Re: iodine and TSH - adrenals & corticosteriods...slightly OT

[Guest guest]

>

> Antibodies to my adrenal system were not tested, because my adrenal

> system tested out fine no less than 4 times. It is usually adrenal

> failure that comes after the body is exhausted from thyroid

> dysfunction, not the other way around. If you doubt this fact I

> suggest the 's board where it is common to find thyroid

> patients eventually having adrenal failure months or years after their

> diagnosis. (I participate on that board for my daughter) I have not

> seen a single person on that board who started out with 's and

> went the other direction.

I would agree that in a vast majority of cases things might work a

particular way, but that is the BIGGEST problem that I've seen in my

own treatment and in medicine in general...my case doesn't fit the

standard or common protocol, therefore IT CAN'T BE TRUE. Wrong.

That's a dangerous game played with people's lives.

The fact is that 's is an extreme manifestation - complete

adrenal failure. Irrespective of which comes first, chicken or egg,

there is often (though not always) a long road traveled before total

failure of the adrenals, and I'm sure we agree that most drs are

missing it.

The package literature for any thyroid medication states that it

should not be given to patients with adrenal problems. Yet, most drs

don't check first, even though it's indicated, nor do they know the

most effective way of checking cortisol/adrenal function, i.e., saliva

rather than serum.

Since low cortisol makes it difficult or impossible for thyroid

hormones - our own or supplemental - to get into the cells, " sluggish

adrenals " may look like the thyroid isn't functioning well. If the

body is clamoring for thyroid hormone, because what is available can't

get to the cells, the thyroid tries harder.

So far, this story is looking an awful lot like low thryoid, but if

nobody looked any further, how the heck would we know if adrenals are

compromised?

At the risk of sounding like a broken record, it's impossible to know,

either statistically or anecdotally which occurs first, thyroid or

adrenal, without proper testing.

Since most thyroid patients can hardly get drs to treat their thyroid

conditions, I find it hard to believe that they would bother to look

beyond they thyroid and test adrenals.

Moreover, many of the symptoms of hypothyroid and hypoadrenal overlap,

so again, it's hard to determine without the advantage of testing.

The antibodies go away when given

> corticosteroids because the antibodies are reacting to the

> inflammatory cells of the thyroid. The steroid treatment will help

> the inflammation process and cell destruction as well as lower the

> immune system significantly (this is one of the many medical uses of

> corticosteroids) and many autoimmune problems will go away this way AS

> LONG AS THE PERSON IS RECEIVING THE CORTICOSTEROIDS. This is not a

> cure, but only a way to suppress the immune system and works this way

> for people whether they have autoimmune issues or not.

My understanding is that corticosteroids used in physiologic doses

DON'T suppress the immune system - the assumption being that 's

patients are on physiologic replacement doses rather than

pharmacological doses.

Warmly,

[Guest guest]

,

I definitely agree with almost every word you posted, therefore my

initial statement of " be careful of blanket statements " the one thing

to be sure of with medicine, especially hormonal stuff, is that there

is no sure thing. In either direction. Adrenals are in the PDF as

the first thing to check, yet of all the thyroid patients I know only

one or two were ever checked. I had my daughter's checked right away,

and got onto the 's board because they also discuss low

adrenals as well- pretty much any adrenal issue is discussed there. I

gave them our results and nobody seemed to think there was anything to

worry about... so far. Everything is tied together. If we could just

get more docs to treat us this way the world would be a much better

place. With the advent of all these specialties and the fact that

most docs want to go into a specialty and treat just " one thing " is

ruining our health care system... IMHO. As it is we have to go from

Endo to Neurologist, to OB/GYN to GP and back to the endo again. All

for the same symptoms. Ridiculous.

I am still here because I truly hope that there will be something said

here that we can use. I am still toying with the idea of using some

type of iodine, but it is very scary. We will bring it up to the endo

on our appt before Christmas, but I suspect that he will say " no " .

