Guest guest Posted November 13, 2003 Report Share Posted November 13, 2003 Dora, No you have not confused me ), I have come to the conclusion on some questions that there are really no concrete answers.. Seems to me everyone is different and each has their own results.. I have also learned that I will have to work hard (something I am not afraid of) to be successfull no matter which ear I get implanted.. I am generally a VERY positive thinker.. And I am also always asking a TON of questions ) I have to know more than " it works " I want to know " how and why it works " ) With your case I am wondering if they had the contoured array when you had the N22 Implanted.. This allows it to hug the cochlear for better placement.. maybe this had more to do with it ? See i know a little already ) Thanks for the info. Evel > Hi Evel > Trying to corner me are you??LOL!! > > Sometimes I do wonder if i am coming or going Or which ear is which!!LOL!! > > Ok..when I first began my evaluation 7 yrs. ago for my N22 the ear that would have been implanted was my L ear..which was the ear i had last heard with.But then after my MRI it showed more callcification so my R ear was implanted.I heard well. > > Then 3 yrs later I had my N24C implanted in the L ear.I heard better . > > So actually I did hear better with the ear I had last heard with but may have been due to gaining more electrodes which gave me more high pitches. > > have I confused you even more???? > > Dora Weber > Nucleus Volunteer Advocate > dora_weber@m... > > Bilateral > N22-96 > N24C-01 > Cochlear Otosclerosis > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2003 Report Share Posted November 14, 2003 Dora, my last visit to my surgeon I mentioned the right ear is getting WORSE!! My voulune is set at #4 and cant hear well unless both the implanted ear is turned on and I popp the right ainide in the ear.my audi says she will test my right when I go back on the 25th,after her vcation. He was all smilels and high fiving me me after putiing my charter intfrount of his month to have me re -peat what he sais ( my age of all things!) aFter my mapping. Too look at him he looks to be by the book, very serios type, but when in the room alone , silly at times. But when I mentioned that right ear and concern of not ignoring it like I did before with the left, I felt a bit of a chill when he reipleied, I have done all I can do, and something out how many he does and a ist or somethink that, of course talking moving about the rooom did not help! not that good get! ] But I came out with the felling getting an second implant that ear wasnt happining. What should I do, Change to to U OF M in AnnArbor MI, about 1 1/2 drive but worth it if they wll onsider another implant . By no means do I want to jump in front of the line to get it, I wait my turn, but what cant I have impants both ears! I feel my right ear slipping more and more. but if I have to with one ear of hearing, so be it. Thank Cyndi in MI Dora Weber <dora_weber@...> wrote: Hi Evel Absolutely..had the N24C been available 7 years ago i would not have had 12 electrodes disengaged.After I had the integrity test in January that is what my audiologist said!!But the integrity test enabled him to map me by variable mode and I ended up with 19 electrodes.Now after my repositioning of my receiver stimulater the sound is soooo much better.This morning just wearing my n22 I was able to converse easily with my 2 Grandsons.I have said it many times and I will say it again and again..if anyone has trouble with their implants \Don't Give UP!!Even if you are experiencing things that you think are weird share these with your audiologist..and make sure he or she believes you.Noone but ourselfs knows what goes on in our heads!! Dora Weber Nucleus Volunteer Advocate dora_weber@... Bilateral N22-96 N24C-01 Cochlear Otosclerosis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2003 Report Share Posted November 14, 2003 Cyndi, U of M doesn't do bilaterals at this time either.. They are waiting for a time when insurance reimbursement becomes better than it is. I've inquired about bilaterals before as I want one too, but i don't see it happening in the near future at U of M either. Hopefully as time passes and they map you more, you will hear better and better.. It does take a good amount to get the full benefit. If they were to give you full volume at this point, you'd probably hate it. I have no useable hearing in my right ear and get along with just my implant which is providingme with near normal hearing in that ear. I'm unsure of any place in Michigan that does bilaterals, but if anyone does know.. by all means.. please let me know. Good Luck Cyndi and if u should be approved for a 2nd implant, I'd like to know. Wishing you the best. Hugs, Silly In , cyndi hetter <cyndihetter@y...