Hi everyone

[Guest guest]

Hi Fannou,

I was wondering what happened to you. I think the dehumidifier is a

good idea, especially if you're living in a basement level apartment.

I hope you see some improvement soon!

myrtle

>

> Hi everyone,

> I dont have access to a computer anymore so i did not come for a while.

> I still have them, and i moved..only with washed clothes and me. We

separated me and my bf cause it was too much.

> I rented by distance (we went at parents in law for two weeks and i

was better) a furnished appartement far to be ideal!!(

> Its in a basement, with a not renovated entrance for sure humid, and

i feel them again...

> the clothes i brought where washed twice and dried and now my night

are crazy.

> My dad check on me as i am sick and he will come at least every two

days to see how i go so it will be very hard for me to spray.

> I am wondering what i should do now, what i have???

> A friend here suggested me to borax everywhere but told dont breath

it, what does it mean?? IHow can i not breath it??

> I feel i am stuck with that now...

> I really did a great move, just my clothes but i had no choices...

> Now i just feel stuck but ill try to do what i can.

>

> I hope everybody is better, i heard you get all cured and im so happy..

> I am wondering if i should get my dehumidifier from the other house

or it can be infested.

> I told my dad there was still bugs in the other house but now he

will bring me to the psychiatrist if i compl,ain or if he doubt again.

> So here i am. Suggestion::: Dont move, clean where you are now, they

follow!!!!

> Love, will come back.

>

> Fannou xx

[Guest guest]

Just wanted to update everyone. I started using the DE on my body and on the rats again yesterday. I had been doing this at the old place but, I stopped because after a while I got tiered of the dryness of my skin. Plus because we were getting reinfested there it was a losing battle. I used it in the carpets and nothing bits my feet any more. After applying it to us, it seems to have improved their itching and my crawling in a days time. In order to stay moist and be repealing, I got some ceder and neem oils like was suggested by another poster and mixed them in veggie oil. i apply this first let it sit for and 15 mins then apply the DE to myself. The oils also pulled out some more black jagged fibers from my skin. Add this process and two sets of two short baths today and I am feeling nothing. I was already nearing the end of this because I would only feel

crawling when i would move my clothing around. So I think the new addition of DE and oils may finally end this for me and the ratties.J. From: myrtle_maui <myrtle_maui@...>Subject: Re: Hi everyonebird mites Date: Saturday, November 1, 2008, 4:36 PM

Hi Fannou,

I was wondering what happened to you. I think the dehumidifier is a

good idea, especially if you're living in a basement level apartment.

I hope you see some improvement soon!

myrtle

>

> Hi everyone,

> I dont have access to a computer anymore so i did not come for a while.

> I still have them, and i moved..only with washed clothes and me. We

separated me and my bf cause it was too much.

> I rented by distance (we went at parents in law for two weeks and i

was better) a furnished appartement far to be ideal!!(

> Its in a basement, with a not renovated entrance for sure humid, and

i feel them again...

> the clothes i brought where washed twice and dried and now my night

are crazy.

> My dad check on me as i am sick and he will come at least every two

days to see how i go so it will be very hard for me to spray.

> I am wondering what i should do now, what i have???

> A friend here suggested me to borax everywhere but told dont breath

it, what does it mean?? IHow can i not breath it??

> I feel i am stuck with that now...

> I really did a great move, just my clothes but i had no choices...

> Now i just feel stuck but ill try to do what i can.

>

> I hope everybody is better, i heard you get all cured and im so happy..

> I am wondering if i should get my dehumidifier from the other house

or it can be infested.

> I told my dad there was still bugs in the other house but now he

will bring me to the psychiatrist if i compl,ain or if he doubt again.

> So here i am. Suggestion:: : Dont move, clean where you are now, they

follow!!!!

> Love, will come back.

>

> Fannou xx

[Guest guest]

HI J, how are you holding up emotionally? Been thinking about you.

