Question

June 27, 2005

Hi Jessy,

Sorry that your having a flare. Your so young, and I understand how

you want to do things. When I know that I'm going somewhere I rest

before, and after. I also have a lot of pain in my feet. I just try

to stay off them for awhile, and soak them.

You might need to ask your doc for some pain meds if you have a lot

of pain. You take care, Tawny

> Hello,

>

> I haven't posted in a couple months, but am having a

> flare and was wondering if anyone had any suggestions.

> The rheumotiod arthritis is mainly in my feet, and

> then also effects my achilles tendons. They just kill

> me, esp in the evenings and nights. Does anyone else

> experience this? What would you suggest for pain

> relief? I am currently on Methotrexate (25 mg),

> Prednisone, a prescription anti-inflammatory, and

> anything else that helps.

>

> Also is there anything I could ask my rheumo doctor to

> look into as far as the achilles tendons? Last time,

> he told me to use some ceyenne cream, but that didn't

> really work.

>

> What do you do when you have flares in your feet, but

> want to go do stuff? I know at the end day, and the

> next day I will pay for it, but at the same time I am

> 26 and want to keep up.

>

> Thanks for the help,

> Jessy

>

> ____________________________________________________

> Sports

> Rekindle the Rivalries. Sign up for Fantasy Football

> http://football.fantasysports.

June 27, 2005

Jessy,

My husband has had RA for about 10 years & was diagnosed in his early 30's. I'm

so sorry to hear that you have to deal with this kind of pain as well at such a

young age! I asked his opinion on your question & he says to lay off the dairy,

wheat and any caffeine. Also, alternate between cold/hot cloths with your feet

up until the swelling goes down. And of course, as Tawny said, pain medication.

I know these don't sound like a lot, but it does seem to help him enough where

he can get around a little easier! I hope this helps....feel better! :-)

Diane

tdianaok <tdianaok@...> wrote:

Hi Jessy,

Sorry that your having a flare. Your so young, and I understand how

you want to do things. When I know that I'm going somewhere I rest

before, and after. I also have a lot of pain in my feet. I just try

to stay off them for awhile, and soak them.

You might need to ask your doc for some pain meds if you have a lot

of pain. You take care, Tawny

> Hello,

>

> I haven't posted in a couple months, but am having a

> flare and was wondering if anyone had any suggestions.

> The rheumotiod arthritis is mainly in my feet, and

> then also effects my achilles tendons. They just kill

> me, esp in the evenings and nights. Does anyone else

> experience this? What would you suggest for pain

> relief? I am currently on Methotrexate (25 mg),

> Prednisone, a prescription anti-inflammatory, and

> anything else that helps.

>

> Also is there anything I could ask my rheumo doctor to

> look into as far as the achilles tendons? Last time,

> he told me to use some ceyenne cream, but that didn't

> really work.

>

> What do you do when you have flares in your feet, but

> want to go do stuff? I know at the end day, and the

> next day I will pay for it, but at the same time I am

> 26 and want to keep up.

>

> Thanks for the help,

> Jessy

>

> ____________________________________________________

> Sports

> Rekindle the Rivalries. Sign up for Fantasy Football

> http://football.fantasysports.

June 27, 2005

Jessy:

I can't give you any info about the achilles tendons, but I can tell you

that I too experience severe pain when I flare in my joints. My doc has

given me permission to carefully adjust the amount of Prednisone I take

to help get me through a flare, and so far this has been very

successful. Right now, I am on 5mg a day (take it in the morning), but

when I start to flare, I will take a second one in the evening to help

control the inflammation.

Make sure to speak with your Rheumy as to find out what is best for

you. My life still consists of daily pain and periods of severe

inflammation that make it difficult to leave my bed. With the help of

increasing my Prednisone, I find that the flares are under control faster

and I am experiencing a better quality of life.

Take care,

> Hello,

>

> I haven't posted in a couple months, but am having a

> flare and was wondering if anyone had any suggestions.

> The rheumotiod arthritis is mainly in my feet, and

> then also effects my achilles tendons. They just kill

> me, esp in the evenings and nights. Does anyone else

> experience this? What would you suggest for pain

> relief? I am currently on Methotrexate (25 mg),

> Prednisone, a prescription anti-inflammatory, and

> anything else that helps.

