Eating

[Guest guest]

Hi Peggy

When we take out to eat - he is the PERFECT gentleman. He always

remembers his manners

and he wipes his mouth after each bite. It is at home that we have to worry

about. We visit 's everyday ( in 2 different cities) and the

employees know us by heart. should be on a commercial

about advertising for this restaurant chain!!!!!!!!

P.S. I love hearing from someone who has a child older than mine. Thank

You

Kathy

Re: Eating

> In a message dated 7/8/2001 11:46:33 PM EST, outerspace@... writes:

>

> << An average of 4 days a week he will eat his 's

> salad and/or Stouffers frozen Lasagna and that is it! >>

> Guess we are going to have to take him out more because he does eat better

> out SOME of the time but that's rough now until I get back to work.

Thanks,

> Peggy

>

> --------------------------------------------------

> Checkout our homepage for information, bookmarks, and photos

of our kids. Share favorite bookmarks, ideas, and other information by

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> --------------------------------------------

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>

[Guest guest]

In a message dated 7/9/01 2:15:35 AM Eastern Daylight Time,

outerspace@... writes:

> We visit 's everyday ( in 2 different cities) and the

> employees know us by heart. should be on a commercial

> about advertising for this restaurant chain!!!!!!!!

> P.S. I love hearing from someone who has a child older than mine. Thank

> You

> Kathy

>

LOLOLOL Kathy!!!!! That's too funny!!!

Maddie had terrible eating habits til she started school. Now she eats

better than my other four!! Well, maybe not as good as her 20 yo brother,

but she eats so much variety now. Her new favorite thing to eat is tomato

soup. She eats chili, fish, certain veggies, chicken, meat.......Still

won't eat cereal though. Her breakfast still has to be exactly the same

each day.

Donna

[Guest guest]

Hi Peggy,

Yes!! Our 8 year old Jordan, will only eat a very few limited foods. No

Vegetables, No Meats. He is very constipated.

I have recently switched him to soy milk, thinking it maybe less

constipating, and healthier in the long run. I also got some 100%juice with

vegetabel/fruit juice in it. It says 8 ounces=1 portion of fruits/vegetables.

I feel so guilty sometimes, but if I offer him new foods, he just refuses.

Any suggestions on getting our children to try new foods??

Thanks, Terri Mom to 23yrs-RTS, Elisha 16yrs-DS, Dereck 13yrs- FAE,

13yrs, and then there is Jordan 8yrs-DS (undiagnosed PDD-like issues)

[Guest guest]

In a message dated 7/9/01 12:19:53 PM Eastern Daylight Time,

usercameron7001@... writes:

> Any suggestions on getting our children to try new foods??

>

Hi ,

Well, I've been known to be evil and sneak food in places Maddie doesn't

know. But it helps her slowly adapt to eating different things. That was

how I got veggies into her for a couple years. Now she eats them by

themselves. Another little thing----ketchup. On everything. And butter.

You can always cut back on these things after they learn to like the food.

For instance, just imagine eating mashed potatoes with no butter....YUK.

Actually, Maddie started to eat mashed potatoes only when we put ketchup on

them......LOL Again, we don't do that anymore. But she still has to have

ketchup on her eggs and grilled cheese sandwiches.....EW!!!

Donna

[Guest guest]

eeating is such an issue with nathan too, when on meds, his appetite is

pretty normal, but refuses to eat what we eat, jonly likes to eat, also

bread products, hamburgers, hotdogs, oh and the biggie, PIZZA, i made

spaghetti last night and ofcourse he just sat there, i have to offer him a

reward just for a few bites, eg: he gets a bite of PB & J after each bite of

unprefeered food, or gets to play video game when done)but he did eat some,

and only gagged a few times, i had allredy purred his for him, he has a

larynpharyngeal incoordiantion thing, due to lack of muscle tone etc, doesnt

chew food much if at all, and has a very hard time with textures. BUT if not

on right dose meds oh boy need mega locks on all food including the garbage

can, during his last bout broke the fridg lock, drank a gallon of milk in

just a couple minutes, broke one of the cupboards ate a whole bag of chips,

and he rarely even touches chips, go figure, ate two loves of bread and was

constantly crying for food, and signing he was hungry. He has siety issues

too, he gained 6lbs suring that time frame, so they uped his dosage and back

to usual id have to say, he does seem to be hungry at night when it wears

off, so i usually give him a snak of sandwich and milk or a yogurt, i think

it hleps him sleep too to have a snack, helps relax him. shawna.

