New Book

[Guest guest]

Hi Terry, Sounds like a good book. Where did you get it, library, store????

Thanks everyone for the responses regarding my recent surgery. I'm still so

exhausted and keep taking naps (I hate napping cause I have too much I'd rather

be doing!), but at least they make me feel better.

nne

[ ] New Book

I've been reading a new book that I thought was very good and thought

I'd share it. The name is " Strong Women and Men Beat Arthritis "

C 2002, By Miriam , Baker and Ronenn Roubenoff.

I've read a lot of arthritis books but this one is very good.

All the latest info on RA and OA.

Ohio - Terry

[Guest guest]

It's available at Book stores in the new non-fiction sections

Ohio - Terry

[Guest guest]

"Big Pharma" Some people believe in them, is that out of fear that what they're taking may actually not be as good as advertised?

[low dose naltrexone] New Book

The Truth About the Drug Companies: How They Deceive Us and What to Do About Itby Marcia AngellEditorial ReviewsAmazon.comMany Americans have wondered why prescription drugs have become so expensive while advertising for those drugs seems to grow exponentially. Former New England Journal of Medicine Editor Marcia Angell has some answers. The pharmaceutical industry, according to Angell, is fraught with corruption and doing a disservice to customers, the federal government, and to the medical establishment itself. In The Truth About the Drug Companies, Angell explains how a huge portion of the revenue generated by "Big Pharma" goes not into research and development but into aggressive marketing campaigns to sell their product. She describes how, even though the drug companies claim that it costs them an average of 802 million dollars per drug to develop new medicines, that figure is obscenely inflated since it factors in marketing as well as expected interest the company would have received had they invested the money in the open market. Meanwhile, Angell says, most of the R & D work is done by colleges and universities funded by the government. There are also problems with the drugs themselves, Angell indicates, since a majority are "me-too drugs", slightly modified versions of existing products which meant to address concerns of consumers most likely to spend money on pharmaceuticals. Thus, the market is filled with remarkably similar drugs to treat depression and high cholesterol while potentially life-saving medicines for diseases afflicting third-world countries are discontinued because they aren't profitable. In the books most damning passage, Angell tells of the high-priced junkets offered to doctors, ostensibly offered as educational opportunities that seem to constitute little more than bribes. The prognosis for reform is a grim one, Angell indicates, due to the massive cash reserves and lobbying efforts of "Big Pharma." Indeed, that lobby was hard at work trying to discredit her claims immediately upon the book's publication. But for anyone who's paid a pharmacy bill, The Truth About the Drug Companies is a fascinating read. -- MoeFrom Publishers WeeklyIn what should serve as the Fast Food Nation of the drug industry, Angell, former editor of the prestigious New England Journal of Medicine, presents a searing indictment of "big pharma" as corrupt and corrupting: of Congress, through huge campaign contributions; of the FDA, which is funded in part by the very companies it oversees; and, perhaps most shocking, of members of the medical profession and its institutions. Angell delineates how the drug giants, such as Pfizer and AstraZeneca, pay physicians to prescribe their products with gifts, junkets and marketing programs disguised as "professional education." According to Angell, the cost of marketing, both to physicians and consumers, far outweighs expenditures on research and development, though drug makers invoke R & D as the reason drug prices are so high. In fact, says Angell, with combined 2002 profits of $35.9 billion for the Fortune 500's top 10 drug companies, the drug industry is America's most profitable by far, thanks to disproportionately high prices, generous tax breaks and manipulation of patents to extend exclusive marketing rights to blockbuster drugs like Prozac and Claritin. Angell mounts a powerful case (and offers specific suggestions) for reform of this essential industry-a case worth bearing in mind as "big pharma" continues to oppose importing cheaper drugs from Canada.

[Guest guest]

In a message dated 12/13/2004 9:18:54 AM Central Standard Time, tbayuk@... writes:

Hi Folks,

As most of you know I am writing a new book. The new book is about the things and circumstances that occur and that no one talks about.

Sex, bowel, urinary problems. Disappointments, cancellations, embarrassing situations, problems that are particular to us and completely unknown to those around us. Things that others should know but are somehow unaware. Frustrations, shame ( which by the way I will attempt to remove).

