Guest guest Posted April 29, 2004 Report Share Posted April 29, 2004 Hi Tammy Yes, water precautions are usually necessary and especially so if there is no eardrum present. It doesn't mean that your son can't go swimming but the best option is to use good water-tight earplugs, either custom-made ones (probably from an audiologist) or some of the commercially available 'ear putty' which is made safer by being held in place by a head-band. Check out the link below to see what I mean. I believe these can be bought in the high street but if you're in the US, someone else will tell you exactly where. http://www.earbandit.com/ Cotton wool soaked in vaseline is a good and recommended method for ordinary bathing and hairwashing etc. In the descriiption below that there are two kinds of Canal Wall Down surgery. Modified Radical Mastoidectomy is by far the most common nowadays. That usually means there'll be an opportunity for hearing reconstruction at some time in the future which uses a prosthesis to replace the missing ear-bones and regrafts the ear drum if necessary. That plus the water situation is something you could check with the doctor. Best wishes Phil Mastoidectomy / Canal Wall Down: in this procedure The middle ear is exposed and the external auditory canal wall is drilled away. This approach offers the widest access of the middle ear as well as the mastoid. This creates a new middle ear space which involves an open cavity between the mastoid and the middle ear. This procedure is used in cases of previous failed canal wall up operation with reccurent disease, in a situation of cholesteatoma in an only hearing ear and if cholesteatoma is involving areas that are difficult to access by a canal wall up procedure. Modified Radical Mastoidectomy. In this operation, part of the canal wall is removed and meatoplasty (a widening of the ear canal) is generally performed to create an open cavity. The ear drum and hearing bones may be spared or rebuilt but the ear canal is widened. This technique may leave a cavity which needs to be cleaned medically but has the advantage of often avoiding a second stage operation. Full Radical Mastoidectomy. As with the modified procedure, radical mastoidectomy involves removal of the canal wall, the performance of meatoplasty and the formation of a mastoid cavity. The eardrum and middle ear bones are sacrificed which results in poor hearing and a large ear cavity is created that requires regular cleaning by a doctor. This operation is less common today but still used for severely infected ears. can any one give me any information about canal wall down surgey ,, m10 yrs has had 4 surgerys for c-toma in the past until they did a cwd .. he has little to no hearing in left ear ... can my child swim is there any way he could wear a cap in the water? he loves the water,,, any info would be geat ---Outgoing mail is certified Virus Free.Checked by AVG anti-virus system (http://www.grisoft.com).Version: 6.0.638 / Virus Database: 409 - Release Date: 21/03/04 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2004 Report Share Posted April 29, 2004 I had about the same amount of surgerys when I was your sons age and I also loved swimming. Yes, there is still a way for him to go. My doctor prescribed me special ear plugs that are shaped for your ear and then a band that kept them in called the Ear Band. It worked wonders.tammy_johnson60 <tammy_johnson60@...> wrote: can any one give me any information about canal wall down surgey ,, m10 yrs has had 4 surgerys for c-toma in the past until they did a cwd .. he has little to no hearing in left ear ... can my child swim is there any way he could wear a cap in the water? he loves the water,,, any info would be geat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2004 Report Share Posted April 29, 2004 Hi Phil Do you have some web links on further information about the CWD and of other procedures. Hi Phil Do you have some web links on further information about the CWD and of other procedures. And bye the way I tested the different ways of equalization your middle ear pressure that stood on those web pages you informed me about. They have worked well!! I have been two times to my doctor very worried for having an infection in the ear due to all pulsating. But every time I have been looked at he simply can't see anything strange with my ear but are instead very surprised over how well my ear looks and how good I hear. I was there today since I have had so much pulsating sound in my ear that I just thought there got to be water in my ear, it just must be there and some infection too because the pulsating sound was so intense. But as the last time after he had look at my ear in his microscope and when I had my hearing test done and a