advice needed

February 10, 2002

Leana,

Just wanted to say welcome to the group and you have come to the right

place!! I'm not from your area, however, we have members that are! I think

you will get some really good responses. Welcome to the group and I hope you

will share a little more of your story with us!

Marci (Mom to )

Oklahoma

February 11, 2002

You might want to contact the Cranial Technologies office in Paramus,

NJ, and ask them if they recommend anyone in that area. I know when

I was taking my son to their office they had patients coming from PA.

Candy, mom to (DOCbanded 10/5/01)

land

> Hello,

>

> my daughter is going to be 13 months old, and she has

plagiocephaly.

> We noticed it long time ago, but hoped it will go away. It didn't.

> Does anybody know a specialist who can prescribe a DOC band in

> Philadelphia area? We live in Reading, Pennsylvania.

>

> Thank you for your help.

> Leana.

February 11, 2002

Hi Leana and welcome to the group! I live in Philadelphia, so howdy

neighbor! Our neurosurgeon wrote us the prescription for the

STARbands, so I'm not sure who to reccommend to you if you want the

DOCband. We saw Dr. Samual Neff at St. 's Hospital for

Children, however I think I remember people mentioning great things

about Dr. Bartlett at CHOP. I'll check the archives for you to see

if Dr. Bartlett writes scripts for the DOCband or not. On a personal

note, I just wanted to add that if for some reason you opt to go with

a STARband instead of the DOC, I can highly reccommend a wonderful

ortho in Philadelphia for you. Be sure to keep us updated and again,

welcome to the group!

Niki

Kaylie & Danny (STAR grads)

Phila., PA

> Hello,

>

> my daughter is going to be 13 months old, and she has

plagiocephaly.

> We noticed it long time ago, but hoped it will go away. It didn't.

> Does anybody know a specialist who can prescribe a DOC band in

> Philadelphia area? We live in Reading, Pennsylvania.

>

> Thank you for your help.

> Leana.

February 11, 2002

Hi Leana- welcome to the board and so glad you found us! I grew up in Boiling Springs and went to college in Hershey so I am quite familiar with Reading- although I live in Memphis, TN now- don't Ask:-) At any rate- we have another Mom from that area but she doesn't post anymore so I cant remember who she saw. Here are some links that might help you-feel free to call the DOC clinic and ask them if they have recommendations for your area they will be more than happy to tell you. Also we have another mother who took her son to Hershey Medical where they made him a locally made helmet and she was very pleased with the results. That would definitely be more accessible to you than the DOC in NJ but you will have to look at all the options. I will email her and ask her what DR she used as well. The links to follow are to find a DR, orthoamerica's web site, DOC web site and orthosis comparison chart to get you started. We are very happy you re here and hope you ill stick around please feel free to ask anything-that is what we are here for. Welcome again and keep up the great mommy work!

Beck Mom to

doc grad

Memphis. TN

Click here: Orthomerica - The Global Orthotic Solution

Click here: Compare cranial molding orthosis (CMO)

Click here: Find a Preferred Physician: Search by Location

Click here: Clinic and Specialist Locations

Click here: Cranial Technologies, Inc., Manufacturer of the DOC Band for Positional Plagiocephaly

February 11, 2002

Ps Leana did not start treatment for her son until later either and was

happy with her results- I am sure she will email soon and I will let you

know.

Beck

February 11, 2002

Does anybody know a specialist who can prescribe a DOC band in Philadelphia area?

Check here.........

http://www.plagiocephaly.org/ppcs-location.asp

Kendra

Advice needed

Hello,my daughter is going to be 13 months old, and she has plagiocephaly. We noticed it long time ago, but hoped it will go away. It didn't. Does anybody know a specialist who can prescribe a DOC band in Philadelphia area? We live in Reading, Pennsylvania.Thank you for your help.Leana.For more plagio info

February 12, 2002

Hi Leana:

I also want to welcome you to our group. I'm not in your area, but

see you have rec'd some responses from others that will hopefully

help. I also want to say to not get discourage because of your

daughter's " older " start if you do in fact get her a band. Some

specialists will tell you she's too old to begin helmet treatment (12

mos some say) but my daughter is proof that's not true. There are

also several other members who have had good results beginning

treatment " older " (strange to talk about a 13 mos old as being OLD,

hehe). My daughter began her DOC treatment at 11.5 mos with severe

plagio & we were still able to get good correction.

I hope you find a specialist in your area. Good luck & let us know

what you find. Welcome again

Debbie Abby's mom DOCGrad

MI

> Hello,

>

> my daughter is going to be 13 months old, and she has

plagiocephaly.