> wrote: > Dora, > my last visit to my surgeon I mentioned the right ear is getting WORSE!! My voulune is set at #4 and cant hear well unless both the implanted ear is turned on and I popp the right ainide in the ear.my audi says she will test my right when I go back on the 25th,after her vcation. He was all smilels and high fiving me me after putiing my charter intfrount of his month to have me re -peat what he sais ( my age of all things!) aFter my mapping. Too look at him he looks to be by the book, very serios type, but when in the room alone , silly at times. But when I mentioned that right ear and concern of not ignoring it like I did before with the left, I felt a bit of a chill when he reipleied, I have done all I can do, and something out how many he does and a ist or somethink that, of course talking moving about the rooom did not help! not that good get! ] > But I came out with the felling getting an second implant that ear wasnt happining. What should I do, Change to to U OF M in AnnArbor MI, about 1 1/2 drive but worth it if they wll onsider another implant . By no means do I want to jump in front of the line to get it, I wait my turn, but what cant I have impants both ears! I feel my right ear slipping more and more. but if I have to with one ear of hearing, so be it. > Thank Cyndi in MI > > Dora Weber <dora_weber@m...> wrote: > Hi Evel > > Absolutely..had the N24C been available 7 years ago i would not have had 12 electrodes disengaged.After I had the integrity test in January that is what my audiologist said!!But the integrity test enabled him to map me by variable mode and I ended up with 19 electrodes.Now after my repositioning of my receiver stimulater the sound is soooo much better.This morning just wearing my n22 I was able to converse easily with my 2 Grandsons.I have said it many times and I will say it again and again..if anyone has trouble with their implants \Don't Give UP!!Even if you are experiencing things that you think are weird share these with your audiologist..and make sure he or she believes you.Noone but ourselfs knows what goes on in our heads!! > Dora Weber > Nucleus Volunteer Advocate > dora_weber@m... > > Bilateral > N22-96 > N24C-01 > Cochlear Otosclerosis > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2004 Report Share Posted June 13, 2004 Lots of what you said makes sense. I'm just doing lots of fact-finding for my 16 year old son, in the event he ever decides a CI is for him. Right now he's not on board with the idea, but his hearing / recognizable speech keeps decreasing, and I think he'd do well with a CI. But until the recipient is willing to go for it, can't do much about it. =) Vicki which ear Hi Vicky, Depending on your loss and your preference, you get whichever ear you want implanted. In my case, I was implanted in an ear that had NO stimulation and NO hearing for 20 years. Dr. decided I had nothing to lose if it didn't work, since I couldn't hear in that ear anyway. So we did the left ear, and it worked like a charm. Some suggest implanting the better ear, others the worse and saving the better ear for using a hearing aid. Since i had no amplifiable hearing in either ear, it made no difference to me. Dr. suggested using the worse ear, or rather the one that had no hearing for the longest. Others suggest the one most recently deafened. If you drive, you might consider the fact that the left ear is going to be toward the window all the time. Nucleus Volunteer Do most people have 2 CI's ? I've usually seen just one. If just one, which side is it usually on, or is there a " usual " ? =) Vicki ________________________________________________________________ The best thing to hit the Internet in years - Juno SpeedBand! Surf the Web up to FIVE TIMES FASTER! Only $14.95/ month - visit www.juno.com to sign up today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2006 Report Share Posted January 5, 2006 Hi , I know you from another forum lol. I have the Nucleus Freedom. Yes, I'm very happy with my results as they have already exceeded my most optimistic expectations. I can hear and understand my wife in her office next door to my office. I dropped two empty paper splenda packets on to a paper plate from about four inches and I could actually hear them hit the plate. This is nothing short of a miracle. Jim > > Hi Jim, > I, too, was implanted in the worse ear - one that had no hearing, no > stimulation for 20 years. Like your surgeon, mine figured I had nothing > to lose if it didn't work. But it did, WAY beyond what anyone imagined. > I understand speech without lipreading, can follow conversations from > another room, watch TV, go to movies, listen to radio, CDs and so forth. > And this with technology that was in clinical trials 8 years ago. The > Nucleus system has been upgraded internally 3 times since then And the > external upgrades are always made available to those of us with the older > implants. > The Freedom implant now has all the " bells and whistles " that were on > the body worn processor I started with 8 years ago. Plus more. > Amazing, what a dead ear can do. > > > The Original > > From: " ak_mustang2000 " <ak_mustang2000@y...