RE: Advocates, Advocates, Anyone, Anyone?...

[Guest guest]

I wouldn’t

let them see everything from the psych file, with ours I removed anything that

might come back to bite us For instance, my son had a deep depression following

some trauma, so deep in fact he started hearing voices and having hallucinations,

which they call psychosis. The iep coordinator wanted to bring up to him that

she knew that he had psychosis on the first day of school, she also told me

psychosis isn’t stress induced, so I had to go get proof from our psych.

I would get the file yourself so you can see what’s in it, and only give

them what they NEED to know. I wouldn’t let them talk to anyone without

you there, whatever info they need, I would have them go through you to get it,

I wouldn’t let them cut you out of the picture. Also there’s a new

change in idea which says that anyone you don’t want on your team doesn’t

have to be there. Suzanne maybe you could you could send your list to n

when you’re done so she can save it as a group file.

-----Original Message-----

From:

[mailto: ] On Behalf

Of SBShaft@...

Sent: Wednesday, October 25, 2006

4:16 PM

Subject: [ ] Advocates,

Advocates, Anyone, Anyone?...

Hi, all...

And, here's the latest:

Instead of answering my letter, they sent home a bunch

of medical release forms -- they want to talk to the child psych and get her

records on my son. Of course, in reading these forms and all of their

legalese, it warns that the district " cannot assume responsibility for the

confidentiality of educational information disclosed, " and you are

authorizing them to get your child's " protected health information, "

and that this information " may be subject to re-disclosure by the

recipient and no longer protected by federal laws and regulations regarding the

privacy of my child's protected health information. "

Okay...I used to work in insurance, but that was

pre-HIPPA laws. I'm usually pretty good at this stuff, but I don't like

some of this wording AT ALL. I'm sure it's standard, but this is stuff

from my kid's PSYCH. So, obviously, I need an advocate. Quickly.

I've received some names from some folks

already. But if there were any other really great advocates that helped

anyone out there and you don't mind sharing them, please help! I want to

be able to compile a list and just make a bunch of calls tomorrow. Also,

do advocates charge like lawyers do?

By the way, the didn't really answer my question

regarding the removal of the PEP Cleveland person from my son's life and

team. All they said was that the services of an outside Autism consultant

were secured. Okay, great...but who is this person, where do they come

from, what are their credentials -- don't know!

My head is pounding. And I want to throw

up.

Any additional help would be greatly

appreciated. Thanks to all who have responded so far and given me some

names.

--Suzanne

Check out the new AOL.

Most comprehensive set of free safety and security tools, free access to

millions of high-quality videos from across the web, free AOL Mail and more.

[Guest guest]

Have you ever dealt with CMR? They are the oldest chapter of the

oldest and largest advocacy organization in the U.S. (ARC of the US)

Their number is 216.341.5488 They are a not-for-profit and charge

nothing. I am impressed with what they do beyond belief. Give them a

call, do an 'in-take' and tell them what you're dealing with and what

you need help with...

>

> Hi, all...

>

> And, here's the latest:

>

> Instead of answering my letter, they sent home a bunch of medical

release forms -- they want to talk to the child psych and get her

records on my son. Of course, in reading these forms and all of their

legalese, it warns that the district " cannot assume responsibility for

the confidentiality of educational information disclosed, " and you are

authorizing them to get your child's " protected health information, "

and that this information " may be subject to re-disclosure by the

recipient and no longer protected by federal laws and regulations

regarding the privacy of my child's protected health information. "

>

> Okay...I used to work in insurance, but that was pre-HIPPA laws.

I'm usually pretty good at this stuff, but I don't like some of this

wording AT ALL. I'm sure it's standard, but this is stuff from my

kid's PSYCH. So, obviously, I need an advocate. Quickly.

>

> I've received some names from some folks already. But if there were

any other really great advocates that helped anyone out there and you

don't mind sharing them, please help! I want to be able to compile a

list and just make a bunch of calls tomorrow. Also, do advocates

charge like lawyers do?

>

> By the way, the didn't really answer my question regarding the

removal of the PEP Cleveland person from my son's life and team. All

they said was that the services of an outside Autism consultant were

secured. Okay, great...but who is this person, where do they come

from, what are their credentials -- don't know!

>

> My head is pounding. And I want to throw up.

>

> Any additional help would be greatly appreciated. Thanks to all who

have responded so far and given me some names.

>

> --Suzanne

> ________________________________________________________________________

> Check out the new AOL. Most comprehensive set of free safety and

security tools, free access to millions of high-quality videos from

across the web, free AOL Mail and more.

>