Guest guest Posted December 5, 2006 Report Share Posted December 5, 2006 > > Antibodies to my adrenal system were not tested, because my adrenal > system tested out fine no less than 4 times. It is usually adrenal > failure that comes after the body is exhausted from thyroid > dysfunction, not the other way around. If you doubt this fact I > suggest the 's board where it is common to find thyroid > patients eventually having adrenal failure months or years after their > diagnosis. (I participate on that board for my daughter) I have not > seen a single person on that board who started out with 's and > went the other direction. I would agree that in a vast majority of cases things might work a particular way, but that is the BIGGEST problem that I've seen in my own treatment and in medicine in general...my case doesn't fit the standard or common protocol, therefore IT CAN'T BE TRUE. Wrong. That's a dangerous game played with people's lives. The fact is that 's is an extreme manifestation - complete adrenal failure. Irrespective of which comes first, chicken or egg, there is often (though not always) a long road traveled before total failure of the adrenals, and I'm sure we agree that most drs are missing it. The package literature for any thyroid medication states that it should not be given to patients with adrenal problems. Yet, most drs don't check first, even though it's indicated, nor do they know the most effective way of checking cortisol/adrenal function, i.e., saliva rather than serum. Since low cortisol makes it difficult or impossible for thyroid hormones - our own or supplemental - to get into the cells, " sluggish adrenals " may look like the thyroid isn't functioning well. If the body is clamoring for thyroid hormone, because what is available can't get to the cells, the thyroid tries harder. So far, this story is looking an awful lot like low thryoid, but if nobody looked any further, how the heck would we know if adrenals are compromised? At the risk of sounding like a broken record, it's impossible to know, either statistically or anecdotally which occurs first, thyroid or adrenal, without proper testing. Since most thyroid patients can hardly get drs to treat their thyroid conditions, I find it hard to believe that they would bother to look beyond they thyroid and test adrenals. Moreover, many of the symptoms of hypothyroid and hypoadrenal overlap, so again, it's hard to determine without the advantage of testing. The antibodies go away when given > corticosteroids because the antibodies are reacting to the > inflammatory cells of the thyroid. The steroid treatment will help > the inflammation process and cell destruction as well as lower the > immune system significantly (this is one of the many medical uses of > corticosteroids) and many autoimmune problems will go away this way AS > LONG AS THE PERSON IS RECEIVING THE CORTICOSTEROIDS. This is not a > cure, but only a way to suppress the immune system and works this way > for people whether they have autoimmune issues or not. My understanding is that corticosteroids used in physiologic doses DON'T suppress the immune system - the assumption being that 's patients are on physiologic replacement doses rather than pharmacological doses. Warmly, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2006 Report Share Posted December 5, 2006 , I definitely agree with almost every word you posted, therefore my initial statement of " be careful of blanket statements " the one thing to be sure of with medicine, especially hormonal stuff, is that there is no sure thing. In either direction. Adrenals are in the PDF as the first thing to check, yet of all the thyroid patients I know only one or two were ever checked. I had my daughter's checked right away, and got onto the 's board because they also discuss low adrenals as well- pretty much any adrenal issue is discussed there. I gave them our results and nobody seemed to think there was anything to worry about... so far. Everything is tied together. If we could just get more docs to treat us this way the world would be a much better place. With the advent of all these specialties and the fact that most docs want to go into a specialty and treat just " one thing " is ruining our health care system... IMHO. As it is we have to go from Endo to Neurologist, to OB/GYN to GP and back to the endo again. All for the same symptoms. Ridiculous. I am still here because I truly hope that there will be something said here that we can use. I am still toying with the idea of using some type of iodine, but it is very scary. We will bring it up to the endo on our appt before Christmas, but I suspect that he will say " no " . The docs don't know it all and I've been mislead so many times to my permanent detriment it makes me wonder why I even still try, but this is my daughter. She has already endured so much and seen me endure a lifetime of suffering. As a result she is quite scared. This is her senior year and she aspires to go into medicine to help people so that they don't have to go thru what