> > Subject: Re: Which ear to implant > > Hi Barb, > > I also had a better ear and a worst ear. I had been essentially > deaf in my left ear for over 35 years. I was unable to use a > hearing aid in my left ear due to severe distortion, tinnitus and > recruitment (sounds loud enough to hear were extremely painful). I > was able to wear a hearing aid in my right ear, but in order to hear > with it conditions had to be perfect and the speaker had to be > within three feet. My surgeon wanted to implant my left ear since > there was essentially nothing to lose on that side. I was implanted > on the left side on November 3rd, 2005 and activated on December > 1st, 2005. I am very happy with the results of implanting the worst > ear. I was able to hear and understand speech by the end of my > initial activation. The distortion and recruitment are no longer > present and the tinnitus has markedly improved. I just had my 4th > mapping last Monday and my Audiologist says I am doing excellent. > > Best regards, > > Jim > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2006 Report Share Posted June 22, 2006 Hi , Many of us go through the same question - which ear to implant? When I was making my decision, both my ears were audiolgically the same so I had the choice of either one. Had my ears been different, my surgeon would have recommended that I implant the ear which had the best hearing because he felt that the hearing nerve was better. Many people on this forum, over the years, have had their worse ear implanted and have been very happy withy the results. So ultimately, it is a decision between you and your surgeon. If you surgeon feels strongly one way of the other then I would go with that. If you are given the choice then you could simply pick the ear on the same side as your dominant hand, or the ear you would rather use the telephone with...don't stress it! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2006 Report Share Posted June 22, 2006 Hi - I was born with a profound hearing loss, and had my better ear implanted. For the most part I had my right ear (better ear) aided until I lost the rest of my residual hearing one day. I know how agonizing it is because you want to preserve whatever hearing you have left. My surgeon recommended that I have my better ear implanted since it was stimulated the longest, and had better hearing discrimination while growing up. Eventually you will make a decision based on what you gather at your future evaluation appointments. CI user since March 1999 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2006 Report Share Posted June 22, 2006 Hello My situation was similar to yours. I had worn hearing aids for over 25 years and power aids for the past 8 years or so. I had my WORST ear implanted. But even the " good " ear with just the hearing aid isnt much use to me. Since my switch-on, on April 26/27th this year, my progress has been unbelievably good. I'm certain that in my case, the fact that I had always worn my hearing aids and not chucked them in a drawer like some people tend to do, benefitted me greatly. Probably by keeping the ears stimulated and the brains funcions active. Your prospective surgeon will be able to tell you more when he has looked at your scans, but to my mind, if there arent any complications, it makes sense to implant the worst ear. Ted F. > > I know that it's important that the auditory nerve be stimulated. I > was born with a progressive hearing loss and for the most part > always wore two hearing aids. The hearing loss was about the same > in both ears but was slightly worst in my right ear. > I am having difficulty deciding which ear to implant - on one hand > I want to preserve the slight residual hearing and discrimination > skills I have for the left ear --- however I wonder if that ear > will respond to the implant better since it has a history of better > discrimination. Has anyone in > this group ever implanted an ear that they could hear sounds but never > could discriminate the sounds with? I hope I am making sense I > confused myself when writing this > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2006 Report Share Posted June 22, 2006 Hi , Although it's absolutely true, it's important to keep the auditory nerves stimulated, in my case I had not worn hearing aids for about 8 years prior to my implantation last year (I felt it didn't do anything in terms of speech discrim, and I wasn't interested in hearing a lot of noise and sound--for better or worse) and I chose my BETTER ear and I am doing very well. I am even able to manage phone conversations on a cell phone. Landline is more challenging, I'm still looking for the best phone and working on my skills. I can understand my dentist WITH his mask on his face! I still use my lipreading skills especially in noisy situations, but this plan worked for me. Deb --- " Ted F. " <ted.fletcher@...