Questions..

[Guest guest]

I have seen a lot of differnt figures flying around lately and am

wondering.. how you all do it??

Just before we started the process of buying a new home.. our son's

testing, misdiagnosis and diagnosis drained our savings. We are

renting a home at this time.. and barely making it paycheck to

paycheck. Many weeks we are robbing peter to pay paul so to speak.

I have been a stay at home mom since my daughter was born since she

was a preemie and could not be put in daycare the first year of her

life.. I attempted to go back to work a few times now.. losing my

last 2 jobs to either caregivers that called to frequently for me to

come get my son because they couldn't handle him or me calling off

because I either did not have a caregiver or my son had therapy or

doctor's appointments that required me to be there.

My son was first diagnosed as being hearing impaired in both ears..

which I knew couldn't be the case since he could be upstairs and we

could have the tv on the lowest volume but if Dora or came on

and the theme song was playing he'd come running. We got a second

opinion and soon followed up with a neurologist who gave us the

diagnosis of ASD w/ADD. We were with the help me grow program but

most of the help was geared towards the hearing impairment and we

got the new diagnosis just 3 months before he got transferred out of

help me grow and into the school district.. so everything we have

done has pretty much been trial and error on my part. My son

currently takes risperdal 2 mg a day.. and sees speech and

occupational therapists as well as a child psychologist. He attends

2 preschools, our school districts as well as a private one in

Middleburg Hts that we pay for because we weren't sure how the

transition into the school district would be and he was already

comfortable at MEEC.

I've heard alot about ABA, Bio-medical, gfcf diets, supplements and

tons of other things that I'm not familiar with and am not sure if

we should try with my son. We did try the gfcf thing and he refused

to eat any of the new foods whatsoever not to mention it was killing

my entire food budget for 4 in just one trip to get his groceries.

I have thought about taking him to Osteomed or Dr Demio.. but the

fact that I know up front our Insurance won't pay a cent and we

don't have the extra to put out for it is the main reason that we

haven't done so.

Anyone care to share, and please don't take this the wrong way, but

in layman's terms, their experiences and how they handle it all

financially?

Also, I know that there are monthly meetings for ASGC, but I am

unable to attend any of those since they are on Wednesday's before

my husband gets home from work and we wouldn't be able to get a

sitter to attend anyway. I am able to get a sitter on the weekend

and have a place to meet in Brook Park that would not cost a thing

to anyone. Would anyone be interested in meeting on say a Sunday

afternoon for group discussions? I'll even provide the coffee! LOL

I've also posted pictures of my kids in the photos section, what a

great idea! (Btw.. Shane your son is absolutely precious!!)

Thanks in advance.. and hope that no one minds me making this

post..Sorry it ended up being so long!! Guess when I start rambling

it is hard to get me to shut up.. LOL.. ok.. shutting up now!

Hope everyone has a great day and gets to enjoy the sunshine!

J

Olmsted Falls

Proud Mom of igh, 5 and Kiernan 4