M

From: myrtle_maui <myrtle_maui>Subject: Re: Hi everyonebird mitesDate: Saturday, November 1, 2008, 4:36 PM

Hi Fannou,I was wondering what happened to you. I think the dehumidifier is agood idea, especially if you're living in a basement level apartment.I hope you see some improvement soon!myrtle>> Hi everyone, > I dont have access to a computer anymore so i did not come for a while. > I still have them, and i moved..only with washed clothes and me. Weseparated me and my bf cause it was too much. > I rented by distance (we went at parents in law for two weeks and iwas better) a furnished appartement far to be ideal!!(> Its in a basement, with a not renovated entrance for sure humid, andi feel them again...> the clothes i brought where washed twice and dried and now my nightare crazy. > My dad check

on me as i am sick and he will come at least every twodays to see how i go so it will be very hard for me to spray. > I am wondering what i should do now, what i have???> A friend here suggested me to borax everywhere but told dont breathit, what does it mean?? IHow can i not breath it??> I feel i am stuck with that now...> I really did a great move, just my clothes but i had no choices...> Now i just feel stuck but ill try to do what i can. > > I hope everybody is better, i heard you get all cured and im so happy.. > I am wondering if i should get my dehumidifier from the other houseor it can be infested. > I told my dad there was still bugs in the other house but now hewill bring me to the psychiatrist if i compl,ain or if he doubt again. > So here i am. Suggestion:: : Dont move, clean where you are now, theyfollow!!!!> Love, will come back. >

> Fannou xx

[Guest guest]

I hope this is the end of your mitemare J.

Best Wishes to you and the ratties!

Trly

>

> Just wanted to update everyone. I started using the DE on my body

and on the rats again yesterday. I had been doing this at the old

place but, I stopped because after a while I got tiered of the

dryness of my skin. Plus because we were getting reinfested there it

was a losing battle. I used it in the carpets and nothing bits my

feet any more. After applying it to us, it seems to have improved

their itching and my crawling in a days time. In order to stay moist

and be repealing, I got some ceder and neem oils like was suggested

by another poster and mixed them in veggie oil. i apply this first

let it sit for and 15 mins then apply the DE to myself. The oils also

pulled out some more black jagged fibers from my skin. Add this

process and two sets of two short baths today and I am feeling

nothing. I was already nearing the end of this because I would only

feel crawling when i would move my clothing around. So I think the

new addition of DE and oils may

> finally end this for me and the ratties.

> J. 

>

[Guest guest]

woohoo we want you over these spice girl!

> >

> > Just wanted to update everyone. I started using the DE on my body

> and on the rats again yesterday. I had been doing this at the old

> place but, I stopped because after a while I got tiered of the

> dryness of my skin. Plus because we were getting reinfested there

it

> was a losing battle. I used it in the carpets and nothing bits my

> feet any more. After applying it to us, it seems to have improved

> their itching and my crawling in a days time. In order to stay

moist

> and be repealing, I got some ceder and neem oils like was suggested

> by another poster and mixed them in veggie oil. i apply this first

> let it sit for and 15 mins then apply the DE to myself. The oils

also

> pulled out some more black jagged fibers from my skin. Add this

> process and two sets of two short baths today and I am feeling

> nothing. I was already nearing the end of this because I would only

> feel crawling when i would move my clothing around. So I think the

> new addition of DE and oils may

> > finally end this for me and the ratties.

> > J. 

> >

>

[Guest guest]

thanks, me too.From: <bobbyboyd99@...>Subject: Re: Hi everyonebird mites Date: Saturday, November 1, 2008, 9:14 PM

woohoo we want you over these spice girl!

> >

> > Just wanted to update everyone. I started using the DE on my body

> and on the rats again yesterday. I had been doing this at the old

> place but, I stopped because after a while I got tiered of the

> dryness of my skin. Plus because we were getting reinfested there

it

> was a losing battle. I used it in the carpets and nothing bits my

> feet any more. After applying it to us, it seems to have improved

> their itching and my crawling in a days time. In order to stay

moist

> and be repealing, I got some ceder and neem oils like was suggested

> by another poster and mixed them in veggie oil. i apply this first

> let it sit for and 15 mins then apply the DE to myself. The oils

also

> pulled out some more black jagged fibers from my skin. Add this

> process and two sets of two short baths today and I am feeling

> nothing. I was already nearing the end of this because I would only

> feel crawling when i would move my clothing around. So I think the

> new addition of DE and oils may

> > finally end this for me and the ratties.