The docs don't know it all and I've been mislead so many times to my

permanent detriment it makes me wonder why I even still try, but this

is my daughter. She has already endured so much and seen me endure a

lifetime of suffering. As a result she is quite scared. This is her

senior year and she aspires to go into medicine to help people so that

they don't have to go thru what we have gone thru. She has to get

past the illness to do well at school tho, which suddenly is so very

hard for her (she has dropped from being at the top of her class and

considered a gifted student)it puts me in tears. The brain fog is the

worst. She comes to me telling me of new symptoms happening that she

doesn't understand. I don't share many of my symptoms with anyone

because it makes you sound like a crazy person when you come up with a

list like that (and you get treated like one as a result), so she

doesn't know I've had them all myself. Last night's report of loss of

balance and " listing " to the side was familiar to me. Telling her

this doesn't make her feel any better tho, it only makes her think she

may end up disabled by it all as I am now (I also have other

conditions which may be genetic). Now she's breaking out in hives

every few weeks. Good grief.

So the race is on. I can't say that I agree with everything here, but

I am still here hoping and praying that the lightbulb will go on and

we'll figure out her solution. Going against my now trusted new

endo's advice is tearing me apart right now. What if I am wrong and

hurt her more? You're so right, every person and every body is

different and the key I think is having as much diversified knowledge

in your back pocket so that you have that much more to draw from when

the need arises. Hopefully before its too late and her dreams are

ruined forever.

Thanks to everybody for their help.

E (Ellen in Missouri)

> >

>

> > Antibodies to my adrenal system were not tested, because my adrenal

> > system tested out fine no less than 4 times. It is usually adrenal

> > failure that comes after the body is exhausted from thyroid

> > dysfunction, not the other way around. If you doubt this fact I

> > suggest the 's board where it is common to find thyroid

> > patients eventually having adrenal failure months or years after their

> > diagnosis. (I participate on that board for my daughter) I have not

> > seen a single person on that board who started out with 's and

> > went the other direction.

>

>

> I would agree that in a vast majority of cases things might work a

> particular way, but that is the BIGGEST problem that I've seen in my

> own treatment and in medicine in general...my case doesn't fit the

> standard or common protocol, therefore IT CAN'T BE TRUE. Wrong.

> That's a dangerous game played with people's lives.

>

> The fact is that 's is an extreme manifestation - complete

> adrenal failure. Irrespective of which comes first, chicken or egg,

> there is often (though not always) a long road traveled before total

> failure of the adrenals, and I'm sure we agree that most drs are

> missing it.

>

> The package literature for any thyroid medication states that it

> should not be given to patients with adrenal problems. Yet, most drs

> don't check first, even though it's indicated, nor do they know the

> most effective way of checking cortisol/adrenal function, i.e., saliva

> rather than serum.

>

> Since low cortisol makes it difficult or impossible for thyroid

> hormones - our own or supplemental - to get into the cells, " sluggish

> adrenals " may look like the thyroid isn't functioning well. If the

> body is clamoring for thyroid hormone, because what is available can't

> get to the cells, the thyroid tries harder.

>

> So far, this story is looking an awful lot like low thryoid, but if

> nobody looked any further, how the heck would we know if adrenals are

> compromised?

>

> At the risk of sounding like a broken record, it's impossible to know,

> either statistically or anecdotally which occurs first, thyroid or

> adrenal, without proper testing.

>

> Since most thyroid patients can hardly get drs to treat their thyroid

> conditions, I find it hard to believe that they would bother to look

> beyond they thyroid and test adrenals.

>

> Moreover, many of the symptoms of hypothyroid and hypoadrenal overlap,

> so again, it's hard to determine without the advantage of testing.

>

>

>

> The antibodies go away when given

> > corticosteroids because the antibodies are reacting to the

> > inflammatory cells of the thyroid. The steroid treatment will help

> > the inflammation process and cell destruction as well as lower the

> > immune system significantly (this is one of the many medical uses of

> > corticosteroids) and many autoimmune problems will go away this way AS

> > LONG AS THE PERSON IS RECEIVING THE CORTICOSTEROIDS. This is not a

> > cure, but only a way to suppress the immune system and works this way

> > for people whether they have autoimmune issues or not.