we have gone thru. She has to get past the illness to do well at school tho, which suddenly is so very hard for her (she has dropped from being at the top of her class and considered a gifted student)it puts me in tears. The brain fog is the worst. She comes to me telling me of new symptoms happening that she doesn't understand. I don't share many of my symptoms with anyone because it makes you sound like a crazy person when you come up with a list like that (and you get treated like one as a result), so she doesn't know I've had them all myself. Last night's report of loss of balance and " listing " to the side was familiar to me. Telling her this doesn't make her feel any better tho, it only makes her think she may end up disabled by it all as I am now (I also have other conditions which may be genetic). Now she's breaking out in hives every few weeks. Good grief. So the race is on. I can't say that I agree with everything here, but I am still here hoping and praying that the lightbulb will go on and we'll figure out her solution. Going against my now trusted new endo's advice is tearing me apart right now. What if I am wrong and hurt her more? You're so right, every person and every body is different and the key I think is having as much diversified knowledge in your back pocket so that you have that much more to draw from when the need arises. Hopefully before its too late and her dreams are ruined forever. Thanks to everybody for their help. E (Ellen in Missouri) > > > > > Antibodies to my adrenal system were not tested, because my adrenal > > system tested out fine no less than 4 times. It is usually adrenal > > failure that comes after the body is exhausted from thyroid > > dysfunction, not the other way around. If you doubt this fact I > > suggest the 's board where it is common to find thyroid > > patients eventually having adrenal failure months or years after their > > diagnosis. (I participate on that board for my daughter) I have not > > seen a single person on that board who started out with 's and > > went the other direction. > > > I would agree that in a vast majority of cases things might work a > particular way, but that is the BIGGEST problem that I've seen in my > own treatment and in medicine in general...my case doesn't fit the > standard or common protocol, therefore IT CAN'T BE TRUE. Wrong. > That's a dangerous game played with people's lives. > > The fact is that 's is an extreme manifestation - complete > adrenal failure. Irrespective of which comes first, chicken or egg, > there is often (though not always) a long road traveled before total > failure of the adrenals, and I'm sure we agree that most drs are > missing it. > > The package literature for any thyroid medication states that it > should not be given to patients with adrenal problems. Yet, most drs > don't check first, even though it's indicated, nor do they know the > most effective way of checking cortisol/adrenal function, i.e., saliva > rather than serum. > > Since low cortisol makes it difficult or impossible for thyroid > hormones - our own or supplemental - to get into the cells, " sluggish > adrenals " may look like the thyroid isn't functioning well. If the > body is clamoring for thyroid hormone, because what is available can't > get to the cells, the thyroid tries harder. > > So far, this story is looking an awful lot like low thryoid, but if > nobody looked any further, how the heck would we know if adrenals are > compromised? > > At the risk of sounding like a broken record, it's impossible to know, > either statistically or anecdotally which occurs first, thyroid or > adrenal, without proper testing. > > Since most thyroid patients can hardly get drs to treat their thyroid > conditions, I find it hard to believe that they would bother to look > beyond they thyroid and test adrenals. > > Moreover, many of the symptoms of hypothyroid and hypoadrenal overlap, > so again, it's hard to determine without the advantage of testing. > > > > The antibodies go away when given > > corticosteroids because the antibodies are reacting to the > > inflammatory cells of the thyroid. The steroid treatment will help > > the inflammation process and cell destruction as well as lower the > > immune system significantly (this is one of the many medical uses of > > corticosteroids) and many autoimmune problems will go away this way AS > > LONG AS THE PERSON IS RECEIVING THE CORTICOSTEROIDS. This is not a > > cure, but only a way to suppress the immune system and works this way > > for people whether they have autoimmune issues or not. > > My understanding is that corticosteroids used in physiologic doses > DON'T suppress the immune system - the assumption being that 's > patients are on physiologic replacement doses rather than > pharmacological doses. > > Warmly, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2006 Report Share Posted December 5, 2006 >From: " Ellen " <ellen@...