Guest guest Report post Posted May 28, 2002 Hi Gail, Thinking of you daily and waiting for great news as you are. Charlyne Mom to Zeb 9 DS/OCD ? Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 28, 2002 Gail, You and your husband have been in my prayers and will continue to be. Keep up the strength (I know you will) and know that we are all focusing our positive thoughts on your family. Many hugs, Sandy mom to Gabby (6, ds-asd) and Adam (2) Re: GAIL In a message dated 5/26/02 5:15:46 PM Pacific Daylight Time, joan@... writes: << Gail, honey.....years of work in ICU and CCU tells me that he *does* know you're there--regardless of the outcome. We're all thinking of you and yours. love, j >> Thanks for all the support everyone. Joan, it's strange but you are right. Even if I go in his room and don't speak, his blood pressure goes up. It goes up higher if I hold his hand or rub his head. All the nurses said that's not uncommon. It's VERY comforting to know that he knows I'm there with him. :-) Things are still basically the same. They don't know what is causing the seizure-like episodes and the last 2 days he has been running a high temp. They think maybe taking all his hard core psych drugs away cold turkey is playing a role in the seizure-like episodes. Gosh, he's on 3 antibiotics, morphine, 2 sedatives, insulin injections 4 times a day ( meds and tube feeding are raising his sugar) and the med that paralyzes you to stay on the respirator. Not to mention all the respiratory drugs. How much can a body take? We are hanging in there and are still hopeful. He hasn't given up yet, so we aren't either. I went in chat last night while I was waiting for the kids to wind down. It was nice to chat with and a. :-) Thanks for the pick me up you guys! :-) Keep us in your prayers that we can accept God's will and not lose faith? I think, right now, my biggest fear is that I will get mad at God and lose my faith. I can't bear to think of life without my hero here with us. I'm thankful that Seth doesn't have a clue that anything is wrong. He is still his happy, active self. He is my source of comfort right now when I walk in the door and he comes running with his smile, kisses and clapping his hands to play. :-) The girls ask a zillion questions, but Seth just gets us all smiling when we get too sad. Thanks for all the prayers, and I will keep you posted. Gail :-) -------------------------------------------------- Checkout our homepage for information, bookmarks, and photos of our kids. Share favorite bookmarks, ideas, and other information by including them. Don't forget, messages are a permanent record of the archives for our list. -------------------------------------------- Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 30, 2002 Gail! I am so glad to hear your dh is doing better. Great great News!!!!! Pam mom to Hannah and UrthMan <outerspace@...> wrote: Oh Gail Sooo glad to hear about your husband!!! Thanks for letting us know. Keep smiling. . .Gail!!! Kathy Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 30, 2002 In a message dated 5/30/02 1:52:39 AM Pacific Daylight Time, writes: > I want to thank everyone for their prayers and encouragement the last week. > > Dh is doing better now. He is still in ICU on the ventilator, but he > acknowledged me today and his fever is down. They put him back on his > psych drugs and he is now down from 8 IV's to 2. :-) Things are brighter > in > my little corner of the world tonight. Now that I can focus a little > better, > I'm off to read the old posts and catch up a bit. Thanks again guys, this > group is the greatest!!!!!!!!!!!! > THANK GOD, GAIL!!!!!! Try to get a little rest too! Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 30, 2002 Dear Gail, I'm so sorry. We're all praying for you and your family. There's still hope of a miracle. And don't worry about raising Seth on your own. You have all of us to help you as you have been so supportive & helpful to us. Your older girls will help you get through this. And you're so right about the simple minds of children who can't comprehend. It's God's way of protecting them from the pain. Your younger children will help you put things into perspective. As you said, you know you will survive, but the pain will be unbearable at times. Remember, we're here all the time, stretching our arms around you in a giant group hug. Ramble on any time you need to. Much love, hugs & prayers, Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 31, 2002 In a message dated 5/30/02 7:59:18 PM Pacific Daylight Time, writes: > They don't expect dh to make it through the night. Please pray for an easy > death and for me and my family that we will get through this. > Gail :-( > > > WHAT??????? OMG!!!!!!! Merciful God, please watch over this very loving, supportive family and keep them in Your care. God bless you all, Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 31, 2002 Gail, said what I was feeling too and just want you to know I am also here for you!! We send all our love your way, still praying, I know this is so hard, Dawn Re: Gail Dear Gail, I'm so sorry. We're all praying for you and your family. There's still hope of a miracle. And don't worry about raising Seth on your own. You have all of us to help you as you have been so supportive & helpful to us. Your older girls will help you get through this. And you're so