In spite of some of these circumstances that occur in our lives our human dignity can, should and will remain intact... provided we are at peace with our situation. ( A formidable task to say the least) but definitely attainable.

Tom,

Your new book sounds great. I have a thought that maybe no one has ever had happen to have. Not sure. I was dating a guy and he found out that I have MS and he dumped me like a hot potato. After thinking about it it was a good thing to. My ex would have dumped me also if we would have still been married. (Thank the Lord we are not.) I've been introduced to a few guys over the years and I now tell them I have MS and they never call me again. Then again I've had 2 relationships that even helped me around my apt. Fix things that I used to be able to do myself. Some of my friends have been dumped also. Now I realize that I was better off without them. If I think of another subject I will let you know.

Thank you so much for your very good book.

Hugs,

CJ

MS is like a roller coaster-It has its ups and downs.

[Guest guest]

THE NEW BOK SOUNDS GREAT I WAS A PAPER MILL WORKER BEFORE BECOMING

DISABLED AND IN A WHEELCHAIR. AND JUST GOT MARRIED LAST DECEMBER. WENT

THROUGH ALOT OF DUMP RELATIONSHIPS BEFORE....CANDY

BEST WISHES THIS HOLIDAY SEASON-CANDY & STEVEN

i

[Guest guest]

CJ,

That is surely a very relevant subject. No doubt that it is heart wrenching and painful. However you really are better off without them. Thank you for your thoughts.

Regards,

Tom

Re: [low dose naltrexone] New book

In a message dated 12/13/2004 9:18:54 AM Central Standard Time, tbayuk@... writes:

Hi Folks,As most of you know I am writing a new book. The new book is about the things and circumstances that occur and that no one talks about. Sex, bowel, urinary problems. Disappointments, cancellations, embarrassing situations, problems that are particular to us and completely unknown to those around us. Things that others should know but are somehow unaware. Frustrations, shame ( which by the way I will attempt to remove).In spite of some of these circumstances that occur in our lives our human dignity can, should and will remain intact... provided we are at peace with our situation. ( A formidable task to say the least) but definitely attainable.Tom,Your new book sounds great. I have a thought that maybe no one has ever had happen to have. Not sure. I was dating a guy and he found out that I have MS and he dumped me like a hot potato. After thinking about it it was a good thing to. My ex would have dumped me also if we would have still been married. (Thank the Lord we are not.) I've been introduced to a few guys over the years and I now tell them I have MS and they never call me again. Then again I've had 2 relationships that even helped me around my apt. Fix things that I used to be able to do myself. Some of my friends have been dumped also. Now I realize that I was better off without them. If I think of another subject I will let you know. Thank you so much for your very good book.Hugs,CJMS is like a roller coaster-It has its ups and downs.

[Guest guest]

I would definitely be interested in your new book, and would appreciate it very much if you could tell me where I could purchase your first two books. My daughter has secondary progressive ms and although she is coping very well right now, any extra information and input is always welcome!Bonnie>From: "tom bayuk" <tbayuk@...> >Reply-low dose naltrexone ><MS-Christians >,<MS_Community >,<mscured >,"A Home away from Home a MS Support Board" <AHomeawayfromHomeaMSSupportBoard@...>,<MSfriends >,<MSViews_Multiple_Sclerosis >,<low dose naltrexone >,<MSersLife >,<MSherbdoc >,<ms-diet > >Subject: [low dose naltrexone] New book >Date: Fri, 4 Feb 2005 11:31:14 -0500 > >Hi All, >I need a little input. >The first book that I wrote "Coping and Prevailing" was self-published by me at a cost of $4800. for 1000 books. I sold about half of them and gave away about half of them and broke even. I did not write the book to make money but to help other ms'er's. The second book "20 Years and Still Coping and Prevailing" cost $4900. I have given away about 300 of these and sold about 150 and an in the red. > >The latest book "The Things we Don't Talk About" is now ready to be printed and will cost $5480. for 1000 books. > >I am not in a position to absorb this cost and would have to charge about $ 15.95 per book. > >My question to all of you... is there enough interest for me to proceed? >Regards, >Tom

[Guest guest]

Hi Tom,

As for me, I'll buy your book! Really enjoyed the last one.

Thanks for all the effort you've put in.

Jim &

I am not in a position to absorb this cost and would have to charge about $ 15.95 per book.

