Re: Son Flipping Headpiece UPDATE

[Guest guest]

To all that have written w suggestions and comments I thank you for

the support. It was confirmed today that my one year old son's 90k is

failing and needs to be replaced.

Very, very frustrating....

> Has anyone looked to see if he has an indentation at the magnet

sight? If so, the magnet strength is too high and this hurts. Over

time, the magnet strength can be reduced because the swelling from

the surgery goes down so you don't need the same strength you did

when you were activated. Other than that, the only thing I can

think about that might be distressful for him would be that he may be

getting too much sound and doesn't like it.

>

> It's so hard to say at this age because he's still a baby and

sometimes they just do things like this because they are showing

their independance. If you don't see signs of discomfort around the

magnet or perhaps too much sound to be comfortable, you can purchase

wig tape that can be used to keep the magnet on his head until he

gets over this phase.

>

> Please tell us what you find out about this.

>

> Alice

>

>

>

> >

> > This said, recently he has become extremely upset w the

headpiece and

> > is flicking it off w high frequency. He had not demonstrated

this in

> > the past and it was not a gradual thing - it just started one

day and

> > has continued.

> >

> > Per our Audi, Device appears to be working correctly, he his

doing

> > all the things he was doing prior in terms of progress, and

he has

> > had not had huge shifts in his overall behavior other than he

is

> > flipping the head mic off constantly. We are going in to meet

w our

> > Audi and the manufacturer soon to do some more comprehensive

testing.

> >

> > Any thoughts, comments, experiences, would be appreciated

from CI

> > users or parents w similar problems would be appreciated!

> >

> >

>

>

>

[Guest guest]

I'm so sorry to read this. He's just a baby but a smart one if he knew to flip

the headpiece off. I didn't want to suggest it as I felt you would find out

when you went to your son's CI Team. Do you have a date for the re-implant? It

sounds as if it falls under those that were recalled. I'm sure this is very

frustrating for you.

Alice

>

> To all that have written w suggestions and comments I thank you for

> the support. It was confirmed today that my one year old son's 90k is

> failing and needs to be replaced.

>

> Very, very frustrating....

>

[Guest guest]

Does not appear related to recall..Date for re-implant is 12.2.

Really struggling w this..Not sure if we should continue w ab or move

on...

-- In , " alice " <alice@a...> wrote:

> I'm so sorry to read this. He's just a baby but a smart one if he

knew to flip the headpiece off. I didn't want to suggest it as I

felt you would find out when you went to your son's CI Team. Do you

have a date for the re-implant? It sounds as if it falls under those

that were recalled. I'm sure this is very frustrating for you.

>

> Alice

>

>

>

> >

> > To all that have written w suggestions and comments I thank

you for

> > the support. It was confirmed today that my one year old

son's 90k is

> > failing and needs to be replaced.

> >

> > Very, very frustrating....

> >

>

>

>

>

[Guest guest]

I understand your feeling. I would recommend to have him re-implant if

you want to raise him in active hearing lifestyle. Remember you are

paving your son into his life in the future.

-gs

On 17 Nov 2004 04:47:12 -0000, < > wrote:

> Message: 18

> Date: Wed, 17 Nov 2004 03:58:47 -0000

> From: " tramav " <tramav@...>

> Subject: Re: Son Flipping Headpiece UPDATE

> Does not appear related to recall..Date for re-implant is 12.2.

> Really struggling w this..Not sure if we should continue w ab or move

> on...

--

Greg Swager

gswager@...

[Guest guest]

I'm so sorry your son and your family will have to go through being

reimplanted, I hope all goes well for him the 2nd time around.

I'm wondering.. will they reimplant the same ear or go with the

opposite ear?

It's good to know though that he will once again have a chance at

hearing.

Good luck and I can only say, you will make the best choice for your

son as to which device to implant, and this choice will be right for

you and him no matter which way you go.

Please keep us updated.

Hugs,

Silly MI

In , " tramav " <tramav@m...> wrote:

>

> To all that have written w suggestions and comments I thank you

for

> the support. It was confirmed today that my one year old son's 90k

is

> failing and needs to be replaced.

>

> Very, very frustrating....