>

> My understanding is that corticosteroids used in physiologic doses

> DON'T suppress the immune system - the assumption being that 's

> patients are on physiologic replacement doses rather than

> pharmacological doses.

>

> Warmly,

>

>

[Guest guest]

>From: " Ellen " <ellen@...>

She has to get

>past the illness to do well at school tho, which suddenly is so very

>hard for her (she has dropped from being at the top of her class and

>considered a gifted student)it puts me in tears. The brain fog is the

>worst.

You don't have one of those moronic doctors who don't treat Hashimoto's with

thyroid hormone untilt he thyroid is totally destroyed do you?

>Going against my now trusted new

>endo's advice is tearing me apart right now.

If he's new, what good thing has he done for your daughter's health that

makes him so trusted?

Doctors ADMIT to being the fourth leading cause of death in this country. I

think they're being quite conservative with that number, and they also are a

leading cause of suffering and ill health.

Skipper

_________________________________________________________________

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[Guest guest]

I wonder why you believe that iodine is scary? It is the one thing that would have helped me as a child, to avoid a lot of misery as adult. Your child can have a wonderful life if you only help her now. and you have the same thing she does. remember that epidemics are not genetic.

Do you have any of Brownstein's books on thyroid and iodine?

Gracia

I am still here because I truly hope that there will be something saidhere that we can use. I am still toying with the idea of using sometype of iodine, but it is very scary. We will bring it up to the endoon our appt before Christmas, but I suspect that he will say "no". The docs don't know it all and I've been mislead so many times to mypermanent detriment it makes me wonder why I even still try, but thisis my daughter. She has already endured so much and seen me endure alifetime of suffering. As a result she is quite scared. This is hersenior year and she aspires to go into medicine to help people so thatthey don't have to go thru what we have gone thru. She has to getpast the illness to do well at school tho, which suddenly is so veryhard for her (she has dropped from being at the top of her class andconsidered a gifted student)it puts me in tears. The brain fog is theworst. She comes to me telling me of new symptoms happening that shedoesn't understand. I don't share many of my symptoms with anyonebecause it makes you sound like a crazy person when you come up with alist like that (and you get treated like one as a result), so shedoesn't know I've had them all myself. Last night's report of loss ofbalance and "listing" to the side was familiar to me. Telling herthis doesn't make her feel any better tho, it only makes her think shemay end up disabled by it all as I am now (I also have otherconditions which may be genetic). Now she's breaking out in hivesevery few weeks. Good grief. So the race is on. I can't say that I agree with everything here, butI am still here hoping and praying that the lightbulb will go on andwe'll figure out her solution. Going against my now trusted newendo's advice is tearing me apart right now. What if I am wrong andhurt her more? You're so right, every person and every body isdifferent and the key I think is having as much diversified knowledgein your back pocket so that you have that much more to draw from whenthe need arises. Hopefully before its too late and her dreams areruined forever. Thanks to everybody for their help.E (Ellen in Missouri)> >> > > Antibodies to my adrenal system were not tested, because my adrenal> > system tested out fine no less than 4 times. It is usually adrenal> > failure that comes after the body is exhausted from thyroid> > dysfunction, not the other way around. If you doubt this fact I> > suggest the 's board where it is common to find thyroid> > patients eventually having adrenal failure months or years after their> > diagnosis. (I participate on that board for my daughter) I have not> > seen a single person on that board who started out with 's and> > went the other direction. > > > I would agree that in a vast majority of cases things might work a> particular way, but that is the BIGGEST problem that I've seen in my> own treatment and in medicine in general...my case doesn't fit the> standard or common protocol, therefore IT CAN'T BE TRUE. Wrong. > That's a dangerous game played with people's lives.> > The fact is that 's is an extreme manifestation - complete> adrenal failure. Irrespective of which comes first, chicken or egg,> there is often (though not always) a long road traveled before total> failure of the adrenals, and I'm sure we agree that most drs are> missing it.> > The package literature for any thyroid medication states that it> should not be given to patients with adrenal problems. Yet, most drs> don't check first, even though it's indicated, nor do they know the> most effective way of checking cortisol/adrenal function, i.e., saliva> rather than serum.> > Since low cortisol makes it difficult or impossible for thyroid> hormones - our own or supplemental - to get into the cells, "sluggish> adrenals" may look like the thyroid isn't functioning well. If the> body is clamoring for thyroid hormone, because what is available can't> get to the cells, the thyroid tries harder. > > So far, this story is looking an awful lot like low thryoid, but if> nobody looked any further, how the heck would we know if adrenals are> compromised?> > At the risk of sounding like a broken record, it's impossible to know,> either statistically or anecdotally which occurs first, thyroid or> adrenal, without proper testing.> > Since most thyroid patients can hardly get drs to treat their thyroid> conditions, I find it hard to believe that they would bother to look> beyond they thyroid and test adrenals.> > Moreover, many of the symptoms of hypothyroid and hypoadrenal overlap,> so again, it's hard to determine without the advantage of testing.> > > > The antibodies go away when given> > corticosteroids because the antibodies are reacting to the> > inflammatory cells of the thyroid. The steroid treatment will help> > the inflammation process and cell destruction as well as lower the> > immune system significantly (this is one of the many medical uses of> > corticosteroids) and many autoimmune problems will go away this way AS> > LONG AS THE PERSON IS RECEIVING THE CORTICOSTEROIDS. This is not a> > cure, but only a way to suppress the immune system and works this way> > for people whether they have autoimmune issues or not. > > My understanding is that corticosteroids used in physiologic doses> DON'T suppress the immune system - the assumption being that 's> patients are on physiologic replacement doses rather than> pharmacological doses.> > Warmly,> >

