Guest guest Posted June 8, 2008 Report Share Posted June 8, 2008 YES VERY VERY HIGH 100 IS FOR SED!!!! MY HIGHEST WAS 56 Ann Fultz Another question Thanks guys! Thank you Kirk! Is 100 a high sed rate? I am gonna call the emergency room and see if they still have copies of the tests they took when I was dx w/ Still's. You guys are great and I love you for your empathy and warmth. We are joined in a common illness, but we have met some of the best people in the world because of it. Meeting all of you and the thoughtful answers you give, I can appreciate the good things I have. I still fall flat on my face in depression sometimes but you guys always help me back up! Love Sharon xxoo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2008 Report Share Posted June 8, 2008 Sharon, 100 is real high for your SED rate. I've ad higher, but not by much and have heard of some that were much higher...but a healthy person usually has one between 3-12 if memory serves me right. Depression is something I deal with off & on constantly. The only positive to this is I know the reason for it, but short of getting a divorce I can't doanything about it. I have some days where I am pissed at the world, but not as much as I used to. Have a good one, Kirk. 2008/6/8 Sharon : > Thanks guys! Thank you Kirk! Is 100 a high sed rate? I am gonna call > the emergency room and see if they still have copies of the tests they > took when I was dx w/ Still's. You guys are great and I love you for > your empathy and warmth. We are joined in a common illness, but we > have met some of the best people in the world because of it. Meeting > all of you and the thoughtful answers you give, I can appreciate the > good things I have. I still fall flat on my face in depression > sometimes but you guys always help me back up! Love Sharon xxoo > > > -- Everything in life sucks except things that should! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2008 Report Share Posted June 8, 2008 Sharon, 100 is real high for your SED rate. I've ad higher, but not by much and have heard of some that were much higher...but a healthy person usually has one between 3-12 if memory serves me right. Depression is something I deal with off & on constantly. The only positive to this is I know the reason for it, but short of getting a divorce I can't doanything about it. I have some days where I am pissed at the world, but not as much as I used to. Have a good one, Kirk. 2008/6/8 Sharon : > Thanks guys! Thank you Kirk! Is 100 a high sed rate? I am gonna call > the emergency room and see if they still have copies of the tests they > took when I was dx w/ Still's. You guys are great and I love you for > your empathy and warmth. We are joined in a common illness, but we > have met some of the best people in the world because of it. Meeting > all of you and the thoughtful answers you give, I can appreciate the > good things I have. I still fall flat on my face in depression > sometimes but you guys always help me back up! Love Sharon xxoo > > > -- Everything in life sucks except things that should! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2008 Report Share Posted June 9, 2008 Ever since I goy sick my one PCP (who has recently retired way too early due to the BS games the insurance companies kept playing with him...and he was great!) told me to collect every single page of medical record I could get my hands on and to ake them with me whenever seeing a new Dr or going to a new hospital as it would help them as well as myself. I now have a box that has to weigh over 50 lbs!!! My RD was thrilled when I started to see him 9 months later (after seeing an RD that had no clue and no interest in trying to help me) as he was able to see what I was like when I first was ill. He also has presented them to a " board " he meets with as no one has ever been able to put a real good grip on all of my symptoms (he asked my permission and I gave it without hesitation) yet they all came to the same conclusion....Most likely Stills but I may have something that has not been identified yet. As a joke I asked him if they can name whatever it iswith a name of my choosing when & if they do discover it...but he didn't like the " title " I had in mind. Just think of me & you'll get the idea..something along the MF line! I still routinely ask for copies of my records, just not as often as I used to as I see the same Dr's routinely. But if I do wind up in a resort again I will have them in hand before I leave, as trying to get them from a hospital that is far away is a major pain as they usually will not send them to you in the mail. Adios, Kirk. 2008/6/9 Bouldin : > Yes Sharon, 100 is high. Normal