right about the simple minds of children who can't comprehend. It's God's way of protecting them from the pain. Your younger children will help you put things into perspective. As you said, you know you will survive, but the pain will be unbearable at times. Remember, we're here all the time, stretching our arms around you in a giant group hug. Ramble on any time you need to. Much love, hugs & prayers, -------------------------------------------------- Checkout our homepage for information, bookmarks, and photos of our kids. Share favorite bookmarks, ideas, and other information by including them. Don't forget, messages are a permanent record of the archives for our list. -------------------------------------------- Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 31, 2002 Dear Gail, So thankful to hear you dh pulled through the night and is coherent to your communications with him. I and those I have recruited to pray for him and you will continue to do so. Absolutely NO Guilt is warranted here!!! Reaching out and being there when others need you is what Christianity and friendship is all about! I wish like many others in this group that we could be there inperson for you. Please know my hugs and prayers are also with you and yours at this time. Sincerely, In Christ, ===== Lyn mom to JM-17, Josiah-5 DS/ASD, Tabitha-22mo. __________________________________________________ Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 31, 2002 In a message dated 5/31/02 6:33:26 PM Pacific Daylight Time, writes: > . He is responding to my asking yes and no questions by head > movements. He wants to have rugrats on TV and he wants to hear about the > kids. He doesn't want to lay there anymore. LOL And he wants me to swab > his mouth every 3 minutes! LOL That's my dh through and through! Things > are so much brighter today. I feel guilty always asking for prayers, and > not > being there for the others on the list right now. The doc says dh is still > > as critical as you can get, but he's still fighting. Thanks again for all > the support and prayers everyone. You will never know how much it has > meant > to me to know that so many people care. Gail, miracles happen all the time and I think you experienced one! We will continue to pray and light candles.....pretty soon, God's going to put all of us on hold, we're asking so much of Him lately.....hehe.... Good karma being sent your way....by the way, I just chatted with one of your daughters....your IM was on, but your daughter was online chatting......what a lovely girl, she was so nice and remembered our " ten minute meeting " last year in Bensalem! God bless your whole family, they are truly a joy, Love, Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 2, 2002 In a message dated 6/2/02 2:25:18 PM Pacific Daylight Time, writes: > Well, my hero is going to make it! YIPPEE!!!!!!!! He's off the ventilator, > > feeding tube, insulin and down to 2 liters of oxygen. He can't move his > arms > and is confused and cries at times, but other times he seems *with it*. He > > doesn't remember the last 12 days. He thinks he just went to the hospital. > > He thinks friends have died that haven't. AND......LOL He asked me when I > > hooked up with ( dating) Penny. She's a girl he works with. LOL But when > I > kissed him good night, I only gave him one kiss, and we always kiss three > times. He asked where his other kisses were. Gail, this is the best news I've heard in a long time! Don't be too concerned about what dh is saying or doesn't recall yet....remember, he's been through a helluva time these last few days.....one day at a time! Do they know what caused his reactions? Have they told you why they took him off those drugs he was used to? I guess it'll all be explained to you in due time; it's just that I don't want them to get away with anything if they've caused you and your dh undue stress by making a medical decision that almost cost him his life! You may be able to be compensated for this. You're welcome for the flowers.....just a small token of what we want to do for you! Take care and get some REST! Hugs, Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 2, 2002 Gail, this is the best news I've heard in a long time! Don't be too concerned about what dh is saying or doesn't recall yet....remember, he's been through a helluva time these last few days.....one day at a time! Do they know what caused his reactions? Have they told you why they took him off those drugs he was used to? I guess it'll all be explained to you in due time; it's just that I don't want them to get away with anything if they've caused you and your dh undue stress by making a medical decision that almost cost him his life! You may be able to be compensated for this. You're welcome for the flowers.....just a small token of what we want to do for you! Take care and get some REST! Hugs, >> Hi , Taking him off Novane (sp) and then putting him back on caused the problems. It somehow became toxic to him. Margaret explained a lot of it to me. Wish I were as smart as Margaret so I could have watched for the signs. I'm sure his doc made a mistake taking him off, then putting him back on the drugs. He should have check with the psych doc first. I'm also sure that his doc didn't set out to deliberately hurt him. He was doing what he thought would help. I feel we have been compensated. All of