Re: Re: new to group..have question

[Guest guest]

Thanks so much for the information Patty! I think I need to make an appt. with an allergist also to make sure he isn't allergic to the "few" foods he eats.pcrawfo1 <PCrawfo1@...> wrote: Patty, We also went the allergist route and it turns out she was allergic to wheat, dairy, soy, tree nuts, etc... her stims and nightwakenings and loose bowel movements decreased tremendously. I know some people have had great success with the biomedical route, however I also know many who have seen no success. I guess what I am saying is don't put all your eggs in one basket looking for the "cure". Put your son in as much early intervention and one on one therapy that you can afford. There is a great school Middleburg Early Education Center that has great

programs for preschoolers. Once your son turns three, you can utilize the autism scholarship to pay for school, an ABA program, tutors, speech, pt ot. I truly think that was the key for our daughter vs any diet/supplements. ABA has kind of gotten a rough name from a lot of local people who truly believe it to be just the "Lovaas" style of DTT. There are many subgroups of ABA such as Verbal Behavior, RDI, and of course DTT all of which have their pros and cons depending on your child and his/her learning style/needs.And if you do decide to pursue the ABA route, make sure you ask around to get a good consultant. There are a lot of people without credentials who have hopped on the autism wagon to make a quick buck. I have heard positive things from families who use Monarch's home program, and I personally hired a consultant who drives up from Columbus. A lot of

parents wait too long to start an intensive program and their is a window of opportunity prior to the age of six where the child will make the most gains that will benefit them lifelong. Patty __________________________________________________

[Guest guest]

Gfcf diet doesn't necessarily mean "allergy" It's more of an intolerance due to their inability to digest properly. I agree also that ABA is very important. We have also done ABA in our own home program. But, the diet helped with alot of the physical stuff. Enzymes helped more and chelation has been the best result. I think that my child benefitted from BOTH because imagine trying to concentrate doing ABA when maybe you feel crappy because you are eating stuff that makes you sick. When our son gets food that he can't tolerate without enzymes EVERYONE notices. Personally, in my experience, the testing is unnecessary to do diet. It is expensive and the results aren't too reliable. It can also make you feel overwhelmed to see the list of "bad" foods. You should eliminate foods slowly and one thing at a time to decide what your child can and can't have. Milk and dairy should always be the first to go, they are the most likely, then gluten, wait a few weeks in between to check how it's working. Keep a notebook. If you're gonna invest in ABA, get the most bang for your buck and make sure your child feels good, sick kids don't learn as well as happy, healthy ones. I was a total skeptic and never took vitamins myself, now I'm a firm believer in it.

Just my two cents,

----- Original Message -----

From: Patti OKeefe

Sent: 2/28/2006 4:33:18 PM

Subject: Re: [ ] Re: new to group..have question

Thanks so much for the information Patty! I think I need to make an appt. with an allergist also to make sure he isn't allergic to the "few" foods he eats.pcrawfo1 <PCrawfo1@...> wrote:

Patty,We also went the allergist route and it turns out she was allergic to wheat, dairy, soy, tree nuts, etc... her stims and nightwakenings and loose bowel movements decreased tremendously. I know some people have had great success with the biomedical route, however I also know many who have seen no success. I guess what I am saying is don't put all your eggs in one basket looking for the "cure". Put your son in as much early intervention and one on one therapy that you can afford. There is a great school Middleburg Early Education Center that has great programs for preschoolers. Once your son turns three, you can utilize the autism scholarship to pay for school, an ABA program, tutors, speech, pt ot. I truly think that was the key for our daughter vs any diet/supplements. ABA has kind of gotten a rough name from a lot of local people who truly believe it to be just the "Lovaas" style of DTT. There are many subgroups of ABA such as Verbal Behavior, RDI, and of course DTT all of which have their pros and cons depending on your child and his/her learning style/needs.And if you do decide to pursue the ABA route, make sure you ask around to get a good consultant. There are a lot of people without credentials who have hopped on the autism wagon to make a quick buck. I have heard positive things from families who use Monarch's home program, and I personally hired a consultant who drives up from Columbus. A lot of parents wait too long to start an intensive program and their is a window of opportunity prior to the age of six where the child will make the most gains that will benefit them lifelong. Patty

__________________________________________________

[Guest guest]

HI Patti---maybe you could ask Dr. Demio about the

allergies. My understanding is that a lot of kids

have intolerances to foods, not necessarily allergies

and they may not show up on traditional testing.

Laurie

--- Patti OKeefe <bbills72@...> wrote:

> Thanks so much for the information Patty! I think I

> need to make an appt. with an allergist also to

> make sure he isn't allergic to the " few " foods he

> eats.

>

> pcrawfo1 <PCrawfo1@...> wrote:

> Patty,

> We also went the allergist route and it turns out

> she was allergic

> to wheat, dairy, soy, tree nuts, etc... her stims

> and nightwakenings

> and loose bowel movements decreased tremendously.

> I know some

> people have had great success with the biomedical

> route, however I

> also know many who have seen no success. I guess

> what I am saying

> is don't put all your eggs in one basket looking

> for the " cure " .

> Put your son in as much early intervention and one

> on one therapy

> that you can afford. There is a great school

> Middleburg Early

> Education Center that has great programs for

> preschoolers. Once

> your son turns three, you can utilize the autism

> scholarship to pay

> for school, an ABA program, tutors, speech, pt ot.

> I truly think

> that was the key for our daughter vs any

> diet/supplements. ABA has

> kind of gotten a rough name from a lot of local

> people who truly

> believe it to be just the " Lovaas " style of DTT.

> There are many

> subgroups of ABA such as Verbal Behavior, RDI, and

> of course DTT all

> of which have their pros and cons depending on

> your child and

> his/her learning style/needs.And if you do decide

> to pursue the ABA

> route, make sure you ask around to get a good

> consultant. There are

> a lot of people without credentials who have

> hopped on the autism

> wagon to make a quick buck. I have heard positive

> things from

> families who use Monarch's home program, and I

> personally hired a

> consultant who drives up from Columbus. A lot of

> parents wait too

> long to start an intensive program and their is a

> window of

> opportunity prior to the age of six where the

> child will make the

> most gains that will benefit them lifelong.

> Patty

>

>

>

>

>

>