Guest guest Report post Posted January 6, 2005 , Really glad you got it taken care of and that there was no damage or slippage. Good luck on not gaining until your next fill. Charlie 05/16/03 405/290/200 Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 28, 2005 Loriann, Thank you so much for sending the website for NBC's chronic pain site. I printed off some blank pages so I could keep up with my pain daily and what I needed to take for it. There has been many a time I try to think back as to when certain things started. Now as to whether I stick with the log is another question. Joyce Pain Hi all, I saw on the Today Show (NBC)this morning that they are doing a weeklong series on Easing Pain. It was a 5 minute segment about 8:15 a.m. Eastern Time, but I'm not sure if it will be at that time each day. Mostly made the points that chronic pain should be considered an illness itself, and that pain meds are often needed to make a person functional. It mentioned the following website for more information http://painfoundation.org/ I see there is a pain diary on that site. I'll probably watch the rest of the week if I remember, although I suspect that much of what will be said, I already know from reading about the subject on this Feisty and other sites and venues. loriann Support for scoliosis-surgery veterans with Harrington Rod Malalignment Syndrome. Not medical advice. Group does not control ads or endorse any advertised products. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 14, 2005 Have you tried glucosamine? It is scientifically proven to work as an anti-inflammatory. It is the only thing I can take because I also have too many stomach problems with NSAIDS. I do use a couple Advils occasionally when the pain gets too great. A year ago when the pain was really bad, vioxx wouldn't help alone so I needed to take glucosamine with it. Now, the only thing I take is glucosamine. Mike MT pain >I had a endoscopy done 2 months ago. Due to Celebrex, vioxx, bextra, > and mobic my stomach was what the surgen called " red angry tissue " .I > took these over aperiod of 10 years. There was no ulsers or bacteria. I > was advised to stop the mobic. At first I couldn`t tell the difference > but now I hurt ALL over. Been taking Tylenol Arthritis but helps > little. Some foods really hurt my stomach so I`ve learned what to > avoid. My feet hurt the most. In fact they hurt so much I`ve forgotten > the knee pain. Anyone know of a better pain medicine without stomach > problems. Going to the Dr. next week. > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 14, 2005 Mike, what's your source on glucosamine being an anti-inflammatory? I know we've had this argument twice before, but I've been taking it for 2 years and I still have to use McConnell tape to walk any significant distance. I can walk farther than I use to be able to, but I wouldn't call it an anti-inflammatory in the usual sense, where you get relief soon after you take it. Only in the sense that it may keep deterioration from progressing, and MAYBE helps build cartilage back up, but I haven't seen any articles supporting that. Ann pain >I had a endoscopy done 2 months ago. Due to Celebrex, vioxx, bextra, > and mobic my stomach was what the surgen called " red angry tissue " .I > took these over aperiod of 10 years. There was no ulsers or bacteria. I > was advised to stop the mobic. At first I couldn`t tell the difference > but now I hurt ALL over. Been taking Tylenol Arthritis but helps > little. Some foods really hurt my stomach so I`ve learned what to > avoid. My feet hurt the most. In fact they hurt so much I`ve forgotten > the knee pain. Anyone know of a better pain medicine without stomach > problems. Going to the Dr. next week. > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 14, 2005 I think there's a bounce-back of pain if you suddenly quit taking anti-inflammatories. I definitely had one. You may have graduated to Vicodin. I haven't been there yet, don't want to go there, but it does help a lot of people I know who have pain. It does cause severe constipation, so if you start taking it, eat a lot of fiber. OR you could talk to your doc (or find another one) about getting a new knee or a new kneecap. Most OS's won't do just a kneecap/trochlea, and I don't know why. Dr. Grelsamer in NY (you can find him on the Web) might be able to give you info about where to find OS's that do kneecap implants. Or you might be able to find more OS's who would do a unicompartmental knee replacement (they might insist on replacing the entire distal femoral end as well as the kneecap). I wouldn't go for having the kneecap removed unless you can't get anything else done, since the kneecap is a fulcrum, and its absence would change the functionality of your leg. I'm pretty livid that so many of us have to live crippled lives just because we have a raw spot on the underside of our kneecaps. Doctors seem to think you can live with CP. Obviously they haven't been there. Ann pain I had a endoscopy done 2 months ago. Due to Celebrex, vioxx, bextra, and mobic my stomach was what the surgen called " red angry tissue " .I took these over aperiod of 10 years. There was no ulsers or bacteria. I was advised to stop the mobic. At first I couldn`t tell the difference but now I hurt ALL over. Been taking Tylenol Arthritis but helps little. Some foods really hurt my stomach so I`ve learned what to avoid. My feet hurt the most. In fact they hurt so much I`ve forgotten the knee pain. Anyone know of a better pain medicine without stomach problems. Going to the Dr. next week. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 15, 2005 Re: pain >I think there's a bounce-back of pain if you suddenly quit taking >anti-inflammatories. I definitely had one. You may have graduated to >Vicodin. Personally, I won't take Vicodin anymore. I was taking it to sleep a year ago, but woke in excrutiating pain after a few hours and it would take me several hours more to get back to sleep even if I took more. I didn't trust myself during the day if I was taking it. My doctor had put me on Amitryptaline to sleep at night. At least then I could get a reasonably comfortable 6 or more hours of sleep. Mike MT Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 15, 2005 http://uconnsportsmed.uchc.edu/patientinfo/whathurts/treatment/glucosamine.html and a quote; /////////////////////////////////// Many researchers and recently major publications recommended the use of glucosamine orally in the treatment of the pain associated with osteoarthritis. Glucosamine does appear to have a mild anti-inflammatory effect which causes a reduction in pain in 80% of individuals who take it. Several studies have found glucosamine to be better than ibuprofen (e.g., Advil) and placebo in the reduction of pain. All studies on glucosamine have demonstrated fewer side affects than anti-inflammatories. ----snip----- It should be noted, however, that there are no known side effects to taking this dietary supplement and therefore there appears to be no contraindication to trying it on an individual basis. /////////////////////////////////// Mike MT Re: pain > Mike, what's your source on glucosamine being an anti-inflammatory? Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 15, 2005 I think I've only had one Vicodin in my life -- after my last knee operation. The constipation was so bad I didn't want any more. Ann Re: pain >I think there's a bounce-back of pain if you suddenly quit taking >anti-inflammatories. I definitely had one. You may have graduated to >Vicodin. Personally, I won't take Vicodin anymore. I was taking it to sleep a year ago, but woke in excrutiating pain after a few hours and it would take me several hours more to get back to sleep even if I took more. I didn't trust myself during the day if I was taking it. My doctor had put me on Amitryptaline to sleep at night. At least then I could get a reasonably comfortable 6 or more hours of sleep. Mike MT Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 16, 2005 basically I don't take anything for pain anymore because over a yr ago I had an abnromal liver function test and the dr said that is was from taking pain med long term. Mostly what I was taking was OTC and I threw them all out. Most prescription pain meds make me vomit profusely. About the only thing I can handle is tylenol with codine, but I haven't had any of that in over a yr. either. my liver functions are now back to normal, and i won't take a chance on damaging my liver again so when the pain get bad I just deal with it. Hate to think what it will be like if I'm ever bone on bone. nancy __________________________________________________ Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 16, 2005 I take something called Ultracet with an anti-inflammatory Diclofenac sodium on the side. They really don't help very much but after going for over a year with only tylenol and glucosamine and exercise and physical+ therapy and meditation and accupuncture, etc. this is better than those alone. They're trying to get me authorized for some surgery on my back now. It's a fine line to find something that allows you to be functional but doesn't harm you or put you to sleep or change your personality or cause you to become an addict or...... My knees and back hurt the most. We're all different. You and your doctor need to sort it out. Sophie lvbeeralot <lvbeeralot@...