Eating

> Do any of you have difficulties getting your kids to eat? It seems like

> there are days Ray doesn't eat enough to survive. He is having

more

> regular elmination on the increased vitamins but it hasn't helped his

apetite

> too much - some increase. He still eats very little except bread which I

> would like to limit more. He is drinking Gatorade but inconsistently.

> Peggy

>

> --------------------------------------------------

> Checkout our homepage for information, bookmarks, and photos

of our kids. Share favorite bookmarks, ideas, and other information by

including them. Don't forget, messages are a permanent record of the

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> --------------------------------------------

>

>

[Guest guest]

a,

Well that's kindof good I guess. Good job on

making him eat a few bites.

and Peggy,

Well yes it's hard to get this 3rd grader that I watch

to eat normal foods, like nutrious stuff. Well the

only nutrious thing that he'll eat is a bannana and

then I give him bacon for reward if he has trouble

eating something, chips, cookies, graham crackers.

Stuff along those lines. He likes the fruit gronalla

bars also, and icecream. He'll eat, so far he hasn't

refused to eat so that's good.

> > Do any of you have difficulties getting your kids

> to eat? It seems like

> > there are days Ray doesn't eat enough to

> survive. He is having

> more

> > regular elmination on the increased vitamins but

> it hasn't helped his

> apetite

> > too much - some increase. He still eats very

> little except bread which I

> > would like to limit more. He is drinking Gatorade

> but inconsistently.

> > Peggy

__________________________________________________

[Guest guest]

At 01:45 PM 7/9/01 EDT, you wrote:

>

>

>> Any suggestions on getting our children to try new foods??

Heh heh.....

I have tons. In fact, it takes up about 10 minutes of the nutrition

workshop.

I have some stuff I can send you if you want...and when I'm more relaxed

explain.

I returned home to the carpet cleaner coming, Andy has a swollen eye, and

well, mayhem....

j

[Guest guest]

Hi J,

I would love any info. you have on encouraging new foods, when you can.

Thanks!! Terri.

[Guest guest]

In a message dated 7/9/2001 9:22:24 PM EST, jfcanfield@... writes:

<< I hope this is a temporary crisis for Ray .

Don't know exactly what is triggering 's system now, for the

best . But, today surprised me again . >>

I don't know if this is a temporary crisis for Ray. His eating has

been an issue his whole life. He was only 18 lbs at placement (15 months

old) but he gained 3 lbs the first weekend believe it or not. He has never

been large. We reverted back to totally feeding him for 2-3 months after the

seizures at 14-1/2 years because he wouldn't eat anything. Even then it was

mostly puddings and stuff we could get done him. He had the growth you

describe with when he took Risperdal.

He just seems to go through these cycles. He wasn't eating all that

much before I started the nutritional supplements but it is so many pills in

addition to his regular meds he was taking so long and stalling that I

thought it was worsening the problem. I drove into town this afternoon and

picked up two kinds of yogurt, a vegetable platter that he saw and wanted,

some of those little round cheeses that he likes, jello pudding, those little

cottage cheese and fruit things. I gave him his pills and supplements in

yogurt and that went very well. Then he ate a couple of vegetables, cottage

and fruit (all of it but I fed him) and a cheese snack plus drank some

Gatorade and some water. That is the most he has eaten in days.

In terms of the cute things is saying and complete sentences, we

are really seeing that with the TMG and vitamins. It is so exciting.

