RE: Re: 6 year old to have surgery next week

[Guest guest]

Hi, My name is Nicki and I have been a post reader for a few weeks now,

(since my daughter's diagnosis) and one thing that has struck me is the

young age of a lot of your kiddies. Kirsty, my daughter has had very bad ear

problems pretty much all her life, but has only just been diagnosed with a

c-toma. (She is 12 now).

She has had grommets (ear drainage tubes) 3 or 4 times now, and we have been

to A and E on several occasions for severe pain and bleeding from the ear.

She has also had 2 procedures to remove polyps.

What I suppose I'm trying to say is, shouldn't the C-toma have been picked

up long before now?,

especially seeing as she had the polyps which I understand is a side effect

of C-toma. Her op is scheduled for November the 3rd, so we will see the

extent of the damage then.

She will be having a modified radical mastoidectomy.

It seems to me that a lot of your little ones are being diagnosed promptly,

therefore hopefully reducing the risk of severe damage.

After much research and avid reading of all of your posts, I am pretty

convinced that Kirsty has had this thing since she was at least 6.

Maybe the doctors are a bit more " on the ball " in the States with this

condition.(I am in the U.K.), or perhaps we have just been unlucky.

I would welcome any thoughts you may have.

love Nicki xx

>From: " michelerellla " <iambored97601@...>

>Reply-cholesteatoma

>cholesteatoma

>Subject: Re: 6 year old to have surgery next week

>Date: Tue, 14 Sep 2004 14:28:23 -0000

>

>Hi Sonja,

>

>The type of surgery is sounds like your son is going to have is a

>mastoidectomy. What I don't understand (sorry, I don't want to make

>things harder on you than they already are) why they can't remove

>the c-toma, if present, at the same time. With c-toma, a

>mastoidectomy with c-toma removal, at the same time, is common. To

>me it seems like it should be unnecessary to put him under again

>when, in my opinion, it should all be done at once.

>

>My hubby has an appointment in about a half an hour to see if he has

>the dreaded monster again and I think I will ask the doctor his

>opinion on this. I am also curious as to what type of doctor you

>have, ENT or otologist.

>

>Sorry if I am worrying you more but it just seems unnecessary to put

>your son under again when (unless there is another reason your

>doctor has not told your) they could do it all at once.

>

>Take care,

>

>Michele, Group Moderator

>

>

> > Hi

> >

> > It seems to be something to do with what they find next week, the

>first op seems to be to remove the infected mastoid bone then it

>would be another op the week after to remove the ctoma if found!!.

>They had never mentioned ctoma until I spoke to them a few weeks ago

>re some concerns, so have now got some more questions to ask them.

>Thanks for your help, its times like these where I hate being a

>single parent.

> >

> > Sonja

>

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[Guest guest]

Hi Nicki

It has also surprised me the number of kids who seem to have this condition and

the number of ops that they have to go through. Im also in the UK and its taken

almost 2 years to get to this stage of my son having a mastoid op next week,

though I do think that due to lack of time at appointments the consultants don't

give you much of a chance to ask questions. Which even though I have managed to

speak to the consultant since and ask questions there is still abit of the

unknown. I have found out more through this site that through the hopital.

I hope that your daughters op goes ok in Nov and it manages to sort ofut the

problem once and for all.

[Guest guest]

Hi Michele

Thanks for your reply, I have an appointment this afternoon at the hospital so I

think I will be asking some more questions, now that I know what to ask as

sometimes its all a bit of the unknown. They do seem to be unsure of why his ear

is constantly infected and where the polops come from.

The consultan tis a specialist in ENT for kids so hopefully he should know what

he is doing!!.

Thanks for your advice and help Sonja

[Guest guest]

The least painful spot to set an IV is in your bendable part of your elbow where they draw blood. I had this done for the first time with my tympanoplasty last month and it didn't hurt at all. I've had several IV's in the past and I'm requesting this one from here on out.

Cindee <grammas2boys@...> wrote:

Dear Sonja,My son, who is twelve, asked if they could put his IV in after he was under the anesthesia. They allowed that... and it was a lot less stressful for him......It does take a little longer for them to go to sleep with just the gas mask though, since sedation can't be added to the IV beforehand. Hope this helps....and good luck!> > >"I am trying to explain it all to > him as he has a fear of needles (due to a visit before) and is not > keen on having a bandaged on. Can anyone give me any helpful ideas on > reasurring him ( and me) and any idea of the pain involved." > Thanks Sonja