> wrote: I had a endoscopy done 2 months ago. Due to Celebrex, vioxx, bextra, and mobic my stomach was what the surgen called " red angry tissue " .I took these over aperiod of 10 years. There was no ulsers or bacteria. I was advised to stop the mobic. At first I couldn`t tell the difference but now I hurt ALL over. Been taking Tylenol Arthritis but helps little. Some foods really hurt my stomach so I`ve learned what to avoid. My feet hurt the most. In fact they hurt so much I`ve forgotten the knee pain. Anyone know of a better pain medicine without stomach problems. Going to the Dr. next week. --------------------------------- Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 12, 2005 It is normal to have a little soreness around the port area after a fill. Just watch it to make sure you don't have excessive swelling or bruising. The pain should go away in a few days. You could have stretched a muscle in that area as well and didn't realize it. Keep us posted! M. 3/1/05 280/194/155 http://www.tracyslapband.com From: [mailto: ] On Behalf Of Debby B.Sent: Tuesday, October 11, 2005 10:24 PM Subject: pain Hi or Nina I've been doing really great since my fill last Thursday but seem to have developed a strange pain in my port area. Is this normal after a fill? It's to the point that I can hardly bend over and it hurts when I am just sitting still and when I twist around also. I haven't had this before and it's really bothering me. It started yesterday. I feel like the port is trying to push it's way through my mid-section. Any thoughts? Debby B Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 12, 2005 I am having the same pain, so it must be normal, it especially hurts when something touches that area. Even when I walk I feel it. Deborah F. > > Hi or Nina > I've been doing really great since my fill last Thursday but seem to have developed a strange pain in my port area. Is this normal after a fill? It's to the point that I can hardly bend over and it hurts when I am just sitting still and when I twist around also. I haven't had this before and it's really bothering me. It started yesterday. I feel like the port is trying to push it's way through my mid-section. Any thoughts? > Debby B > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 12, 2005 Yeah it is really strange that this has happened a few days after my fill. It seems to be getting a little better today. Hope yours is too! Debby Quote Share this post Link to post Share on other sites
Guest guest Report post Posted December 26, 2005 Chrissy, By feet pain, do you mean the soles of her feet? B/c of lack of weight baring on my feet from standing/walking the soles of my feet became very tender to touch from others. When I was a child my PT would massage the soles of my feet to prevent this but I hated it. So it is possible to have foot pain. Didn't you post that she recently got a standing Dani? Or was it just a powerchair? If shes spending time standing/weight baring, this could cause the soles of her feet to be tender. Kimi In a message dated 12/26/2005 10:22:24 P.M. Eastern Standard Time, smaangel@... writes: I am just curious if anyone has had this problem before? My daughter is going on 3 and has sma type two. Her feet are atrophyed of cource. And when you stretch them she cries, which is to be expected. But for the last month or so, she has been complaining of feet pain even when you are not touching them. Im curious if this is normal or not. Is there anything that I can give her for the pain? I wonder if there is a pain, or if this is just her way to get some more attention from mommy. This is the main problem that I am running to with this disease. She unfortunately is not old enough for me to be sure if she is really hurting or not. But I guess that is how it is when your kids aren't sick also though. Just thought I would ask and see if anyone else has has or has this problem. Chrissy Quote Share this post Link to post Share on other sites
Guest guest Report post Posted December 27, 2005 Chrissy, not being a mother/mommy myself, but as woman who has gone through this (as others likely have, but...) her " pain " may be just her way of getting you to stop. I'd be looking for swolleness or redness or even displacement of her foot's natural alignment (look for the " Charlie Chaplin " foot stand). I once wore ankle splints at that same age and had some minor stretches weekly. All my parents & doctors were focusing on was keeping my feet flat and straight. I began complaining about " pain " just so they'd take the splints off or stop stretching my ankles, knees and hips. By my 6th birthday the doctors said the splints were not required. I then went to school with a footbox (it had " stalls " in it to keep my feet pointing straight ahead) and once I learned to keep them in that position, the footbox was removed. Of course, see your doctor first. Just my personal experience. Angie On 2005.12.26 22:21, Chrissy Krider wrote: > I am just curious if anyone has had this problem before? My daughter > is going on 3 and has sma type two. Her feet are atrophyed of cource. > And when you stretch them she cries, which is to be expected. But > for the last month or so, she has been complaining of feet pain even > when you are not touching them. Im curious if this is normal or not. > Is there anything that I can give her for the pain? I wonder if > there is a pain, or if this is just her way to get some more attention > from mommy. This is the main problem that I am running to with this > disease. She unfortunately is not old enough for me to be sure if she > is really hurting or not. But I guess that is how it is when your > kids