> She has to get >past the illness to do well at school tho, which suddenly is so very >hard for her (she has dropped from being at the top of her class and >considered a gifted student)it puts me in tears. The brain fog is the >worst. You don't have one of those moronic doctors who don't treat Hashimoto's with thyroid hormone untilt he thyroid is totally destroyed do you? >Going against my now trusted new >endo's advice is tearing me apart right now. If he's new, what good thing has he done for your daughter's health that makes him so trusted? Doctors ADMIT to being the fourth leading cause of death in this country. I think they're being quite conservative with that number, and they also are a leading cause of suffering and ill health. Skipper _________________________________________________________________ Stay up-to-date with your friends through the Windows Live Spaces friends list. http://clk.atdmt.com/MSN/go/msnnkwsp0070000001msn/direct/01/?href=http://spaces.\ live.com/spacesapi.aspx?wx_action=create & wx_url=/friends.aspx & mk Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2006 Report Share Posted December 5, 2006 I wonder why you believe that iodine is scary? It is the one thing that would have helped me as a child, to avoid a lot of misery as adult. Your child can have a wonderful life if you only help her now. and you have the same thing she does. remember that epidemics are not genetic. Do you have any of Brownstein's books on thyroid and iodine? Gracia I am still here because I truly hope that there will be something saidhere that we can use. I am still toying with the idea of using sometype of iodine, but it is very scary. We will bring it up to the endoon our appt before Christmas, but I suspect that he will say "no". The docs don't know it all and I've been mislead so many times to mypermanent detriment it makes me wonder why I even still try, but thisis my daughter. She has already endured so much and seen me endure alifetime of suffering. As a result she is quite scared. This is hersenior year and she aspires to go into medicine to help people so thatthey don't have to go thru what we have gone thru. She has to getpast the illness to do well at school tho, which suddenly is so veryhard for her (she has dropped from being at the top of her class andconsidered a gifted student)it puts me in tears. The brain fog is theworst. She comes to me telling me of new symptoms happening that shedoesn't understand. I don't share many of my symptoms with anyonebecause it makes you sound like a crazy person when you come up with alist like that (and you get treated like one as a result), so shedoesn't know I've had them all myself. Last night's report of loss ofbalance and "listing" to the side was familiar to me. Telling herthis doesn't make her feel any better tho, it only makes her think shemay end up disabled by it all as I am now (I also have otherconditions which may be genetic). Now she's breaking out in hivesevery few weeks. Good grief. So the race is on. I can't say that I agree with everything here, butI am still here hoping and praying that the lightbulb will go on andwe'll figure out her solution. Going against my now trusted newendo's advice is tearing me apart right now. What if I am wrong andhurt her more? You're so right, every person and every body isdifferent and the key I think is having as much diversified knowledgein your back pocket so that you have that much more to draw from whenthe need arises. Hopefully before its too late and her dreams areruined forever. Thanks to everybody for their help.E (Ellen in Missouri)> >> > > Antibodies to my adrenal system were not tested, because my adrenal> > system tested out fine no less than 4 times. It is usually adrenal> > failure that comes after the body is exhausted from thyroid> > dysfunction, not the other way around. If you doubt this fact I> > suggest the 's board where it is common to find thyroid> > patients eventually having adrenal failure months or years after their> > diagnosis. (I participate on that board for my daughter) I have not> > seen a single person on that board who started out with 's and> > went the other direction. > > > I would agree that in a vast majority of cases things might work a> particular way, but that is the BIGGEST problem that I've seen in my> own treatment and in medicine in general...my case doesn't fit the> standard or common protocol, therefore IT CAN'T BE TRUE. Wrong. > That's a dangerous game played with people's lives.> > The fact is that 's is an extreme manifestation - complete> adrenal failure. Irrespective of which comes first, chicken or egg,> there is often (though not always) a long road traveled before total> failure of the adrenals, and I'm sure we agree that most drs are> missing it.> > The package literature for any thyroid medication states that it> should not be given to patients with adrenal problems. Yet, most drs> don't check first, even though it's indicated, nor do they know the> most effective way of checking cortisol/adrenal function, i.e., saliva> rather than serum.