> wrote: > Hello > My situation was similar to yours. I had worn > hearing aids for over 25 > years and power aids for the past 8 years or so. I > had my WORST ear > implanted. But even the " good " ear with just the > hearing aid isnt much > use to me. > > Since my switch-on, on April 26/27th this year, my > progress has been > unbelievably good. I'm certain that in my case, the > fact that I had > always worn my hearing aids and not chucked them in > a drawer like some > people tend to do, benefitted me greatly. Probably > by keeping the ears > stimulated and the brains funcions active. > > Your prospective surgeon will be able to tell you > more when he has > looked at your scans, but to my mind, if there arent > any complications, > it makes sense to implant the worst ear. > > Ted F. > > > > > > > I know that it's important that the auditory nerve > be stimulated. I > > was born with a progressive hearing loss and for > the most part > > always wore two hearing aids. The hearing loss was > about the same > > in both ears but was slightly worst in my right > ear. > > > I am having difficulty deciding which ear to > implant - on one hand > > I want to preserve the slight residual hearing and > discrimination > > skills I have for the left ear --- however I > wonder if that ear > > will respond to the implant better since it has a > history of better > > discrimination. Has anyone in > > this group ever implanted an ear that they could > hear sounds but never > > could discriminate the sounds with? I hope I am > making sense I > > confused myself when writing this > > > > > > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2006 Report Share Posted June 22, 2006 Hi Ultimately it is your decision and only your decision which ear to implant but maybe my experience with my CI will help you decide. I have a very strong history of hearing loss in my family and most members of the family began to lose their hearing in their teens and twenties. I bagan to lost mine in my late 30, however, unlike other members of my family me loss progressed much faster and by the time I was 50 hearing aids were not helping me much. My situation within the family was also unique in that I have one ear that is considerbly better than the other ear in discrimination (well of course it is not that good or I wouldn't have qualified for a CI). We I began the testing to see if I qualified I told my family that there was no way I was letting them implant my " good " ear as that was all I had left. Thankfully the doctor and audie agreed with me and my " bad " ear was implanted and I have had nothing but amazing results since being activated. There is basically nothing I can't do with my CI. So my story tells me that I did infact do the right thing by implanting my " bad " ear. Again that doesn't mean that is the right thing for you to do but it was for me. Talk to you doctor and see what she/he says, try to gather as much information as you can, and then go with your gut because ultimately it is your decision. Please feel free to ask me any questions you might have. Connie Vacks <vacklist77@...> wrote: I know that it's important that the auditory nerve be stimulated. I was born with a progressive hearing loss and for the most part always wore two hearing aids. The hearing loss was about the same in both ears but was slightly worst in my right ear. I was never able to discriminate the sounds I heard with just my right ear. I could discriminate sounds in my left ear (using a hearing aid - even if I turned off the right hearing aid I could discriminate sounds and speech with the left ear) Due to an increase in hearing loss my discrimination and understanding of speech has deteriorated to the point I qualify for an implant. The hearing and discrimination is still better on my left ear but only slightly. I am having difficulty deciding which ear to implant - on one hand I want to preserve the slight residual hearing and discrimination skills I have for the left ear --- however I wonder if that ear will respond to the implant better since it has a history of better discrimination. Has anyone in this group ever implanted an ear that they could hear sounds but never could discriminate the sounds with? I hope I am making sense I confused myself when writing this " The Miracle at Ohio State " aka Nucleus Freedom Implanted 10/04/2005 Activated 11/1/2005 Surgery: Ohio State University Surgeon: Dr. Bradley Welling http://internalmedicine.osu.edu/article.cfm?ID=2021 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2006 Report Share Posted June 22, 2006 Hi, , You are making perfect sense. Your hearing loss progression sounds exactly like mine. I wondered about implanting my right ear which only heard noise and saving the left ear, which still gave me some distinction, although