> > J.

> >

>

[Guest guest]

I am ok. I still don't know what will happen between Ty and I. I have asked him to please try to avoid negativity for the time being just until this is over and I have had a chance to recuperate. My body is falling a part and I can't cope with anything draining right now. I stopped taking my sulfur in order to take colloidal silver. This has helped my UTI much. Starting to go away.The bad news in stress land is that my boss added more to my work load. Some how some way right I will perserver I hope.Thanks for checking up om me.Hugs,J.

From: myrtle_maui <myrtle_maui>Subject: Re: Hi everyonebird mitesDate: Saturday, November 1, 2008, 4:36 PM

Hi Fannou,I was wondering what happened to you. I think the dehumidifier is agood idea, especially if you're living in a basement level apartment.I hope you see some improvement soon!myrtle>> Hi everyone, > I dont have access to a computer anymore so i did not come for a while. > I still have them, and i moved..only with washed clothes and me. Weseparated me and my bf cause it was too much. > I rented by distance (we went at parents in law for two weeks and iwas better) a furnished appartement far to be ideal!!(> Its in a basement, with a not renovated entrance for sure humid, andi feel them again...> the clothes i brought where washed twice and dried and now my nightare crazy. > My dad

check

on me as i am sick and he will come at least every twodays to see how i go so it will be very hard for me to spray. > I am wondering what i should do now, what i have???> A friend here suggested me to borax everywhere but told dont breathit, what does it mean?? IHow can i not breath it??> I feel i am stuck with that now...> I really did a great move, just my clothes but i had no choices...> Now i just feel stuck but ill try to do what i can. > > I hope everybody is better, i heard you get all cured and im so happy.. > I am wondering if i should get my dehumidifier from the other houseor it can be infested. > I told my dad there was still bugs in the other house but now hewill bring me to the psychiatrist if i compl,ain or if he doubt again. > So here i am. Suggestion:: : Dont move, clean where you are now, theyfollow!!!!> Love, will come back. >

> Fannou xx

[Guest guest]

RG, your one of our guiding lights that we all can see. We all know

you are the type of person that is going to kick these f...ers arse

and help us all. And I wish we could do more to help you.

Realtionships are sooo tough, without this bug stress. One of my best

friends insisted on sleeping in my bed tonight with me, (sterilized

sheets..lol), and here I am in a chair in my bedroom with a little

throw blankey, totally uncomfortable, at 1:32 am...lol.

> >

> > Hi everyone,

> > I dont have access to a computer anymore so i did not come for a

while.

> > I still have them, and i moved..only with washed clothes and me.

We

> separated me and my bf cause it was too much.

> > I rented by distance (we went at parents in law for two weeks and

i

> was better) a furnished appartement far to be ideal!!(

> > Its in a basement, with a not renovated entrance for sure humid,

and

> i feel them again...

> > the clothes i brought where washed twice and dried and now my

night

> are crazy.

> > My dad check

> on me as i am sick and he will come at least every two

> days to see how i go so it will be very hard for me to spray.

> > I am wondering what i should do now, what i have???

> > A friend here suggested me to borax everywhere but told dont

breath

> it, what does it mean?? IHow can i not breath it??

> > I feel i am stuck with that now...

> > I really did a great move, just my clothes but i had no choices...

> > Now i just feel stuck but ill try to do what i can.

> >

> > I hope everybody is better, i heard you get all cured and im so

happy..

> > I am wondering if i should get my dehumidifier from the other

house

> or it can be infested.

> > I told my dad there was still bugs in the other house but now he

> will bring me to the psychiatrist if i compl,ain or if he doubt

again.

> > So here i am. Suggestion:: : Dont move, clean where you are now,

they

> follow!!!!

> > Love, will come back.

> >

>

> > Fannou xx

>

[Guest guest]

Fannou,

I would start by vacuuming very very well and getting the bag out of

the apt. If I could manage it, I would come back in and do it again,

that day or the next. I would use the crevice and dusting tools and

then wash them after I was done, in a dishwasher if I had one (I

know, most basement apts don't).

Second, I would " secure my perimeter. " If I could afford it, I would

get some clear caulk and some Great Stuff, and seal everywhere I

could. I might or might not ask for permission to use the Great

Stuff, depending on the landlord, I would have to weigh the

consequences either way.

