Guest guest Posted September 5, 2008 Report Share Posted September 5, 2008 Hi everyone, I had my second ctoma surgery on Aug 18. I lost the two inner most bones at my first surgery 5 years ago. This time, the prosthethes was removed. Yesterday was a pretty decent day, the dizziness was much better. Today, not so dizzy, but now my sense of taste is like YUCK! And nausea, I took the medicine my doctor gave me and I am hoping I'll feel better soon. I am hoping someone can tell me if this happened to them and how long it will last - it was tough trying to make dinner for this kids with this horrible taste in my mouth that I can't get rid of. Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2008 Report Share Posted September 5, 2008 Hi , I can't speak for everyone else but after my first surgery I couldn't taste anything for almost a month. Everything just tasted like cardboard. I think this is just a side effect from the surgery and possibly from a bit of nerve damage. Anyways, the good news is that it didn't last!! good luck! From: Rusnak <jrflyfish@...>Subject: Anyone else tastebuds off?cholesteatoma Date: Friday, September 5, 2008, 6:02 PM Hi everyone, I had my second ctoma surgery on Aug 18. I lost the two inner most bones at my first surgery 5 years ago. This time, the prosthethes was removed. Yesterday was a pretty decent day, the dizziness was much better. Today, not so dizzy, but now my sense of taste is like YUCK! And nausea, I took the medicine my doctor gave me and I am hoping I'll feel better soon. I am hoping someone can tell me if this happened to them and how long it will last - it was tough trying to make dinner for this kids with this horrible taste in my mouth that I can't get rid of. Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2008 Report Share Posted September 5, 2008 , I have one gastronomic suggestion for you. Many Asian restaurants have a curry chicken dish. If you find one with the creamier curry sauce, that is like heaven on earth for those of us that temporarily lose our taste. The curry sauce may be quite pleasant! Even after getting my taste back, I dearly love Thai Curry Chicken - my wife calls it Thai Curry Slop and just rolls her eyes when I ask for it. I plan to spend the rest of my days sampling everyone's version of the meal. Matt Jo Watters wrote: > > Hi , > I can't speak for everyone else but after my first surgery I > couldn't taste anything for almost a month. Everything just tasted > like cardboard. I think this is just a side effect from the surgery > and possibly from a bit of nerve damage. Anyways, the good news is > that it didn't last!! > good luck! > > > > From: Rusnak <jrflyfish@...> > Subject: Anyone else tastebuds off? > cholesteatoma > Date: Friday, September 5, 2008, 6:02 PM > > Hi everyone, I had my second ctoma surgery on Aug 18. I lost the > two inner most bones at my first surgery 5 years ago. This time, > the prosthethes was removed. Yesterday was a pretty decent day, > the dizziness was much better. Today, not so dizzy, but now my > sense of taste is like YUCK! And nausea, I took the medicine my > doctor gave me and I am hoping I'll feel better soon. I am hoping > someone can tell me if this happened to them and how long it will > last - it was tough trying to make dinner for this kids with this > horrible taste in my mouth that I can't get rid of. Thanks. > > > -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2008 Report Share Posted September 6, 2008 Hi - My sister had ear surgery and experienced a taste problem also - to her everything tasted like butter! When I had my tonsils out I had the problem but things tasted like metal, but it went away after a couple of months. Best wishes! Jo Watters wrote: > Hi , > I can't speak for everyone else but after my first surgery I > couldn't taste anything for almost a month. Everything just tasted > like cardboard. I think this is just a side effect from the surgery > and possibly from a bit of nerve damage. Anyways, the good news is > that it didn't last!! > good luck! > > > > From: Rusnak <jrflyfish@sbcglobal .net> > Subject: Anyone else tastebuds off? > cholesteatoma > Date: Friday, September 5, 2008, 6:02 PM > > Hi everyone, I had my second ctoma surgery on Aug 18. I lost the > two inner most bones at my first surgery 5 years ago. This time, > the prosthethes was removed. Yesterday was a pretty decent day, > the dizziness was much better. Today, not so dizzy, but now my > sense of taste is like YUCK! And nausea, I took the medicine my > doctor gave me and I am hoping I'll feel better soon. I am hoping > someone can tell me if this happened to them and how long it will > last - it was tough trying to make dinner for this kids with this > horrible taste in my mouth that I can't get rid of. Thanks. