MY INTRODUCTION

November 17, 2010

Hi purpletig, Welcome to the wonderful world of thyroid! I suggest you write a letter to your doc- cc to head of practice. asking for a referral to a thyroid endo ( most are diabetes and Sheila has a list of some who are better then most) list your symptoms- see files and ask for a full thyroid panel TSH FT4 and FT3- 2.81 is not normal- 1.0 is. Ask also for tests for ferritin, selenium, zinc, D3 as if any of these are low you know that your thyroid will not function properly. Say you cannot continue like ,keep basal ( before you get out of bed or drink anything hot) body temps for 5 days- these should be 37 deg, but may be a low as 35deg. Ask for your letter to be kept on file- docs take more notice of letters as they can come back and bite if ignored. > thyroid treatment > From: purpletig2010@...> Date: Tue, 16 Nov 2010 23:54:07 +0000> Subject: My Introduction> > Hello I'm a new member. I found out about this group and web site after desperately looking for some answers on the net. The following e-mail is a copy of my mail to Sheila. Maybe someone in the group can help or advise. > > Dear Sheila,> > I am e-mailing you at the TPA as I don't know what else to do. I am a 35 yr old woman, have always been in good health in the past and I have never had children and I believe something is very wrong. I believe my thyroid is the problem despite, after much persuasion, getting my GP to do a blood test I am still no better off. My results came back as a NORMAL TSH level, that being 2.81. This being after I had broken down in the doctor's surgery and begged for help after suffering, and I mean suffering, man> > A very desperate patient,> > > > ------------------------------------> > TPA is not medically qualified. Consult with a qualified medical practitioner before changing medication.> >

November 17, 2010

hello very desparate patient ....i'm sorry you're in such an awful state, for

what it's worth you have my sympathy.... the good thing is that you will get

well but need to be bit of a 'patient' patient in that regard ...you have not

got this unwell in the blink of any eye and your body will want some time to get

back to balance.

the anti-depressant you have been prescribed contains fluoride and fluoride is

horribly ANTI thyroid (anti health all around):

http://www.factsantidepressants.com/2003-08-Prozac-Paxil-Fluorophenyl.htm

" .In humans fluoxetine treatment reduced TRH-induced TSH release in both normal

and obese women) " . (i interpret that to mean tsh will be artifically low)

you say you stated fluoextine in march 2010 ...when did you have your thyroid

test performed? did they only test tsh??? given your family history i would

say you should be tested for the two main antibodies (anti-tpo and anti-tg); if

positive that would indicate hashimoto's thyroiditis which is autoimmune and the

most common reason these days of being hypothyroid.

http://www.labtestsonline.org/understanding/analytes/thyroid_antibodies/test.htm\

l

and hashimoto's is a *moving* target but the eventual result is the total

destruction of the thyroid gland ...if you have hashimoto's (positive

auto-antibodies) then you need to get the correct dose of hormone into your body

so that the thyroid stops making it's own contribution and does not get attacked

anymore)...i think that's how it goes at any rate ..i've got hashi's and

probably have had it for aeons but my thyroid was still around four years ago

when i had a scan (with a nodule). if it were me i would request that they

stop sticking a needle in your nodule.

have you changed anti-depressant (although chances are you don't need one) or

are you still on fluoxetine?

all your symptoms by the way *scream* out that you are hypo and shame on your gp

for not having the intelligence to see beyond a flawed blood test would

there be any chance of changing your doctor?

the following all need to be well up in their reference ranges in order for

thyroid hormone to be able to do its work:

ferritin (stored iron), vit b12, magnesium, vit D3, folate, zinc, copper

......has your doctor run any tests to see if you are anaemic (which could be

iron deficient and/r vit b12 and folate deficient); anaemia causes extreme

fatigue and muscle aches and if b12 is low then mental problems occur..

i would suggest you start taking regular doses of vit c throught out the day

because at the very least that might help with constipation. try starting your

day with some warm water with freshly squeezed lemon in it, it will give your

liver a bit of a boost (and the adrenals like lemon), (read the contents of vit

c carefully though because some contain posion like aspartame and other

nasties).

i'd like to suggest you ditch the pride and claim whatever it is you are

entitled to claim... one less stress in your life will help you get well quicker

and it is (always) false economy to let pride get in the way {but we all do daft

things }

i'd also like to suggest you ditch the idea of dieting (although you obviously

need to eat good quiality food).

taking your temperature first thing in the morning and then at set times

throughout the day will be very revealing about your metabolic state ....before

you get out of bed take your temperature and note it down and then try and take

your temp every three hours for the next three or four times. simplistically

put if you start off low and remain low but stable, then that would indicate low

thyroid on its own, but if you start off low and then the temps are quite all

over the place then that would indicate low thyroid and struggling adrenal

glands

http://www.drrind.com/therapies/metabolic-temperature-graph

best wishes and don't worry, things will get better

trish

>

> Hello I'm a new member. I found out about this group and web site after

desperately looking for some answers on the net. The following e-mail is a copy

of my mail to Sheila. Maybe someone in the group can help or advise.