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[Guest guest]

Skipper-

I had a hard time getting in to see him, but when my doc personally

phoned him, he got me in with just a few day's wait when the wait for

a new patient was 4 months. He is a listener. He also tries a lot of

unconventional therapies that others don't try including Armour, etc.

He asked me what my opinion was, and what tests I wanted run, then he

not only agreed, but ran them without the slightest blink. He wanted

my adrenals checked asap and did it- I didn't have to beg. He took a

complete history and spent an hour with me to make sure that he

understood everything. He is treating me slowly so that I don't

rollercoaster so badly as I had in the past. He agreed to

supplementing with T3 which I had begged for these last 8 yrs and was

denied by countless others and had actually given up on as

" unnecessary " . He listens when I have questions or suggestions with

my own therapy. Actually listens, then we contemplate together the

pros and the cons. I get to decide. I have thru the years of really

awful docs, had to become knowledgeable about my conditions since they

weren't. I can converse on another level with this doc and he doesn't

treat me like an idiot, which means he also knows he can't pull a fast

one on me like more RAI. He has never been derogatory or negative in

any fashion, in fact has said that he's impressed with the fact that I

am armed with the knowledge that I have. He actually appreciates the

fact that I want to be involved in my own care, not some ragdoll there

to be poked and prodded and following blindly as the doc pleases. The

office always answer calls, and always return messages promptly.

Labwork results are phoned in within 24 hr in the am no matter if the

results are bad or good, and along with the labwork we get a proposed

therapy change. It is always my choice whether I want to make the

change or not, and I am free to make other suggestions or ask

questions which are answered within usually about 2 minutes. He is

open to consider options and is interested in the individual because

he believes these disorders must be treated on an individual basis and

depending on what the individual feels, not what the labs necessasrily

say.

When we found out that my daughter's condition had drastically

changed, I asked him to fit her in and he agreed that she needed to be

seen asap and saw her only a few days later. He could have seen her

earlier, but I couldn't get her there earlier. (For the record, he

scheduled our next appt before Christmas on his vacation day because

it was the only day we could get in to see him) For us it's about a 4

hr drive so is no small matter, and I cannot always drive. Thankfully

she can. He actually READ all her records and was familiar with her

case before he walked into the room. (This is the first doc I've EVER

had that actually read ALL of the paperwork I brought him and applied

it to a real person) The old doc refused to run the correct testing,

but this guy didn't even blink at it. He treated her the same way

that he did me and included other testing for other significant

symptoms that I was worried about that other docs had poo-pooed.