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2008 Report Share Posted September 6, 2008 The commonest reason for taste disturbance after ear surgery is due to disturbance to/ cutting of something called the chorda tympani. This is a nerve that is a branch of the facial nerve and it runs from the facial nerve (where it is running down to leave the ear) across the middle ear before leaving at the front. It ultimately supplies taste sensation to the front 2/3rds of the tongue. Unfortunately in cholesteatoma surgery it is often necessary to divide it to remove the disease. In a lot of cases, because of the disease and infection often associated with it, the nerve is not working anyway. However there will always be people who do suffer this unpleasant symptom. Fortunately it usually settles in time, which I hope the majority of forum members who have suffered this can confirm. In other ear surgery (tympanoplasty, stapedectomy) it is also vulnerable- my practice is always to warn people of this risk. > > Hi everyone, I had my second ctoma surgery on Aug 18. I lost the two inner most bones at my first surgery 5 years ago. This time, the prosthethes was removed. Yesterday was a pretty decent day, the dizziness was much better. Today, not so dizzy, but now my sense of taste is like YUCK! And nausea, I took the medicine my doctor gave me and I am hoping I'll feel better soon. I am hoping someone can tell me if this happened to them and how long it will last - it was tough trying to make dinner for this kids with this horrible taste in my mouth that I can't get rid of. Thanks. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2008 Report Share Posted September 6, 2008 Usually cutting of Chora typmani does not posses any problem, if one is not aware ofits funcion, as the other side nerve takes care of taste Arun On 9/7/08, entmjwareing <entmjwareing@...> wrote: The commonest reason for taste disturbance after ear surgery is due todisturbance to/ cutting of something called the chorda tympani. Thisis a nerve that is a branch of the facial nerve and it runs from the facial nerve (where it is running down to leave the ear) across themiddle ear before leaving at the front. It ultimately supplies tastesensation to the front 2/3rds of the tongue.Unfortunately in cholesteatoma surgery it is often necessary to divide it to remove the disease. In a lot of cases, because of the diseaseand infection often associated with it, the nerve is not workinganyway. However there will always be people who do suffer thisunpleasant symptom. Fortunately it usually settles in time, which I hope the majority of forum members who have suffered this can confirm.In other ear surgery (tympanoplasty, stapedectomy) it is alsovulnerable- my practice is always to warn people of this risk. >> Hi everyone, I had my second ctoma surgery on Aug 18. I lost the twoinner most bones at my first surgery 5 years ago. This time, theprosthethes was removed. Yesterday was a pretty decent day, thedizziness was much better. Today, not so dizzy, but now my sense of taste is like YUCK! And nausea, I took the medicine my doctor gave meand I am hoping I'll feel better soon. I am hoping someone can tell meif this happened to them and how long it will last - it was toughtrying to make dinner for this kids with this horrible taste in my mouth that I can't get rid of. Thanks.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2008 Report Share Posted September 7, 2008 About six months before I was diagnosed with cholesteatoma my taste was badly affected. Everything (except Thai Curry Chicken) tasted like metal - and that did a little still. Shortly after my first surgery I realized that I was tasting normally again. From what I understand, the cholesteatoma was pressing on the taste nerve. I was thrilled with the results. Now, if I didn't eat so much ... Matt entmjwareing wrote: > > The commonest reason for taste disturbance after ear surgery is due to > disturbance to/ cutting of something called the chorda tympani. This > is a nerve that is a branch of the facial nerve and it runs from the > facial nerve (where it is running down to leave the ear) across the > middle ear before leaving at the front. It ultimately supplies taste > sensation to the front 2/3rds of the tongue. > Unfortunately in cholesteatoma surgery it is often necessary to divide > it to remove the disease. In a lot of cases, because of the disease > and infection often associated with it, the nerve is not working > anyway. However there will always be people who do suffer this > unpleasant symptom. Fortunately it usually settles in time, which I > hope the majority of forum members who have suffered this can confirm. > In other ear surgery (tympanoplasty, stapedectomy) it is also > vulnerable- my practice is always to warn people of this risk. > > > > > > Hi everyone, I had my second ctoma surgery on Aug 18. I lost the two > inner most bones at my first surgery 5 years ago. This time, the > prosthethes was removed. Yesterday was a pretty decent day, the > dizziness was much better. Today, not so dizzy, but now my sense of > taste is like YUCK! And nausea, I took the medicine my doctor gave me > and I am hoping I'll feel better soon. I am hoping someone can tell me > if this happened to them and how long it will last - it was tough > trying to make dinner