is under 20. My highest was 86. That's a > good idea to keep copies of your labs. It's interesting to compare them each > time. Although as my RD says, " I don't really care what the lab says, I care > how you feel " . My labs were normal for the most part the last 2 times...but > if I took them right now, I know they'd be off. > in TX > [Norton AntiSpam] Another question > > Visit Your Group > Meditation and > Lovingkindness > > A Yahoo! Group > > to share and learn. > > Yahoo! Health > Healthy Aging > > Improve your > > quality of life. > > Yahoo! Groups > Everyday Wellness Zone > > Check out featured > > healthy living groups. > . > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2008 Report Share Posted June 9, 2008 Ever since I goy sick my one PCP (who has recently retired way too early due to the BS games the insurance companies kept playing with him...and he was great!) told me to collect every single page of medical record I could get my hands on and to ake them with me whenever seeing a new Dr or going to a new hospital as it would help them as well as myself. I now have a box that has to weigh over 50 lbs!!! My RD was thrilled when I started to see him 9 months later (after seeing an RD that had no clue and no interest in trying to help me) as he was able to see what I was like when I first was ill. He also has presented them to a " board " he meets with as no one has ever been able to put a real good grip on all of my symptoms (he asked my permission and I gave it without hesitation) yet they all came to the same conclusion....Most likely Stills but I may have something that has not been identified yet. As a joke I asked him if they can name whatever it iswith a name of my choosing when & if they do discover it...but he didn't like the " title " I had in mind. Just think of me & you'll get the idea..something along the MF line! I still routinely ask for copies of my records, just not as often as I used to as I see the same Dr's routinely. But if I do wind up in a resort again I will have them in hand before I leave, as trying to get them from a hospital that is far away is a major pain as they usually will not send them to you in the mail. Adios, Kirk. 2008/6/9 Bouldin : > Yes Sharon, 100 is high. Normal is under 20. My highest was 86. That's a > good idea to keep copies of your labs. It's interesting to compare them each > time. Although as my RD says, " I don't really care what the lab says, I care > how you feel " . My labs were normal for the most part the last 2 times...but > if I took them right now, I know they'd be off. > in TX > [Norton AntiSpam] Another question > > Visit Your Group > Meditation and > Lovingkindness > > A Yahoo! Group > > to share and learn. > > Yahoo! Health > Healthy Aging > > Improve your > > quality of life. > > Yahoo! Groups > Everyday Wellness Zone > > Check out featured > > healthy living groups. > . > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2008 Report Share Posted November 16, 2008 give us your brothers story also. What is yoru BP when you wake up? On Nov 16, 2008, at 3:52 AM, lmcust wrote: > I do get up in the night or early morning and I do go the bathroom at > this time. I also wake up with a headache and often backache. I am > not sure what is waking me up but it is one of the three or all of > them. When this happens which is more often than not, now, I take > Tylenol 3 to get rid of pain and so I can go back to sleep. Do others > have this or have you had it? > > Remember that I haven't been diagnosed with Hyperaldosteronism. I > suspect it because of symptoms I have and my brother has it or had it. > > Thanks > > > May your pressure be low!  CE Grim BS, MS, MD High Blood Pressure Consulting Senior Consultant to Shared Care Research and Education Consulting Inc.(sharedcareinc.com) Clinical Professor of Internal Medicine Medical and Cardiology Medical College of Wisconsin Board certified in Internal Med, Geriatrics and Hypertension. Interests: 1. Difficult to control high blood pressure. 2. The effect of recent evolutionary forces on high blood pressure in human populations. 