> We noticed it long time ago, but hoped it will go away. It didn't.

> Does anybody know a specialist who can prescribe a DOC band in

> Philadelphia area? We live in Reading, Pennsylvania.

>

> Thank you for your help.

> Leana.

March 13, 2002

I take my daughter to a Pediatric Neurologist and I still have the same

diagnosis as before, which is Dev. Delay. The last time that we were there

I wrote down on the papers that I felt that she had Apraxia and why. He

never even brought up the subject, I had too. Then, he never confirmed or

denied whether he felt that she had it or not. This told me that he doesn't

know much if anything about Apraxia. I am currently looking for a

Developmental or a Behavioral Pediatrician. Maybe your Ped. Neurologist

will be more knowledgeable, but this is just my experience. Dr. Laveman is

the one that suggested that I look for the Developemental or Behavioral Ped.

Thank you

>

>Hello All,

>

> Question for anyone who can help. Finally Doctor is

>listening and we are going to push for a Pediatric Neurologist.

>Is this the best choice for trying to get a formal diagnosis?

>Secondly is there anyway I can show the doctor that this is the best

>way to reach that goal? She listens well, but also doesn't see all

>of 's problems, like we do. She now has seen the report from the

>school, but I am not sure that she will think he needs it.

>

> Sincerely, Crystal

>

>Mom to 5.11 Apraxic and Sensory Issues and ??????

March 13, 2002

Crystal:

What we found most helpful for our PDD, apraxic and

SID son was a developmental pediatrician. A good

developmental pediatrican will do an overall

evaluation of your son and can then direct you to

different specialties as needed. We heven't made any

significant moves without checking with our

developmental ped. and it's paid off very well for us.

Hope that helps!

Jim, dad to 35 month old ph, PDD, apraxia and SID

--- crystal98632 <scmartin@...> wrote:

> Hello All,

>

> Question for anyone who can help. Finally

> Doctor is

> listening and we are going to push for a Pediatric

> Neurologist.

> Is this the best choice for trying to get a formal

> diagnosis?

> Secondly is there anyway I can show the doctor that

> this is the best

> way to reach that goal? She listens well, but also

> doesn't see all

> of 's problems, like we do. She now has seen the

> report from the

> school, but I am not sure that she will think he

> needs it.

>

> Sincerely,

> Crystal

>

> Mom to 5.11 Apraxic and Sensory Issues and

> ??????

>

__________________________________________________

April 25, 2002

This is my thoughts. What kid with speech problems would not be

shy? I think you work on the speech problems, and you fix the

shyness.

I'm not much for over-medicating kids. I'm not a big fan of drugs

like ritalin, except for extreme cases.

Good luck with the new doctor.

Suzi

--- In @y..., " sillybear65 " <sillybear65@h...>

wrote:

> We just got back from seeing another Dr. looking for an Apraxic

Dx.

> He is referring us to another Dr. who works here and in Chicago so

> hopefully he knows something about apraxia. He is a pediatric

> neurodevelopmental diagnostician (I think that I got all of that

> right.) I told him that we were seeing a Ped. Neurologist now and

we

> weren't happy, he said that he doesn't care for that Dr. either.

He

> said that if I didn't like the new Dr. he was sending me to just

to

> tell him. So far I am happy with this new Dr. I am hoping that his

> referral is as good as he claims. Anyway, on to my question.

> This Dr. suggested that we put my daughter on some anxiety

> medication. She is very, very shy. I told him that at home she

is

> her normal, silly, self. When we are not home or when she is at

> school she keeps to herself and she is very shy. She has been

seeing

> her ST for about 2 years and she is still somewhat shy around

her. I

> like this Dr., I am just wondering if others have their kids on

> medication for anxiety. Any guidance would be much appreciated.

He

> had never heard of Efalex, so I filled him in on it. He seemed

> interested.

> Thanks a bunch,

> Sheila

April 26, 2002

I am with you. My son is shy also. I try to introduce him to new

social situations as much as possible. He tends to be his " wildest "

around those kids where he is most comfortable. At home he is at ease

and although isn't always clear does talk. As he becomes more

expressive he is getting better.

denise

> > We just got back from seeing another Dr. looking for an Apraxic

> Dx.

> > He is referring us to another Dr. who works here and in Chicago

so

> > hopefully he knows something about apraxia. He is a pediatric

> > neurodevelopmental diagnostician (I think that I got all of that

> > right.) I told him that we were seeing a Ped. Neurologist now

and

> we

> > weren't happy, he said that he doesn't care for that Dr. either.

