Feeding Clinic info wanted

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Evening all, Since we have started to wean off of Respardol he has returned to not eatting. Now I admit at 1st I thought it was the addition of Topamx, than I thought maybe all the different meds he is on is making food and drink taste funny, than I thought it was a behavior issue. But the longer it goes on and the more weight he loses I am convinced it is a revisit of the feeding problems we had when he 1st came to live with us at 3. At that time we did not have a DX. The issue was so bad that the school had ensure on his IEP 2X daily and children service (he was a foster child placed with us) got medicaid to pay for ensure at home. Once we got the DX and the doctors started med trials to find what works best for we found respardol. It was his life changing drug. It made the world okay for him to be in, he was less stressed, more social, sensory issue dropped and he started eatting. Of course he

started to gain weight. With most of his meds having a weight gain issue and looking at all the other challenges he faces we did not want obesity being another one. After talking to his doctors we started weaning him off of the respardol. was at 143 in Feb and is down to 115 now. He did have weight to lose. But not this way. He is still within the norm for his age, but we do not want to wait until he reaches the 95 pound mark to look for help. His PCP has agreed to give us a referal to the Cleveland Clinics feeding clinic. We shoul dhave htis Monday. I know I have read post form other who have taken their kids there. Could you educate me as to what I could expect. What do they do? What will I need on that 1st visit? I have looked on their web page for a link to the feeding clinic but can't seem to find it. Any insight would be greatly appreciated. I want to

walk into the 1st visit with all the right info they need and some knowledge of what to expect so I can start preping . Becky Becky Mother to , 16, Autism, Epilepsy, Cerebal Palsy, MR, ADHD Everybody has barriers and obstacles. If you look at them as containing fences that don't allow you to advance, then you're going to be a failure. If you look at them as hurdles that strengthen you each time you go over one, then you're going to be a success. Carson Surgeon

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