the love, support and prayers. The chance to see all the others in ICU suffering and being able to try to comfort each other and to have a second chance together is enough for me. I was talking with 's nurse today and she asked me what I thought of dh's recovery. I told her I thought it was nothing less than a miracle. I told her I had great Internet friends that prayed many prayers for him. She said she, too, prayed for him and so did his doc. Gosh, also heard from a mother of one of my daughter's friends today. She said her daughter has never said a prayer before, but she asked her Mom if she would help her pray for jo's Dad. Isn't that the sweetest thing? Dh lifted his hand a little to night to hold mine. He starts PT tomorrow. I feel like the luckiest person in the world tonight. Gail :-) Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 5, 2002 Hi Gail, Any news yet from the ins co? I didn't think cervical cancer was that common esp. in younger woman,hum. The school battles just don't quit. Thanks for the prayers. I am hoping for resolution but I don't see much in sight. How is dh today? I look forward to getting the updates. Charlyne Mom to Zeb 9 DS/OCD ? Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 6, 2002 In a message dated 6/5/02 9:14:57 PM Pacific Daylight Time, charlyne1121@... writes: << Hi Gail, Any news yet from the ins co? I didn't think cervical cancer was that common esp. in younger woman,hum. The school battles just don't quit. Thanks for the prayers. I am hoping for resolution but I don't see much in sight. How is dh today? I look forward to getting the updates. Charlyne Mom to Zeb 9 DS/OCD ? >> Hi Charlyne. Well, dh has to stay put until next week when the IV antibiotics will be done. Doc said yesterday if dh keeps going the way he is, he will be ready to come home. I think I believe him. I can't believe the improvement every day! He fed himself pretty good last night and is much more *with it*. He can stand up on his own, but can't walk yet. His gall bladder checked out fine, now they have to check the colon. All in all, he's doing great. From what I've been reading lately, cervical cancer among teens is on a fast rise. My daughter also had something removed a while back. She gets paps done every 6 months right now. Does your daughter live with you? Will you have a grandbaby living with you? How will Zeb be with it? Gail :-) Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 6, 2002 In a message dated 6/6/02 5:33:29 AM Pacific Daylight Time, DPLigon@... writes: << Gail, so happy to hear this great news about your husband!! I know we will hear more good news from everyone on the list about all that has been going on!! Things will get better, everyone is so strong here!! Thinkin of you!! Dawn >> Thanks Dawn. We really do need good news on the list, huh? District called yesterday to cancel Seth's IEP today. LOL I figured that was coming since they never notified his teacher about it. LOL Seems good to feel that is such an unimportant thing in life. LOL Gail :-) Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 6, 2002 Hi Joan, Yes, this ONE thing should be unimportant. Just isn't fair that they are so strict and hard on me, teaching my own kids, yet they seem to be able (and do) break the rules. They make me jump through the hoops on everything with the girl's schooling. I just got a postcard yesterday saying my quarterly reports are late. I personally delivered them 3 days EARLY and spoke with the lady 20 minutes so that wouldn't happen AGAIN. One time the lady found them on her desk while she was yelling at me on the phone for being late with them. Then didn't even apologize, just grumbled that they weren't where they were supposed to be. And that's MY fault? LOL Maybe our district has too many chiefs? LOL I might not sound it, but I really am a happy person and easy to get along with. :-) I hate to be a stickler and say I want 10 days notice, because I don't have a busy schedule and can accommodate the ones that do have a busy schedule, but maybe doing that would, in turn, help the teacher. Nuff complaining. I should have nothing to complain about. :-) Let us know about Andy's picnic? Gail :-) << Hey gail? It is an unimportant thing all things considered (and thensometimes even without considering htem...). Next time you talk with them, remind them that by law you are entitled to two-week's notice (10 business days), which you need in order to make certain all is under control at home. The teacher is entitled to that same notice by law.... When this was an issue in the past, I used my need to organize my schedule to force the issue. Courtesy is always a nice thing. Glad to hear you sounding upbeat. j >> Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 6, 2002 Gail, so happy to hear this great news about your husband!! I know we will hear more good news from everyone on the list about all that has been going on!! Things will get better, everyone is so strong here!! Thinkin of you!! Dawn Re: Re: Gail In a message dated 6/5/02 9:14:57 PM Pacific Daylight Time, charlyne1121@... writes: << Hi Gail, Any news yet from the ins co? I didn't think cervical cancer was that common esp. in younger woman,hum. The school battles just don't quit. Thanks for the prayers. I am hoping for resolution but I don't see much in sight. How is dh today? I look forward to getting the