> He

> > said that if I didn't like the new Dr. he was sending me to just

> to

> > tell him. So far I am happy with this new Dr. I am hoping that

his

> > referral is as good as he claims. Anyway, on to my question.

> > This Dr. suggested that we put my daughter on some anxiety

> > medication. She is very, very shy. I told him that at home she

> is

> > her normal, silly, self. When we are not home or when she is at

> > school she keeps to herself and she is very shy. She has been

> seeing

> > her ST for about 2 years and she is still somewhat shy around

> her. I

> > like this Dr., I am just wondering if others have their kids on

> > medication for anxiety. Any guidance would be much appreciated.

> He

> > had never heard of Efalex, so I filled him in on it. He seemed

> > interested.

> > Thanks a bunch,

> > Sheila

May 2, 2002

Hi~

I would completely resist the anxiety prescription. My daughter,

now 11, was unbelievably shy and quiet whenever she was outside her

own house. At home and with people that she knew VERY well, she was

lively, talkative and animated. But then we would take her to

Mc's and she would refuse to play in the playland if there were

any other kids in the room. She MIGHT have gone in if her dad went in

with her. Once, when she was almost 5, she had the whole place to

herself and was way up in the tubes when a 2 year old came in and went

right into the tunnels. I knew what was coming...my daughter saw the

2 year old and screamed bloody murder. Her dad had to go get her out!

I'm telling you this because she outgrew it. She's still a quieter

kid around other people, but she handles herself well. We even chose

to put her in a tiny parochial school instead of the local public

school because we felt she would do so much better in a tiny, close

knit environment where they would be willing to take her at her own

pace. She's an awesome kid and I feel that we did everything right by

her. We were just patient, and we made a few accomodations for her.

I'm really opposed to putting children on medicine. Sure they say

it's safe, but how do they know what the long-term effects are? How

many times have they been wrong before? (Phen-fen, redux, rotovirus

and MMR vacines.) Good Luck.

January 17, 2005

-- [low dose naltrexone] advice needed

I have the Naltrexone as 50 mg tablets.I disolve it in 50 ml water.I then syringe out 3.5 ml at night.Is this the correct dose.If not please putme correct.Rog (uk)

January 17, 2005

hi rog,

that's what do also, except now i'm on a dose of 4.5mg. i have been on ldn 4months.

raelene

-- [low dose naltrexone] advice needed

I have the Naltrexone as 50 mg tablets.I disolve it in 50 ml water.I then syringe out 3.5 ml at night.Is this the correct dose.If not please putme correct.Rog (uk)

January 17, 2005

--- In low dose naltrexone , " roger " <rogdodge_uk@y...>

wrote:

>

> I have the Naltrexone as 50 mg tablets.I disolve it in 50 ml water.I

> then syringe out 3.5 ml at night.Is this the correct dose.If not

> please putme correct.Rog (uk)

I cut mine in half on that line you see on one side of the ReVia pill.

I mix 25mg into 25ml of distilled water and keep it in the fridge. I

take 4.5ml

This way it is fresher.

Johanne F

September 1, 2006

--- In , " mccallalton " <mccallalton@...>

wrote:

>

> i will be spending the night in a house might buy tonight--all

> hardwoods on a slab. tile in baths. any suggestions?

>

I would have some serious reservations about hardwood floors that are

placed on a slab. Concrete is like a sponge and unless the concrete

had some water proofing done to it before the floors were put down

you will have a moisture problem. If you can find out what was done

to the concrete before the floors were put down, it would be very

helpful. Also, if there happens to be any place where the floor is

loose I would ask to look under the hardwood.

As far as tile in the bathroom take the time to look for ANY cracks

in the grout and any thing that looks like cracks were repaired.

Unfortunetly with repairs in grout there is no way to know how long

the current owner took to repair the crack. If the cracks were left

for too long, it doesn't take long for water and moisture to get into

there and cause damage and possibile mold growth.

I hope this helps.

September 1, 2006

the thing is i have more trouble in this house than the one i stayed in.

hotsandonmyfeet <hotsandonmyfeet@...> wrote: --- In

, " mccallalton " <mccallalton@...>

wrote:

>

> i will be spending the night in a house might buy tonight--all

> hardwoods on a slab. tile in baths. any suggestions?

