside. it feels absolutely awful. i am trembling > and my eyes and face look really puffy today (not from crying - i > haven't cried). i really want to go and do the thing we planned > today because it involves my daughter and it is a very special > experience for her, however i feel terrible. i will go, but it is > going to take a bit of a self-imposed push. > > i will get in the shower now and get myself ready, but really i will > be absolutely dragging myself there and after our telephone call it > has sort of spoilt the nice feeling i had about going. the person i > spoke to is a relative so it makes it feel even worse and the fact > she also suffers from the same thing as me makes it feel even, even > worse. > > when i pick her up, if she starts on again i'm going to tell her > that i don't want to discuss it and to back off. i don't need to be > lectured nor have her tell me what to do. i'm responsible for my > own well-being and don't need someone else telling me how to manage > my own health. > > Phew. thanks for listening. i'm sure that others have been in > similar situations. i'm not normally a whining , but today I > am. > > P > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2008 Report Share Posted April 3, 2008 i really want to go and do the thing we planned > today because it involves my daughter Hi P, very glad you shared. I completely empathise with you. Today I have had to cancel seeing my daughter and grandson as I am so so tired. My car is in the garage too so I was going to combine the trip but have had to ring the garage and they have collected the car - poor little mini is suffering. I always see my car as a reflection of me!! I know they would have given me a boost but I have to look after myself after all these years of giving and giving (people pleasing really as I have never felt good enough). On an emotional level, thyroid problems are because we don't look after ourselves or fulfill our potential - at nearly 50 (on the 17th of this month) I have got to change or what life will be left. I am taking responsibility now and can't be around people who pull me down. she also suffers from the same thing as me makes it feel even, even > worse. I cannot be around people who make me feel bad. Life is too short. I don't like being given advice unless I ask .... Sharing is another matter though. Hope you feel better and you do as you please today. luv Keri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2008 Report Share Posted April 3, 2008 Hi, I'ts normal to overreact when we're feeling fragile. I hope the trip out went better than the start. Just say I want to forget my ills today. Subject: a bit of a teary today hi folks, when i pick her up, if she starts on again i'm going to tell her that i don't want to discuss it and to back off. i don't need to be lectured nor have her tell me what to do. i'm responsible for my own well-being and don't need someone else telling me how to manage my own health. Phew. thanks for listening. i'm sure that others have been in similar situations. i'm not normally a whining , but today I am. P ------------------------------------ Messages are not a substitute for professional medical advice. Always consult with a suitably qualified practitioner before changing medication. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2008 Report Share Posted April 3, 2008 > I put some information together on Sleep Deprivation in my folder > (Amylase etc). Low ferritin and/or fluorinated drugs may also disrupt > sleep phase. Hi Bob, where is your folder. Sounds as if I need to read. luv Keri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2008 Report Share Posted April 3, 2008 HI P Well - from what you have written, I hope it helped to get a lot of frustration and anger out. I know exactly what you mean and have been in your shoes entirely. It is a horrible feeling and one where you want to go a million miles away and just do your own thing, without anybody, friend or foe, telling you what you must do. I guess she was frustrated and angry by being let down, but we cannot help these things. The one message I am getting though is that you need to get the 24 hour adrenal salivary test from NPTech Services if at all possible. First, do check the adrenal questionnaire in our files and see how you score. I think you have probably got low cortisol and probably not much DHEA to work on - and you may well be making your cortisol at night, when you should be going to sleep, and not making it in the morning, when you need it to make you function. Once you have sorted this and boosted your adrenals with glandulars, this should help you enormously. Have you also done the Candida Albicans questionnaire (also in our Files) to see how you score. Another problem that could be causing your condition is a low ferritin (stored iron) - and your GP should test to see if this could be the case. When you feel so low, there is always an answer somewhere, and the best way is to find out what the cause is by a process of elimination. Go to our website www.tpa-uk.org.uk and click on "Hypothyroidism" and on the drop down Menu, click on "Associated Conditions" and