Guest guest Posted November 18, 2006 Report Share Posted November 18, 2006 Hi, ! I have a chewer too. Some of it is just sensory, so we got him some "chewies" from the OTs we used to see. I think you can get them online too -- I know Southpaw Enterprises has them, but if Kiernan works with an OT, maybe s/he can get some for you. However, we were told by our doctor that sometimes, when Autistic children especially do this, it may be a sign of GERD (Acid Reflux). So, we did a trial of Zantac for him, and the chewing stopped. Now, I will say that it still comes and goes. Once, we found out that since he had grown and gained weight, his med dosage needed to be adjusted. After the adjustment, the chewing stopped. But, I have noticed that during periods when he's particularly stressed out (oh, say, the HOLIDAYS for instance!!! Yippee.), the chewing comes back. In fact, he's doing it again right now. But, I can tell that it's a stress reaction based on other behaviors, so that's when I'll give him the chewie for a while. I don't know if that's what's up with Kiernan, but maybe it's worth looking into. --Suzanne -----Original Message----- From: mystique2574@... Sent: Sat, 18 Nov 2006 2:26 AM Subject: [ ] advice needed Kiernan has developed a new habit... whenever he is wearing any sort of drawstring pants, long sleeve shirts or even his backpacks.. he's chewing on them.. he chews the drawstrings (which we have now removed all of them) chews on his right sleeve (for some reason it's never the left) and the hanging straps from his backpack... I tried putting him in short sleeve shirts.. but now he pulls it up and chews on the front hem over his tummy... it's been going on a few weeks now.. and I've tried everything from telling him no repeatedly, changing what he is wearing...cutting the extra on the backpack straps... to trying to replace what he's chewing on with something else (chewy..teething ring sort of thing.. or snacks) but nothing has seemed to work so far. There is also no pattern as to when he is doing it... he'll do it while playing.. while we are working.. and even between bites of food while eating.. Any ideas? Thanks! Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2006 Report Share Posted November 18, 2006 Colleen & Suzanne, Thanks for the advice.. I think we are going to work on getting him some of those chewies...I know I've seen them on ebay as well.. but I'll talk to his OT on Monday.. I know I mentioned it to 1 of them and they are the one that suggested giving him snacks that may fill that sensory need (squishy or crunchy or whatever might work) but since that's not working..need to look in another directions.. he's also one that chews holes in his sleeves... or just soaks them to where we need to change shirts on a regular basis.. gotta love these kids..they do give us reasons to be creative! > > Hi, ! > > I have a chewer too. Some of it is just sensory, so we got him some " chewies " from the OTs we used to see. I think you can get them online too -- I know Southpaw Enterprises has them, but if Kiernan works with an OT, maybe s/he can get some for you. > > However, we were told by our doctor that sometimes, when Autistic children especially do this, it may be a sign of GERD (Acid Reflux). So, we did a trial of Zantac for him, and the chewing stopped. Now, I will say that it still comes and goes. Once, we found out that since he had grown and gained weight, his med dosage needed to be adjusted. After the adjustment, the chewing stopped. But, I have noticed that during periods when he's particularly stressed out (oh, say, the HOLIDAYS for instance!!! Yippee.), the chewing comes back. In fact, he's doing it again right now. But, I can tell that it's a stress reaction based on other behaviors, so that's when I'll give him the chewie for a while. > > I don't know if that's what's up with Kiernan, but maybe it's worth looking into. > > --Suzanne > > > -----Original Message----- > From: mystique2574@... > > Sent: Sat, 18 Nov 2006 2:26 AM > Subject: [ ] advice needed > > > Kiernan has developed a new habit... whenever he is wearing any sort > of drawstring pants, long sleeve shirts or even his backpacks.. he's > chewing on them.. he chews the drawstrings (which we have now removed > all of them) chews on his right sleeve (for some reason it's never the > left) and the hanging straps from his backpack... I tried putting him > in short sleeve shirts.. but now he pulls it up and chews on the front > hem over his tummy... it's been going on a few weeks now.. and I've > tried everything from telling him no repeatedly, changing what he is > wearing...cutting the extra on the backpack straps... to trying to > replace what he's chewing on with something else (chewy..teething ring > sort of thing.. or snacks) but nothing has seemed to work so far. > There is also no pattern as to when he is doing it... he'll do it > while playing.. while we are working.. and even between bites of food > while eating.. > > Any ideas? > > Thanks! > > > > > ______________________________________________________________________ __ > Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2006 Report Share Posted November 19, 2006 , I don't remember where you live, but Cleveland Clinic rehab in Westlake always has a bunch of them. That is where I bought mine. They were only $6.50. I know that the therapy place we go to now doesn't carry anything in stock. Colleen > > > > Hi, ! > > > > I have a chewer too. Some of it is just sensory, so we got him > some " chewies " from the OTs we used to see. I think you can get them > online too -- I know Southpaw Enterprises has them, but if Kiernan > works with an OT, maybe s/he can get some for you. > > > > However, we were told by our doctor that sometimes, when Autistic > children especially do this, it may be a sign of GERD (Acid Reflux). > So, we did a trial of Zantac for him, and the chewing stopped. Now, > I will say that it still comes and goes. Once, we found out that > since he had grown and gained weight, his med dosage needed to be > adjusted. After the adjustment, the chewing stopped. But, I have > noticed that during periods when he's particularly