Peggy

[Guest guest]

Gee ! Peggy ,

Ray , is really going the opposite direction as he gets older .

is not that far off , though . I know when would not

eat , just very limited food . I would find ways by taking him also

to his favorite rest. , but then our outings were limited too , due

to his aggressiveness . He was losing alot of weight . Started to

look like a walking stick , he's tall and slim . At home , I was able

to get him to eat his favorite meal by helping out preparing it .

Even if it was a repeated meal . Lots of fluids for sure . He enjoyed

it, but ate like a bird . Now , I can't stop him from eating . Which,

I don't mind because he gets ill alot (knock on wood). He's gone

through 3 sizes now , since Feb. 2001 . I know the Multi-

vitamin/multi-mineral helped alot, FOR . That was the only

thing I had tried . Now I have him on the Flax Seed Oil with Olive

Leaf Extract trial for 3 mos. I have seen more improvement on his

break-out skin,face, and his psoriasis on his head , clearing off. He

did have a set back and I believe the culprit was the SUGAR . I know

this was not much help for your son . Just wanted to share my story

as we went through this , too . Oh ! I did try the milkshake routes ,

which he loved. I hope this is a temporary crisis for Ray .

Don't know exactly what is triggering 's system now, for the

best . But, today surprised me again . I was busy cleaning

house and I felt behind me . Says " Mom , come here " and then

said " Give me your hand " . Grabbed my hand took me to the kitchen and

then said " drink , please " . My Goodness ! That was alot of talking

from him . Yes! Wishing you luck . Hang in there .

Irma , 12, DS/ASD

P.S. As I'm writing this . I'm smiling because I just heard

say " Dad, come here , turn off ,( meaning his video just ended ).

Daddy was shock to hear all that , too .

> > > Do any of you have difficulties getting your kids

> > to eat? It seems like

> > > there are days Ray doesn't eat enough to

> > survive. He is having

> > more

> > > regular elmination on the increased vitamins but

> > it hasn't helped his

> > apetite

> > > too much - some increase. He still eats very

> > little except bread which I

> > > would like to limit more. He is drinking Gatorade

> > but inconsistently.

> > > Peggy

>

>

> __________________________________________________

>

[Guest guest]

<< Do any of you have difficulties getting your kids to eat? >>

LOL Oh yeah!!!!! Speg O's, yogurt, fruit loops, chili, pasta. That's it at

home, but in school he eats everything! LOL

Gail

[Guest guest]

Terri,

I've written a lot in the past about techniques we used in getting Brook

to eat when he was younger. Maybe you could look through the archives and see

if you can find anything. This is a topic that is a problem for many of our

kids. My son is doing better with eating now that he is 11, but we have

struggled for years to get him to eat and we are still working on it all the

time.

Marisa,

Mom to Miles 14, Brook 11, and Genevieve 3 yrs

[Guest guest]

haha, sounds like the kid that I babysitt. Well good

luck on trying to get him to eat new foods.

--- usercameron7001@... wrote:

> Hi Peggy,

>

> Yes!! Our 8 year old Jordan, will only eat a very

> few limited foods. No

> Vegetables, No Meats. He is very constipated.

>

> I have recently switched him to soy milk, thinking

> it maybe less

> constipating, and healthier in the long run. I also

> got some 100%juice with

> vegetabel/fruit juice in it. It says 8 ounces=1

> portion of fruits/vegetables.

>

> I feel so guilty sometimes, but if I offer him new

> foods, he just refuses.

>

> Any suggestions on getting our children to try new

> foods??

>

> Thanks, Terri Mom to 23yrs-RTS, Elisha

> 16yrs-DS, Dereck 13yrs- FAE,

> 13yrs, and then there is Jordan 8yrs-DS

> (undiagnosed PDD-like issues)

>

> --------------------------------------------------

> Checkout our homepage for information,

> bookmarks, and photos of our kids. Share favorite

> bookmarks, ideas, and other information by including

> them. Don't forget, messages are a permanent record

> of the archives for our list.

>

> --------------------------------------------

>

>

[Guest guest]

> > Another little thing----ketchup. On everything. ......LOL

Again, we don't do that anymore. But she still has to have

> ketchup on her eggs and grilled cheese sandwiches.....EW!!!

