Re: Newly diagnosed with C toma

[Guest guest]

Glad you found the board, Bettie! There's a lot of plenty of info

here and a lot of very supportive people who can completely

empathize! Welcome.

Anyway. Merry Christmas to all, and may your packing dissolve

quickly!

>

>

> Happy Holidays to all ! Found your site and failed 1st attempt to

> post. Hope this one sticks. I was diagnosed with C toma in my

left

> ear a few days ago. Knowing nothing, but searching the internet

> since, I have learned quite a bit. My ENT is referring me to

> Columbia Univ Hosp at NY Presbyterian Hosp for surgery. Has anyone

> used this facility for this surgery? I have searched their site

> also, and have as much info as possible from it. I will be seeing

> my ENT when he returns from vacation 01/03/05 for referral. Any

> suggestions, ideas etc very welcome and much appreciated. Thanks

so

> much for sharing your stories. Now, instead of being scared to

> death, I am just scared, for I know I am not alone.

>

> Bettie

[Guest guest]

--- \

, Thanks for your words of encouragement. Good luck in your own

recovery there! I reside in northern NJ and am wondering how I

could get info on someone else in my area who may have used doctors

or hospitals in this area?? I have not yet made any appts, as I am

still researching for the best possible care in the area. Thanks

again and Merry Christmas!!

Bettie

In cholesteatoma , " " <anna@g...> wrote:

>

> Glad you found the board, Bettie! There's a lot of plenty of info

> here and a lot of very supportive people who can completely

> empathize! Welcome.

>

> Anyway. Merry Christmas to all, and may your packing dissolve

> quickly!

>

>

>

>

>

> >

> >

> > Happy Holidays to all ! Found your site and failed 1st attempt

to

> > post. Hope this one sticks. I was diagnosed with C toma in my

> left

> > ear a few days ago. Knowing nothing, but searching the internet

> > since, I have learned quite a bit. My ENT is referring me to

> > Columbia Univ Hosp at NY Presbyterian Hosp for surgery. Has

anyone

> > used this facility for this surgery? I have searched their site

> > also, and have as much info as possible from it. I will be

seeing

> > my ENT when he returns from vacation 01/03/05 for referral. Any

> > suggestions, ideas etc very welcome and much appreciated.

Thanks

> so

> > much for sharing your stories. Now, instead of being scared to

> > death, I am just scared, for I know I am not alone.

> >

> > Bettie

[Guest guest]

Bettie,

Sorry to hear that you have C-toma. I would like to make you

feel easier about it. I am a 38 year old man and I was scared silly

about c-toma and the surgery. I had surgery 17 days ago and it was

ok. Not fun by any means, but honestly if I could do it I am sure

you will breaze right through. This board and the people on here

are a great resourse as wel as being a very nice group of people.

Ask any questions you might have and they will help if they can and

offer lots of encouragement. It is ok and you will be ok too.

Terrance

>

>

> Happy Holidays to all ! Found your site and failed 1st attempt

to

> post. Hope this one sticks. I was diagnosed with C toma in my

left

> ear a few days ago. Knowing nothing, but searching the internet

> since, I have learned quite a bit. My ENT is referring me to

> Columbia Univ Hosp at NY Presbyterian Hosp for surgery. Has

anyone

> used this facility for this surgery? I have searched their site

> also, and have as much info as possible from it. I will be seeing

> my ENT when he returns from vacation 01/03/05 for referral. Any

> suggestions, ideas etc very welcome and much appreciated. Thanks

so

> much for sharing your stories. Now, instead of being scared to

> death, I am just scared, for I know I am not alone.

>

> Bettie

[Guest guest]

Thankyou Terrance for your kind words of encouragement. This board

has so much to offer and I am so grateful that I stumbled upon it.

I think my anxiety will lessen once I have a clearer picture of how

extensive the c toma actually is. I have decided not to wait for my

ENT to come back from his vacation for his referral to a

specialist. I am calling the hospital in NY tomorrow and scheduling

a consult visit. I am using the " Best Doctors " list. There are

several otologists who specialize in tumors of the ear, and one who

I believe is the DR my ENT was referring me to next week anyway. I

cant wait another week. I want this thing out of me yesterday.

Best Wishes for a speedy recovery!

Bettie

cholesteatoma , " bryantsinalaska "

<bryantsinalaska@y...> wrote:

>

>

> Bettie,

>

> Sorry to hear that you have C-toma. I would like to make you

> feel easier about it. I am a 38 year old man and I was scared

silly

> about c-toma and the surgery. I had surgery 17 days ago and it

was

> ok. Not fun by any means, but honestly if I could do it I am sure

> you will breaze right through. This board and the people on here

> are a great resourse as wel as being a very nice group of people.

> Ask any questions you might have and they will help if they can

and

> offer lots of encouragement. It is ok and you will be ok too.

>

> Terrance

>

> >

> >

> > Happy Holidays to all ! Found your site and failed 1st attempt

> to

> > post. Hope this one sticks. I was diagnosed with C toma in my

> left

> > ear a few days ago. Knowing nothing, but searching the internet

> > since, I have learned quite a bit. My ENT is referring me to

> > Columbia Univ Hosp at NY Presbyterian Hosp for surgery. Has

> anyone

> > used this facility for this surgery? I have searched their site

> > also, and have as much info as possible from it. I will be

seeing

> > my ENT when he returns from vacation 01/03/05 for referral. Any

> > suggestions, ideas etc very welcome and much appreciated.

Thanks

> so

> > much for sharing your stories. Now, instead of being scared to

> > death, I am just scared, for I know I am not alone.

> >

> > Bettie