stressed out (oh, > say, the HOLIDAYS for instance!!! Yippee.), the chewing comes back. > In fact, he's doing it again right now. But, I can tell that it's a > stress reaction based on other behaviors, so that's when I'll give > him the chewie for a while. > > > > I don't know if that's what's up with Kiernan, but maybe it's worth > looking into. > > > > --Suzanne > > > > > > -----Original Message----- > > From: mystique2574@ > > > > Sent: Sat, 18 Nov 2006 2:26 AM > > Subject: [ ] advice needed > > > > > > Kiernan has developed a new habit... whenever he is wearing any > sort > > of drawstring pants, long sleeve shirts or even his backpacks.. > he's > > chewing on them.. he chews the drawstrings (which we have now > removed > > all of them) chews on his right sleeve (for some reason it's never > the > > left) and the hanging straps from his backpack... I tried putting > him > > in short sleeve shirts.. but now he pulls it up and chews on the > front > > hem over his tummy... it's been going on a few weeks now.. and I've > > tried everything from telling him no repeatedly, changing what he > is > > wearing...cutting the extra on the backpack straps... to trying to > > replace what he's chewing on with something else (chewy..teething > ring > > sort of thing.. or snacks) but nothing has seemed to work so far. > > There is also no pattern as to when he is doing it... he'll do it > > while playing.. while we are working.. and even between bites of > food > > while eating.. > > > > Any ideas? > > > > Thanks! > > > > > > > > > > > _____________________________________________________________________ _ > __ > > Check out the new AOL. Most comprehensive set of free safety and > security tools, free access to millions of high-quality videos from > across the web, free AOL Mail and more. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2011 Report Share Posted March 1, 2011 M It must be very hard for your friend to watch her son using a feeding tube, unfortunate. Another reason for stem cell research, in my opinion, and a whole other debate. I must express my thoughts here, strictly opinion. Impact feeding has shown lots of success and benefits, at this junction I would agree with the medical establishment. I hope for a speedy recovery and return to health. http://www.impactinformation.com/home/index2.htm http://www.nestle-nutrition.com/products/Product.aspx?ProductId=46116ccf-816b-4c\ \ 09-a7e0-0a3cac74a2d0 IMPACT® is the first range of immune enhancing enteral formulas designed to meet the specific needs of critically ill patients. It is clinically proven to: Lower the risk of infection by up to 30% Reduce length of stay by up to 3 days Decrease time spent on a ventilator by 2-3 days Promote 2.5 fewer days of infection Reduce treatment costs Learn more - Clinical Studies " Applying an evidence-based medicine approach, the use of immune-enhancing formulas in critically ill patients represents a level 1 recommendation. " Zaloga GP, 1998 Crit Care Med 26:1143-1146 > > This email below is written by my best friend who is looking for advice. Any help will be greatly appreciated. Many thanks! Margo > > > My 22-year-old son suffered a serious spinal injury and has been confined to an ICU for the past 3 weeks. Yesterday he received a tracheostomy, in place of a breathing tube down his throat. Since he's been under ICU care, he has received only Nestle's Impact formula* as sustenance, and I am very concerned that he's never needed a nutrient dense food-based diet more than right now. We have been told that he may remain on tube feedings for several more weeks or even months. The dietician feels he's receiving proper nutrition, and is so far unwilling to allow augmentation or supplementation to this formula. In addition to being critically injured and paralyzed in arms & legs, my son is battling hospital contracted pneumonia, c-diff intestinal infection, and the trach renders him unable to speak or eat normally. In short, despite heroic efforts of excellent neurosurgeons, my son became ill, almost from the moment he entered the door of the ICU. Nutrition--food as medicine--appears to be the last consideration there. > > My question: I am trying to research some sort of supplementation that will easily pass through a feeding tube--one which the dietician cannot claim may clog the tube or object to for other reasons (ie she claims no added probiotics may be added because of concerns/liabilities re contracting meningitis). As his mom, I'm more than willing to sign release of liability, and am happy to prepare, administer, etc any supplementation-- however, this plea appears to fall on deaf ears. I thought of preparing bone broths, wheatgrass juice, sauerkraut juice, healthy oils, ie flax & cod liver oils....below are the ingredients of the Impact formula. Do you have any suggestions or knowledge about these matters?? Thank you so very much for your help. > > Impact Ingredients > Water, maltodextrin, sodium caseinate (milk protein), palm kernel oil, L-arginine, calcium caseinate, refined menhaden oil, citric acid, sunflower oil, potassium citrate, calcium phosphate tribasic, yeast extract, cellulose gel, sodium citrate, methylparaben†, magnesium chloride, hydroxylated soy lecithin, potassium sorbate†, potassium phosphate dibasic, potassium chloride, sodium ascorbate, choline chloride, calcium carrageenan, cellulose gum, sodium benzoate†, high selenium yeast, high molybdenum yeast, alpha tocopheryl acetate, high chromium yeast, zinc sulfate, ferrous sulfate, niacinamide, alpha tocopherol (to preserve freshness), copper gluconate, calcium pantothenate, manganese sulfate, ascorbyl palmitate (to preserve freshness), thiamine hydrochloride, BHA/BHT (to preserve freshness), beta carotene, vitamin A palmitate, pyridoxine hydrochloride, riboflavin, folic acid, biotin, potassium iodide, phytonadione (vitamin K1), cyanocobalamin (vitamin B12), cholecalciferol (vitamin D3). Product information and values are subject to change. Ingredient and nutrition information current as of April 2008. > Quote Link to comment Share on other sites More sharing options...
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