My question to all of you... is there enough interest for me to proceed?

Regards,

Tom

[Guest guest]

Hi Bonnie,

You can get the book from me or Amazon.com or & Noble.

Regards,

Tom

[low dose naltrexone] New book >Date: Fri, 4 Feb 2005 11:31:14 -0500 > >Hi All, >I need a little input. >The first book that I wrote "Coping and Prevailing" was self-published by me at a cost of $4800. for 1000 books. I sold about half of them and gave away about half of them and broke even. I did not write the book to make money but to help other ms'er's. The second book "20 Years and Still Coping and Prevailing" cost $4900. I have given away about 300 of these and sold about 150 and an in the red. > >The latest book "The Things we Don't Talk About" is now ready to be printed and will cost $5480. for 1000 books. > >I am not in a position to absorb this cost and would have to charge about $ 15.95 per book. > >My question to all of you... is there enough interest for me to proceed? >Regards, >Tom

[Guest guest]

Hi Jim & ,

Thank you the feedback That I am getting indicates a "Go", thanks I'll keep you posted.

Regards,

Tom

Re: [low dose naltrexone] New book

Hi Tom,

As for me, I'll buy your book! Really enjoyed the last one.

Thanks for all the effort you've put in.

Jim &

I am not in a position to absorb this cost and would have to charge about $ 15.95 per book.

My question to all of you... is there enough interest for me to proceed?

Regards,

Tom

[Guest guest]

Is it better for you if I send you a cheque and you send them out? Or does it matter to you? As others have said, it is so good of you to put things down in print that you have found so that it might help others. Bonnie>From: "tom bayuk" <tbayuk@...> >Reply-low dose naltrexone ><low dose naltrexone > >Subject: Re: [low dose naltrexone] New book >Date: Fri, 4 Feb 2005 12:14:40 -0500 > >Hi Bonnie, >You can get the book from me or Amazon.com or & Noble. >Regards, >Tom > [low dose naltrexone] New book >Date: Fri, 4 Feb 2005 11:31:14 -0500 > >Hi All, >I need a little input. >The first book that I wrote "Coping and Prevailing" was self-published by me at a cost of $4800. for 1000 books. I sold about half of them and gave away about half of them and broke even. I did not write the book to make money but to help other ms'er's. The second book "20 Years and Still Coping and Prevailing" cost $4900. I have given away about 300 of these and sold about 150 and an in the red. > >The latest book "The Things we Don't Talk About" is now ready to be printed and will cost $5480. for 1000 books. > >I am not in a position to absorb this cost and would have to charge about $ 15.95 per book. > >My question to all of you... is there enough interest for me to proceed? >Regards, >Tom > > >------------------------------------------------------------------------------ >

[Guest guest]

Hi Tom

Your Books have been wonderful. Please continue the great work. I am

willing to buy 10-15 copys to help absorb the cost and you can give

those to people who might not be able to afford the book. Are you

going to make the convention in NYC on June 11? If so I think that

would be a great place to market the book.

Lee

-- In low dose naltrexone , " tom bayuk " <tbayuk@c...>

wrote:

> Hi All,

> I need a little input.

> The first book that I wrote " Coping and Prevailing " was self-

published by me at a cost of $4800. for 1000 books. I sold about

half of them and gave away about half of them and broke even. I did

not write the book to make money but to help other ms'er's. The

second book " 20 Years and Still Coping and Prevailing " cost $4900.

I have given away about 300 of these and sold about 150 and an in

the red.

>

> The latest book " The Things we Don't Talk About " is now ready to

be printed and will cost $5480. for 1000 books.

>

> I am not in a position to absorb this cost and would have to

charge about $ 15.95 per book.

>

> My question to all of you... is there enough interest for me to

proceed?

> Regards,

> Tom

[Guest guest]

Hi Bonnie,

Yes it is, send me your mailing address.