>

I would have some serious reservations about hardwood floors that are

placed on a slab. Concrete is like a sponge and unless the concrete

had some water proofing done to it before the floors were put down

you will have a moisture problem. If you can find out what was done

to the concrete before the floors were put down, it would be very

helpful. Also, if there happens to be any place where the floor is

loose I would ask to look under the hardwood.

As far as tile in the bathroom take the time to look for ANY cracks

in the grout and any thing that looks like cracks were repaired.

Unfortunetly with repairs in grout there is no way to know how long

the current owner took to repair the crack. If the cracks were left

for too long, it doesn't take long for water and moisture to get into

there and cause damage and possibile mold growth.

I hope this helps.

September 1, 2006

people need to know to get out of musty moldy houses. i have stayed too long.

dont really clear good anymore. i need to move but is it too late???

Leigh McCall-Alton <mccallalton@...> wrote: the thing is i have

more trouble in this house than the one i stayed in.

hotsandonmyfeet <hotsandonmyfeet@...> wrote: --- In

, " mccallalton " <mccallalton@...>

wrote:

>

> i will be spending the night in a house might buy tonight--all

> hardwoods on a slab. tile in baths. any suggestions?

>

I would have some serious reservations about hardwood floors that are

placed on a slab. Concrete is like a sponge and unless the concrete

had some water proofing done to it before the floors were put down

you will have a moisture problem. If you can find out what was done

to the concrete before the floors were put down, it would be very

helpful. Also, if there happens to be any place where the floor is

loose I would ask to look under the hardwood.

As far as tile in the bathroom take the time to look for ANY cracks

in the grout and any thing that looks like cracks were repaired.

Unfortunetly with repairs in grout there is no way to know how long

the current owner took to repair the crack. If the cracks were left

for too long, it doesn't take long for water and moisture to get into

there and cause damage and possibile mold growth.

I hope this helps.

September 1, 2006

-Leigh, I dont know about anyone else but there was a point with me

where I didn't fell better when I left the house and instead had

withdrawel type symptoms that were horrorable, dont wait until you

get to that point. and thanks for the complament but sometimes i dont

fell to smart anymore, its like its still there but the ends dont

aways connect. it has to do with why I get so aggervated with myself.

I was told that its good to work the brain and felt like the research

I was doing was helping do that even though I had to keep notes to

keep me from forgetting what I was doing, and any distraction causes

me to loose my train of thought so when I research something I have

to give it my full attention and make notes on what I want to

remember,lol's not fun, this last slam has not helped. so yes, things

can get alot

worse.

-- In

, Leigh McCall-Alton <mccallalton@...>

wrote:

>

> people need to know to get out of musty moldy houses. i have

stayed too long. dont really clear good anymore. i need to move but

is it too late???

>

> Leigh McCall-Alton <mccallalton@...> wrote: the thing is i

have more trouble in this house than the one i stayed in.

>

> hotsandonmyfeet <hotsandonmyfeet@...> wrote:

> >

> > i will be spending the night in a house might buy tonight--all

> > hardwoods on a slab. tile in baths. any suggestions?

> >

>

> I would have some serious reservations about hardwood floors that

are

> placed on a slab. Concrete is like a sponge and unless the concrete

> had some water proofing done to it before the floors were put down

> you will have a moisture problem. If you can find out what was done

> to the concrete before the floors were put down, it would be very

> helpful. Also, if there happens to be any place where the floor is

> loose I would ask to look under the hardwood.

>

> As far as tile in the bathroom take the time to look for ANY cracks

> in the grout and any thing that looks like cracks were repaired.

> Unfortunetly with repairs in grout there is no way to know how long

> the current owner took to repair the crack. If the cracks were left

> for too long, it doesn't take long for water and moisture to get

into

> there and cause damage and possibile mold growth.

>

> I hope this helps.

>

September 1, 2006

Leigh McCall-Alton <mccallalton@...> wrote:

>

> people need to know to get out of musty moldy houses. i have stayed

too long. dont really clear good anymore. i need to move but is it

too late???

>

No, it is not too late, but the " unexpected worsening " type symptoms

are a normal and predictable consequence of toxin " dissociation " from

tissues. It is another sign that action must be taken before the

situation gets worse.

It is " Intensification Reaction " : described in Mold Warriors.

-

September 1, 2006

even my husband itched in the empty house we stayed in. there was something on

the ceilings near the vents in the living room and dining room ceilings. he

thought it was dust. i need to get out of here but that house has been empty

for 45 days and tenants had been in there for 3 years. the air filters were

really dusty.

who <jeaninem660@...> wrote: -Leigh, I dont know about anyone

else but there was a point with me