Third, I would put some borax in a coffee cup and get a grapefruit or

other small pointed spoon, and go methodically (not necessarily all

in one go) around the apartment and put borax in every nook and

cranny I could think of. I would probably put down something on the

floor to protect me from direct immediate bites. I would do this

detailed boraxing first, because when I put it into the carpet later,

they are going to head straight to the places that I am now filling

with Borax. I would be sure to apply Borax behind all my counters if

I could get any in there, behind all my appliances, behind and in the

fridge workings, behind drawers in all the cracks in the wood. I

would be sure to put some at the entrances to the apartment. I would

try to see my home as a bug would see it: hmm, where can I hang out

till I am ready to bite KJ? Oh, that's a nice crack...

Fourth, I would put something over my nose and mouth, and carefully,

so as to keep it out of my eyes as well, distribute some borax first

under the bed, then along any paths I use frequently such as between

bed and bathroom, and then do the rest of the apt. Whether I had

carpet or bare flooring, I would then sweep in the borax, not getting

too wild, bec I still want to avoid breathing it or getting it in my

eyes.

Fifth, I would spray the finest of mists over everything, and leave

till it dries. Why? Because the mist will lay down the powder in the

air, and it will trigger any pupae waiting to pop. When they pop,

they will be hungry. I would prefer they get a mouthful of borax

while they try to find me.

Sixth, this ain't a perfect solution, but if it is all I can afford,

it would help if I could be as thorough as I had the energy and

strength to be.

Meanwhile, I am praying for you, and I am sure others here are as

well, sweetie.

KJ

> > >

> > > Was anybody aware of the new small tick, I think they are

calling

> it

> > the Lone star?  Yes, it was found in Texas.  It is an aggressive

> blood

> > seeking tick, not one that just gets lucky if you happen to walk

by

> or

> > under it.  It will seek out anything warm with blood.  I don't

know

> how

> > small or large it was, short term memory still not working

properly.

> > >

> > >

> >

>

[Guest guest]

Awww. I hope you get some better sleep. Thanks for your faith in me.Hugs.J.From: <bobbyboyd99@...>Subject: Re: Hi everyonebird mites Date: Saturday, November 1, 2008, 10:35 PM

RG, your one of our guiding lights that we all can see. We all know

you are the type of person that is going to kick these f...ers arse

and help us all. And I wish we could do more to help you.

Realtionships are sooo tough, without this bug stress. One of my best

friends insisted on sleeping in my bed tonight with me, (sterilized

sheets..lol) , and here I am in a chair in my bedroom with a little

throw blankey, totally uncomfortable, at 1:32 am...lol.

> >

> > Hi everyone,

> > I dont have access to a computer anymore so i did not come for a

while.

> > I still have them, and i moved..only with washed clothes and me.

We

> separated me and my bf cause it was too much.

> > I rented by distance (we went at parents in law for two weeks and

i

> was better) a furnished appartement far to be ideal!!(

> > Its in a basement, with a not renovated entrance for sure humid,

and

> i feel them again...

> > the clothes i brought where washed twice and dried and now my

night

> are crazy.

> > My dad check

> on me as i am sick and he will come at least every two

> days to see how i go so it will be very hard for me to spray.

> > I am wondering what i should do now, what i have???

> > A friend here suggested me to borax everywhere but told dont

breath

> it, what does it mean?? IHow can i not breath it??

> > I feel i am stuck with that now...

> > I really did a great move, just my clothes but i had no choices...

> > Now i just feel stuck but ill try to do what i can.

> >

> > I hope everybody is better, i heard you get all cured and im so

happy..

> > I am wondering if i should get my dehumidifier from the other

house

> or it can be infested.

> > I told my dad there was still bugs in the other house but now he

> will bring me to the psychiatrist if i compl,ain or if he doubt

again.

> > So here i am. Suggestion:: : Dont move, clean where you are now,

they

> follow!!!!

> > Love, will come back.

> >

>

> > Fannou xx

>

[Guest guest]

Welcome back Sue....so glad u enjoyed yourself, but also glad ur back. Good luck

with all those emails....the group has been busy busy busy.