Because of him she is already feeling much better with the addition of

T3 that no one else would try no matter how much I asked. Her

adrenals tested out ok as did her other hormones except DHEA which was

high. He is concerned but hoping this high result was because her

thyroid was so out of whack, and we will be retesting in a couple of

weeks. He suggested we see an OB/GYN which I told him we already had

an appt with (today in fact) and offered whatever help or info that we

needed.

The poor doc that she had before this good guy, didn't know much about

thyroid and admitted it. I initially learned what I knew from him,

who knew more than the doc before that, who knew more than the doc

before that, etc etc etc. Most docs refused to talk to their patients

or explain, even on an elementary level what was happening. At worst,

they flat-out lied. Most were just ignorant. I didn't suspect

anything wrong with at first. I was so terribly sick myself

that altho I noticed her staring look occasionally, I didn't know

enough about thyroid disease to know that eyes played a part in it. I

never put 2 and 2 together and that was mostly because I was told it

never happens in kids, only adults. When she began to have

questionable symptoms at 12 I requested a thyroid profile which got me

a strange look from my GP, but he's a friend and did what I asked,

only to find that her thyroid was low. We began immediate

supplementation but she has rollercoastered somewhat since then. Time

warp to now at age 17. She acted hyperthyroid shortly after a blood

draw that came out euthyroid on her meds, but the symptoms continued

and we waited the 3 months for another draw. In the meantime this

summer she began acting strangely and one day was holding her horse

when she began retching and nearly passed out. I asked for FT3 FT4

TSH which showed her med/mild hyperthyroid, so they lowered her meds.

I didn't know which antibody to ask for at the next appt time and

neither did the GP, so he ordered only the Hashi antibodies which were

high. Her thyroglobulin is 0, which I forgot to ask the endo about.

This isn't her antibody, but thyroglobulin. I'm not that familiar

with that one, but I know that cancer patients want a thyroglobulin of

0 because it means there's no thyroid tissue functioning, so I'm

assuming that's probably telling us she has burned out now, but I'm

still trying to get the down-low on that. Long story short, the

diagnosis is that she now has a murmur, 3 leaking valves in her heart

and aortic regurgitation, none of which was present during her

physical that previous April. The cardiologists both also diagnosed

her with Neurogenic syncope which I personally think will go away with

the thyroid getting better- it has already gotten much better. That's

when the Vagas nerve fires wrong info and results in blood pressure

fluctuations and other autonomic and sympathetic nervous system

problems. After lowering her dose in summer she became terribly hypO.

She stopped cycling, had palps, all the symptoms. The terrible brain

fog hit and she became emotionally unstable resulting in a horrific

breakdown that I was concerned was going to result in having her

hospitalized. For many teens this is not something one would worry so

much about perhaps, but has always been very even tempered

and patient, often heard telling me when I get upset, " mom, just

breathe in....... now breathe out. " She forgets things constantly,

doesn't remember conversations, the list goes on and on. Much of this

improved with the T3 but has not gone away yet. We are early in her

T3 therapy so I'm hoping much of this will be eventually resolved, but

in the meantime, nothing about thyroid is set in stone, and everything

about thyroid takes large amts of time. So we wait. Our current endo

has made himself available at any time of the night or day if needed.

No one has ever done that for us before. I feel like we're on the

right track, but am still concerned that we are treating a symptom

instead of the problem. My first concern is getting the symptoms

under control, then we need to work on the real problem which is

autoimmune. I suspect that, like me she is probably positive for both

blocking and receptor antibodies, making her a victim of both Graves

and Hashi's at the same time.

