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Hi everyone, I had my second ctoma surgery on Aug 18. I lost the two inner most bones at my first surgery 5 years ago. This time, the prosthethes was removed. Yesterday was a pretty decent day, the dizziness was much better. Today, not so dizzy, but now my sense of taste is like YUCK! And nausea, I took the medicine my doctor gave me and I am hoping I'll feel better soon. I am hoping someone can tell me if this happened to them and how long it will last - it was tough trying to make dinner for this kids with this horrible taste in my mouth that I can't get rid of. Thanks.

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Hi ,

I can't speak for everyone else but after my first surgery I couldn't taste anything for almost a month. Everything just tasted like cardboard. I think this is just a side effect from the surgery and possibly from a bit of nerve damage. Anyways, the good news is that it didn't last!!

good luck!

From: Rusnak <jrflyfish@...>Subject: Anyone else tastebuds off?cholesteatoma Date: Friday, September 5, 2008, 6:02 PM

Hi everyone, I had my second ctoma surgery on Aug 18. I lost the two inner most bones at my first surgery 5 years ago. This time, the prosthethes was removed. Yesterday was a pretty decent day, the dizziness was much better. Today, not so dizzy, but now my sense of taste is like YUCK! And nausea, I took the medicine my doctor gave me and I am hoping I'll feel better soon. I am hoping someone can tell me if this happened to them and how long it will last - it was tough trying to make dinner for this kids with this horrible taste in my mouth that I can't get rid of. Thanks.

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,

I have one gastronomic suggestion for you. Many Asian restaurants have

a curry chicken dish. If you find one with the creamier curry sauce,

that is like heaven on earth for those of us that temporarily lose our

taste. The curry sauce may be quite pleasant! Even after getting my

taste back, I dearly love Thai Curry Chicken - my wife calls it Thai

Curry Slop and just rolls her eyes when I ask for it. I plan to spend

the rest of my days sampling everyone's version of the meal.

Matt

Jo Watters wrote:

>

> Hi ,

> I can't speak for everyone else but after my first surgery I

> couldn't taste anything for almost a month. Everything just tasted

> like cardboard. I think this is just a side effect from the surgery

> and possibly from a bit of nerve damage. Anyways, the good news is

> that it didn't last!!

> good luck!

>

>

>

> From: Rusnak <jrflyfish@...>

> Subject: Anyone else tastebuds off?

> cholesteatoma

> Date: Friday, September 5, 2008, 6:02 PM

>

> Hi everyone, I had my second ctoma surgery on Aug 18. I lost the

> two inner most bones at my first surgery 5 years ago. This time,

> the prosthethes was removed. Yesterday was a pretty decent day,

> the dizziness was much better. Today, not so dizzy, but now my

> sense of taste is like YUCK! And nausea, I took the medicine my

> doctor gave me and I am hoping I'll feel better soon. I am hoping

> someone can tell me if this happened to them and how long it will

> last - it was tough trying to make dinner for this kids with this

> horrible taste in my mouth that I can't get rid of. Thanks.

>

>

>

--

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Hi -

My sister had ear surgery and experienced a taste problem also - to her

everything tasted like butter! When I had my tonsils out I had the

problem but things tasted like metal, but it went away after a couple of

months.

Best wishes!

Jo Watters wrote:

> Hi ,

> I can't speak for everyone else but after my first surgery I

> couldn't taste anything for almost a month. Everything just tasted

> like cardboard. I think this is just a side effect from the surgery

> and possibly from a bit of nerve damage. Anyways, the good news is

> that it didn't last!!

> good luck!

>

>

>

> From: Rusnak <jrflyfish@sbcglobal .net>

> Subject: Anyone else tastebuds off?

> cholesteatoma

> Date: Friday, September 5, 2008, 6:02 PM

>

> Hi everyone, I had my second ctoma surgery on Aug 18. I lost the

> two inner most bones at my first surgery 5 years ago. This time,

> the prosthethes was removed. Yesterday was a pretty decent day,

> the dizziness was much better. Today, not so dizzy, but now my

> sense of taste is like YUCK! And nausea, I took the medicine my

> doctor gave me and I am hoping I'll feel better soon. I am hoping

> someone can tell me if this happened to them and how long it will

> last - it was tough trying to make dinner for this kids with this

> horrible taste in my mouth that I can't get rid of. Thanks.