>

> Dear Sheila,

>

> I am e-mailing you at the TPA as I don't know what else to do. I am a 35 yr

old woman, have always been in good health in the past and I have never had

children and I believe something is very wrong. I believe my thyroid is the

problem despite, after much persuasion, getting my GP to do a blood test I am

still no better off. My results came back as a NORMAL TSH level, that being

2.81. This being after I had broken down in the doctor's surgery and begged for

help after suffering, and I mean suffering, many of symptoms of hypothyroidism.

Despite giving my GP a list of symptoms I have had for many years, plus the fact

I have a thyroid nodule which has caused pain on and off for about three years

(that being how it was found), when given my results she simply said there was

no where else to go from here, all my blood results were normal. Her only

suggestion was to send me to a dietitian to help me with my weight and change

the antidepressant (Fluoxetine) they have had me on since March 2010.

November 17, 2010

Hi,

It's a blessing you found this group...you'll get better by following the advice

offered here....Yes, your adrenals are tired and with dark circles under the

eye, that is lack of iron. I'm sure your iron and ferritin levels are low.

If your eyebrows have thinned or hair, that is lack of Iodine.

One of the best things you can do on your road to wellness is to drink 1/2

teaspoon of unrefined/unprocessed salt upon waking. Drink it all down. The

adrenals need salt, like lungs need air. B-12 tablets sublingually also, as soon

as possible.

It's a great deal to take in all at once, so pace yourself in your learning and

improvements will be forth coming. :0)

You're in good hands here.

Cheers,

JOT

November 18, 2010

Hi purpletig2010

Your story is almost an exact version of mine. 5 stones in 5 years, tiredness,

mood swings, muscle pain, reflux... I became increasingly ill over 20 years,

then found TPA. Please do follow the advice on this website, and take your time

to learn about your condition, and ask questions on this forum. You will get the

answers you need here. I self treat, having been " shelved " by the NHS with a

diagnosis of Chronic Fatigue Syndrome (no treatment offered). I see Dr P when I

need to. I'm well now, with a few off-days, and am beginning to feel the old

ambition and determination creeping back in. Incidentally, my TSH was 2.6 in

1991, and 2.7 in 2008. In 1991 I was athletic and fit but experiencing weight

gain and hair loss. In 2008 I was so knackered I couldn't get upstairs. TSH

testing is a nonsense.

You've taken the first steps to turning round your health. Welcome and good

luck,

Sue

xx

>

> Hello I'm a new member. I found out about this group and web site after

desperately looking for some answers on the net. The following e-mail is a copy

of my mail to Sheila. Maybe someone in the group can help or advise.

>

****old message deleted by moderator *****

January 31, 2011

April,

You are in the worst part. Getting the diagnosis is scary. Welcome to the

group. My name is and I have (14) He has Selective IgG Def and does

SubQ every week. He is very healthy, considering. Tori is my 11 year old and

she has Hypogammaglobulimia. She is just being monitored at this time.

From: n2katz2003@...

Date: Mon, 31 Jan 2011 21:48:15 +0000

Subject: My Introduction

Hi everyone! I am so glad I found this group. My name is April and I

live in land. I am married to Ben and we have fraternal twin boys, Zak &

Ryder, who are 3.5 years old.

Ryder was just diagnosed last week with CVID and had his first infusion of

Hizentra on Friday morning.

Ryder's Background: He was born 10 weeks early and spent 6 weeks in the NICU.

He had breathing issues and battled a few infections. Once home he continued to

have breathing issues and was diagnosed with asthma around 7 months old. At 9

months old he got very ill and ended up on a vent for 11 days and a total of 4

weeks in the hospital (3 different ones actually). We found out he had

Haemophilus Influenzae non-typable which we were told was not something common

for a child to get. Also, it was strange since he stays home with me and did

not go to daycare at all. Also, during that hospital stay he had genetic

testing done and he was diagnosed with Klinefelter Syndrome (he has an extra 'x'

chromosome and various delays). The Geneticist decided to send him to an

Immunologist because he has frequent infections. At first the Immunologist said

he had Transient Hypogammaglobulinemia. Then after more testing,

re-vaccinating, waiting, and more testing he was diagnosed with CVID.

We just had blood work done on his twin this weekend to check all of his

antibodies since he also seems to get infections frequently and had the H.

Influenzae as well, but doesn't always get as sick as his brother.

January 31, 2011