> > Since low cortisol makes it difficult or impossible for thyroid> hormones - our own or supplemental - to get into the cells, "sluggish> adrenals" may look like the thyroid isn't functioning well. If the> body is clamoring for thyroid hormone, because what is available can't> get to the cells, the thyroid tries harder. > > So far, this story is looking an awful lot like low thryoid, but if> nobody looked any further, how the heck would we know if adrenals are> compromised?> > At the risk of sounding like a broken record, it's impossible to know,> either statistically or anecdotally which occurs first, thyroid or> adrenal, without proper testing.> > Since most thyroid patients can hardly get drs to treat their thyroid> conditions, I find it hard to believe that they would bother to look> beyond they thyroid and test adrenals.> > Moreover, many of the symptoms of hypothyroid and hypoadrenal overlap,> so again, it's hard to determine without the advantage of testing.> > > > The antibodies go away when given> > corticosteroids because the antibodies are reacting to the> > inflammatory cells of the thyroid. The steroid treatment will help> > the inflammation process and cell destruction as well as lower the> > immune system significantly (this is one of the many medical uses of> > corticosteroids) and many autoimmune problems will go away this way AS> > LONG AS THE PERSON IS RECEIVING THE CORTICOSTEROIDS. This is not a> > cure, but only a way to suppress the immune system and works this way> > for people whether they have autoimmune issues or not. > > My understanding is that corticosteroids used in physiologic doses> DON'T suppress the immune system - the assumption being that 's> patients are on physiologic replacement doses rather than> pharmacological doses.> > Warmly,> > No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.409 / Virus Database: 268.15.6/568 - Release Date: 12/4/2006 No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.1.409 / Virus Database: 268.15.6/568 - Release Date: 12/4/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2006 Report Share Posted December 5, 2006 Skipper- I had a hard time getting in to see him, but when my doc personally phoned him, he got me in with just a few day's wait when the wait for a new patient was 4 months. He is a listener. He also tries a lot of unconventional therapies that others don't try including Armour, etc. He asked me what my opinion was, and what tests I wanted run, then he not only agreed, but ran them without the slightest blink. He wanted my adrenals checked asap and did it- I didn't have to beg. He took a complete history and spent an hour with me to make sure that he understood everything. He is treating me slowly so that I don't rollercoaster so badly as I had in the past. He agreed to supplementing with T3 which I had begged for these last 8 yrs and was denied by countless others and had actually given up on as " unnecessary " . He listens when I have questions or suggestions with my own therapy. Actually listens, then we contemplate together the pros and the cons. I get to decide. I have thru the years of really awful docs, had to become knowledgeable about my conditions since they weren't. I can converse on another level with this doc and he doesn't treat me like an idiot, which means he also knows he can't pull a fast one on me like more RAI. He has never been derogatory or negative in any fashion, in fact has said that he's impressed with the fact that I am armed with the knowledge that I have. He actually appreciates the fact that I want to be involved in my own care, not some ragdoll there to be poked and prodded and following blindly as the doc pleases. The office always answer calls, and always return messages promptly. Labwork results are phoned in within 24 hr in the am no matter if the results are bad or good, and along with the labwork we get a proposed therapy change. It is always my choice whether I want to make the change or not, and I am free to make other suggestions or ask questions which are answered within usually about 2 minutes. He is open to consider options and is interested in the individual because he believes these disorders must be treated on an individual basis and depending on what the individual feels, not what the labs necessasrily say. When we found out that my daughter's condition had drastically changed, I asked him to fit her in and he agreed that she needed to be seen asap and saw her only a few days later. He could have seen her earlier, but I couldn't get her there earlier. (For the record, he scheduled our next appt before Christmas on his vacation day because it was the only day we could get in to see him) For us it's about a 4 hr drive so is no small matter, and I cannot always drive. Thankfully she can. He actually READ all her records and was familiar with her case before he walked into the room. (This is the first doc I've EVER had that actually read ALL of the paperwork I brought him and applied it to a real person) The old doc refused to run the correct testing, but this guy didn't even blink at it. He treated her the same way that he did me and included other testing for other