Deanna

Sent from my iPhone

On Nov 8, 2008, at 6:51 PM, Corn <butterfliesrfree309@...> wrote:

Hi Everyone

I'm home from vacation. It was good to be away, but good to be home. I hope

everyone was well while I was away. It's going to take some time to catch up on

all the e-mails, so please be patient with me. I had some horrific pain flares

while away, but I managed the best that I could. Unfortunately, the weather was

very uncooperative, lol, we had alot of rain. As any chronic pain patient

knows, weather affects how we feel!!!! I'm still in alot of pain and exhauted,

but, I'm here if anyone needs me.

Sue C

Moderator

[Guest guest]

Glad you made it back home safe and sound sorry you had problems with flare ups

while you were away. Have fun getting caught up on all the emails.

Hi Everyone

Hi Everyone

I'm home from vacation. It was good to be away, but good to be home. I hope

everyone was well while I was away. It's going to take some time to catch up on

all the e-mails, so please be patient with me. I had some horrific pain flares

while away, but I managed the best that I could. Unfortunately, the weather was

very uncooperative, lol, we had alot of rain. As any chronic pain patient

knows, weather affects how we feel!!!! I'm still in alot of pain and exhauted,

but, I'm here if anyone needs me.

Sue C

Moderator

[Guest guest]

Cheryl, I am truly blessed to be a member of this group and to have the honor of meeting such compassionate, caring, loving, wonderful people. As you said we all have common goals and as far as I'm concerned this is the only group for me. It's an honor to know you and everyone else in this group. My heart goes out to you and your family and only wish I could have done so much more than just sending a card, as I'm sure many others have felt. Be well and just know that loving thoughts are being sent your way. Hugs H

From: godsgirl7757 <godsgirl7777@...>Subject: Hi Everyonedominie Date: Sunday, December 14, 2008, 8:16 PM

I want to thank Dominie and Heidi for the honor of being asked to help moderate this wonderful board. It's wonderful that we can all join together to share our stories, questions and advice in our quest for a better quality of life. I live in the Orlando area and am a 44 year old year old mother of three children ages 23, 21 and 19. I actually just lost my 23 year old son Garrett two months ago as many of you know and I found out in these moments of unbearable grief and shock how wonderful and loving the members of this board really are. Many of you reached out with cards, letters and phone calls to let me know that you were praying for me. I was so blessed to receive such an outpouring of support and love. Thank you all for your prayers and friendship. They have meant more to me than you know. That is really what were are all here for isn't it? We all share a common bond and a similar

goal.... to reach out and find friends that we can lean on during our times of need. FMS is something that most people do not understand, even if they think they do. That is why it is so crucial to have a safe place we can all come to share our stories, questions and concerns...and most of all to just be here for each other so that no one has to walk this road alone. I look forward to getting to know you all better. Blessings,Cheryl

[Guest guest]

Thank you :)You are right, this is the most amazing group of

people that I have ever met and I believe it is because those who

suffer most are the first ones to offer comfort. Suffering is

certainly something that no one would ever ask for, but the one thing

that I have found to be true is that those who have endured the most

are typically the most compassionate and loving. This board is a safe

haven where we are blessed to have friends who understand and

empathize with us in our pain and frustration. , don't ever

underestimate the power of a card sent with loving words to someone

whose world has just crumbled because trust me, it meant the world to

me. I am so thankful for you as well as all of our mutual friends

here.

I also can't say enough about my dear friends and sisters Dominie and

Heidi who in spite of their own daily challenges and painful trials,

make it their mission to reach out and help others. Dominie has

brought us all together through her invaluable newsletter which I

hope everyone is receiving. If anyone isn't on her mailing list,

please let her know and she will add you immediately. She works so

hard to provide us with the most cutting edge research and info to

help us find help ways to cope and even overcome our illness. Thank

You so much Dom! We love and appreciate you so much.

Hugs to you

Cheryl

>

> From: godsgirl7757 <godsgirl7777@...>

> Subject: Hi Everyone

> dominie

> Date: Sunday, December 14, 2008, 8:16 PM

>

>

>

>

>

>

> I want to thank Dominie and Heidi for the honor of being asked to

> help moderate this wonderful board. It's wonderful that we can all

> join together to share our stories, questions and advice in our

quest

> for a better quality of life.