> Donna

Whoa! Donna ,

We stocked up on ketchup . When 's teacher mentioned that was

the only way she was able to get him to eat . I finally decided to

try it at home on everything . It worked , too . Now we've cut down

on it , too . He's still a picky eater but he is eating alot more

now . Especially if I get him invovled preparing the food .

Irma , 12,DS/ASD .

[Guest guest]

Peggy ,

Ray is a lucky young man to have you as a mom. never

experienced any medicaton until the latter part of 2000 . Only 1

seizure at the age of 3 due to an ear infection , high fever . I

still get paranoid when he has a fever . Its nice to hear Ray

is coming along on what you've found to feed him . Veg .? Thats

great . I can't get to eat that , just salads . Finger food

worked well , too . Yes ! its exciting to hear our young men

communicate . Sometimes shocking ! They will always fill our hearts .

Time will tell and we will always be there for them , as we love them

so much . Keep up the good job as you've been doing throughout his

life . But then you know that with his happy expressions . Take Care .

Irma , 12,DS/ASD .

n @y..., Peggylou46@a... wrote:

> In a message dated 7/9/2001 9:22:24 PM EST, jfcanfield@p... writes:

>

> << I hope this is a temporary crisis for Ray .

> Don't know exactly what is triggering 's system now, for the

> best . But, today surprised me again . >>

> I don't know if this is a temporary crisis for Ray. His

eating has

> been an issue his whole life. He was only 18 lbs at placement (15

months

> old) but he gained 3 lbs the first weekend believe it or not. He

has never

> been large. We reverted back to totally feeding him for 2-3 months

after the

> seizures at 14-1/2 years because he wouldn't eat anything. Even

then it was

> mostly puddings and stuff we could get done him. He had the

growth you

> describe with when he took Risperdal.

> He just seems to go through these cycles. He wasn't eating

all that

> much before I started the nutritional supplements but it is so many

pills in

> addition to his regular meds he was taking so long and stalling

that I

> thought it was worsening the problem. I drove into town this

afternoon and

> picked up two kinds of yogurt, a vegetable platter that he saw and

wanted,

> some of those little round cheeses that he likes, jello pudding,

those little

> cottage cheese and fruit things. I gave him his pills and

supplements in

> yogurt and that went very well. Then he ate a couple of

vegetables, cottage

> and fruit (all of it but I fed him) and a cheese snack plus drank

some

> Gatorade and some water. That is the most he has eaten in days.

> In terms of the cute things is saying and complete

sentences, we

> are really seeing that with the TMG and vitamins. It is so

exciting.

> Peggy

[Guest guest]

In a message dated 7/10/2001 3:31:52 PM EST, jfcanfield@... writes:

<< Yes ! its exciting to hear our young men

communicate . Sometimes shocking ! They will always fill our hearts . >>

Irma: Thanks for the affirmation I need that. I probably shouldn't laugh

about this but today he hit me really hard and the part time caregiver really

got down on him telling him not to hit his mom. He got quiet then he just

kept saying " My mom, my Mommie Marget " (he is the only one that gets by with

calling me Margaret since I have been nicknamed Peggy for years). He

continued it so long it got cute, it was like he was telling her to but out I

was his mom.

Another exciting thing to share since we are on the eating topic. I have had

him on TMG/DMG and other supplements for almost 3 weeks. Dr. Rimland at

Autism Research says that DMG can increase hyperactivity and that is your

child telling you he needs more folic acid. He recommends a lot and I was

afraid to get it overdosed. Today the doctor told me not to worry about

that. I gave him 1200 mcg. just before the punching episode so it had been

in his system long enough to help. Within 30 minutes he calmed down, didn't

want the one on one he constantly demands, did well in the restaurant (ate a

lot for him), came home fed the horses well and seemed happy and went into

his room to watch a movie and didn't want anyone with him. He hasn't been

this independent and calm in I can't remember when. I certainly know better

than to get excited with him but I am sure going to monitor it.