3. Improving blood pressure measurement in the office and out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2008 Report Share Posted November 16, 2008 I wake up every morning with headache and severe low back pain and have to go to the bathroom. Sometimes I feel like I may have to crawl to the bathroom. If I try to go back to sleep I feel worse, so I just get up and get on with my day. Headache and back ache go away by mid- morning with no pain meds. > > I do get up in the night or early morning and I do go the bathroom at > this time. I also wake up with a headache and often backache. I am > not sure what is waking me up but it is one of the three or all of > them. When this happens which is more often than not, now, I take > Tylenol 3 to get rid of pain and so I can go back to sleep. Do others > have this or have you had it? > > Remember that I haven't been diagnosed with Hyperaldosteronism. I > suspect it because of symptoms I have and my brother has it or had it. > > Thanks > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2008 Report Share Posted November 16, 2008 I got up with bad headaches about twice a week for about 10 years. The Doctors kept telling me it was migraines and that I couldn't take any of the popular migraine drugs because my blood pressure was so high! (This was while I was taking 5 different meds for blood pressure.) The headaches were miserable. The last time I got up with a bad headache was the day that I started taking Spironolactone. Keep after the Doctors. I had poorly controlled blood pressure for about 20 years before they finally tested me for PA. Who knows how much damage was done to my body during those 20 years. > > I do get up in the night or early morning and I do go the bathroom at > this time. I also wake up with a headache and often backache. I am > not sure what is waking me up but it is one of the three or all of > them. When this happens which is more often than not, now, I take > Tylenol 3 to get rid of pain and so I can go back to sleep. Do others > have this or have you had it? > > Remember that I haven't been diagnosed with Hyperaldosteronism. I > suspect it because of symptoms I have and my brother has it or had it. > > Thanks > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2008 Report Share Posted November 16, 2008 A characteristic of PA is urinating many times during the night. I do fine until 3 a.m. and then am up about every hour. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of lmcust I do get up in the night or early morning and I do go the bathroom at this time. I also wake up with a headache and often backache. I am not sure what is waking me up but it is one of the three or all of them. When this happens which is more often than not, now, I take Tylenol 3 to get rid of pain and so I can go back to sleep. Do others have this or have you had it? Remember that I haven't been diagnosed with Hyperaldosteronism. I suspect it because of symptoms I have and my brother has it or had it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2008 Report Share Posted November 16, 2008 Is the need to crawl related to weakness or pain? Muscle cramps? I has one pt who was too weak to get up out of bed. She had to roll out of bed over to the wall. Then back up the wall so she could stand up. On Nov 16, 2008, at 12:07 PM, mmcandmcc wrote: > I wake up every morning with headache and severe low back pain and > have to go to the bathroom. Sometimes I feel like I may have to crawl > to the bathroom. If I try to go back to sleep I feel worse, so I just > get up and get on with my day. Headache and back ache go away by mid- > morning with no pain meds. > > > > > > > > I do get up in the night or early morning and I do go the bathroom > at > > this time. I also wake up with a headache and often backache. I am > > not sure what is waking me up but it is one of the three or all of > > them. When this happens which is more often than not, now, I take > > Tylenol 3 to get rid of pain and so I can go back to sleep. Do > others > > have this or have you had it? > > > > Remember that I haven't been diagnosed with Hyperaldosteronism. I > > suspect it because of symptoms I have and my brother has it or had > it. > > > > Thanks > > > > > May your pressure be low!  CE Grim BS, MS, MD High Blood Pressure Consulting Senior Consultant to Shared Care Research and Education Consulting Inc.(sharedcareinc.com) Clinical Professor of Internal Medicine Medical and Cardiology Medical College of Wisconsin Board certified in Internal Med, Geriatrics and Hypertension. Interests: 1. Difficult to control high blood pressure. 2. The effect of recent evolutionary forces on high blood pressure in human populations. 