Guest guest Posted July 18, 2005 Report Share Posted July 18, 2005 >>Prior to my CI, when I was dual HA's.....I thought an alarm went off and I woke in the middle of the night and got out of bed to search for the noise, it was so much louder than normal (whatever that is for us ) and every where I went in the house the noise was just as intense. I finally woke up my husband and asked him what that loud noise was, thinking perhaps a smoke detector; although we have four dogs and they were sleeping as peacefully as the hub. My hub tucked me back in bed assuring me it was " all in my head<< Bev, It's interesting you should mention this because I've had the same experience. There have been many times in the past (with bilateral BTEs) where I've awakened early or in the middle of the night thinking that I heard my alarm clock go off. My alarm clock doesn't make any noise (it triggers a bed shaker). I've also wondered whether or not I was awakened by the smoke detector or a knock at the door even though I couldn't hear those sounds even with hearing aids. It's scary how tinnitus creeps up on you when you least expect it. Thank goodness mine decreased significantly since my CI surgery. Now I only hear what equates to a fan turned on at low speed when I remove my processor...much better than the roaring freight train, high pitched beep and whooshing/ocean sound that used to alternate in my head every time I became used to a given sound! Implanted: 12/22/04 Activated: 1/18/05 Deafblind/Postlingual BTE hearing aid user 20 years Severe-profound hearing loss 10 years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2005 Report Share Posted July 18, 2005 Can someone describe tinnitus? What it sounds like roaring or loud organ sound? Bev White <bevrogers1@...> wrote:Before I got my CI my tinnitus was VERY loud, although it never bothered me. I never tried to ignore it.....I listened to it. I used to think only special people got to hear this marvelous internal orchestra. I know I know.....but I have always been a happy go lucky optimist! I still have a bit of tinnitus, not as much as I once enjoyed.....it is quite suppressed now. Prior to my CI, when I was dual HA's.....I thought an alarm went off and I woke in the middle of the night and got out of bed to search for the noise, it was so much louder than normal (whatever that is for us ) and every where I went in the house the noise was just as intense. I finally woke up my husband and asked him what that loud noise was, thinking perhaps a smoke detector; although we have four dogs and they were sleeping as peacefully as the hub. My hub tucked me back in bed assuring me it was " all in my head " lol! Funny I had forgotten how loud I used to have tinnitus until it came up on the list. Bev ** a happy CIborg ** 20 yrs with BTE HA's 10/03 CI surgery 12/03 CI hook up AB Hi-Res Re: Bill and Barry ---To , In trying to give you some idea on how my experience went with Tinnitus being greatly reduced by a Cochlear Implant, I can explain briefly what happened to me. I wore hearing aids most of my life and about 20 years ago, my right ear complety quit, whereby no hearing aid could help. In a matter of fact, wearing the aid made my Tinnitus go through the roof. Almost three years ago, the same thing happened to my left ear, and I was stone deaf for seven months until I got my Cochlear Implant from Nucleus. My Surgeon felt that the ear that should receive the implant, should be the one that I recently had hearing in, and that was the left, which had the lesser amount of Tinnitus. The right ear is the worst and it is like having a boiling tea kettle whistling in your ear. To my amazement, once I was hooked up to the implant, the Tinnitus not only almost totally disappeared in my implanted ear, but also the Tinnitus in that right ear went down as well. I did a lot of research on the whys and spoke to a lot of people about this, including many on this group, and they mostly agree that the CI does in fact reduce the Tinnitus. But, at the same token, once you turn off the Processor when you go to bed, the Tinnitus will appear. But after an hour or two, it will die down. So, I hope I was able to be of some help. I would always go with the lesser nosiy ear to implant, because that did work for me. What this all boils down to is this: going with the implant is nothing but a big plus! Technology continues to improve and you should do very well, so don't worrry. All of us here have gone through this and most of us are doing very well. Please don't hesitate to ask any questions you may have to me or anyone else you please. Good Luck....Barry in PA. , " luvinmyhonda " <cindy4baskets@z...> wrote: > Hi, > I couldn't help but notice how it is mentioned that the tinnitus > problem lessens when using the CI. I have horrific tinnitus which I > think is in my left ear. For those of you who have experienced > positive results in diminished tinnitus does it help to implant the > ear with tinnitus>>>>> or does it matter which ear? Can one really > distinguish which ear the tinnitus is stemming from? Or is tinnitus > basically, " head noise " and not obvious in one ear? > I do not have an implant yet. Scheduled for an eval July 28 though > > > > > > > Hiya, Bill and Barry, > > > Sorry to hear you are having static troubles with your > > processors. I'm > > > sure you've already thought of this, but are you guys using a dry > > aid every > > > night? I've been getting some ticking in my processor recently > > and find after a > > > night in the dry aid, things have cleared up. Also, turning the > > switch on > > > and off a few times may " lock in " that " station " . Sometimes the > > static results > > > as a result of the switch being off " just a hair " . You cant see > > or feel this, > > > and you can't " test " for it. It just is. If the mapping doesn't > > clear it > > > up, I would insist on a replacement processor. I've done this and > > it made all > > > the difference. > > > Hey, Barry! Nice to see you back! Long time no see! Glad to > > hear you > > > are mostly doing well! ) > > > ) Jackie (Flash) > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2005 Report Share Posted July 18, 2005 " All of the above " - can be ringing, whistling, anything really. I would describe it as any noise in your ears/head that doesn't have a valid external source. Since my CI everything about my tinnitus has altered. Used to be whistling or ringing - always very high pitched and way beyond what I could really hear. Since the implant was activated, I've had none of that, but now I get the really low organ (think of the opening of Pink Floyds " Shine On You Crazy Diamond " ) from time to time. And of course, now with the CI, it's the low notes I can't hear. So maybe tinnitus is the brains way of making up what it's otherwise not getting? NZ > Re: more aboutTinnitus > > > Can someone describe tinnitus? What it sounds like roaring > or loud organ sound? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2005 Report Share Posted July 18, 2005 Tinnitus can sound like most any kind of noise you can describe. For me, when I first started losing my hearing, it sounded like a million crickets chirping inside my head. Then after my CI surgery, I heard a roaring freight train. Other times, I've heard a steady, high pitched noise, higher, and not as loud as a fire alarm. I've heard a variety of noises, but after my ear healed from the surgery, I haven't been bothered much at all with tinnitus. Some people are bothered by it more than others. It never really did bother me much at all, except for the brief time after the CI surgery, while my ear was healing. Take care, Cin ----- Original Message ----- From: linda michela Can someone describe tinnitus? What it sounds like roaring or loud organ sound? Quote Link to comment Share on other sites More sharing options...
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