Peggy

[Guest guest]

In a message dated 7/10/2001 5:35:18 PM EST, smilinggail@... writes:

<< That's it at

home, but in school he eats everything! >>

Don't you hate that. His classroom aide is working for me this summer and

she mentioned how good he eats at school v. home.

I have gotten more food in him in the past 24 hours since I returned to

giving him his pills and vitamins in yogurt or pudding and those little

cottage cheese and fruit things instead of trying to get full meals in him.

I took him out for lunch and he ate more than half of a Chicken fried steak

lunch with potatoes and gravey. Peggy

[Guest guest]

is a ketchup-o-holic too,lol, he will even dip

his dly banana in it, eeewww, and after he finishes

his grilled cheese or pizza whatever, he licks the

ketchup off his plate, ive been unencouraging this,

" oooohhh yuckie! " etc, but to no avail as of yet. shawna.

__________________________________________________

[Guest guest]

In a message dated 7/10/01 8:47:31 PM Pacific Daylight Time,

Peggylou46@... writes:

<< << That's it at

home, but in school he eats everything! >>

Don't you hate that. His classroom aide is working for me this summer and

she mentioned how good he eats at school v. home.

I have gotten more food in him in the past 24 hours since I returned to

giving him his pills and vitamins in yogurt or pudding and those little

cottage cheese and fruit things instead of trying to get full meals in him.

I took him out for lunch and he ate more than half of a Chicken fried steak

lunch with potatoes and gravey. Peggy >>

LOL What ever works huh? LOL Today Seth ate fruit loops, and a cupcake.

Oatmeal, and a cupcake. Yogurt, AND A CUPCAKE!!!! LOL Well, two good things

out of six isn't bad! LOL At least his range of food is improving. LOL

Gail

[Guest guest]

In a message dated 7/10/01 10:30:04 PM Eastern Daylight Time,

jfcanfield@... writes:

> We stocked up on ketchup . When 's teacher mentioned that was

> the only way she was able to get him to eat . I finally decided to

> try it at home on everything . It worked , too . Now we've cut down

> on it , too . He's still a picky eater but he is eating alot more

> now . Especially if I get him invovled preparing the food .

> Irma , 12,DS/ASD

LOL Irma. I think we should all buy stock in ketchup. LOL

My girlfriend's daughter with DS was making her First Holy Communion a couple

years ago. She went to a Catholic special needs school (actually it was

mostly all kids with DS). The principal of the school is a rather

archaic sister of the *old school* and just was having the most difficult

time getting little Caroline to put the host in her mouth. Mom Caroline

suggested she just put a little ketchup on it and Caroline will comply

nicely. WELL, Sister Frances thought that was the MOST sacriligious thing

she had ever heard!!!! LOLOL

Donna

[Guest guest]

In a message dated 7/11/01 4:05:49 AM Eastern Daylight Time,

smilinggail@... writes:

> LOL What ever works huh? LOL Today Seth ate fruit loops, and a cupcake.

> Oatmeal, and a cupcake. Yogurt, AND A CUPCAKE!!!! LOL Well, two good

> things

> out of six isn't bad! LOL At least his range of food is improving. LOL

> Gail

>

Well Gail, the oatmeal is good and healthy....LOLOLOL I remember a few

years ago when Maddie ate ONLY yogurt. Well, and toast. But that was

IT!!! My nurse SIL said to me... " well, yogurt has fruit in

it " ......................I said... " Yea, but that's ALL she eats " . LOL Now

n, at 15, still can eat an entire cake by himself.