3. Improving blood pressure measurement in the office and out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2008 Report Share Posted November 16, 2008 Is extreme, disabling fatigue/weakness a symptom of the underlying adenoma, a side effect of Inspra, an adverse reaction to Inspra, or unrelated to any of these?? as99@... ======================================================================== =============== On Nov 16, 2008, at 9:40 PM, Clarence Grim wrote: > Is the need to crawl related to weakness or pain? > > Muscle cramps? > > I has one pt who was too weak to get up out of bed. She had to roll > out of bed over to the wall. Then back up the wall so she could > stand up. > > On Nov 16, 2008, at 12:07 PM, mmcandmcc wrote: > > > I wake up every morning with headache and severe low back pain and > > have to go to the bathroom. Sometimes I feel like I may have to > crawl > > to the bathroom. If I try to go back to sleep I feel worse, so I > just > > get up and get on with my day. Headache and back ache go away by > mid- > > morning with no pain meds. > > > > > > > > > > > > > > I do get up in the night or early morning and I do go the bathroom > > at > > > this time. I also wake up with a headache and often backache. I am > > > not sure what is waking me up but it is one of the three or all of > > > them. When this happens which is more often than not, now, I take > > > Tylenol 3 to get rid of pain and so I can go back to sleep. Do > > others > > > have this or have you had it? > > > > > > Remember that I haven't been diagnosed with Hyperaldosteronism. I > > > suspect it because of symptoms I have and my brother has it or had > > it. > > > > > > Thanks > > > > > > > > > > > May your pressure be low! > > > > CE Grim BS, MS, MD > > High Blood Pressure Consulting > > Senior Consultant to Shared Care Research and Education Consulting > Inc.(sharedcareinc.com) > > Clinical Professor of Internal Medicine Medical and Cardiology > Medical College of Wisconsin > > Board certified in Internal Med, Geriatrics and Hypertension. > > Interests: > 1. Difficult to control high blood pressure. > 2. The effect of recent evolutionary forces on high blood pressure > in human populations. > 3. Improving blood pressure measurement in the office and out. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2008 Report Share Posted November 17, 2008 a Sx of low K. Clarence E. Grim, BS, MS, MD On Sunday, November 16, 2008, at 10:10PM, " Arthur Springer " <as99@...> wrote: >Is extreme, disabling fatigue/weakness a symptom of the underlying >adenoma, >a side effect of Inspra, an adverse reaction to Inspra, or unrelated to >any of these?? > >as99@... >======================================================================== >=============== > >On Nov 16, 2008, at 9:40 PM, Clarence Grim wrote: > >> Is the need to crawl related to weakness or pain? >> >> Muscle cramps? >> >> I has one pt who was too weak to get up out of bed. She had to roll >> out of bed over to the wall. Then back up the wall so she could >> stand up. >> >> On Nov 16, 2008, at 12:07 PM, mmcandmcc wrote: >> >> > I wake up every morning with headache and severe low back pain and >> > have to go to the bathroom. Sometimes I feel like I may have to >> crawl >> > to the bathroom. If I try to go back to sleep I feel worse, so I >> just >> > get up and get on with my day. Headache and back ache go away by >> mid- >> > morning with no pain meds. >> > >> > >> > >> > >> > > >> > > I do get up in the night or early morning and I do go the bathroom >> > at >> > > this time. I also wake up with a headache and often backache. I am >> > > not sure what is waking me up but it is one of the three or all of >> > > them. When this happens which is more often than not, now, I take >> > > Tylenol 3 to get rid of pain and so I can go back to sleep. Do >> > others >> > > have this or have you had it? >> > > >> > > Remember that I haven't been diagnosed with Hyperaldosteronism. I >> > > suspect it because of symptoms I have and my brother has it or had >> > it. >> > > >> > > Thanks >> > > >> > >> > >> > >> >> May your pressure be low! >> >> >> >> CE Grim BS, MS, MD >> >> High Blood Pressure Consulting >> >> Senior Consultant to Shared Care Research and Education Consulting >> Inc.(sharedcareinc.com) >> >> Clinical Professor of Internal Medicine Medical and Cardiology >> Medical College of Wisconsin >> >> Board certified in Internal Med, Geriatrics and Hypertension. >> >> Interests: >> 1. Difficult to control high blood pressure. >> 2. The effect of recent evolutionary forces on high blood pressure >> in human populations. >> 3. Improving blood pressure measurement in the office and out. >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2008 Report Share Posted November 17, 2008 Dr Grim - I was hoping my brother would join this group as I believe he would find it extremely beneficial since he did have Conn's (adenoma) and I was hoping he would share his own story. He had the tumor removed this past summer. Is there a tick off sheet somewhere in this group that lists the things I should be checking and when. I have just started tracking my BP and the earliest I have taken it is at 9:00am when I start to feel my 1st attack or spell of dizzy, tingly pounding. I am going to see a new doctor and try and start again if I have it in me. (I have no other choice - I am not happy with my current situation) The question I have this time is: What should a normal heart rate be? My varies from 75 to 104 always in a sitting, rested position. I am having headaches now that I cannot get to go away and my head just pounds with the beating of my heart and yet the BP doesn't show high. Your thoughts? Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2008 Report Share Posted November 17, 2008 It is extreme back pain where I can't stand up or get my legs to move. > > > > > > I do get up in the night or early morning and I do go the bathroom > > at > > > this time. I also wake up with a headache and often backache. I am > > > not sure what is waking me up but it is one of the three or all of > > > them. When this happens which is more often than not, now, I take > > > Tylenol 3 to get rid of pain and so I can go back to sleep. Do > > others > > > have this or have you had it? > > > > > > Remember that I haven't been diagnosed with Hyperaldosteronism. I > > > suspect it because of symptoms I have and my brother has it or had > > it. > > > > > > Thanks > > > > > > > > > > > May your pressure be low! > > >  > > > > > > > CE Grim BS, MS, MD > > High Blood Pressure Consulting > > Senior Consultant to Shared Care Research and Education Consulting > Inc.(sharedcareinc.com) > > Clinical Professor of Internal Medicine Medical and Cardiology > Medical College of Wisconsin > > Board certified in Internal Med, Geriatrics and Hypertension. > > Interests: > 1. Difficult to control high blood pressure. > 2. The effect of recent evolutionary forces on high blood pressure > in human populations. > 3. Improving blood pressure measurement in the office and out. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2008 Report Share Posted November 18, 2008 The only way this could be true for me is if K is unstable, i.e. varies by the hour. Is that possible? I have disabling weakness at times. After a few hours, I improve. If I eat too much salt, it takes up to a week to improve. Is that variable K? Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of lowerbp2 a Sx of low K. Clarence E. Grim, BS, MS, MD On Sunday, November 16, 2008, at 10:10PM, " Arthur Springer " <as99@... <mailto:as99%40verizon.net> > wrote: >Is extreme, disabling fatigue/weakness a symptom of the underlying >adenoma, >a side effect of Inspra, an adverse reaction to Inspra, or unrelated to >any of these?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2008 Report Share Posted November 18, 2008 Only way to tell would be to measure K around the clock which I have done in rare circumstances such as inherited hypokalemic periodic paralysis. In these patients K can change rapidly with out a known cause. In some a CHO load will do it. No one has tested acute sodium loading that I am aware of. Hyper ventilation for 2 minutes will shift K remarkably in some. Not tested well in PA but could be. What one would do would be to have an indwelling needle in a vein to measure K. Get 3 before and 3 after hyperventilation for say 3 min and see. It will be best to measure plasma K rather than serum in such a study. Indeed it it always better to measure plasma K than serum K as it is less likely to give a false normal K when K is low. On Nov 18, 2008, at 8:03 AM, Valarie wrote: > The only way this could be true for me is if K is unstable, i.e. > varies by > the hour. Is that possible? I have disabling weakness at times. > After a > few hours, I improve. If I eat too much salt, it takes up to a week to > improve. Is that variable K? > > Val > > From: hyperaldosteronism > [mailto:hyperaldosteronism ] On Behalf Of lowerbp2 > > a Sx of low K. > > Clarence E. Grim, BS, MS, MD > > On Sunday, November 16, 2008, at 10:10PM, " Arthur Springer " > <as99@... <mailto:as99%40verizon.net> > wrote: > >Is extreme, disabling fatigue/weakness a symptom of the underlying > >adenoma, > >a side effect of Inspra, an adverse reaction to Inspra, or > unrelated to > >any of these?? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2008 Report Share Posted November 18, 2008 RE " Hyper ventilation for 2 minutes will shift K remarkably in some. Not > tested well in PA but could be. " ......................................................................... ............. I have COPD. When I get these bouts of weakness outdoors, I do pursed-lips breathing ( " hyperventilation " ) and recover within three to four minutes. Is low potassium especially acute in people with COPD or associated with COPD at all? as99 ------------------------------------------------------------------------ ------- On Nov 18, 2008, at 10:39 PM, Clarence Grim wrote: > Only way to tell would be to measure K around the clock which I have > done in rare circumstances such as inherited hypokalemic periodic > paralysis. > > In these patients K can change rapidly with out a known cause. > > In some a CHO load will do it. No one has tested acute sodium > loading that I am aware of. > > Hyper ventilation for 2 minutes will shift K remarkably in some. Not > tested well in PA but could be. > > What one would do would be to have an indwelling needle in a vein to > measure K. > Get 3 before and 3 after hyperventilation for say 3 min and see. > > It will be best to measure plasma K rather than serum in such a > study. Indeed it it always better to measure plasma K than serum K > as it is less likely to give a false normal K when K is low. > > On Nov 18, 2008, at 8:03 AM, Valarie wrote: > > > The only way this could be true for me is if K is unstable, i.e. > > varies by > > the hour. Is that possible? I have disabling weakness at times. > > After a > > few hours, I improve. If I eat too much salt, it takes up to a week > to > > improve. Is that variable K? > > > > Val > > > > From: hyperaldosteronism > > [mailto:hyperaldosteronism ] On Behalf Of lowerbp2 > > > > a Sx of low K. > > > > Clarence E. Grim, BS, MS, MD > > > > On Sunday, November 16, 2008, at 10:10PM, " Arthur Springer " > > <as99@... <mailto:as99%40verizon.net> > wrote: > > >Is extreme, disabling fatigue/weakness a symptom of the underlying > > >adenoma, > > >a side effect of Inspra, an adverse reaction to Inspra, or > > unrelated to > > >any of these?? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2008 Report Share Posted December 3, 2008 Marcie, A rule of thumb for the correct proportions of zinc and copper may be seen on some commercial dietary supplement bottles. For example, a bottle of " Zinc Picolinate 30 " from GNC contains the proportions of 30mg zinc to 2mg copper, or 15:1 zinc to copper. The bottle label says to take one tablet per day. > > So I just read zinc will lower copper levels. Now if hypothyroid needs copper how much copper would one need to over rule the zinc and to help the thyroid? did that just make sense? > > Marcie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2008 Report Share Posted December 3, 2008 Zinc & copper are taken up in the same pathway. If you overload with one, then the other cannot be absorbed. Much in the same way that Iodine can be blocked by bromide, chloride or flouride, because they only have one channel or pathway that they have to share. So be careful. Probably should have levels checked by the doc. Laurel > > So I just read zinc will lower copper levels. Now if hypothyroid needs copper how much copper would one need to over rule the zinc and to help the thyroid? did that just make sense? > > Marcie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2008 Report Share Posted December 8, 2008 With respect to Inspra, if blood pressure decreases dramatically with its use, does that confirm PA? Or does Inspra lower blood pressure even if hyperaldosteronism is not its root cause? >> >> > I wake up every morning with headache and severe low back pain and >> > have to go to the bathroom. Sometimes I feel like I may have to >> crawl >> > to the bathroom. If I try to go back to sleep I feel worse, so I >> just >> > get up and get on with my day. Headache and back ache go away by >> mid- >> > morning with no pain meds. >> > >> > >> > >> > >> > > >> > > I do get up in the night or early morning and I do go the bathroom >> > at >> > > this time. I also wake up with a headache and often backache. I am >> > > not sure what is waking me up but it is one of the three or all of >> > > them. When this happens which is more often than not, now, I take >> > > Tylenol 3 to get rid of pain and so I can go back to sleep. Do >> > others >> > > have this or have you had it? >> > > >> > > Remember that I haven't been diagnosed with Hyperaldosteronism. I >> > > suspect it because of symptoms I have and my brother has it or had >> > it. >> > > >> > > Thanks >> > > >> > >> > >> > >> >> May your pressure be low! >> >> >> >> CE Grim BS, MS, MD >> >> High Blood Pressure Consulting >> >> Senior Consultant to Shared Care Research and Education Consulting >> Inc.