Mine is Tom Bayuk

19868 Cypress Woods Ct.

North Fort Myers, Florida, 33903

Regards,

Tom

[low dose naltrexone] New book >Date: Fri, 4 Feb 2005 11:31:14 -0500 > >Hi All, >I need a little input. >The first book that I wrote "Coping and Prevailing" was self-published by me at a cost of $4800. for 1000 books. I sold about half of them and gave away about half of them and broke even. I did not write the book to make money but to help other ms'er's. The second book "20 Years and Still Coping and Prevailing" cost $4900. I have given away about 300 of these and sold about 150 and an in the red. > >The latest book "The Things we Don't Talk About" is now ready to be printed and will cost $5480. for 1000 books. > >I am not in a position to absorb this cost and would have to charge about $ 15.95 per book. > >My question to all of you... is there enough interest for me to proceed? >Regards, >Tom > > >------------------------------------------------------------------------------ >

[Guest guest]

My address is 94 Cameron Avenue North, Hamilton, Ontario, L8H 4Z2. Please just email the cost and I will forward you a cheque to your address. And again, thanks so much.Bonnie>From: "tom bayuk" <tbayuk@...> >Reply-low dose naltrexone ><low dose naltrexone > >Subject: Re: [low dose naltrexone] New book >Date: Fri, 4 Feb 2005 16:05:16 -0500 > >Hi Bonnie, >Yes it is, send me your mailing address. > >Mine is Tom Bayuk > 19868 Cypress Woods Ct. > North Fort Myers, Florida, 33903 >Regards, >Tom > [low dose naltrexone] New book >Date: Fri, 4 Feb 2005 11:31:14 -0500 > >Hi All, >I need a little input. >The first book that I wrote "Coping and Prevailing" was self-published by me at a cost of $4800. for 1000 books. I sold about half of them and gave away about half of them and broke even. I did not write the book to make money but to help other ms'er's. The second book "20 Years and Still Coping and Prevailing" cost $4900. I have given away about 300 of these and sold about 150 and an in the red. > >The latest book "The Things we Don't Talk About" is now ready to be printed and will cost $5480. for 1000 books. > >I am not in a position to absorb this cost and would have to charge about $ 15.95 per book. > >My question to all of you... is there enough interest for me to proceed? >Regards, >Tom > > >------------------------------------------------------------------------------ >

[Guest guest]

Lee,

Thank you, the feedback has been very positive and I am going ahead.

Regards,

Tom

[low dose naltrexone] Re: New book

>

>

> Hi Tom

> Your Books have been wonderful. Please continue the great work. I am

> willing to buy 10-15 copys to help absorb the cost and you can give

> those to people who might not be able to afford the book. Are you

> going to make the convention in NYC on June 11? If so I think that

> would be a great place to market the book.

>

> Lee

>

>

>

>

>

> -- In low dose naltrexone , " tom bayuk " <tbayuk@c...>

> wrote:

>> Hi All,

>> I need a little input.

>> The first book that I wrote " Coping and Prevailing " was self-

> published by me at a cost of $4800. for 1000 books. I sold about

> half of them and gave away about half of them and broke even. I did

> not write the book to make money but to help other ms'er's. The

> second book " 20 Years and Still Coping and Prevailing " cost $4900.

> I have given away about 300 of these and sold about 150 and an in

> the red.

>>

>> The latest book " The Things we Don't Talk About " is now ready to

> be printed and will cost $5480. for 1000 books.

>>

>> I am not in a position to absorb this cost and would have to

> charge about $ 15.95 per book.

>>

>> My question to all of you... is there enough interest for me to

> proceed?

>> Regards,

>> Tom

>

>

>

>

>

>

>

>

[Guest guest]

Message: 24

Date: Fri, 4 Feb 2005 11:31:14 -0500

From: " tom bayuk " <tbayuk@...>

Subject: New book

Hi All,

I need a little input.

The first book that I wrote " Coping and Prevailing " was self-published by

me at a cost of $4800. for 1000 books. I sold about half of them and gave

away about half of them and broke even. I did not write the book to make

money but to help other ms'er's. The second book " 20 Years and Still

Coping and Prevailing " cost $4900. I have given away about 300 of these

and sold about 150 and an in the red.

The latest book " The Things we Don't Talk About " is now ready to be printed

and will cost $5480. for 1000 books.

I am not in a position to absorb this cost and would have to charge about

$ 15.95 per book.

My question to all of you... is there enough interest for me to proceed?

Regards,

Tom

Tom,

I am finding 20 Years and Still Coping and Prevailing to be helpful enough

that I would be interested in buying the new book. Can't say whether or not

that makes it worthwhile for you to publish it, just wanted to throw my

input in.