aren't sick also though. Just thought I would ask and see if > anyone else has has or has this problem. > > Chrissy > > > > > > > A FEW RULES > > * The list members come from many backgrounds, ages and beliefs So all > members most be tolerant and respectful to all members. > > * Some adult language and topics (like sexual health, swearing..) may > occur occasionally in emails. Over use of inappropriate language will > not be allowed. If your under 16 ask your parents/gaurdian before you > join the list. > > * No SPAMMING or sending numerous emails unrelated to the topics of > spinal muscular atrophy, health, and the daily issues of the disabled. > > Post message: > Subscribe: -subscribe > Unsubscribe: -unsubscribe > > List manager: (Sexy Mature Artist) Email: Esma1999@... > > > > > oogroups.com > > List manager: (Sexy Mature Artist) Email: Esma1999@... > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted December 27, 2005 Yes she did just get the standi dani. But she is complaining that the top of her feet and around the anckle area. but she has been complaining of this pain off and on since before the standi dani. so like i said im not sure. Chrissy Ksmile96@... wrote: Chrissy, By feet pain, do you mean the soles of her feet? B/c of lack of weight baring on my feet from standing/walking the soles of my feet became very tender to touch from others. When I was a child my PT would massage the soles of my feet to prevent this but I hated it. So it is possible to have foot pain. Didn't you post that she recently got a standing Dani? Or was it just a powerchair? If shes spending time standing/weight baring, this could cause the soles of her feet to be tender. Kimi In a message dated 12/26/2005 10:22:24 P.M. Eastern Standard Time, smaangel@... writes: I am just curious if anyone has had this problem before? My daughter is going on 3 and has sma type two. Her feet are atrophyed of cource. And when you stretch them she cries, which is to be expected. But for the last month or so, she has been complaining of feet pain even when you are not touching them. Im curious if this is normal or not. Is there anything that I can give her for the pain? I wonder if there is a pain, or if this is just her way to get some more attention from mommy. This is the main problem that I am running to with this disease. She unfortunately is not old enough for me to be sure if she is really hurting or not. But I guess that is how it is when your kids aren't sick also though. Just thought I would ask and see if anyone else has has or has this problem. Chrissy Quote Share this post Link to post Share on other sites
Guest guest Report post Posted December 27, 2005 Im thinking that some of it is from she wants the streching to stop. But I do believe ti hurts her. Im just not sure if it really hurts her when no one is touching her. But thankyou so much for your advise. I love this group because everyone is helpful. Once again thankyou Chrissy Angie <angie@...> wrote: Chrissy, not being a mother/mommy myself, but as woman who has gone through this (as others likely have, but...) her " pain " may be just her way of getting you to stop. I'd be looking for swolleness or redness or even displacement of her foot's natural alignment (look for the " Charlie Chaplin " foot stand). I once wore ankle splints at that same age and had some minor stretches weekly. All my parents & doctors were focusing on was keeping my feet flat and straight. I began complaining about " pain " just so they'd take the splints off or stop stretching my ankles, knees and hips. By my 6th birthday the doctors said the splints were not required. I then went to school with a footbox (it had " stalls " in it to keep my feet pointing straight ahead) and once I learned to keep them in that position, the footbox was removed. Of course, see your doctor first. Just my personal experience. Angie On 2005.12.26 22:21, Chrissy Krider wrote: > I am just curious if anyone has had this problem before? My daughter > is going on 3 and has sma type two. Her feet are atrophyed of cource. > And when you stretch them she cries, which is to be expected. But > for the last month or so, she has been complaining of feet pain even > when you are not touching them. Im curious if this is normal or not. > Is there anything that I can give her for the pain? I wonder if > there is a pain, or if this is just her way to get some more attention > from mommy. This is the main problem that I am running to with this > disease. She unfortunately is not old enough for me to be sure if she > is really hurting or not. But I guess that is how it is when your > kids aren't sick also though. Just thought I would ask and see if > anyone else has has or has this problem. > > Chrissy > > > > > > > A FEW RULES > > * The list members come from many backgrounds, ages and beliefs So all > members most be tolerant and respectful to all members. > > * Some adult language and topics (like sexual health, swearing..) may > occur occasionally in emails. Over use of inappropriate