read everything there and see whether any of these could be a possible cause of your problem. Keep your chin up and be determined NOT to let your relatives/friends force you into a situation that is beyond your capabilities. Take one step at a time. Ask a ton of questions and make absolutely sure you understand completely any answers. If not, ask again. We will help all we can to get you through all this. luv - Sheila a bit of a teary today hi folks,i've noticed that others have written when they are feeling lousy, so today it is my turn ):the following message feels very self indulgent and 'poor me' but i'm going ahead and will send it. i try to adhere to my plan to get well and there aren't too many times when i feel like a sook, but today is one of those days. i was supposed to be picking someone up about 20 minutes ago, but called them 1/2 hr before i was supposed to go to let them know that i was feeling shaky and quite unwell because i wasn't able to get to sleep until 4am. I told them i intended on coming to get them but needed more time because of the way i was feeling. the person i called is another person who has hashimoto's and is hypo. she then started to ask whether i'd taken my electrolytes this morning (for some reason she really pushes this since i told her that the naturopath suggested this might be a good idea), then told me that i shouldn't be eating so late into the night because it might be affecting my sleep (when i told her that i've been unable to sleep since about mid way through last year and that i've eaten late for years and years [by the way, it is quite normal in India to have dinner at 9pm - not that i'm Indian] she said well it might be affecting my sleeping and that she might stand on one leg for years and then work out that she can't anymore so she has to stop doing it - that didn't make too much sense to me but i think i know what she meant), and then asked in a bit of an inpatient way what i was doing differently and whether i was still taking certain supplements etc. i felt like i was in the middle of a spanish inquisition. she then told me not to go back to bed but to get in the shower and i told her i had to lie down because i didn't feel well enough to shower or drive to her place, but with a rest i might. i then said that it sounded like she was angry with me. she said no, not angry, just frustrated because she had planned to do the thing that we had planned today and she was frustrated because the plans were mucked up. i left it until half an hour before we were supposed to go to call her because before that time i was hoping that i might feel better. she sort of 'spat' her words out at me and was really quite bossy. this might be a bit nasty of me, but this person takes thyroxine and a supplement that i suggested and doesn't really do anything else to help their own health along despite having quite poor health. most days i really love this person, but today they are giving me the #$%^ & this all sounds a bit of a jumble, mainly because it is. my brain feels foggy today and i feel extremely tired on the outside and a bit buzzy on the inside. it feels absolutely awful. i am trembling and my eyes and face look really puffy today (not from crying - i haven't cried). i really want to go and do the thing we planned today because it involves my daughter and it is a very special experience for her, however i feel terrible. i will go, but it is going to take a bit of a self-imposed push. i will get in the shower now and get myself ready, but really i will be absolutely dragging myself there and after our telephone call it has sort of spoilt the nice feeling i had about going. the person i spoke to is a relative so it makes it feel even worse and the fact she also suffers from the same thing as me makes it feel even, even worse.when i pick her up, if she starts on again i'm going to tell her that i don't want to discuss it and to back off. i don't need to be lectured nor have her tell me what to do. i'm responsible for my own well-being and don't need someone else telling me how to manage my own health.Phew. thanks for listening. i'm sure that others have been in similar situations. i'm not normally a whining , but today I am.P No virus found in this incoming message.Checked by AVG. Version: 7.5.519 / Virus Database: 269.22.4/1355 - Release Date: 01/04/2008 17:37 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2008 Report Share Posted April 3, 2008 Hi Keri thyroid treatment/files/BOB% 27S%20Research/ in the 'files' section top of the list Bob's Research best wishes Bob > > > I put some information together on Sleep Deprivation in my folder > > (Amylase etc). Low ferritin and/or fluorinated drugs may also > disrupt > > sleep phase. > > Hi Bob, where is your folder. Sounds as if I need to read. > > luv Keri > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2008 Report Share Posted April 3, 2008 HI Keri I have to disagree, thyroid problems are NOT because we don't look after ourselves. Thyroid problems are quite simply because our thyroid isn't up to functioning as it should for all sorts of reasons, yours being that you have thyroid antibodies, that