>

> I live in the Orlando area and am a 44 year old year old mother of

> three children ages 23, 21 and 19. I actually just lost my 23 year

> old son Garrett two months ago as many of you know and I found out

in

> these moments of unbearable grief and shock how wonderful and

loving

> the members of this board really are. Many of you reached out with

> cards, letters and phone calls to let me know that you were praying

> for me. I was so blessed to receive such an outpouring of support

and

> love. Thank you all for your prayers and friendship. They have

meant

> more to me than you know.

>

> That is really what were are all here for isn't it? We all share a

> common bond and a similar goal.... to reach out and find friends

that

> we can lean on during our times of need. FMS is something that most

> people do not understand, even if they think they do. That is why

it

> is so crucial to have a safe place we can all come to share our

> stories, questions and concerns...and most of all to just be here

> for each other so that no one has to walk this road alone.

>

> I look forward to getting to know you all better.

>

> Blessings,

> Cheryl

>

[Guest guest]

I absolutely concur, this is an amazing group with amazing people. I do hope you're taking good care of yourself as this is the most important time to do so. You're in Orlando and I'm in Davie, which is a Suburb of Ft. Lauderale. Hopefully one day we'll be able to meet. We'll see but hopefully. There are so many I'd love to me. Hugs H

From: godsgirl7757 <godsgirl7777@...>Subject: Re: Hi Everyonedominie Date: Sunday, December 14, 2008, 9:14 PM

Thank you :)You are right, this is the most amazing group of people that I have ever met and I believe it is because those who suffer most are the first ones to offer comfort. Suffering is certainly something that no one would ever ask for, but the one thing that I have found to be true is that those who have endured the most are typically the most compassionate and loving. This board is a safe haven where we are blessed to have friends who understand and empathize with us in our pain and frustration. , don't ever underestimate the power of a card sent with loving words to someone whose world has just crumbled because trust me, it meant the world to me. I am so thankful for you as well as all of our mutual friends here. I also can't say enough about my dear friends and sisters Dominie and Heidi who in spite of their own daily challenges and painful trials, make it their mission

to reach out and help others. Dominie has brought us all together through her invaluable newsletter which I hope everyone is receiving. If anyone isn't on her mailing list, please let her know and she will add you immediately. She works so hard to provide us with the most cutting edge research and info to help us find help ways to cope and even overcome our illness. Thank You so much Dom! We love and appreciate you so much. Hugs to you :)Cheryl> > From: godsgirl7757 <godsgirl7777@ ...>> Subject: Hi Everyone> dominie@groups .com> Date: Sunday, December 14, 2008, 8:16 PM> > > > > > > I want to thank Dominie and Heidi for the honor of being asked to > help moderate this wonderful board. It's wonderful that we can all > join together to share our stories, questions and advice in our quest > for a better quality of

life. > > I live in the Orlando area and am a 44 year old year old mother of > three children ages 23, 21 and 19. I actually just lost my 23 year > old son Garrett two months ago as many of you know and I found out in > these moments of unbearable grief and shock how wonderful and loving > the members of this board really are. Many of you reached out with > cards, letters and phone calls to let me know that you were praying > for me. I was so blessed to receive such an outpouring of support and > love. Thank you all for your prayers and friendship. They have meant > more to me than you know. > > That is really what were are all here for isn't it? We all share a > common bond and a similar goal.... to reach out and find friends that > we can lean on during our times of need. FMS is something that most > people do not understand,

even if they think they do. That is why it > is so crucial to have a safe place we can all come to share our > stories, questions and concerns...and most of all to just be here > for each other so that no one has to walk this road alone. > > I look forward to getting to know you all better. > > Blessings,> Cheryl>

[Guest guest]

Hello Mic!

Congrats on your trial!!! I hope and pray it helps with your pain. I too

have RSD. I have had it now for over 26 years...all throughout my body. The

worst being my left leg...now for 8 years.

I have two stims that really make a diefference. The first one was

implanted over 15 years ago. It was the difference between night and day,

black and

white, and horrible pain and feeling human again. the most recent one I had

done about 5 years ago for my legs.