Vali

[Guest guest]

Hello Tom,

I am definitely interested in your new book. I really appreciated

what you shared with us in " 20 years and ... " .

Regards

Joanne

--- In low dose naltrexone , " tom bayuk " <tbayuk@c...>

wrote:

>

> My question to all of you... is there enough interest for me to

proceed?

> Regards,

> Tom

[Guest guest]

Hi Joanne,

Thank you.

Regards,

Tom

[low dose naltrexone] Re: New book

>

>

> Hello Tom,

>

> I am definitely interested in your new book. I really appreciated

> what you shared with us in " 20 years and ... " .

>

> Regards

> Joanne

>

>

>>

>> My question to all of you... is there enough interest for me to

> proceed?

>> Regards,

>> Tom

>

>

>

>

>

>

>

>

[Guest guest]

Fantastic! A book that puts it out there for frank discussion. I don't want a book that has to be sold in a plain brown wrapper, but I do want some information that can handle cellophane. Jan

[low dose naltrexone] New Book

Hi Folks,

I just got this from the publisher of our new book "The Things We Don't Talk About". We are almost there.

Regards,

Tom

Hey, Tom/

The new book is looking great, and you’ll have 1st galleys next week. Jon has the cover already, so we’ll be in good shape when you return the galleys.

You know, Tom, I’ve been – I hope objectively – positive on your books, especially the last one though it didn’t do as well as the first. But I can’t help thinking you’ve hit even more of a nerve with this one. To me, this is the type of material Oprah and those shows should be welcoming – especially with your down-to-earth examples and even other people’s experiences. The “Spoons” is a grabber, as well as the gal with the incontinence problem – and her husband’s comment about it! That’s real, and I think exactly what other sufferers would want…along with your frank discussions about sex and bodily functions. Where else are they going to get it?

Anyway, I really hope you can get this one in the hands of the right people for promotion. All you need is some solid exposure and you’ll not only have a hot seller, but you’ll be able to help all the more people because of that.

Just wanted to keep you apprised of progress…and slip my two-cents-worth in!

/Chris

[Guest guest]

Wish you much success with this one Tom. It sounds like something long

over due to help the world understand this disease is not just about

people walking with a cane or sitting in a wheelchair. Helps to see

beyond the obvious to the much deeper issues we deal with.

Thanks for putting it all out there!

Kathy H

On 28-Feb-05, at 4:06 PM, tom bayuk wrote:

> Hi Folks,

> I just got this from the publisher of our new book " The Things We

> Don't Talk About " .  We are almost there.

> Regards,

> Tom

>  

>

> Hey, Tom/

>

>  

>

> The new book is looking great, and you’ll have 1st galleys next week.

> Jon has the cover already, so we’ll be in good shape when you return

> the galleys.

>

>  

>

> You know, Tom, I’ve been – I hope objectively – positive on your

> books, especially the last one though it didn’t do as well as the

> first. But I can’t help thinking you’ve hit even more of a nerve with

> this one. To me, this is the type of material Oprah and those shows

> should be welcoming – especially with your down-to-earth examples and

> even other people’s experiences. The “Spoons” is a grabber, as well as

> the gal with the incontinence problem – and her husband’s comment

> about it! That’s real, and I think exactly what other sufferers would

> want…along with your frank discussions about sex and bodily functions.

> Where else are they going to get it?

>

>  

>

> Anyway, I really hope you can get this one in the hands of the right

> people for promotion. All you need is some solid exposure and you’ll

> not only have a hot seller, but you’ll be able to help all the more

> people because of that.

>

>  

>

> Just wanted to keep you apprised of progress…and slip my

> two-cents-worth in!

>

>  

>

> /Chris

>

>

>

>

[Guest guest]

Dear Friend of ASO:

Information from an author on a new book on Parenting and Sensory Processing Disorders. FYI - Please share.

Sincerely,

Barbara C. YavorcikPresidentAutism Society of Ohio701 S. Main St.Akron, OH 44311(330) 376-0211fax: (330) 376-1226email: askASO@...home: byavorcik@...web: www.autismohio.org Please note: This is provided for information purposes only. The ASO does not endorse or recommend any providers, methodologies or services. Providing this information should not be construed as an endorsement by the ASO, either explicit or impiled.