see your thyroid tissue as public enemy number one so they set about destroying it, and therefore, your thyroid can't put out the thyroid hormones your body needs. You are slowly getting there and hopefully, this following week you will be starting on thyroid hormone replacement. Never blame yourself for having a slow metabolism - that is wrong. As you say, you are taking responsibility now to look after yourself and doing this by seeing Dr Peatfield and getting your adrenals supported. I received your letter today telling me about your trip to Bolton Abbey after you left here. I can appreciate what a wonderful moment this must have been at the service at the Abbey. We took Dr Peatfield there today (or rather he took us) and we spent the morning walking up the riverside and then visiting the Abbey and church and they had singing of Chants in the background. It was breath-taking. We just sat there and soaked it all up. We then went down to Burnsall, had a lovely meal at the Red Lion and then we came back and walked the riverside again up to the Strid, and again, sat on the rocks and contemplated. This day has been really good for the soul - so when you are feeling a little down, remember how you felt at the Bolton Abbey service on Sunday. Something to savour. It is moments like these that keep us sane. Luv - Sheila On an emotional level, thyroid problems are because we don't look after ourselves or fulfill our potential - at nearly 50 (on the 17th of this month) I have got to change or what life will be left. I am taking responsibility now and can't be around people who pull me down.she also suffers from the same thing as me makes it feel even, even > worse.I cannot be around people who make me feel bad. Life is too short. I don't like being given advice unless I ask .... Sharing is another matter though.Hope you feel better and you do as you please today.luv Keri No virus found in this incoming message.Checked by AVG. Version: 7.5.519 / Virus Database: 269.22.4/1355 - Release Date: 01/04/2008 17:37 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2008 Report Share Posted April 3, 2008 <<On an emotional level, thyroid problems are because we don't look after ourselves or fulfill our potential-Keri>> I am interested to understand how this would work? Keri? I am so sorry to hear how bad you are feeling and I am hoping that everying has improved after your bad day. I can empathise with you and it is very annoying when people don't seem to understand how much you wish you could do what you had planned and weren't simply copping out. lotsa luv Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2008 Report Share Posted April 3, 2008 I also have to agree with Sheila, I looked after myself for years, I was fit as a fiddle! I didn't realise that the problems I'd had as a child were down to my thyroid. (My family went on a day trip without me once as they could not wake me up to go!!) I was unnaturally thin and when I eventually started my periods they were heavy, painful and infrequent, again down to the thyroid, (which I believe has been flipping between under and over - active for years). Emotionally I think of myself as quite strong, but when I started to suffer emotional outbursts, teariness and unbelievable anger, I think I was more surprised than anyone else. Keri I don't know where you got that comment, but I feel it is unworthy of this site. After all the problems the people here have gone through, I feel it is like agreeing with the worst of GP's and Endo's opinions - that we are all suffering from either mental illness or a negative outlook. " I have to disagree, thyroid problems are NOT because we don't look after ourselves. Thyroid problems are quite simply because our thyroid isn't up to functioning as it should.... " Luv - Sheila " On an emotional level,thyroid problems are because we don't look after ourselves or fulfill our potential " luv Keri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2008 Report Share Posted April 4, 2008 Hi there Keri, Thanks for your note. My day improved and it was a push but I'm happy that I was able to see my daughter at a very special occasion. I wasn't feeling too flash for the entire day and night, but I'm glad I didid it. I hope that you are able to see your daughter and grandson very soon and that the mini is soon in fine working order again. A close relative and I both have Hashimoto's and from looking at photo's 'down the ages' it appears as though numerous other FEMALE relatives had thyroid problems as well. I guess I think of my thyroid hassles as a bit of an unfortunate hereditary thing, but it is interesting to read your thoughts about it. (: > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2008 Report Share Posted April 4, 2008 Hi Sheila, Thanks for the support. am usually pretty stoic but it all fell out of my head and onto the page yesterday! Things are better today, so I'll just get on with it again. Can't dwell on these things as each day is a new day. As it turned out I went along, mainly because I wanted to see my daughter. I was really happy to see my daughter at a very special occasion. I didn't feel well for the