Cholesteatoma

[Guest guest]

Hi,

I was in surgery on Friday to repair a retraction pocket

which was to prevent cholesteatoma. The surgery was supposed to last an hour to

an hour and a half but ended up lasting 4 and a half hours. The surgeon said that

when he went into my ear my eardum had been sucked in and again and again and

that all the way down this was the cholesteatoma. He mentioned something about

damage to one of my bones but as I had just woken up from anaesthetic and was

on morphine I wasn’t quite understanding. The notes he gave me to give to

my GP still said the Tympanoplasty and my GP has no record of the

cholesteatoma, I have a slip here to give to the nurse when she takes my

stitches out which says the procedure was a “right atticoantrostomy”.

Have any of you guys had this procedure? I just don’t know anything about

what was done as like I said I was still half out of it when the surgeon came

to see me and my GP knows nothing.

Help

x

[Guest guest]

Hi Kenna

I had a cholesteatoma removed in 1999; the surgeon performed a Radical

Modified Mastoidectomy.

Having never heard of an ‘atticoantrostomy’, I did an

internet search and came up with the following:

Modified radical

mastoidectomy

This operation differs from the

radical mastoidectomy in that the tympanic membrane

or remnants thereof and

ossicular remnants (usually the malleus handle and stapes) are

retained (synonym: attico-antrostomy

if the operation is performed by the anterior-posterior

technique, that is by exposing

the attic first and then proceeding backwards into the aditus ad

antrum and mastoid antrum).

http://famona.sezampro.rs/medifiles/OTOHNS/SCOTT/scott311.pdf

(accessed 13 September 2010)

As you can see, this says that an atticoantrostomy is a similar

way of doing a Radical Modified Mastoidectomy but in a different manner –

if that makes sense! Maybe one of the ENT Surgeons (Dr Gupta or Mr

Wareing) who frequent this board will be able to explain in more depth if you

wish for further detail. If you do wish for more information, perhaps you

would do well to post a new message with their names in the subject line.

If you’re not sure of post-operative care or cleaning that

you should/shouldn’t be carrying out, it would be best to contact your

surgeon’s office to get instructions, just to be sure you are doing

whatever you should be doing (or not, as the case may be). Perhaps you

should contact his office just to get clarification as to what was actually

done... just a suggestion.

I hope you’re soon feeling right as rain and soon enjoying

the benefits of the surgery (i.e. lack of infection and pain).

Kind regards

Kazzy

From: cholesteatoma

[mailto:cholesteatoma ] On Behalf Of Kenna Balion

Sent: 13 September 2010 11:40

cholesteatoma

Subject: Cholesteatoma

Hi,

I

was in surgery on Friday to repair a retraction pocket which was to prevent

cholesteatoma. The surgery was supposed to last an hour to an hour and a half

but ended up lasting 4 and a half hours. The surgeon said that when he went

into my ear my eardum had been sucked in and again and again and that all the

way down this was the cholesteatoma. He mentioned something about damage to one

of my bones but as I had just woken up from anaesthetic and was on morphine I

wasn’t quite understanding. The notes he gave me to give to my GP still

said the Tympanoplasty and my GP has no record of the cholesteatoma, I have a

slip here to give to the nurse when she takes my stitches out which says the

procedure was a “right atticoantrostomy”. Have any of you

guys had this procedure? I just don’t know anything about what was done

as like I said I was still half out of it when the surgeon came to see me and

my GP knows nothing.

Help

x

[Guest guest]

An attico antrostomy is essentially an 'inside out' mastoidectomy where you start by enlarging/opening out the attic area and working backwards until you get to the extent of the disease. You do end up with something similar to a modified radical mastoidectomy.

People (including ENT trainees!) do get confused/worked up about the exact nomenclature and it probably means slightly different things even to operating surgeons.