(sharedcareinc. com) >> >> Clinical Professor of Internal Medicine Medical and Cardiology >> Medical College of Wisconsin >> >> Board certified in Internal Med, Geriatrics and Hypertension. >> >> Interests: >> 1. Difficult to control high blood pressure. >> 2. The effect of recent evolutionary forces on high blood pressure >> in human populations. >> 3. Improving blood pressure measurement in the office and out. >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2008 Report Share Posted December 9, 2008 IMHO if it lowers bp then aldo or another MC and too much salt are causing the HTN: lowering salt seems to work almost as well but it has to get below 1500 mg q day:The DASH Clarence E. Grim, BS, MS, MD On Monday, December 08, 2008, at 04:24PM, " Francine Klein " <fkklein5@...> wrote: >With respect to Inspra, if blood pressure decreases dramatically with its use, does that confirm PA? Or does Inspra lower blood pressure even if hyperaldosteronism is not its root cause? > > >>> >>> > I wake up every morning with headache and severe low back pain and >>> > have to go to the bathroom. Sometimes I feel like I may have to >>> crawl >>> > to the bathroom. If I try to go back to sleep I feel worse, so I >>> just >>> > get up and get on with my day. Headache and back ache go away by >>> mid- >>> > morning with no pain meds. >>> > >>> > >>> > >>> > >>> > > >>> > > I do get up in the night or early morning and I do go the bathroom >>> > at >>> > > this time. I also wake up with a headache and often backache. I am >>> > > not sure what is waking me up but it is one of the three or all of >>> > > them. When this happens which is more often than not, now, I take >>> > > Tylenol 3 to get rid of pain and so I can go back to sleep. Do >>> > others >>> > > have this or have you had it? >>> > > >>> > > Remember that I haven't been diagnosed with Hyperaldosteronism. I >>> > > suspect it because of symptoms I have and my brother has it or had >>> > it. >>> > > >>> > > Thanks >>> > > >>> > >>> > >>> > >>> >>> May your pressure be low! >>> >>> >>> >>> CE Grim BS, MS, MD >>> >>> High Blood Pressure Consulting >>> >>> Senior Consultant to Shared Care Research and Education Consulting >>> Inc.(sharedcareinc. com) >>> >>> Clinical Professor of Internal Medicine Medical and Cardiology >>> Medical College of Wisconsin >>> >>> Board certified in Internal Med, Geriatrics and Hypertension. >>> >>> Interests: >>> 1. Difficult to control high blood pressure. >>> 2. The effect of recent evolutionary forces on high blood pressure >>> in human populations. >>> 3. Improving blood pressure measurement in the office and out. >>> >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2008 Report Share Posted December 9, 2008 IMHO if it lowers bp then aldo or another MC and too much salt are causing the HTN: lowering salt seems to work almost as well but it has to get below 1500 mg q day:The DASH Clarence E. Grim, BS, MS, MD On Monday, December 08, 2008, at 04:24PM, " Francine Klein " <fkklein5@...> wrote: >With respect to Inspra, if blood pressure decreases dramatically with its use, does that confirm PA? Or does Inspra lower blood pressure even if hyperaldosteronism is not its root cause? > > >>> >>> > I wake up every morning with headache and severe low back pain and >>> > have to go to the bathroom. Sometimes I feel like I may have to >>> crawl >>> > to the bathroom. If I try to go back to sleep I feel worse, so I >>> just >>> > get up and get on with my day. Headache and back ache go away by >>> mid- >>> > morning with no pain meds. >>> > >>> > >>> > >>> > >>> > > >>> > > I do get up in the night or early morning and I do go the bathroom >>> > at >>> > > this time. I also wake up with a headache and often backache. I am >>> > > not sure what is waking me up but it is one of the three or all of >>> > > them. When this happens which is more often than not, now, I take >>> > > Tylenol 3 to get rid of pain and so I can go back to sleep. Do >>> > others >>> > > have this or have you had it? >>> > > >>> > > Remember that I haven't been diagnosed with Hyperaldosteronism. I >>> > > suspect it because of symptoms I have and my brother has it or had >>> > it. >>> > > >>> > > Thanks >>> > > >>> > >>> > >>> > >>> >>> May your pressure be low! >>> >>> >>> >>> CE Grim BS, MS, MD >>> >>> High Blood Pressure Consulting >>> >>> Senior Consultant to Shared Care Research and Education Consulting >>> Inc.