------------------------------------

From: " Auer" <auers5@...>Subject: from author of book endorsed by carol kranowitz, ann turnbull, others

I’m writing to share information about a book I have written that is endorsed by Rick Lavoie, Ann Turnbull, Carol Kranowitz and other internationally respected authorities in the area of family quality of life and special needs children.

The book is titled "Parenting a Child with Sensory Processing Disorder: A Family Guide to Understanding and Supporting Your Sensory Sensitive Child" ( R. Auer with L. Blumberg, Ph.D., New Harbinger, December 2006). Lucy Jane , Ph.D. has written the foreword. The book introduces sensory processing disorder (spd) and offers an overview of what it means to advocate for a child with the condition. It describes a range of activities that help strengthen family relationships, improve communication about the disorder, and deal with problem situations and conditions a child with SPD may encounter. Throughout, the book stresses the importance of whole-family involvement in the care of a child with SPD, especially the roles fathers play in care-giving. Many of the book’s ideas are illustrated with case stories that demonstrate how the book’s ideas can play out in daily life.

Don Meyer, Director of the Sibling Support Project, The Arc of the United States; Jane Delgado, President and CEO of the National Hispanic Health Alliance; J. Neil Tift, Director of Professional Advancement, National Practitioners Network for Fathers and Families; and Kathy Marshall, Executive Director of the National Resiliency Resource Center - University of Minnesota have contributed interviews.

I would greatly appreciate your assistance in sharing this information with families with children with special needs and their care providers. If you have any questions or, if I can be of any assistance to your work, please contact me.

The book will be in stores December 1

Respectfully,

Auer

Look for Chris' New Book -

Parenting a Child with Sensory Processing Disorder: A Family Guide to Understanding and Supporting Your Sensory-Sensitive Child ( Auer, MA with L.Blumberg, Ph.D., New Harbinger Publications, December 2006) www.newharbinger.com

Sign up for our free newsletter !! www.spdresources.com

In raising children with or without special needs, nothing is more important than the family unit. This book will enable you to enhance your child’s sensory development. Additionally, it will help you ensure that your child and all family members not only survive, but, indeed, THRIVE! When your whole family thrives, you can best ensure your child’s optimum development over the short and long range of life.

Ann Turnbull, Ed.D., Co-Founder and Co-Director, The Beach Center on Disabilities – University of Kansas

Auer and Blumberg have lent their insight, passion, and compassion to this workbook. In so doing they have also provided a guidebook—and a preamble of advocacy for children and their families.

—Morton Ann Gernsbacher, Ph.D., Vilas Research Professor and Sir Frederic C. Bartlett Professor of Psychology at the University of Wisconsin-Madison

It has been said that a family of five is akin to five people lying side-by-side on a waterbed: whenever one person moves, everyone feels the ripple. A child with sensory processing disorder can have a devastating impact upon the day-to-day functioning of a family. There are several books available that provide data and information on the nature of this puzzling disorder, but Auer and Blumberg have written a valuable book that finally provides parents with specific strategies and practical solutions to the daily challenges faced by these special children and their families. While other books define the problem, Auer and Blumberg offer techniques to minimize the effect of the disorder on the child's daily life. I strongly recommend this book to any adult who is parenting a child with a sensory processing problem—and to the professionals who are assisting moms and dads on this challenging journey.

— D. Lavoie, M.A., M.Ed., author of It’s So Much Work to Be Your Friend and executive producer of How Difficult Can This Be? The F.A.T. City Workshop

Finally a book that treats SPD in the full context that it deserves: not as a co-condition or as another obstacle but as a full fledged challenge to the complete inclusion of individuals with unique learning styles. The collaborative integration of the senses accounts for your picking up this book, examining it and deciding on whether to make it part of your library. Auer and Blumberg walk you through how that process is both derailed and rekindled.

—Rick Rader, MD, editor-in-chief of Exceptional Parent magazine and director of the Morton J. Kent Habilitation Center

Read this with a highlighter in hand, because you will want to refer many times to the wise and wonderful ideas in this splendid how-to book. The authors are not only sensitive and resourceful parents of kids with SPD, but also articulate, honest, and sensible writers.

—Carol S. Kranowitz, MA, author of The Out-of-Sync