language will > not be allowed. If your under 16 ask your parents/gaurdian before you > join the list. > > * No SPAMMING or sending numerous emails unrelated to the topics of > spinal muscular atrophy, health, and the daily issues of the disabled. > > Post message: > Subscribe: -subscribe > Unsubscribe: -unsubscribe > > List manager: (Sexy Mature Artist) Email: Esma1999@... > > > > > oogroups.com > > List manager: (Sexy Mature Artist) Email: Esma1999@... > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted December 27, 2005 Bretts feet have always been tender in the area you are describing. He seems to cry about it if his foot has somehow been bumped wrong. For example, accidentally hitting his feet on the bench in the van when putting him into his car seat (yes I have done it) or somehow getting bent forward like when your foot is flexed (his dad has done this). When this happens, we soak his feet for about 15 minutes in epsom salt and I rub lotion on it and then just are real careful- usually for about a week sometimes two. He still stands in his stander though. Hope this helps! Kristal Mom to Brett- SMA II- 6 years old " Life is 10% what happens to you and 90% how you respond to it. " ~anonymous Visit Brett's website at: http://www.our-sma-angels.com/brett/index.htm Re: Pain Yes she did just get the standi dani. But she is complaining that the top of her feet and around the anckle area. but she has been complaining of this pain off and on since before the standi dani. so like i said im not sure. Chrissy Ksmile96@... wrote: Chrissy, By feet pain, do you mean the soles of her feet? B/c of lack of weight baring on my feet from standing/walking the soles of my feet became very tender to touch from others. When I was a child my PT would massage the soles of my feet to prevent this but I hated it. So it is possible to have foot pain. Didn't you post that she recently got a standing Dani? Or was it just a powerchair? If shes spending time standing/weight baring, this could cause the soles of her feet to be tender. Kimi In a message dated 12/26/2005 10:22:24 P.M. Eastern Standard Time, smaangel@... writes: I am just curious if anyone has had this problem before? My daughter is going on 3 and has sma type two. Her feet are atrophyed of cource. And when you stretch them she cries, which is to be expected. But for the last month or so, she has been complaining of feet pain even when you are not touching them. Im curious if this is normal or not. Is there anything that I can give her for the pain? I wonder if there is a pain, or if this is just her way to get some more attention from mommy. This is the main problem that I am running to with this disease. She unfortunately is not old enough for me to be sure if she is really hurting or not. But I guess that is how it is when your kids aren't sick also though. Just thought I would ask and see if anyone else has has or has this problem. Chrissy Quote Share this post Link to post Share on other sites
Guest guest Report post Posted December 27, 2005 Stretching does hurt, but it's necessary. When I got a little older, I learned to tell the difference between the discomfort of healthy stretching, and the pain from somebody stretching too far or doing something wrong. Of course, it didn't matter that I could tell the difference, because nobody ever actually listened to me. As for feet hurting when nobody is touching, it might be an exaggeration, but it might not be. My brother, who also has SMA, has always had extremely sensitive feet. By high school he had quit wearing shoes because of the pain. Actually, my right foot is sensitive also. I get bad skin breakdown in a certain spot on the bottom of my foot, because of the way my ankle turns in a little and puts pressure on that spot. Depending on the shoes I'm wearing and how I've been holding my feet, it can hurt pretty badly sometimes. Just tossing some experiences out there... -e In a message dated 12/27/2005 3:03:00 P.M. Pacific Standard Time, smaangel@... writes: I appreciate your insight, but I am sure that there is at least one person on this list who can tell you that they dident stretch and in the long run it made then worse. my daughter has never been put into any sort of harm. Nor have I allowed anyone to continue to stretch her when she was hurting. As a matter of fact, I have never used a stander untill now, that we have the standi dani, because i knew it hurt her. But since you are speaking as the child, do you remember when you were two years old? Do you remember how the pain was, or if you made it up so that you could get attention just like any other 2 year old does, sick or not. Im not trying to be confrontational with this subject, but i was not saying that i think she is lieing about the pain when she is streched. I AM saying that i do not think that she is always being truthful about her feet hurting her when no body is touching them. I do believe that they hurt when she is being streched. I hate to put that pain upon her, and I do not allow it to go very far, but if she is ever to fight this disease head on than Myself and her need to fight the good fight as strongly as we can now and as long as it takes to keep her as healthy as possible untill a cure is found. Chrissy cenlared <cenlared@...