>

>

>

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The commonest reason for taste disturbance after ear surgery is due to

disturbance to/ cutting of something called the chorda tympani. This

is a nerve that is a branch of the facial nerve and it runs from the

facial nerve (where it is running down to leave the ear) across the

middle ear before leaving at the front. It ultimately supplies taste

sensation to the front 2/3rds of the tongue.

Unfortunately in cholesteatoma surgery it is often necessary to divide

it to remove the disease. In a lot of cases, because of the disease

and infection often associated with it, the nerve is not working

anyway. However there will always be people who do suffer this

unpleasant symptom. Fortunately it usually settles in time, which I

hope the majority of forum members who have suffered this can confirm.

In other ear surgery (tympanoplasty, stapedectomy) it is also

vulnerable- my practice is always to warn people of this risk.

>

> Hi everyone, I had my second ctoma surgery on Aug 18. I lost the two

inner most bones at my first surgery 5 years ago. This time, the

prosthethes was removed. Yesterday was a pretty decent day, the

dizziness was much better. Today, not so dizzy, but now my sense of

taste is like YUCK! And nausea, I took the medicine my doctor gave me

and I am hoping I'll feel better soon. I am hoping someone can tell me

if this happened to them and how long it will last - it was tough

trying to make dinner for this kids with this horrible taste in my

mouth that I can't get rid of. Thanks.

>

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Usually cutting of Chora typmani does not posses any problem, if one is not aware ofits funcion, as the other side nerve takes care of taste

Arun

On 9/7/08, entmjwareing <entmjwareing@...> wrote:

The commonest reason for taste disturbance after ear surgery is due todisturbance to/ cutting of something called the chorda tympani. Thisis a nerve that is a branch of the facial nerve and it runs from the

facial nerve (where it is running down to leave the ear) across themiddle ear before leaving at the front. It ultimately supplies tastesensation to the front 2/3rds of the tongue.Unfortunately in cholesteatoma surgery it is often necessary to divide

it to remove the disease. In a lot of cases, because of the diseaseand infection often associated with it, the nerve is not workinganyway. However there will always be people who do suffer thisunpleasant symptom. Fortunately it usually settles in time, which I

hope the majority of forum members who have suffered this can confirm.In other ear surgery (tympanoplasty, stapedectomy) it is alsovulnerable- my practice is always to warn people of this risk.

>> Hi everyone, I had my second ctoma surgery on Aug 18. I lost the twoinner most bones at my first surgery 5 years ago. This time, theprosthethes was removed. Yesterday was a pretty decent day, thedizziness was much better. Today, not so dizzy, but now my sense of

taste is like YUCK! And nausea, I took the medicine my doctor gave meand I am hoping I'll feel better soon. I am hoping someone can tell meif this happened to them and how long it will last - it was toughtrying to make dinner for this kids with this horrible taste in my

mouth that I can't get rid of. Thanks.>

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About six months before I was diagnosed with cholesteatoma my taste was

badly affected. Everything (except Thai Curry Chicken) tasted like

metal - and that did a little still. Shortly after my first surgery I

realized that I was tasting normally again. From what I understand, the

cholesteatoma was pressing on the taste nerve. I was thrilled with the

results. Now, if I didn't eat so much ...

Matt

entmjwareing wrote:

>

> The commonest reason for taste disturbance after ear surgery is due to

> disturbance to/ cutting of something called the chorda tympani. This

> is a nerve that is a branch of the facial nerve and it runs from the

> facial nerve (where it is running down to leave the ear) across the

> middle ear before leaving at the front. It ultimately supplies taste

> sensation to the front 2/3rds of the tongue.

> Unfortunately in cholesteatoma surgery it is often necessary to divide

> it to remove the disease. In a lot of cases, because of the disease

> and infection often associated with it, the nerve is not working

> anyway. However there will always be people who do suffer this

> unpleasant symptom. Fortunately it usually settles in time, which I

> hope the majority of forum members who have suffered this can confirm.

> In other ear surgery (tympanoplasty, stapedectomy) it is also

> vulnerable- my practice is always to warn people of this risk.

>

>

> >

> > Hi everyone, I had my second ctoma surgery on Aug 18. I lost the two

> inner most bones at my first surgery 5 years ago. This time, the

> prosthethes was removed. Yesterday was a pretty decent day, the

> dizziness was much better. Today, not so dizzy, but now my sense of

> taste is like YUCK! And nausea, I took the medicine my doctor gave me

> and I am hoping I'll feel better soon. I am hoping someone can tell me

> if this happened to them and how long it will last - it was tough

> trying to make dinner for this kids with this horrible taste in my

> mouth that I can't get rid of. Thanks.