test for measuring the middle ear pressure it all look fine. Strange don't you think =)?? > Hi Tammy > > Yes, water precautions are usually necessary and especially so if there is no eardrum present. It doesn't mean that your son can't go swimming but the best option is to use good water-tight earplugs, either custom-made ones (probably from an audiologist) or some of the commercially available 'ear putty' which is made safer by being held in place by a head-band. Check out the link below to see what I mean. I believe these can be bought in the high street but if you're in the US, someone else will tell you exactly where. > > http://www.earbandit.com/ > > Cotton wool soaked in vaseline is a good and recommended method for ordinary bathing and hairwashing etc. > > In the descriiption below that there are two kinds of Canal Wall Down surgery. Modified Radical Mastoidectomy is by far the most common nowadays. That usually means there'll be an opportunity for hearing reconstruction at some time in the future which uses a prosthesis to replace the missing ear-bones and regrafts the ear drum if necessary. That plus the water situation is something you could check with the doctor. > > Best wishes > > Phil > > Mastoidectomy / Canal Wall Down: in this procedure The middle ear is exposed and the external auditory canal wall is drilled away. This approach offers the widest access of the middle ear as well as the mastoid. This creates a new middle ear space which involves an open cavity between the mastoid and the middle ear. This procedure is used in cases of previous failed canal wall up operation with reccurent disease, in a situation of cholesteatoma in an only hearing ear and if cholesteatoma is involving areas that are difficult to access by a canal wall up procedure. > > Modified Radical Mastoidectomy. In this operation, part of the canal wall is removed and meatoplasty (a widening of the ear canal) is generally performed to create an open cavity. The ear drum and hearing bones may be spared or rebuilt but the ear canal is widened. This technique may leave a cavity which needs to be cleaned medically but has the advantage of often avoiding a second stage operation. > > Full Radical Mastoidectomy. As with the modified procedure, radical mastoidectomy involves removal of the canal wall, the performance of meatoplasty and the formation of a mastoid cavity. The eardrum and middle ear bones are sacrificed which results in poor hearing and a large ear cavity is created that requires regular cleaning by a doctor. This operation is less common today but still used for severely infected ears. > > can any one give me any information about canal wall down surgey ,, > m10 yrs has had 4 surgerys for c-toma in the past until they did a > cwd .. he has little to no hearing in left ear ... can my child swim > is there any way he could wear a cap in the water? he loves the > water,,, any info would be geat > > > > --- > Outgoing mail is certified Virus Free. > Checked by AVG anti-virus system (http://www.grisoft.com). > Version: 6.0.638 / Virus Database: 409 - Release Date: 21/03/04 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2004 Report Share Posted April 30, 2004 Hi Tamm Your son sound like the exact description of my son, one year ago. My son Dan, is now 11 years old. Last year, he had CWD and was severely hearing impaired in his left ear. This December, he had reconstruction, where a torp and ear drum graft where put in. He also had meatoplasy(sp), which widened the ear canal. He has regained 30 db of hearing in that ear, which has made a huge difference. I will be getting him custom ear plugs for our beach vacation. The doc is having me put antibiotic ear drops in his ear after swimming. Dan does not really swim underwater. He might pluck his head under but he's pretty paranoid about getting water in his ear. He just had both ears cleaned out yesterday. It was a bad appt, it hurt him a lot. Usually, his appt aren't so painful. He gets a lot of wax and has psorisis in his good ear, so that gets blocked. So, his good ear caused him more pain than his bad ear yesterday. It's been a long road with 5 surgeries. He's had one/year since he was 6. I'm hopeful that the surgeries are finally over now that his ear can be cleaned in the office. Best of luck to you and your son Dorothy child with c-toma can any one give me any information about canal wall down surgey ,, m10 yrs has had 4 surgerys for c-toma in the past until they did a cwd .. he has little to no hearing in left ear ... can my child swim is there any way he could wear a cap in the water? he loves the water,,, any info would be geat Quote Link to comment Share on other sites More sharing options...
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