for this kids with this horrible taste in my > mouth that I can't get rid of. Thanks. > > > > -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2008 Report Share Posted September 7, 2008 Hi, My son had the mastoidectomy when he was 5 & 2nd look sugery the following year. He complained of a metal taste for atleast a year after both surgeries & had a change in food preference but all seems good today. Eve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2008 Report Share Posted September 7, 2008 Matt, I spent a summer in Kenya where I learned to make the most amazing chicken curry on earth. I have to agree with your wife: it does look like slop, but it's so good that I can taste it just reading about it! If you ever get to NH, we have a great hole in the wall Thai place that makes it exactly the same! Now I know why Chloe likes it so much LOL! On Sun, Sep 7, 2008 at 2:21 AM, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2008 Report Share Posted September 7, 2008 Re: Anyone else tastebuds off? Posted by: " Arun Gupta " drarunjind@... dr_arunjind Date: Sat Sep 6, 2008 9:40 pm ((PDT)) Usually cutting of Chora typmani does not posses any problem, if one is not aware ofits funcion, as the other side nerve takes care of taste Arun -------------------------------------------------- Unfortunately, mine hasn't. My Chordae Tympanum was removed at the time of my first surgery over ten years ago. (CWU--I will go through 100 surgeries if I have to in order to keep my hearing.) The metallic taste in my mouth went away, but wine, diet cola, citrus, and sour things all taste bad still. I hope your experience varies from mine! Diane McNelly www.sassysuds.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2008 Report Share Posted September 7, 2008 The taste of diet cola and most wines has always been bad! I've also been running into some downright nasty oranges as of late (and some good ones). So Diane, maybe your taste buds are working pretty well?!! They seem spot-on normal to me! .... and by the way, it's a scientific fact that cheesecake, potato salad, and sauerkraut are NOT EVEN FOOD! :-) .... and pickles! That's a dreadful thing to do to a perfectly good cucumber... Can you tell I drove the family nuts as a kid? Once when we had potato salad for a meal I tried stuffing my mouth full of the nasty stuff and then running to the bathroom in order to spit it into the toilet. After running to the bathroom three times in one meal, my stepmother wised up to what was going on. After that we always had a potato salad alternative as well. This came complete with the guilt trip about how hard it was to prepare two types of potato dishes - ignoring the fact that the alternative was usually potato chips - out of the bag! I also remember a sinister ritual in Sandycreek Township, Venango County, PA that should have been outlawed! It was the Annual Sauerkraut Supper at the Grange. What was wrong with those people!!? Those had to be the longest evenings of our lives. My cousins and I would try our best to fill up on coleslaw. Years later I actually got nauseous when we studied about the Grangers in history class. Matt Diane McNelly wrote: > > Re: Anyone else tastebuds off? > Posted by: " Arun Gupta " drarunjind@... > <mailto:drarunjind%40gmail.com> dr_arunjind > Date: Sat Sep 6, 2008 9:40 pm ((PDT)) > > Usually cutting of Chora typmani does not posses any problem, if one > is not > aware ofits funcion, as the other side nerve takes care of taste > Arun > -------------------------------------------------- > > Unfortunately, mine hasn't. My Chordae Tympanum was removed at the > time of my first surgery over ten years ago. (CWU--I will go through > 100 surgeries if I have to in order to keep my hearing.) The metallic > taste in my mouth went away, but wine, diet cola, citrus, and sour > things all taste bad still. > > I hope your experience varies from mine! > > Diane McNelly > www.sassysuds.com > > -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2008 Report Share Posted September 8, 2008 , can we bribe you into giving us your recipe for Chicken Curry? The left side of my tongue was also effected during my surgery and feels numb. My surgeon feels since it is numb, it was caused by the intubation which also caused a bad case of TMJ. My taste has improved somewhat but lemon chicken makes me gag and it was one of my favorites. Seems to me that sweet things taste good and sour foods are horrible. Hmmm, we could publish a book of recipes for the taste bud challenged! Bon Appetit to all, > > Matt, > I spent a summer in Kenya where I learned to make the most amazing chicken > curry on earth. I have to agree with your wife: it does look like slop, but > it's so good that I can taste it just reading about it! If you ever get to > NH, we have a great hole in the wall Thai place that makes it exactly the > same! Now I know why Chloe likes it so much LOL! > > On Sun, Sep 7, 2008 at 2:21 AM, Quote Link to comment Share on other sites More sharing options...
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