> >

>

>

--

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Hi, My son had the mastoidectomy when he was 5 & 2nd

look sugery the following year. He complained of a metal taste for atleast a year

after both surgeries & had a change in food preference but all seems good today.

Eve

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Matt,

I spent a summer in Kenya where I learned to make the most amazing chicken curry on earth. I have to agree with your wife: it does look like slop, but it's so good that I can taste it just reading about it! If you ever get to NH, we have a great hole in the wall Thai place that makes it exactly the same! Now I know why Chloe likes it so much LOL!

On Sun, Sep 7, 2008 at 2:21 AM,

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Re: Anyone else tastebuds off?

Posted by: " Arun Gupta " drarunjind@... dr_arunjind

Date: Sat Sep 6, 2008 9:40 pm ((PDT))

Usually cutting of Chora typmani does not posses any problem, if one is not

aware ofits funcion, as the other side nerve takes care of taste

Arun

--------------------------------------------------

Unfortunately, mine hasn't. My Chordae Tympanum was removed at the

time of my first surgery over ten years ago. (CWU--I will go through

100 surgeries if I have to in order to keep my hearing.) The metallic

taste in my mouth went away, but wine, diet cola, citrus, and sour

things all taste bad still.

I hope your experience varies from mine!

Diane McNelly

www.sassysuds.com

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The taste of diet cola and most wines has always been bad! I've also

been running into some downright nasty oranges as of late (and some good

ones). So Diane, maybe your taste buds are working pretty well?!! They

seem spot-on normal to me!

.... and by the way, it's a scientific fact that cheesecake, potato

salad, and sauerkraut are NOT EVEN FOOD! :-)

.... and pickles! That's a dreadful thing to do to a perfectly good

cucumber...

Can you tell I drove the family nuts as a kid? Once when we had potato

salad for a meal I tried stuffing my mouth full of the nasty stuff and

then running to the bathroom in order to spit it into the toilet. After

running to the bathroom three times in one meal, my stepmother wised up

to what was going on. After that we always had a potato salad

alternative as well. This came complete with the guilt trip about how

hard it was to prepare two types of potato dishes - ignoring the fact

that the alternative was usually potato chips - out of the bag!

I also remember a sinister ritual in Sandycreek Township, Venango

County, PA that should have been outlawed! It was the Annual Sauerkraut

Supper at the Grange. What was wrong with those people!!? Those had to

be the longest evenings of our lives. My cousins and I would try our

best to fill up on coleslaw. Years later I actually got nauseous when

we studied about the Grangers in history class.

Matt

Diane McNelly wrote:

>

> Re: Anyone else tastebuds off?

> Posted by: " Arun Gupta " drarunjind@...

> <mailto:drarunjind%40gmail.com> dr_arunjind

> Date: Sat Sep 6, 2008 9:40 pm ((PDT))

>

> Usually cutting of Chora typmani does not posses any problem, if one

> is not

> aware ofits funcion, as the other side nerve takes care of taste

> Arun

> --------------------------------------------------

>

> Unfortunately, mine hasn't. My Chordae Tympanum was removed at the

> time of my first surgery over ten years ago. (CWU--I will go through

> 100 surgeries if I have to in order to keep my hearing.) The metallic

> taste in my mouth went away, but wine, diet cola, citrus, and sour

> things all taste bad still.

>

> I hope your experience varies from mine!

>

> Diane McNelly

> www.sassysuds.com

>

>

--

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, can we bribe you into giving us your recipe for Chicken Curry?

The left side of my tongue was also effected during my surgery and

feels numb. My surgeon feels since it is numb, it was caused by the

intubation which also caused a bad case of TMJ. My taste has improved

somewhat but lemon chicken makes me gag and it was one of my favorites.

Seems to me that sweet things taste good and sour foods are horrible.

Hmmm, we could publish a book of recipes for the taste bud challenged!

Bon Appetit to all,

>

> Matt,

> I spent a summer in Kenya where I learned to make the most amazing

chicken

> curry on earth. I have to agree with your wife: it does look like

slop, but

> it's so good that I can taste it just reading about it! If you ever

get to

> NH, we have a great hole in the wall Thai place that makes it

exactly the

> same! Now I know why Chloe likes it so much LOL!

>

> On Sun, Sep 7, 2008 at 2:21 AM,

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