significant symptoms that I was worried about that other docs had poo-pooed. Because of him she is already feeling much better with the addition of T3 that no one else would try no matter how much I asked. Her adrenals tested out ok as did her other hormones except DHEA which was high. He is concerned but hoping this high result was because her thyroid was so out of whack, and we will be retesting in a couple of weeks. He suggested we see an OB/GYN which I told him we already had an appt with (today in fact) and offered whatever help or info that we needed. The poor doc that she had before this good guy, didn't know much about thyroid and admitted it. I initially learned what I knew from him, who knew more than the doc before that, who knew more than the doc before that, etc etc etc. Most docs refused to talk to their patients or explain, even on an elementary level what was happening. At worst, they flat-out lied. Most were just ignorant. I didn't suspect anything wrong with at first. I was so terribly sick myself that altho I noticed her staring look occasionally, I didn't know enough about thyroid disease to know that eyes played a part in it. I never put 2 and 2 together and that was mostly because I was told it never happens in kids, only adults. When she began to have questionable symptoms at 12 I requested a thyroid profile which got me a strange look from my GP, but he's a friend and did what I asked, only to find that her thyroid was low. We began immediate supplementation but she has rollercoastered somewhat since then. Time warp to now at age 17. She acted hyperthyroid shortly after a blood draw that came out euthyroid on her meds, but the symptoms continued and we waited the 3 months for another draw. In the meantime this summer she began acting strangely and one day was holding her horse when she began retching and nearly passed out. I asked for FT3 FT4 TSH which showed her med/mild hyperthyroid, so they lowered her meds. I didn't know which antibody to ask for at the next appt time and neither did the GP, so he ordered only the Hashi antibodies which were high. Her thyroglobulin is 0, which I forgot to ask the endo about. This isn't her antibody, but thyroglobulin. I'm not that familiar with that one, but I know that cancer patients want a thyroglobulin of 0 because it means there's no thyroid tissue functioning, so I'm assuming that's probably telling us she has burned out now, but I'm still trying to get the down-low on that. Long story short, the diagnosis is that she now has a murmur, 3 leaking valves in her heart and aortic regurgitation, none of which was present during her physical that previous April. The cardiologists both also diagnosed her with Neurogenic syncope which I personally think will go away with the thyroid getting better- it has already gotten much better. That's when the Vagas nerve fires wrong info and results in blood pressure fluctuations and other autonomic and sympathetic nervous system problems. After lowering her dose in summer she became terribly hypO. She stopped cycling, had palps, all the symptoms. The terrible brain fog hit and she became emotionally unstable resulting in a horrific breakdown that I was concerned was going to result in having her hospitalized. For many teens this is not something one would worry so much about perhaps, but has always been very even tempered and patient, often heard telling me when I get upset, " mom, just breathe in....... now breathe out. " She forgets things constantly, doesn't remember conversations, the list goes on and on. Much of this improved with the T3 but has not gone away yet. We are early in her T3 therapy so I'm hoping much of this will be eventually resolved, but in the meantime, nothing about thyroid is set in stone, and everything about thyroid takes large amts of time. So we wait. Our current endo has made himself available at any time of the night or day if needed. No one has ever done that for us before. I feel like we're on the right track, but am still concerned that we are treating a symptom instead of the problem. My first concern is getting the symptoms under control, then we need to work on the real problem which is autoimmune. I suspect that, like me she is probably positive for both blocking and receptor antibodies, making her a victim of both Graves and Hashi's at the same time. I tried the " magic little pill " RAI thinking it was going to make all my problems disappear. NOT. I am the queen of doctor skeptics. I said this endo was trusted, I didn't say how far. Part of me is still so tense, waiting for the other shoe to drop. Waiting to hear him say " there's nothing wrong, it's just psychogenic- learn how to meditate and it will all go away " (words of a neurologist once). One doc was so stupid that he treated me with IV Phosphenytoin for seizure activity then did a drug test on me thinking I was a drug abuser. It came up positive for barbiturates which I have never had in my life to my knowledge which completely freaked me out. Turns out Phosphenytoin gives a positive Barbiturate