If you have had an atticoantrostomy then it certainly sound like you have (had) cholesteatoma. Its a bit of a shame your documentation is unclear. You could try getting in touch with the surgeons secretary and ask them to get the surgeon to clarify things exactly (perhaps by email!!) With best wishes

Mr WareingConsultant ENT SurgeonSt Bartholomews HospitalThe Royal London HospitalThe London Clinic145 Harley StreetLondon W1G 6BJwww.michaelwareing-ent.com

020 7935 1304

From: Kenna Balion <kenna_balion@...>cholesteatoma Sent: Mon, 13 September, 2010 11:40:20Subject: Cholesteatoma

Hi,

I was in surgery on Friday to repair a retraction pocket which was to prevent cholesteatoma. The surgery was supposed to last an hour to an hour and a half but ended up lasting 4 and a half hours. The surgeon said that when he went into my ear my eardum had been sucked in and again and again and that all the way down this was the cholesteatoma. He mentioned something about damage to one of my bones but as I had just woken up from anaesthetic and was on morphine I wasn’t quite understanding. The notes he gave me to give to my GP still said the Tympanoplasty and my GP has no record of the cholesteatoma, I have a slip here to give to the nurse when she takes my stitches out which says the procedure was a “right atticoantrostomyâ€. Have any of you guys had this procedure? I just don’t know anything about what was done as like I said I was still half out of it when the surgeon came to see me and my GP knows nothing.

Help

x

[Guest guest]

Thank you for your responses.  Yeah he did say it was

cholesteatoma but I was unsure what he had done and there was no-one in with me

when the surgeon came round to speak to me. I shall email his secretary as

suggested as it will be another 3 weeks until I meet with him again which is a

long time not knowing what went on, I’m not even sure if I ended up getting the

tympanoplansty! I also don’t know if I meant to be having all of this pain, my

jaw and cheekbone hurts and I cannot fully open my mouth. I have never

experienced pain like this before!

Kenna

From: cholesteatoma

[mailto:cholesteatoma ] On Behalf Of Wareing

Sent: 13 September 2010 18:11

cholesteatoma

Subject: Re: Cholesteatoma

An attico

antrostomy is essentially an 'inside out' mastoidectomy where you start by

enlarging/opening out the attic area and working backwards until you get to the

extent of the disease. You do end up with something similar to a modified

radical mastoidectomy.

People

(including ENT trainees!) do get confused/worked up about the exact

nomenclature and it probably means slightly different things even to operating

surgeons.

If you have had

an atticoantrostomy then it certainly sound like you have (had) cholesteatoma.

Its a bit of a shame your documentation is unclear. You could try getting in

touch with the surgeons secretary and ask them to get the surgeon to clarify

things exactly (perhaps by email!!)

With best

wishes

Mr

Wareing

Consultant ENT Surgeon

St Bartholomews Hospital

The Royal London Hospital

The London Clinic

145 Harley Street

London W1G 6BJ

www.michaelwareing-ent.com

020 7935 1304

From: Kenna Balion

<kenna_balion@...>

cholesteatoma

Sent: Mon, 13 September, 2010 11:40:20

Subject: Cholesteatoma

Hi,

I

was in surgery on Friday to repair a retraction pocket which was to prevent

cholesteatoma. The surgery was supposed to last an hour to an hour and a half

but ended up lasting 4 and a half hours. The surgeon said that when he went

into my ear my eardum had been sucked in and again and again and that all the

way down this was the cholesteatoma. He mentioned something about damage to one

of my bones but as I had just woken up from anaesthetic and was on morphine I

wasn’t quite understanding. The notes he gave me to give to my GP still said

the Tympanoplasty and my GP has no record of the cholesteatoma, I have a slip

here to give to the nurse when she takes my stitches out which says the

procedure was a “right atticoantrostomyâ€. Have any of you guys had this procedure?

I just don’t know anything about what was done as like I said I was still half

out of it when the surgeon came to see me and my GP knows nothing.

Help

x

[Guest guest]

Hi ,

She could be having the problem that I had. I was dehydrated - I was

never one to drink a lot of water and I had a lot of trouble with

nausea. My general practitioner suggested 8 ounces for every hour that I

was awake. That did the trick for me - but perhaps her doctor would

suggest a smaller amount since she's likely not to be as big. Within an

hour I was feeling much much better. So, if you suspect she's not

drinking much ... it ought to snap her out of this. For some reason,

it's really easy to under-do the fluid intake. " Floopy " sounds like a

very good word to describe the feeling and I had waves of nausea all

night even with an empty stomach.

Matt

risky_fairy wrote:

>

> Hi all,

>

> Thanks to all who replied regarding my 11 year old daughter recent

> operation 3 weeks ago.