I tried the " magic little pill " RAI thinking it was going to make all

my problems disappear. NOT. I am the queen of doctor skeptics. I

said this endo was trusted, I didn't say how far. Part of me is still

so tense, waiting for the other shoe to drop. Waiting to hear him say

" there's nothing wrong, it's just psychogenic- learn how to meditate

and it will all go away " (words of a neurologist once). One doc was

so stupid that he treated me with IV Phosphenytoin for seizure

activity then did a drug test on me thinking I was a drug abuser. It

came up positive for barbiturates which I have never had in my life to

my knowledge which completely freaked me out. Turns out Phosphenytoin

gives a positive Barbiturate reading. Duh. He refused to treat me

any further calling me and putting on my chart that I had " drug

seeking behavior " . I lay in that hospital bed in agony for nearly 12

hrs before my husband could get me out. (Due to this incident he is no

longer at that hospital) I was also abused by a doctor in the ER once

who didn't believe me that I had just had a baby 3 days prior,

correcting me and telling me it had been 3 months. He then used a

(sorry graphic) speculum and tore me wide open, at which time both he

and the nurse errupted in laughter, then began to yell at me telling

me that I was being " ridiculous " - there should be no pain. I also

went into surgery once and came out with personal parts so sore it

took my breath away. I later found out the doc and his students spent

a half hour practicing vaginal palpations on me while I was under

anesthesia. I could continue, but you get the point.

I am still my daughter's mother and I have been there, done a lot of

this stuff. I get to choose WITH her what's going to happen. If I

trusted him as 100% gospel I wouldn't be here. I am looking for

answers for myself because I'm the only one I trust. I remember

running to vomit when suddenly I put 2 and 2 together and her staring

look as a grade-schooler. But when it comes to my daughter, whom I

would gladly give up my life for, I will always second guess myself

because the stakes are simply too high.

E (Ellen in Missouri)

>

> >From: " Ellen " <ellen@...>

>

>

> She has to get

> >past the illness to do well at school tho, which suddenly is so very

> >hard for her (she has dropped from being at the top of her class and

> >considered a gifted student)it puts me in tears. The brain fog is the

> >worst.

>

> You don't have one of those moronic doctors who don't treat

Hashimoto's with

> thyroid hormone untilt he thyroid is totally destroyed do you?

>

>

> >Going against my now trusted new

> >endo's advice is tearing me apart right now.

>

> If he's new, what good thing has he done for your daughter's health

that

> makes him so trusted?

>

> Doctors ADMIT to being the fourth leading cause of death in this

country. I

> think they're being quite conservative with that number, and they

also are a

> leading cause of suffering and ill health.

>

> Skipper

>

> _________________________________________________________________

> Stay up-to-date with your friends through the Windows Live Spaces

friends

> list.

>

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>

[Guest guest]

I react violently to iodine. I have to be very careful what I eat

because too much iodine can send me over the edge. At best I will be

miserable and sick, at worst, a thyroid storm.

Autoimmune tendancies are genetic. It runs in our family. We know

she has Hashi's, we know I have Graves, they are related but not the

same. Personally I think we both have BOTH because of the

rollercoastering, but can't get all the antibodies done since the ones

they did came out positive. This is why supplementing with iodine or

adding anything else to therapy at this point is frightening. She has

had heart rythm irregularities as it is, I do not want to cause

anything worse but would rather wait until the symptoms are at least

under control somewhat. For a family this sick, I am talking life and

death right now, adding or changing anything is scary....

E (Ellen in Missouri)

> > >

> >

> > > Antibodies to my adrenal system were not tested, because my

adrenal

> > > system tested out fine no less than 4 times. It is usually adrenal

> > > failure that comes after the body is exhausted from thyroid

> > > dysfunction, not the other way around. If you doubt this fact I

> > > suggest the 's board where it is common to find

thyroid

> > > patients eventually having adrenal failure months or years

after their

> > > diagnosis. (I participate on that board for my daughter) I

have not

> > > seen a single person on that board who started out with

's and

> > > went the other direction.

> >

> >

> > I would agree that in a vast majority of cases things might work a

> > particular way, but that is the BIGGEST problem that I've seen in my

> > own treatment and in medicine in general...my case doesn't fit the

> > standard or common protocol, therefore IT CAN'T BE TRUE. Wrong.

> > That's a dangerous game played with people's lives.

> >

> > The fact is that 's is an extreme manifestation - complete

> > adrenal failure. Irrespective of which comes first, chicken or egg,

> > there is often (though not always) a long road traveled before total

> > failure of the adrenals, and I'm sure we agree that most drs are

> > missing it.