Please let us know how you made out.

I will keep you in my thoughts and prayers, especially on your special dates.

I wish for all of us pain free days and sleep filled nights.

Take care and Good Luck!

Gentle hugs to you and all,

Kathy G.

Group Co-owner

**************New year...new news. Be the first to know what is making

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[Guest guest]

MIc,

 Congrats on getting your trial and the implant. I have had RSD for almost 7

years now. I received my scs last Feb. I love it. There is some pain with the

surgery, But I  think it is well worth it. Just make sure that for the first 6 -

9 weeks you do NO BENDING or Twisting. You can move the leads. When I had mine

done,my husband put thing in the frig for me on the top shelf so i didn't have

to bend.Just be very careful with every thing you do for a while. My Dr told me

9 weeks then changed it to 11 weeks,

 Congratulations !!! I will keep you in my prayers.. Hope you get great relief

!!!!

       soft hugs

                   T

 lisa

From: micamareno <micamareno@...>

Subject: Hi everyone

Stimulator

Date: Tuesday, January 6, 2009, 2:53 AM

I just came from a short vacation in Virginia and it was great for

me, but now am back to my reality. This Wednesday, Jan 7th am going

to have my SCS trial, i have all my faith that this will help me with

my RSD pain and my back pain. So lets see how it works, the trial it

will be for 7 days and on january 14 it will be the implant. I am

very nervous, dont know what to expect, but is better for me to say i

tried it and it didnt work that to said it could work and i even tried it.

Have a great day

Mic

[Guest guest]

Hi Mic

I had my SCS trial done in November and my permanent implant done on December

8th. I felt the way that you did and was pleasantly suprised by the relief that

I got with the trial implant. I hope that you have good results with your trial

tomorrow.

Kim L

Hi everyone

I just came from a short vacation in Virginia and it was great for

me, but now am back to my reality. This Wednesday, Jan 7th am going

to have my SCS trial, i have all my faith that this will help me with

my RSD pain and my back pain. So lets see how it works, the trial it

will be for 7 days and on january 14 it will be the implant. I am

very nervous, dont know what to expect, but is better for me to say i

tried it and it didnt work that to said it could work and i even tried it.

Have a great day

Mic

[Guest guest]

Hi

thanks and I hope the same for you, I have my RSD in both arms but a year ago I

had a spinal fussion and is full of scar tissue so the trial is going to be in

my right arm (the worse) and for my back.  I will be in touch.

God bless you all

Mic

From: KGAVI@... <KGAVI@...>

Subject: Re: Hi everyone

Stimulator

Date: Tuesday, January 6, 2009, 1:11 PM

Hello Mic!

Congrats on your trial!!! I hope and pray it helps with your pain. I too

have RSD. I have had it now for over 26 years...all throughout my body. The

worst being my left leg...now for 8 years.

I have two stims that really make a diefference. The first one was

implanted over 15 years ago. It was the difference between night and day,

black and

white, and horrible pain and feeling human again. the most recent one I had

done about 5 years ago for my legs.

Please let us know how you made out.

I will keep you in my thoughts and prayers, especially on your special dates.

I wish for all of us pain free days and sleep filled nights.

Take care and Good Luck!

Gentle hugs to you and all,

Kathy G.

Group Co-owner

************ **New year...new news. Be the first to know what is making

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[Guest guest]

Hello Mic,

I will certainly keep you in my prayers. I really hope that it helps your

arm and your back.

Hang in and please do keep in touch so that we can know how you are doing.

Gentle hugs to you and all,

Kathy G.

Co-Owner

**************New year...new news. Be the first to know what is making

headlines. (http://www.aol.com/?ncid=emlcntaolcom00000026)

[Guest guest]

Hi, cindy - welcome! This is your first post.

that 2.1 cc overfill was a very bad one, unfortunately, and you got

far too little removed. you should never have let it go for another

month. if you were still in pain, you should have gone immediately

back again for more or all out.

any time we try to keep a too-tight filll, we risk pouch damage -

often a dilated pouch or the more seious dilate esophagus. these

never heal completely, just as an over-stretched balloon nevergoes

back completely to normal.

It's still very manageable, though.

all that barfing was also dangerous. We can never safely vomit often.