Donna (Mom to Miss Versatility Maddie when it comes to food now...LOL)

[Guest guest]

In a message dated 7/11/01 3:50:37 AM Eastern Daylight Time,

mashawnag@... writes:

>

>

>

>

>

> is a ketchup-o-holic too,lol, he will even dip

>

EEEEEEEEEEWWWWWWWWWWW LOLOLOL a!!! Now THAT'S one I never heard

of....LOL

Donna

[Guest guest]

In a message dated 7/11/2001 6:45:11 PM EST, duffey48@... writes:

<< I remember a few

years ago when Maddie ate ONLY yogurt. Well, and toast. >>

That's a little bit where we are now and we were right after the seizures in

1997. Today I got about half his scrambled eggs down him and a whole

Danimals Yogurt with his meds for breakfast at 5 a.m. (because he woke up at

4:30), then at 9:00 I repeated the TMG and folic acid in a whole Jello

pudding which he ate all of it. At lunch I gave him a whole Yoplait (?) small

yogurt with his lunch meds and half of a cottage cheese and fruit and believe

it or not he ate a whole grilled cheese sandwich even though it took him

about 2 hours. At four he had another yogurt with his snack

meds/supplements. I think that is pretty good and we haven't even had

dinner yet. There is a breaded Halibut fish portion that I get at Costco

that he likes and I have a little left over of that type and a package of

another that are in the oven. Hopefully he will eat. Sometimes he eats

that when he won't eat anything else. The only thing I have done differently

is to give his pills in yogurt instead of having him take them with liquids

and I added more folic acid to the supplements.

His behavior has been noticeably better with the added folic acid and staying

on 4 hour schedule for TMG. Someone had suggested I hold the TMG as a

trial. I haven't done that but if we are longer than four hours we know it

quickly. We have only had one night in over a week (I've lost track that he

didn't go to sleep until morning). Last night it was between 11-12 which is

good for him. However, he had several nights in a row of 8-10 hours of

sleep. I read the literature on TMG that talks about it having SamE in it

with DMG and it says that SamE helps the Melantonin work better. That may

explain the improved sleep. Who really knows with this kid.

Night before last when I was up late with him I was on the web from his

computer. I read something about eating problems. They did mention a

supplement but I can't remember which one. I am going to try to go back

again and see it makes sense.

Peggy

[Guest guest]

Donna,

I agree . We should purchase stock , just like the pull-ups, wipes ,

and you know the list goes on ,and on , and on . Oops! I'm losing

it . I guess because its the same purchasing products for so many

years , I've made no profit : ( .....Oh! Donna ! I would of love to

have seen the DS girl(Caroline) making her First Holy Communion ,

that is so nice to hear . That was so cute on how her mom thought of

placing ketchup . I always pictured doing his First Holy

Communion . No luck even attending Religious ED . He is well behave

during mass now , will even walk with us to receive communion , of

course he would not receive one . Maybe this coming school year .

I'll look into it again. Everyone has gotten to know at mass .

Makes me want to cry when we're about to do the sign of peace ,

people come up to hug him all the time . Thanks for this beautiful

story .

Irma , 12,DS/ASD.

-- In @y..., duffey48@a... wrote:

> In a message dated 7/10/01 10:30:04 PM Eastern Daylight Time,

> jfcanfield@p... writes:

>

>

> > We stocked up on ketchup . When 's teacher mentioned that

was

> > the only way she was able to get him to eat . I finally decided

to

> > try it at home on everything . It worked , too . Now we've cut

down

> > on it , too . He's still a picky eater but he is eating alot more

> > now . Especially if I get him invovled preparing the food .

> > Irma , 12,DS/ASD

>

> LOL Irma. I think we should all buy stock in ketchup. LOL

> My girlfriend's daughter with DS was making her First Holy

Communion a couple

> years ago. She went to a Catholic special needs school (actually

it was

> mostly all kids with DS). The principal of the school is a

rather

> archaic sister of the *old school* and just was having the most

difficult

> time getting little Caroline to put the host in her mouth. Mom

Caroline

> suggested she just put a little ketchup on it and Caroline will

comply

> nicely. WELL, Sister Frances thought that was the MOST

sacriligious thing

> she had ever heard!!!! LOLOL

> Donna

>

>

>

[Guest guest]

In a message dated 11/9/2002 11:25:16 PM Central Standard Time,

pickndaisies2002@... writes:

> do you guys know of anything easy to eat w/lots of calories?

Boost Plus, peanut butter, pudding, hot chocolate made with heavy cream or

half and half, m & ms, cheese cake.