updates. Charlyne Mom to Zeb 9 DS/OCD ? >> Hi Charlyne. Well, dh has to stay put until next week when the IV antibiotics will be done. Doc said yesterday if dh keeps going the way he is, he will be ready to come home. I think I believe him. I can't believe the improvement every day! He fed himself pretty good last night and is much more *with it*. He can stand up on his own, but can't walk yet. His gall bladder checked out fine, now they have to check the colon. All in all, he's doing great. From what I've been reading lately, cervical cancer among teens is on a fast rise. My daughter also had something removed a while back. She gets paps done every 6 months right now. Does your daughter live with you? Will you have a grandbaby living with you? How will Zeb be with it? Gail :-) -------------------------------------------------- Checkout our homepage for information, bookmarks, and photos of our kids. Share favorite bookmarks, ideas, and other information by including them. Don't forget, messages are a permanent record of the archives for our list. -------------------------------------------- Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 6, 2002 Dear Gail, It's so great to hear day by day how much better your husband is doing. Did you work things out with the insurance company? Good luck with that battle & keep strong. I have a couple of little bits of good news to share. brushed her teeth completely independently at school the other day! One of her aides has been working really hard on this skill & she's got it! Now, mind you, she isn't doing it consistently (prefers to bite down on the brush & usually needs H o H to actually brush), but it's a step in the right direction. She hasn't brushed for me independently yet, but it gives me hope! The other thing Steph did at school this week is she signed appropriately & independently. One of her aides was writing in our communication book. She had put a pear on the table (her snack) & Steph saw it & took a bite out of it. When the aide said something like " Hey, that's my pear! " , Steph signed " Sorry " & " More " ! Now, she has signed like this at home & she signs for her special worker & for our private SLP, but she hadn't transferred this skill to the school environment. I was really excited about this! Unfortunately, only 1 of the 4 aides who work with her signs with her (consistently). I wish they would see her potential, but it's so hard when the child is non-verbal. I think there's a perception that the potential to learn to communicate isn't there, do you know what I mean? Anyway, just trying to share some positive things. Everyone here is having such tough times. You're all in my thoughts & prayers. BTW, Steph is going to have tubes put into her ears in July. She's never had them (never needed them). I'm hoping it will help " open her up " to better communication skills. We'll see. Love, Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 6, 2002 Hey gail? It is an unimportant thing all things considered (and thensometimes even without considering htem...). Next time you talk with them, remind them that by law you are entitled to two-week's notice (10 business days), which you need in order to make certain all is under control at home. The teacher is entitled to that same notice by law.... When this was an issue in the past, I used my need to organize my schedule to force the issue. Courtesy is always a nice thing. Glad to hear you sounding upbeat. j At 10:12 AM 6/6/2002 EDT, you wrote: >In a message dated 6/6/02 5:33:29 AM Pacific Daylight Time, DPLigon@... >writes: > ><< Gail, so happy to hear this great news about your husband!! I know we will >hear more good news from everyone on the list about all that has been going >on!! Things will get better, everyone is so strong here!! Thinkin of you!! >Dawn >> > >Thanks Dawn. We really do need good news on the list, huh? District called >yesterday to cancel Seth's IEP today. LOL I figured that was coming since >they never notified his teacher about it. LOL Seems good to feel that is >such an unimportant thing in life. LOL >Gail :-) > > >-------------------------------------------------- >Checkout our homepage for information, bookmarks, and photos of our kids. Share favorite bookmarks, ideas, and other information by including them. Don't forget, messages are a permanent record of the archives for our list. >-------------------------------------------- > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 6, 2002 Hi Gail, Great news on your husband's progress! Cait lives here now and yes I will end up with a baby. I have not told Zeb yet. It's too far away to discuss it with him. I think he will be fine. I won't be though. I love babies but I don't want anymore. Charlyne Mom to Zeb 9 DS./OCD ? Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 8, 2002 For a class maybe a yr ago, we went to the hospital and saw premmie babies that were in the neontensial care unit ( or whatever its' called.) It was sad, and I'll never forget it. Well I don't know if that portains to that post but good luck. --- mfroof@... wrote: > <<Margaret explained a lot of it to me. Wish I were > as smart as Margaret so > I could have watched for the signs. > The chance to see all the others in ICU suffering > and being able to try to > comfort each other and to have a second chance > together is enough for me. > her I had great Internet friends that prayed many > prayers for him. She said > she, too, prayed for him and so did his doc. > Dh lifted his hand a little to night to hold mine. > He starts PT tomorrow. I > feel like the luckiest person in the world > tonight.Gail :-)>> > > Hi, Everyone.....just flew through numerous digests. > I'm so far behind!!! > Gail....all I did was read from info gotten off the > Internet. You, on the > other hand, homeschool your kids. That takes a > lot more brains (and > patience) then I will EVERY have!!! So glad DH is > coming around. More > prayers will still be said for a full recovery. > FWIW....Looks like I will > become a lurker for a while. > This PT job is 5 days a week....I only wanted 2-3 > days. Can't keep up with > the digests. Take care, Everyone. > Margaret > __________________________________________________ Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 13, 2002 Judy, How did they diagnosis your FM? gail Judy Mckee <tmckee@...> wrote: Gail…arthritis and fibromalgia seem to be prevalent among hep c people. I was diagnosed with osteoartritis in 1978 and rheumatoid arthritis in 1985 and they didn’t know about my hepatitis until last Christmas. They found it when I started having so many symptoms last fall…the doctor said by the biopsy report I have had it for at least 25 years…well I had blood transfusions with my daughters birth in 1977….I was diagnosed with fibromyalgia in Feb of this year. I hope they find the cause of your problems…..judy -----Original Message-----From: gmcondon [mailto:gmcondon@...]Sent: Wednesday, June 12, 2002 7:02 PM Hepatitis C Subject: unresolved Hi Everyone,I've been reading all the messages and I realized that alot of the doctors people are seeing may not be following through on each case. I am being seen by VA doctors, and with my experiences with govt funded health centers sometimes the help isnt the best.As I have mentioned earlier the VA indicated that my Hep C is inactive, but they still havent been able to pin point my pain and tiredness issues. They recently did some more tests to rule out Rheumtodial (not spelled right...I never was good in spelling bees..lol) arthritis and lupus which both came back negative. I talked to my friend Ladonna and she suggested a retest on the hep c which is a great idea but I'm not sure if the VA would do the retest. I have also talked with some people who have told me to consider FM fibromaglia (wrong spelling I'm sure, so that is a consideration. But as you all know its very frustrating not knowing for sure, as well as not wanting the worse case either. Thanks for all your posts they really do help.hugsgail Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 14, 2002 I had never thought about fibromyalgia…I have so many other problems to concern myself with, I wasn’t in the market for another diagnosis. I was seeing the rheumatologist for my rheumatoid arthritis and he was doing the physical. When he was palpating different muscle area; it hurt so much I almost came off the table. I wasn’t expecting that at all. He said, “Has anyone ever told you that you have fibromalgia?” I said, no. He said, well you do have it….I guess he based his diagnosis on the pressure points….judy Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 18, 2002 Hi Gail, I will make a point to be home. I don't go out that week until saturday am. Charlyne Mom to Zeb 9 DS/OCD ? Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 20, 2002 Hi Gail, So glad to hear that your husband is now home & recovering nicely under your loving care. It's interesting that you compare it to having a newborn. It makes me think back to when my had leukemia. She was in hospital for three months. We were home for 3 weeks and then was born. So, I had a newborn & a very fragile 6 yr. old at the same time. I used to beat myself up for the sad state of my house ( I'm a bad housekeeper at the best of times.), but now looking back, there's no way I could do everything. Just make sure , Seth & yourself are fed, clean & safe. The rest will fen for themselves. Sounds like you have a wonderful family. Enjoy the great weather! Love & hugs, P.S. I admire your attitude where the school is concerned. Sometimes if we just " let it go " the lack of stress can be so cleansing. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 20, 2002 Hi , Good to hear from you. Don't you wonder, looking back at things we did, how we did it? On my list of important things to do, housekeeping isn't in the top 50. LOL I am merely doing things that need to be done to keep the bugs away. LOL And...I can live with that for now. Gail :-) << Hi Gail, So glad to hear that your husband is now home & recovering nicely under your loving care. It's interesting that you compare it to having a newborn. It makes me think back to when my had leukemia. She was in hospital for three months. We were home for 3 weeks and then was born. So, I had a newborn & a very fragile 6 yr. old at the same time. I used to beat myself up for the sad state of my house ( I'm a bad housekeeper at the best of times.), but now looking back, there's no way I could do everything. Just make sure , Seth & yourself are fed, clean & safe. The rest will fen for themselves. Sounds like you have a wonderful family. Enjoy the great weather! Love & hugs, >> Quote Share this post Link to post Share on other sites