reading. Duh. He refused to treat me any further calling me and putting on my chart that I had " drug seeking behavior " . I lay in that hospital bed in agony for nearly 12 hrs before my husband could get me out. (Due to this incident he is no longer at that hospital) I was also abused by a doctor in the ER once who didn't believe me that I had just had a baby 3 days prior, correcting me and telling me it had been 3 months. He then used a (sorry graphic) speculum and tore me wide open, at which time both he and the nurse errupted in laughter, then began to yell at me telling me that I was being " ridiculous " - there should be no pain. I also went into surgery once and came out with personal parts so sore it took my breath away. I later found out the doc and his students spent a half hour practicing vaginal palpations on me while I was under anesthesia. I could continue, but you get the point. I am still my daughter's mother and I have been there, done a lot of this stuff. I get to choose WITH her what's going to happen. If I trusted him as 100% gospel I wouldn't be here. I am looking for answers for myself because I'm the only one I trust. I remember running to vomit when suddenly I put 2 and 2 together and her staring look as a grade-schooler. But when it comes to my daughter, whom I would gladly give up my life for, I will always second guess myself because the stakes are simply too high. E (Ellen in Missouri) > > >From: " Ellen " <ellen@...> > > > She has to get > >past the illness to do well at school tho, which suddenly is so very > >hard for her (she has dropped from being at the top of her class and > >considered a gifted student)it puts me in tears. The brain fog is the > >worst. > > You don't have one of those moronic doctors who don't treat Hashimoto's with > thyroid hormone untilt he thyroid is totally destroyed do you? > > > >Going against my now trusted new > >endo's advice is tearing me apart right now. > > If he's new, what good thing has he done for your daughter's health that > makes him so trusted? > > Doctors ADMIT to being the fourth leading cause of death in this country. I > think they're being quite conservative with that number, and they also are a > leading cause of suffering and ill health. > > Skipper > > _________________________________________________________________ > Stay up-to-date with your friends through the Windows Live Spaces friends > list. > http://clk.atdmt.com/MSN/go/msnnkwsp0070000001msn/direct/01/?href=http://spaces.\ live.com/spacesapi.aspx?wx_action=create & wx_url=/friends.aspx & mk > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2006 Report Share Posted December 5, 2006 I react violently to iodine. I have to be very careful what I eat because too much iodine can send me over the edge. At best I will be miserable and sick, at worst, a thyroid storm. Autoimmune tendancies are genetic. It runs in our family. We know she has Hashi's, we know I have Graves, they are related but not the same. Personally I think we both have BOTH because of the rollercoastering, but can't get all the antibodies done since the ones they did came out positive. This is why supplementing with iodine or adding anything else to therapy at this point is frightening. She has had heart rythm irregularities as it is, I do not want to cause anything worse but would rather wait until the symptoms are at least under control somewhat. For a family this sick, I am talking life and death right now, adding or changing anything is scary.... E (Ellen in Missouri) > > > > > > > > Antibodies to my adrenal system were not tested, because my adrenal > > > system tested out fine no less than 4 times. It is usually adrenal > > > failure that comes after the body is exhausted from thyroid > > > dysfunction, not the other way around. If you doubt this fact I > > > suggest the 's board where it is common to find thyroid > > > patients eventually having adrenal failure months or years after their > > > diagnosis. (I participate on that board for my daughter) I have not > > > seen a single person on that board who started out with 's and > > > went the other direction. > > > > > > I would agree that in a vast majority of cases things might work a > > particular way, but that is the BIGGEST problem that I've seen in my > > own treatment and in medicine in general...my case doesn't fit the > > standard or common protocol, therefore IT CAN'T BE TRUE. Wrong. > > That's a dangerous game played with people's lives. > > > > The fact is that 's is an extreme manifestation - complete > > adrenal failure. Irrespective of which comes first, chicken or egg, > > there is often (though not always) a long road traveled before total > > failure of the adrenals, and I'm sure we agree that most drs are > > missing it. > > > > The package literature for any thyroid medication states that it > > should not be given to patients with adrenal problems. Yet, most drs > > don't check first, even though it's indicated, nor do they know the > > most effective way of checking cortisol/adrenal function, i.e., saliva > > rather than serum. > > > > Since low cortisol makes it difficult or impossible for thyroid > > hormones - our own or supplemental - to get into the cells, " sluggish > > adrenals " may look like the thyroid isn't functioning well. If the > > body is clamoring for thyroid hormone, because what is available can't > > get to the cells, the thyroid tries harder. > > > > So far, this story is looking an awful lot like low thryoid, but if > > nobody looked any further, how the heck would we know if adrenals are > > compromised? > > > > At the risk of sounding like a broken record, it's impossible to know, > > either statistically or anecdotally which occurs first, thyroid or > > adrenal, without proper testing. > > > > Since most thyroid patients can hardly get drs to treat their thyroid > > conditions, I find it hard to believe that they would bother to look > > beyond they thyroid and test adrenals. > > > > Moreover, many of the symptoms of hypothyroid and hypoadrenal overlap, > > so again, it's hard to determine without the advantage of testing. > > > > > > > > The antibodies go away when given > > > corticosteroids because the antibodies are reacting to the > > > inflammatory cells of the thyroid. The steroid treatment will help > > > the inflammation process and cell destruction as well as lower the > > > immune system significantly (this is one of the many medical uses of > > > corticosteroids) and many autoimmune problems will go away this way AS > > > LONG AS THE PERSON IS RECEIVING THE CORTICOSTEROIDS. This is not a > > > cure, but only a way to suppress the immune system and works this way > > > for people whether they have autoimmune issues or not. > > > > My understanding is that corticosteroids used in physiologic doses > > DON'T suppress the immune system - the assumption being that 's > > patients are on physiologic replacement doses rather than > > pharmacological doses. > > > > Warmly, > > > > > > > > > > > ------------------------------------------------------------------------------ > > > No virus found in this incoming message. > Checked by AVG Free Edition. > Version: 7.1.409 / Virus Database: 268.15.6/568 - Release Date: 12/4/2006 > > No virus found in this outgoing message. > Checked by AVG Free Edition. > Version: 7.1.409 / Virus Database: 268.15.6/568 - Release Date: 12/4/2006 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2006 Report Share Posted December 7, 2006 I think you should look at some research info on iodine, like at http://www.optimox.com heart rhythm irregularities is normalized by iodine. It was one of my worst symptoms. A lot of us here, I would bet, have been very ill. Gracia I react violently to iodine. I have to be very careful what I eatbecause too much iodine can send me over the edge. At best I will bemiserable and sick, at worst, a thyroid storm.Autoimmune tendancies are genetic. It runs in our family. We knowshe has Hashi's, we know I have Graves, they are related but not thesame. Personally I think we both have BOTH because of therollercoastering, but can't get all the antibodies done since the onesthey did came out positive. This is why supplementing with iodine oradding anything else to therapy at this point is frightening. She hashad heart rythm irregularities as it is, I do not want to causeanything worse but would rather wait until the symptoms are at leastunder control somewhat. For a family this sick, I am talking life anddeath right now, adding or changing anything is scary....E (Ellen in Missouri)>> > > I wonder why you believe that iodine is scary? It is the onething that would have helped me as a child, to avoid a lot of miseryas adult. Your child can have a wonderful life if you only help hernow. and you have the same thing she does. remember that epidemicsare not genetic.> > Do you have any of Brownstein's books on thyroid and iodine?> > Gracia> > > > > > .. No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.409 / Virus Database: 268.15.14/578 - Release Date: 12/7/2006 No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.1.409 / Virus Database: 268.15.14/578 - Release Date: 12/7/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2006 Report Share Posted December 7, 2006 Thanks for trying to help Gracia, but her heart rythm problems are because she now has a damaged heart. 3leaking valves, an enlarged atrium and aortic regurgitation to go along with the thyroid troubles and neurogenic syncope. E > > > > > > > > I wonder why you believe that iodine is scary? It is the one > thing that would have helped me as a child, to avoid a lot of misery > as adult. Your child can have a wonderful life if you only help her > now. and you have the same thing she does. remember that epidemics > are not genetic. > > > > Do you have any of Brownstein's books on thyroid and iodine? > > > > Gracia > > > > > > > > > > > > > Recent Activity > a.. 13New Members > b.. 10New Links > c.. 1New Files > Visit Your Group > Quote Link to comment Share on other sites More sharing options...
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