entire day, but it was just wonderful to see her. I have some beautiful photo's and memories but it was damn hard work to keep going through the day. I completed the written adrenal test that you suggested. The results of that written test indicate that the adrenal fatigue is severe. I will organise a 24 hour salivary adrenal test through my doc. Thanks for the info. I will also get my levels of DHEA and Ferritin tested. I also completed the Candida questionnaire and was really surprised by my score of 364. I'd never considered it a real problem. Yet another thing to follow up with the doc. Just out of curiosity, where do the Candida and Adrenal questionnaires originate from? I haven't had a look at 'associated conditions' on the website yet, but will do so. I completely related to the bit where you wrote the following: " It is a horrible feeling and one where you want to go a million miles away and just do your own thing, without anybody, friend or foe, telling you what you must do. " I guess she was frustrated and angry by being let down, but we cannot help these things. Yes Sheila, there has been more than one occasion where I have seriously considered joining a hermitage!!!!!! Thanks for the following suggestion Sheila " Keep your chin up and be determined NOT to let your relatives/friends force you into a situation that is beyond your capabilities. Take one step at a time. " I guess we all learn through the things that happen to us. Usually I'm pretty good at saying 'no', but I felt quite stuck as I don't like to say that I will do something and then go back on my word. I've decided that I will plan my time differently and my friends/family and associates will have to get used to me running on 'spontaneous' time. In other words, I won't plan ahead too much knowing that I might feel like poo on a particular day. Thanks so much for your support Sheila. It is good to know that someone is out there to support me and others in the same situation. This forum helps to 'normalise' the situation for me and it makes me realise just how many other people are out there, suffering from a similar thing. Prior to that, I felt that I was one of the few people having hassles with my medication and symptoms. How wrong I was. On another note, since joining this forum a very short while ago, I am already armed me with new information that I can raise with my doc. Many thanks again. P xo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2008 Report Share Posted April 4, 2008 I don't know where you got that comment, but I feel it is > unworthy of this site. My apologies for upsetting you. I was referring to myself and shouldn't have used the word 'we'. luv Keri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2008 Report Share Posted April 4, 2008 I am interested to understand how this would work? Keri? Thanks for your understanding Dawn. I was referring to my beliefs that the emotional affects the physical body, much has been written by Louise Hay (now in her 70's who recovered from cancer). I have played the 'victim' in my life and let things happen to me. I have been a people pleaser, so worried about what people think that I have never fulfilled my potential. I have not given to myself on an emotional level - I have been very angry. I realise that I have been unwell since childhood but in the last 3 years have been doing a lot of work on myself emotionally. Now I realise that I have hashimotos disease .... This is only my opinion. luv Keri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2008 Report Share Posted April 4, 2008 HI P You will get your DHEA levels tested alongside your Cortisol levels with the 24 hour salivary test, so you don't need to do a seperate test. It will be good to know where your ferritin level lies and also, do look at the "associated Conditions" under "Hypothyroidiosm" in our websdite www.tpa-uk.org.uk as I'm sure you will learn a lot about Candida - and helping your adrenals. There is an awful lot to take into account when trying to find out what is causing your problems that the NHS doctors cannot discover, so take it slowly. Taking one step at a time means also that you have control over a situation. If you suddenly start having a reaction to something, if you have only added one thing, you know what it is, but if you do too many things at once, it can be difficult in going through a process of elimination to find out the culprit. The Adrenal Questionnaire came from Dr Rind's website but right now, can't think where the Candida Questionnaire came from. I will have to have a look when I have more time. Sorry, can't do this right now. luv - Sheila Re: a bit of a teary today Hi Sheila, Thanks for the support. am usually pretty stoic but it all fell out of my head and onto the page yesterday! Things are better today, so I'll just get on with it again. Can't dwell on these things as each day is a new day.As it turned out I went along, mainly because I wanted to see my daughter. I was really happy to see my daughter at a very special occasion. I didn't feel well for the entire day, but it was just wonderful to see her. I have some beautiful photo's and memories but it