(sharedcareinc. com) >>> >>> Clinical Professor of Internal Medicine Medical and Cardiology >>> Medical College of Wisconsin >>> >>> Board certified in Internal Med, Geriatrics and Hypertension. >>> >>> Interests: >>> 1. Difficult to control high blood pressure. >>> 2. The effect of recent evolutionary forces on high blood pressure >>> in human populations. >>> 3. Improving blood pressure measurement in the office and out. >>> >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2010 Report Share Posted February 21, 2010 I would encourage you to go to www.wrightslaw.com. It is a website and organization put together by an attorney and his wife to help families struggling with getting the support they need for children with special needs. It has been very helpful to me over the years. From what I can see in your email I am wondering if you may be mixing up an IEP and an 504 plan. Your son should have a 504 plan to accommodate for his needs with his health issues but.... there is NO clout in a 504. If they are asking you to keep him for another year then his health IS.... effecting his schooling. They at that point are responsible to help write him an IEP which is an individual education plan to help him keep up. I would strongly urge you to find an advocate to help you navagate this system. It is complex and very confusing if you have not thoroughly educated yourself about its ins and outs. If he does have an IEP then you are protected and he can get the services he needs.Some kids do not need an IEP and can do well with the agreed upon supports under a 504. Sadly schools have to pay more out with an IEP so they are less willing to shift you over to one. We had a HORRIBLE time working with out school district when my son was in kindergarten. We ended up taking him out of public school and paying for private school for several years. By the time he was in the 4th grade we tried again and they automatically gave us an IEP. It still did not work for us so he is now home schooled. Fortunately here in WA state there is financial and certified teacher supports to help us home school and provide the education he deserves. My son is VERY bright but with all the absences could not keep up. He became very depressed and felt like a failure due to the accommodations not being in place. It has been a tough journey and I feel only now do I have a handle on it and he is in the 8th grade. I have been sitting here thinking of what I should have done differently.... I think I would have been stronger with the school system and have gotten him an advocate to require the school to do what they should to help him. It has effected his self esteem and his desire to learn and it saddens me that that his where he is. Home schooling has been FANTASTIC. We are using www.time4learning.com as part of our curriculum. It is very reasonable and he is motivated to get it done. We also do LOTS of outside activities and go to the local services 2 days a week. It has been win win for us. If I can be of any further help feel free to contact me. BARBIE ________________________________ From: " w_a_k_shea@... " <w_a_k_shea@...> Sent: Sun, February 21, 2010 10:14:29 AM Subject: Another Question From reading some other posts on here today I see I'm not the only one currently having issues with our PID kids and their school system. My son Kelley, my 6 year old with CVID entered kindergarten this year and before entering we had him labeled Otherwise Health Impaired for special education purposes. We informed them that he would miss a LOT of school (as I'm sure most of our kids PID do) He has missed 43 of the last 104 days of school. During our first 2 child study meetings they told me despite his absences he was doing well so they would NOT change him 2 a 504. We had coferences a week or so ago and now they want to retain him for another year of kindergarten. I explained to them over and over at the start of the school year, I was concerned about his handwriting skills and about the amount of time he would miss. The occupational therapist came in and did an evaluation on him and told my husband and I that can do a more in depth screening, (he has some perceptual difficulties) but they can't help him since he's not having any difficulties keeping up with his class. I don't understand why they want to retain him since he's keeping up with his class in most areas, and why they won't 504 him since they are SO concerned about his perceptal issues. Thank you so much again for listening. Any advice you can give is greatly appreciated. Thanks, Amy Shea Sent on the Sprint® Now Network from my BlackBerry® ------------------------------------ This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. To unsubscribe -unsubscribegroups (DOT) To search group archives go to: /messages Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2010 Report Share Posted February 21, 2010 Amy, where are you located? On Sun, Feb 21, 2010 at 10:14 AM, <w_a_k_shea@...> wrote: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2010 Report Share Posted February 21, 2010 I am in Michigan. Amy Sent on the Sprint® Now Network from my BlackBerry® Re: Another Question Amy, where are you located? On Sun, Feb 21, 2010 at 10:14 AM, <w_a_k_shea@...> wrote: Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.