> >

> > The package literature for any thyroid medication states that it

> > should not be given to patients with adrenal problems. Yet, most drs

> > don't check first, even though it's indicated, nor do they know the

> > most effective way of checking cortisol/adrenal function, i.e.,

saliva

> > rather than serum.

> >

> > Since low cortisol makes it difficult or impossible for thyroid

> > hormones - our own or supplemental - to get into the cells,

" sluggish

> > adrenals " may look like the thyroid isn't functioning well. If the

> > body is clamoring for thyroid hormone, because what is available

can't

> > get to the cells, the thyroid tries harder.

> >

> > So far, this story is looking an awful lot like low thryoid, but if

> > nobody looked any further, how the heck would we know if

adrenals are

> > compromised?

> >

> > At the risk of sounding like a broken record, it's impossible to

know,

> > either statistically or anecdotally which occurs first, thyroid or

> > adrenal, without proper testing.

> >

> > Since most thyroid patients can hardly get drs to treat their

thyroid

> > conditions, I find it hard to believe that they would bother to look

> > beyond they thyroid and test adrenals.

> >

> > Moreover, many of the symptoms of hypothyroid and hypoadrenal

overlap,

> > so again, it's hard to determine without the advantage of testing.

> >

> >

> >

> > The antibodies go away when given

> > > corticosteroids because the antibodies are reacting to the

> > > inflammatory cells of the thyroid. The steroid treatment will help

> > > the inflammation process and cell destruction as well as lower the

> > > immune system significantly (this is one of the many medical

uses of

> > > corticosteroids) and many autoimmune problems will go away

this way AS

> > > LONG AS THE PERSON IS RECEIVING THE CORTICOSTEROIDS. This is not a

> > > cure, but only a way to suppress the immune system and works

this way

> > > for people whether they have autoimmune issues or not.

> >

> > My understanding is that corticosteroids used in physiologic doses

> > DON'T suppress the immune system - the assumption being that

's

> > patients are on physiologic replacement doses rather than

> > pharmacological doses.

> >

> > Warmly,

> >

> >

>

>

>

>

>

>

>

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[Guest guest]

I think you should look at some research info on iodine, like at http://www.optimox.com

heart rhythm irregularities is normalized by iodine. It was one of my worst symptoms. A lot of us here, I would bet, have been very ill.

Gracia

I react violently to iodine. I have to be very careful what I eatbecause too much iodine can send me over the edge. At best I will bemiserable and sick, at worst, a thyroid storm.Autoimmune tendancies are genetic. It runs in our family. We knowshe has Hashi's, we know I have Graves, they are related but not thesame. Personally I think we both have BOTH because of therollercoastering, but can't get all the antibodies done since the onesthey did came out positive. This is why supplementing with iodine oradding anything else to therapy at this point is frightening. She hashad heart rythm irregularities as it is, I do not want to causeanything worse but would rather wait until the symptoms are at leastunder control somewhat. For a family this sick, I am talking life anddeath right now, adding or changing anything is scary....E (Ellen in Missouri)>> > > I wonder why you believe that iodine is scary? It is the onething that would have helped me as a child, to avoid a lot of miseryas adult. Your child can have a wonderful life if you only help hernow. and you have the same thing she does. remember that epidemicsare not genetic.> > Do you have any of Brownstein's books on thyroid and iodine?> > Gracia> > > > > >

..

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[Guest guest]

Thanks for trying to help Gracia, but her heart rythm problems are

because she now has a damaged heart. 3leaking valves, an enlarged

atrium and aortic regurgitation to go along with the thyroid troubles

and neurogenic syncope.

E

> >

> >

> >

> > I wonder why you believe that iodine is scary? It is the one

> thing that would have helped me as a child, to avoid a lot of misery

> as adult. Your child can have a wonderful life if you only help her

> now. and you have the same thing she does. remember that epidemics

> are not genetic.

> >

> > Do you have any of Brownstein's books on thyroid and iodine?

> >

> > Gracia

> >

> >

> >

> >

> >

> >

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