>

> She is recovering well but this last week or so has been up 4 or 5

> nights complaining of nausea. One night she vomited bile. Could this

> be related to the c-toma and her recent op or maybe just a virus.

> She's been fine during the day though sometimes feeling " floopy " as

> she puts it. Not dizzy.

>

> Any advice welcome. Thanks again from the UK.

>

>

>

>

--

[Guest guest]

It should not be now due to C-Toma or its surgery

Some kind of GI infection. Did she ate outside,somefast food?

Dr. Arun Gupta,India

On Wed, Sep 7, 2011 at 7:02 PM,

[Guest guest]

Hi,Thanks for both of your comments.She has been drinking plenty and we haven't eaten out or had any fast food. She has no diarrhea/constipation, stomach pains and is not off her food. She now tells me that she has been nauseous during the day but manages to do something to distract herself.It's maybe just a virus but I'll just keep an eye on her. We're back at the hospital to have the packing removed from her ear next week so if there's a problem in her ear I'm sure the consultant will notice. Any reason why they wanted the packing left in for 4 weeks? I thought it was normally

2-3.Thanks again.From: Arun Gupta <drarunjind@...>cholesteatoma Sent: Wednesday, 7 September 2011, 15:17Subject: Re: cholesteatoma

It should not be now due to C-Toma or its surgery

Some kind of GI infection. Did she ate outside,somefast food?

Dr. Arun Gupta,India

On Wed, Sep 7, 2011 at 7:02 PM,

[Guest guest]

Hi ,I also had quite a bit of nausea after my surgeries and the one thing I found that helped (I don't like taking medications) is the spearmint candy. It is a small round candy they have the peppermint which is red and white and the spearmint which is green and white. I would suck on one of those and believe it or not the nausea would go away. A close friend told me about this because her son was going through treatments at the hospital and each treatment made him very ill and this helped settle his tummy. Worth a try if you have access to those candies.

JenniOn Wed, Sep 7, 2011 at 9:12 AM, Nudds <risky_fairy@...> wrote:

 

Hi,Thanks for both of your comments.

She has been drinking plenty and we haven't eaten out or had any fast food. She has no diarrhea/constipation, stomach pains and is not off her food. She now tells me that she has been nauseous during the day but manages to do something to distract herself.

It's maybe just a virus but I'll just keep an eye on her. We're back at the hospital to have the packing removed from her ear next week so if there's a problem in her ear I'm sure the consultant will notice. Any reason why they wanted the packing left in for 4 weeks? I thought it was normally

2-3.Thanks again.

From: Arun Gupta <drarunjind@...>

cholesteatoma Sent: Wednesday, 7 September 2011, 15:17

Subject: Re: cholesteatoma

 

It should not be now due to C-Toma or its surgery

Some kind of GI infection. Did she ate outside,somefast food?

Dr. Arun Gupta,India

On Wed, Sep 7, 2011 at 7:02 PM,

[Guest guest]

Hi ,

Sometimes pain killer can cause nausea, is she still taking anything?

Kathy

>

> Hi all,

>

> Thanks to all who replied regarding my 11 year old daughter recent operation 3

weeks ago.

>

> She is recovering well but this last week or so has been up 4 or 5 nights

complaining of nausea. One night she vomited bile. Could this be related to the

c-toma and her recent op or maybe just a virus. She's been fine during the day

though sometimes feeling " floopy " as she puts it. Not dizzy.

>

> Any advice welcome. Thanks again from the UK.

>

>

>

[Guest guest]

Hi Kathy,No, she's not taking any painkillers. She's not on any medication at all.From: kfoskett5 <kfoskett5@...>cholesteatoma Sent: Wednesday, 7 September 2011, 20:50Subject: Re: cholesteatoma

Hi ,

Sometimes pain killer can cause nausea, is she still taking anything?

Kathy

>

> Hi all,

>

> Thanks to all who replied regarding my 11 year old daughter recent operation 3 weeks ago.

>

> She is recovering well but this last week or so has been up 4 or 5 nights complaining of nausea. One night she vomited bile. Could this be related to the c-toma and her recent op or maybe just a virus. She's been fine during the day though sometimes feeling "floopy" as she puts it. Not dizzy.

>

> Any advice welcome. Thanks again from the UK.

>

>

>