NONE is best.

you have a second chance now, bu you'll need to go very slowly with

fills, and will need to self-limit quantity much more,. Never eat

more than 1-1.5 cups of food, even if you 'can " .

your doc will need to assess how much fill to try, as we don;t have

nearly enough info about you to do that. i don't even know the band

or size band you have.

the pain you were having with eating was all related to having way

too much fill and damaging your pouch. we should NEVER have regular

pain with eatng. the band is not supposed to be about misery and

deprivation!

it is meant only as a help to our on good efforts - never as a hammer

over our heads to MAKE us do anytghing. It's really essential for all

of us to understand that.

Please review the documents in the files about fills - when we may

safely get more, when we have too much, etc. It's our responsibility

to know these things, since few docs give any info - sadly. i feel

they must, but they just do not.

Also please look for the " soft stop signs " document in the files.

those are very important to understand.

Good luck with this next fill. do go very cautiously now, as you're

more prone to another dilation.

Sandy r

>

> Hi, I'm and I was banded down in Mexico at the end of June. I

was

> doing really well with my initial small fill that was included with

my

> surgery. I got my first fill in September where the doc put in 2.1

> cc's. I was immediately nauseated in in pain so he withdrew .1

cc.

> After over a month of complete misery, I had a total unfill in

> November. I am scheduled for a fill next weekend- I have done " ok "

> with my unfill, but did gain some weight back over the holidays.

Oh,

> and I was told when I had my total unfill that my pouch had

stretched.

> Any recommendations as to amount of fill I should be aiming for

next

> weekend? I have never had an easy time so far with eating " real

food " -

> even rotisserie chicken would get stuck and I would end up

barfing. I

> also would get intense facial/sinus pain whenever I ate solid

food.

> Has anyone else experienced that? I do very well on liquids-

> smoothies, Costco protein drinks, etc.... but, I know that's just

> supposed to be a stage, not a way of life. I could really use some

> advice here- I really want my fill so I can continue on my weight

loss

> journey, but I am more than a bit afraid of being too tight, that

> miserable pain, the barfing and stretching my pouch again. HELP!!

> thanks,

>

[Guest guest]

So glad to see that you are back, and ok! I was worried about you. You

werent the only one on hiatus, which made it worse. We havent heard

much from Chasity, Pamela, and i think Jeannine posted couple of days

ago. Adam was gone for a while, but is now back. He has discovered that

his outside dog is infested. Sucks. But, so tell us how things were

during the break. Have you come up with any more ideas? So sorry you

are still dealing with this.

Holly

>

> Happy New Year!

> Sorry for the sudden hiatus... I just had to take some time off from

> all of this and reflect/take a break. The last months has also been

a

> time of spiritual battle/growth for me. Anyway, I'm back to fighting

> these things in full force. Much hope and blessings to all of you!

>

> kihun

>

[Guest guest]

Hi paul

what part/city do u live in... up north CA? I use to live near San and had a good Spine DR there... My sister has an excellent Spine DR in Southern CA (orange or anaheim) his name is Carlson. I can find out all his info if u want. just let me know.

shanna

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From: paul <paul_love49@...>Subject: hi everyoneSpinal Stenosis Treatment Date: Thursday, April 16, 2009, 3:40 PM

i have spinal stenosis and degenerative disc disease i was suppose to have surgery last september but there wasnt trust between me and the surgeon im looking for another surgeon in northern california

[Guest guest]

>

> im a 53 year old male in california with spinal stenosis in my neck and lower

spine i have pain down both legs i was suppose to thyroid gland surgery last

friday but my surgeon was concerned about the stenosis in my neck they said i

wouldve had a heart attack on the table during surgery thank god they stopped it

paul

>

why were they concerned that you would have a heart attack was it because of you

thyroid gland or what?

[Guest guest]

hi lucy..am planin to give LDS in sept....but am still tryin to get my BLS certificate and Hepatitis and HIV report....JasmineFrom: Lucy <lucyfreitas85@...>Subject: Hi everyone Date: Wednesday, 26 May, 2010, 11:23 PM

LDS someone has feedback? I'm looking but I can not find anything. And I would like to talk with people who are preparing for exams too. Thank you