very soft. I'm here to tell you that if you are thinking of implanting the " bad " ear, I absolutely agree and highly recommend going that route! Then you can still wear the hearing aid in the unimplanted " good " ear and it may even help " train " the CI. It was invaluable to me. Eventually I did go bilateral, but until then I was so pleased to have both the CI and the hearing aid to supplement - especially in the beginning. If you have any other questions about this, feel free to write again here or to me in private. Good luck!! ) Jackie Implanted - right ear - Oct.2002 - Nucleus 24/3G Reimplanted - right ear - Jan.2005 - Nucleus 24C/3G Implanted - left ear - Sept.2005 - Nucleus-Freedom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2006 Report Share Posted June 22, 2006 I chose my " good " (right) ear for my implant. It was virtually useless by then. I couldn't hold a one on one conversation in a quiet environment by that time. I chose it, not for better odds for a successful implant but in the hope that I could better understand a front seat passenger in the car <g>. Better than flipping a coin, I guess. :<) Virg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2006 Report Share Posted June 23, 2006 Hello and everyone, I have turned into a bit of a lurker, but just thought I'd ask; I wonder if it IS indeed true that one's auditory nerve needs to have been stimulated in order to respond well to CI hearing. If it was true, why do so many prelinguals do so well, or people who were born deaf and never really heard sound? Many people do well with CI's that have never had either normal hearing, or even hearing aid augmented hearing. If the nerve truly needed to be stimulated in order to work, it wouldn't work for these people, it would only work for the late deafened, or people who have had some kind of prior hearing. Binns BEA Volunteer ----Original Message Follows---- From: " Vacks " <vacklist77@...> Reply- Subject: Which ear Date: Wed, 21 Jun 2006 23:32:56 -0400 I know that it's important that the auditory nerve be stimulated. I was born with a progressive hearing loss and for the most part always wore two hearing aids. The hearing loss was about the same in both ears but was slightly worst in my right ear. I was never able to discriminate the sounds I heard with just my right ear. I could discriminate sounds in my left ear (using a hearing aid - even if I turned off the right hearing aid I could discriminate sounds and speech with the left ear) Due to an increase in hearing loss my discrimination and understanding of speech has deteriorated to the point I qualify for an implant. The hearing and discrimination is still better on my left ear but only slightly. I am having difficulty deciding which ear to implant - on one hand I want to preserve the slight residual hearing and discrimination skills I have for the left ear --- however I wonder if that ear will respond to the implant better since it has a history of better discrimination. Has anyone in this group ever implanted an ear that they could hear sounds but never could discriminate the sounds with? I hope I am making sense I confused myself when writing this Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2006 Report Share Posted June 23, 2006 Hi , I had an ear implanted that had no sound, no hearing, and no stimulation for 20 years. Works like a charm. My surgeon suggested doing the worse ear in case it didn't work. I was in clinical trials for the Nucleus 24 device 9 years ago. He figured if it didn't work out, I'd be no worse off than I was before, since I hadn't heard from that ear for so long. I don't understand why people tell you to stimulate a dead ear. Since mine was without hearing for so long, I figure the nerve was " rested " or something. It took about 3 months to get to hear the way I do now, and that time frame may have been shorter if I'd implanted the ear that went deaf 6 months prior to being implanted. If you can discriminate sounds with one ear, but not the other, you could still use your hearing aid in that ear. So makes sense to me to implant the worse ear, unless there is a medical reason not to. The Original I know that it's important that the auditory nerve be stimulated. I was born with a progressive hearing loss and for the most part always wore two hearing aids. The hearing loss was about the same in both ears but was slightly worst in my right ear. I am having difficulty deciding which ear to implant - on one hand I want to preserve the slight residual hearing and discrimination skills I have for the left ear --- however I wonder if that ear will respond to the implant better since it has a history of better discrimination. Has anyone in this group ever implanted an ear that they could hear sounds but never could discriminate the sounds with? I hope I am making sense I confused myself when writing this Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.