Re: Enzyme Question

[Guest guest]

I don't think Demio will mind discussing alternatives with you. I would just mention your concerns about Kirkman's not having a chewable. Janespshaft05 <SBShaft@...> wrote: Hi, everyone!A little over a year ago, we had our youngest son on digestive enzymes for a few reasons. We wanted to see if they would help him at all, and to see if we could minimize the effects of gluten while we added it back to his diet so that he could get a Celiac Disease test. We did hear a bit more speech on the enzymes

for a little while. We took him off the enzymes because they don't help Celiac Disease anyway, and he obviously had to go on a gluten-free diet once he tested positive for Celiac. We found that we could put him back on some dairy as long as it did not contain lactose. This is helpful now that he is on a soy milk and Dari-Free strike. For a while there, he would also not take his calcium supplements. Now he will, but he will still have nothing to do with anything but water to drink. The enzymes were also quite expensive and he cannot swallow capsules...which meant I had to open them up and mix them into stuff so he would take them. It worked as well as it possibly could. But the stress and expense got to be a bit too much for all involved. My husband wants to take him to see Dr. DeMio, but that won't be until October. I see on Dr. DeMio's website that he seems to prefer Kirkman Labs for enzymes. I don't see a

chewable digestive enzyme supplement form on their site. There is one on Houston Neutraceuticals, but we don't want to start him on one just to have to switch him back to another if we decide to put him back on enzymes. Is Dr. DeMio pretty strict about using Kirkman? What do you do in the case of a child who cannot swallow pills or capsules?Thanks for the help.--Suzanne

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[Guest guest]

I agree. That was my impression of him, too. October is so far, too, so by that time at least you could tell if the enzymes made any difference, at all. It's a good trial period, I think!!! I am / we are using the Houston's enzymes and they work well for us. It's always hard to tell what they exactly do to my son b/c he is non-verbal, but the BMs have been more regular. I feel MUCH better on the myself...!!! we are using the powder form, btw, cause my son won't chew, and this way I can mix them into anything and give it to him in a syringe. They are almost tasteless...the Kirkman's one is very stong tasting, however.... I hear they are both good products, though, the best ones out there.... HTH jane milota <autismjtm@...> wrote: I don't think Demio will mind discussing alternatives with you. I would just mention your concerns about Kirkman's not having a chewable. Janespshaft05 <SBShaft@...> wrote: Hi, everyone!A little over a year ago, we had our youngest son on digestive enzymes for a few reasons. We wanted to see if they would help him at all, and to see if we could minimize the effects of gluten while we added it back to his diet so that he could get a Celiac Disease test. We did hear a bit more speech on the enzymes for a

little while. We took him off the enzymes because they don't help Celiac Disease anyway, and he obviously had to go on a gluten-free diet once he tested positive for Celiac. We found that we could put him back on some dairy as long as it did not contain lactose. This is helpful now that he is on a soy milk and Dari-Free strike. For a while there, he would also not take his calcium supplements. Now he will, but he will still have nothing to do with anything but water to drink. The enzymes were also quite expensive and he cannot swallow capsules...which meant I had to open them up and mix them into stuff so he would take them. It worked as well as it possibly could. But the stress and expense got to be a bit too much for all involved. My husband wants to take him to see Dr. DeMio, but that won't be until October. I see on Dr. DeMio's website that he seems to prefer Kirkman Labs for enzymes. I don't see a chewable

digestive enzyme supplement form on their site. There is one on Houston Neutraceuticals, but we don't want to start him on one just to have to switch him back to another if we decide to put him back on enzymes. Is Dr. DeMio pretty strict about using Kirkman? What do you do in the case of a child who cannot swallow pills or capsules?Thanks for the help.--Suzanne Music Unlimited - Access over 1 million songs. Try it free.

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[Guest guest]

Dr. DeMio works WITH his patients and their parents. You will never

be intimidated into trying an intervention that you are not

comfortable with, no matter how much success he has seen in other

cases. At our first visit, he suggested the gf/cf diet. He explained

the whole gluten/casein/opiate thing to us and I could see my

daughter's face. She knew that this was something that she simply

could not do in a household of 6 people, especially when she was

still trying to make sense of her son's dx and what it meant. I had

to agree as I knew she could not handle implementing this diet...at

least not at that time. I asked about enzymes as I had just finished

reading " Enzymes for Autism and other Neurological Conditions " by

DeFelice. He then gave us a sample bottle (yes it was the

Kirkman's) and said that some kids did ok on them. He never made her

feel bad, he never said that he would put off chelation because of

it.

We did start the diet several months later after doing research

that convinced us to give it a try, and are seeing good things.

There were other things throughout Noah's treatment that we simply

didn't want to do. Deb got tired of fighting with him over cod liver

oil, so we figured out another way to get the vitamin A and fatty

acids in him. Noah is not taking his calcium, amino acids or AKA.

Instead of telling us " too bad, just force it down him " , he simply

picked up the phone, called Adam at Lee-Silsby and they discussed

alternative ways to make these things more kid friendly. We're still

working on some things. Instead of the ASD vitamins, I asked him

about Trader Joe's gummi-vites. He read the bottle, compared labels,

checked ingredients... and with a few other protocol adjustments...

Noah is doing fine with this.

Dr. DeMio has a son on the spectrum, so he knows what goes on

behind the scenes. He is very sensitive to each child, the parents

and their unique situations. If you have found a good chewable

enzyme that you think your son will take, just bring in the bottle

or a list of ingredients so that he can compare them with the

Kirkman's. If there is something that is missing, he will help you

to figure something out.

Good luck!

TRish

>

> Hi, everyone!

>

> A little over a year ago, we had our youngest son on digestive

> enzymes for a few reasons. We wanted to see if they would help

him

> at all, and to see if we could minimize the effects of gluten

while

> we added it back to his diet so that he could get a Celiac Disease

> test. We did hear a bit more speech on the enzymes for a little

> while. We took him off the enzymes because they don't help Celiac

> Disease anyway, and he obviously had to go on a gluten-free diet

once

> he tested positive for Celiac. We found that we could put him

back

> on some dairy as long as it did not contain lactose. This is

helpful

> now that he is on a soy milk and Dari-Free strike. For a while

> there, he would also not take his calcium supplements. Now he

will,

> but he will still have nothing to do with anything but water to

> drink. The enzymes were also quite expensive and he cannot

swallow

> capsules...which meant I had to open them up and mix them into

stuff

> so he would take them. It worked as well as it possibly could.

But

> the stress and expense got to be a bit too much for all involved.

>

> My husband wants to take him to see Dr. DeMio, but that won't be

> until October. I see on Dr. DeMio's website that he seems to

prefer

> Kirkman Labs for enzymes. I don't see a chewable digestive enzyme

> supplement form on their site. There is one on Houston

> Neutraceuticals, but we don't want to start him on one just to

have

> to switch him back to another if we decide to put him back on

> enzymes. Is Dr. DeMio pretty strict about using Kirkman? What do

> you do in the case of a child who cannot swallow pills or capsules?

>

> Thanks for the help.

>

> --Suzanne

>