was damn hard work to keep going through the day.I completed the written adrenal test that you suggested. The results of that written test indicate that the adrenal fatigue is severe. I will organise a 24 hour salivary adrenal test through my doc. Thanks for the info. I will also get my levels of DHEA and Ferritin tested. I also completed the Candida questionnaire and was really surprised by my score of 364. I'd never considered it a real problem. Yet another thing to follow up with the doc. Just out of curiosity, where do the Candida and Adrenal questionnaires originate from?I haven't had a look at 'associated conditions' on the website yet, but will do so.I completely related to the bit where you wrote the following: "It is a horrible feeling and one where you want to go a million miles away and just do your own thing, without anybody, friend or foe, telling you what you must do." I guess she was frustrated and angry by being let down, but we cannot help these things.Yes Sheila, there has been more than one occasion where I have seriously considered joining a hermitage!!!!!!Thanks for the following suggestion Sheila "Keep your chin up and be determined NOT to let your relatives/friends force you into a situation that is beyond your capabilities. Take one step at a time." I guess we all learn through the things that happen to us. Usually I'm pretty good at saying 'no', but I felt quite stuck as I don't like to say that I will do something and then go back on my word. I've decided that I will plan my time differently and my friends/family and associates will have to get used to me running on 'spontaneous' time. In other words, I won't plan ahead too much knowing that I might feel like poo on a particular day. Thanks so much for your support Sheila. It is good to know that someone is out there to support me and others in the same situation.This forum helps to 'normalise' the situation for me and it makes me realise just how many other people are out there, suffering from a similar thing. Prior to that, I felt that I was one of the few people having hassles with my medication and symptoms. How wrong I was.On another note, since joining this forum a very short while ago, I am already armed me with new information that I can raise with my doc. Many thanks again.P xo No virus found in this incoming message.Checked by AVG. Version: 7.5.519 / Virus Database: 269.22.4/1355 - Release Date: 01/04/2008 17:37 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2008 Report Share Posted April 4, 2008 Sheila, thanks for info re tests. Now I understand! I thought that I had been tested for just about everything under the sun, but it looks like more tests are in order. I've had a look at 'associated conditions' and found some interesting things. Thanks also for providing origin of one of the qu. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2008 Report Share Posted April 5, 2008 remember how you felt at the Bolton Abbey service on Sunday. Something to savour. It is moments like these that keep us sane. Thanks Sheila. I will. I have woken up this morning feeling so much more positive. It has taken me all this week to recover from the trip and all the driving. I keep having to remember that 'rest' is a major key to adrenal recovery ( constantly goes on about it in his book on adrenal fatigue). I also have to remember that when I have energy I still have to continue to rest .... Breaking habits of a lifetime are hard. I have constantly pushed myself, hence all the anxiety from childhood. By the way Sheila I forgot to ask Dr P what he would recommend for anxiety. Have you any ideas please or should I contact him? I am fine most of the time but if I have to do something then the anxiety is huge. I have had car problems all week and dealing with the garage has been very stressful - they had to collect the car as I couldn't manage the 27 mile drive there and back. Luv Keri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2008 Report Share Posted April 5, 2008 If you are taking the right dose of adrenal supplements your body requires Keri, your anxiety levels should gradually decrease. Don't be trying to find yet more medications that might do the trick as there are so many advertised and so many 'potions' that promise you the earth, they can actually cause you more problems. Be calm, do some relaxation excercises, listen to some calming music and wait for your Armour to kick in as this should help you regain your inner peace as your body starts to heal. Luv - Sheila By the way Sheila I forgot to ask Dr P what he would recommend for anxiety. Have you any ideas please or should I contact him? I am fine most of the time but if I have to do something then the anxiety is huge. I have had car problems all week and dealing with the garage has been very stressful - they had to collect the car as I couldn't manage the 27 mile drive there and back.Luv Keri No virus found in this incoming message.Checked by AVG. Version: 7.5.519 / Virus Database: 269.22.5/1359 - Release Date: 04/04/2008 08:23 Quote Link to comment Share on other sites More sharing options...
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