Another Question

February 21, 2010

Hi Amy, it really wouldn't be too bad to have him repeat K. with all the

illness, treatment he goes through, living is harder than the other kids have to

deal with...he'd have a chance to have a less stressful year and shore up on

those skills he may be lacking in....who cares if he's a year older? That's

what we did with my son.

But I'd like to make a suggestion....get a private psycheducational

evaluation....it costs a few hundred dollars, but worth it...away from the

school system....that evaluator will be able to look into his fine motor and

perceptual difficulties deeper, and you'll have an independent opinion. Your

son sounds like mine...my boy has Asperger's syndrome...real smart but fine

motor and difficulties with visuo-perceptual skills.

These things need to be evaluated more in-depth than the school will do. But

again, don't worry about holding back another year in kindergarten....I know how

you feel though, wondering if you're making the right decision........I did, and

I'm glad he stayed back for the year, it was fun, less stress, he'll be

learning, and you can get started with an OT at the local children's hospital,

much more days and therapy than the school does...

hugs...Sue

From: w_a_k_shea@... <w_a_k_shea@...>

Subject: Another Question

Date: Sunday, February 21, 2010, 6:14 PM

From reading some other posts on here today I see I'm not the only one currently

having issues with our PID kids and their school system. My son Kelley, my 6

year old with CVID entered kindergarten this year and before entering we had him

labeled Otherwise Health Impaired for special education purposes. We informed

them that he would miss a LOT of school (as I'm sure most of our kids PID do) He

has missed 43 of the last 104 days of school. During our first 2 child study

meetings they told me despite his absences he was doing well so they would NOT

change him 2 a 504. We had coferences a week or so ago and now they want to

retain him for another year of kindergarten. I explained to them over and over

at the start of the school year, I was concerned about his handwriting skills

and about the amount of time he would miss. The occupational therapist came in

and did an evaluation on him and told my husband and I that can do a more in

depth screening, (he has

some perceptual difficulties) but they can't help him since he's not having any

difficulties keeping up with his class. I don't understand why they want to

retain him since he's keeping up with his class in most areas, and why they

won't 504 him since they are SO concerned about his perceptal issues. Thank you

so much again for listening. Any advice you can give is greatly appreciated.

Thanks,

Amy Shea

Sent on the Sprint® Now Network from my BlackBerry®

------------------------------------

This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the sole

responsibility of the poster and should not be taken as professional advice.

To unsubscribe -unsubscribegroups (DOT)

To search group archives go to:

/messages

February 21, 2010

If you can get an advocate together then you can ask the school to provide an

independent evaluation and they may have to pay for it. Do not do anything

without putting it into writing to the school. Just make a strong paper trail as

you go along. I know it seems overwhelming but in the end it will be worth it.

BARBIE

________________________________

From: Sue Bordelon <sudubo@...>

Sent: Sun, February 21, 2010 5:02:44 PM

Subject: Re: Another Question

Hi Amy, it really wouldn't be too bad to have him repeat K. with all the

illness, treatment he goes through, living is harder than the other kids have to

deal with...he'd have a chance to have a less stressful year and shore up on

those skills he may be lacking in....who cares if he's a year older? That's

what we did with my son.

But I'd like to make a suggestion.. ..get a private psycheducational

evaluation.. ..it costs a few hundred dollars, but worth it...away from the

school system....that evaluator will be able to look into his fine motor and

perceptual difficulties deeper, and you'll have an independent opinion. Your

son sounds like mine...my boy has Asperger's syndrome...real smart but fine

motor and difficulties with visuo-perceptual skills.

These things need to be evaluated more in-depth than the school will do. But

again, don't worry about holding back another year in kindergarten. ...I know

how you feel though, wondering if you're making the right decision.... ....I

did, and I'm glad he stayed back for the year, it was fun, less stress, he'll be

learning, and you can get started with an OT at the local children's hospital,

much more days and therapy than the school does...

hugs...Sue

From: w_a_k_shea (DOT) com <w_a_k_shea (DOT) com>

Subject: Another Question

groups (DOT) com