> wrote: Sorry, but these statements bother me: " And when you stretch them she cries, which is to be expected.... I wonder if there is a pain, or if this is just her way to get some more attention from mommy..... She unfortunately is not old enough for me to be sure if she is really hurting or not. " Speaking as the child --- She is hurting. An adult stretching a child hurts. Necessary or not, it hurts. And the child doesn't understand why it is necessary. (I never did ) If a child later says an area that has been exercised hurts, it hurts. Maybe a stretching session got a little enthusiastic. If the child resists, tensing up, the harder it is to stretch, the more it hurts. etc. I'm not criticizing your parenting, because if you weren't concerned you wouldn't have asked. It's wonderful that you asked. But it was just on this board that we are not believed when we say STOP, or when we say something is wrong. Imagine being a child who's told this is for your own good. . . But it HURTS. Been there. P. S. I'm a nice Christian lady now. ...But I still despise physical therapists. Never did anything but hurt this little girl. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted December 27, 2005 thankyou so much, I will give this a try. Crossing my fingers and hopeing that this will help her. thanks so much Chrissy Kristal Koehler <Brettsmom@...> wrote: Bretts feet have always been tender in the area you are describing. He seems to cry about it if his foot has somehow been bumped wrong. For example, accidentally hitting his feet on the bench in the van when putting him into his car seat (yes I have done it) or somehow getting bent forward like when your foot is flexed (his dad has done this). When this happens, we soak his feet for about 15 minutes in epsom salt and I rub lotion on it and then just are real careful- usually for about a week sometimes two. He still stands in his stander though. Hope this helps! Kristal Mom to Brett- SMA II- 6 years old " Life is 10% what happens to you and 90% how you respond to it. " ~anonymous Visit Brett's website at: http://www.our-sma-angels.com/brett/index.htm Re: Pain Yes she did just get the standi dani. But she is complaining that the top of her feet and around the anckle area. but she has been complaining of this pain off and on since before the standi dani. so like i said im not sure. Chrissy Ksmile96@... wrote: Chrissy, By feet pain, do you mean the soles of her feet? B/c of lack of weight baring on my feet from standing/walking the soles of my feet became very tender to touch from others. When I was a child my PT would massage the soles of my feet to prevent this but I hated it. So it is possible to have foot pain. Didn't you post that she recently got a standing Dani? Or was it just a powerchair? If shes spending time standing/weight baring, this could cause the soles of her feet to be tender. Kimi In a message dated 12/26/2005 10:22:24 P.M. Eastern Standard Time, smaangel@... writes: I am just curious if anyone has had this problem before? My daughter is going on 3 and has sma type two. Her feet are atrophyed of cource. And when you stretch them she cries, which is to be expected. But for the last month or so, she has been complaining of feet pain even when you are not touching them. Im curious if this is normal or not. Is there anything that I can give her for the pain? I wonder if there is a pain, or if this is just her way to get some more attention from mommy. This is the main problem that I am running to with this disease. She unfortunately is not old enough for me to be sure if she is really hurting or not. But I guess that is how it is when your kids aren't sick also though. Just thought I would ask and see if anyone else has has or has this problem. Chrissy Quote Share this post Link to post Share on other sites
Guest guest Report post Posted December 27, 2005 Chrissy, If he is complaining every day- we soak them every day and I rub lotion on it several times per day. I hope this helps! Kristal Mom to Brett- SMA II- 6 years old " Life is 10% what happens to you and 90% how you respond to it. " ~anonymous Visit Brett's website at: http://www.our-sma-angels.com/brett/index.htm Re: Pain Yes she did just get the standi dani. But she is complaining that the top of her feet and around the anckle area. but she has been complaining of this pain off and on since before the standi dani. so like i said im not sure. Chrissy Ksmile96@... wrote: Chrissy, By feet pain, do you mean the soles of her feet? B/c of lack of weight baring on my feet from standing/walking the soles of my feet became very tender to touch from others. When I was a child my PT would massage the soles of my feet to prevent this but I hated it. So it is possible to have foot pain. Didn't you post that she recently got a standing Dani? Or was it just a powerchair? If shes spending time standing/weight baring, this could cause the soles of her feet to be tender. Kimi In a message dated 12/26/2005 10:22:24 P.M. Eastern Standard Time, smaangel@... writes: I am just curious if anyone has had this problem before? My daughter is going on 3 and has sma type two. Her feet are atrophyed of cource. And when you stretch them she cries, which is to be expected. But for the last month or so, she has been complaining of feet pain even when you are not touching them. Im curious if this is normal or not. Is there anything that I can give her for the pain? I wonder if there is a pain, or if this is just her way to get some more attention from mommy. This is the main problem that I am running to with this disease. She unfortunately is not old enough for me to be sure if she is really hurting or not. But I guess that is how it is when your kids aren't sick also though. Just thought I would ask and see if anyone else has has or has this problem. Chrissy Quote Share this post Link to post Share on other sites
Guest guest Report post Posted December 27, 2005 My feet have always been extremely sensitive. When a large dog brushed by me, for example, he broke my foot. As a child, whenever anyone lifted/carried me, I always cautioned, " Watch my feet! " Once I was hurt, it took a long time to get back to normal. I think it drove people crazy hearing my words of warning all the time, but the plea became automatic on my part in an attempt to prevent pain. I uttered, " Watch my feet! " so many times, it no doubt, became ineffective, but somehow it made me feel more in control... Just my perspective, Bethany In a message dated 12/27/2005 9:03:59 PM Eastern Standard Time, cenlared@... writes: Chrissy, I didn't intend to question parenting. Sorry. I'm just having childhood flashbacks. From what I see, others experienced the same. Meg said it perfectly. For instance, the thought those shoes with the bar between are still being used makes me shudder. i thought they were extinct. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted December 27, 2005 When I was 8 yrs. old, my doctor put an end to " stretching and leg braces when my PT broke my leg for the third time. My doc said to the school PT, " Why are you stretching her legs when she'll never walk on them? " I'm 47 now, and my legs have slight contractures. But, I can still sit and lay down comfortably. I, personally, don't see the point in stretching non-ambulatory SMA'ers. Just my two cents worth. Vicki Quote Share this post Link to post Share on other sites
Guest guest Report post Posted December 27, 2005 Agreed. I have not had any stretching since I graduated from the public school system. I'm 32 now, with SMA, type 2. Just dealing with my physical necessities and leading some regular routine is more than enough to do. Everyone needs to make their own choices, but I would never be a strong advocate for physical therapy/stretching. Bethany In a message dated 12/27/2005 9:43:40 PM Eastern Standard Time, those2@... writes: I was wondering how many of us adults who need full care have their caregiver do stretching exercises. I do not. With my/our schedule and everything that already does, stretching is not even on the list. Not saying it's not a good thing, I just think many of our caregivers are so *stretched* that it's not a priority. Not sure I see the logic in doing it on kids either. The outcome is the same. *looks around* Lori Chrissy Krider wrote: > I appreciate your insight, but I am sure that there is at least one > person on this list who can tell you that they dident stretch and in > the long run it made then worse............ > Chrissy Quote Share this post Link to post Share on other sites
Guest guest Report post Posted December 27, 2005 Sorry, but these statements bother me: " And when you stretch them she cries, which is to be expected.... I wonder if there is a pain, or if this is just her way to get some more attention from mommy..... She unfortunately is not old enough for me to be sure if she is really hurting or not. " Speaking as the child --- She is hurting. An adult stretching a child hurts. Necessary or not, it hurts. And the child doesn't understand why it is necessary. (I never did ) If a child later says an area that has been exercised hurts, it hurts. Maybe a stretching session got a little enthusiastic. If the child resists, tensing up, the harder it is to stretch, the more it hurts. etc. I'm not criticizing your parenting, because if you weren't concerned you wouldn't have asked. It's wonderful that you asked. But it was just on this board that we are not believed when we say STOP, or when we say something is wrong. Imagine being a child who's told this is for your own good. . . But it HURTS. Been there. P. S. I'm a nice Christian lady now. ...But I still despise physical therapists. Never did anything but hurt this little girl. Quote Share this post Link to post Share on other sites