>

> Also is there anything I could ask my rheumo doctor to

> look into as far as the achilles tendons? Last time,

> he told me to use some ceyenne cream, but that didn't

> really work.

>

> What do you do when you have flares in your feet, but

> want to go do stuff? I know at the end day, and the

> next day I will pay for it, but at the same time I am

> 26 and want to keep up.

>

> Thanks for the help,

> Jessy

>

> ____________________________________________________

> Sports

> Rekindle the Rivalries. Sign up for Fantasy Football

> http://football.fantasysports.

June 27, 2005

Hello, Jessy!

I can relate to what you are saying. I, too, was very young when I

started having symptoms of RA. I think it got really bad around 23-

24yo. I was Dx'd at age 27 and have just turned 30. Started out

being able to tell when it was going to rain. I now have pain that

runs from my knees to my ankles, so bad that it feels liek I am

standing on broken bone at times. I haven't started taking anything

other than Aleve so far.

I know it's hard to be so young and to have such pain in your body.

What anti-inflammatory are you on?

Jen

> > Hello,

> >

> > I haven't posted in a couple months, but am having a

> > flare and was wondering if anyone had any suggestions.

> > The rheumotiod arthritis is mainly in my feet, and

> > then also effects my achilles tendons. They just kill

> > me, esp in the evenings and nights. Does anyone else

> > experience this? What would you suggest for pain

> > relief? I am currently on Methotrexate (25 mg),

> > Prednisone, a prescription anti-inflammatory, and

> > anything else that helps.

> >

> > Also is there anything I could ask my rheumo doctor to

> > look into as far as the achilles tendons? Last time,

> > he told me to use some ceyenne cream, but that didn't

> > really work.

> >

> > What do you do when you have flares in your feet, but

> > want to go do stuff? I know at the end day, and the

> > next day I will pay for it, but at the same time I am

> > 26 and want to keep up.

> >

> > Thanks for the help,

> > Jessy

> >

> > ____________________________________________________

> > Sports

> > Rekindle the Rivalries. Sign up for Fantasy Football

> > http://football.fantasysports.

June 28, 2005

Jessy, I would tell your rheumatologist everything you told us here and see

if you can have another DMARD added to the MTX.

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Question

> Hello,

>

> I haven't posted in a couple months, but am having a

> flare and was wondering if anyone had any suggestions.

> The rheumotiod arthritis is mainly in my feet, and

> then also effects my achilles tendons. They just kill

> me, esp in the evenings and nights. Does anyone else

> experience this? What would you suggest for pain

> relief? I am currently on Methotrexate (25 mg),

> Prednisone, a prescription anti-inflammatory, and

> anything else that helps.

>

> Also is there anything I could ask my rheumo doctor to

> look into as far as the achilles tendons? Last time,

> he told me to use some ceyenne cream, but that didn't

> really work.

>

> What do you do when you have flares in your feet, but

> want to go do stuff? I know at the end day, and the

> next day I will pay for it, but at the same time I am

> 26 and want to keep up.

>

> Thanks for the help,

> Jessy

July 2, 2005

Debbie,

Hey Girl, you just can't get a break can you? You know me, I'm a real

supporter of repoing and how great repo results can be, but if you

are now going to add in trouble with positioning at night as she gets

older, I think you know my answer. Since we know she has been for

the most part doing well with the repo, we know that her head is

still very pliable, that's a good thing and a bad thing. Good because

it makes repo work well, good because it gets fast corection in a

band, but bad when they won't cooperate with sleeping position. You

know you need to keep the pressure on the bossing areas and if that

can't be maintained then it's one more problem on the repo road. Does

this make sense to you? Let me know if you have anymore questions.

CAROLG

> Hi all. Well, we have been very busy around here, so I haven't

been up

> on all the posts, but everyone is in my prayers. Question. We

have

> been doing repo. Brielle since she is rolling and moving so much

now

> sleeps on her belly. She favors the right cheek and lays on that

most

> of the night. Her flat spot is back left. I start her off on her

left

> cheek to get a good stretch for the tort, but after about an hour,

she

> switches to the right side. Will this flatten her face or

forehead.

> She still has some protrustion on the left side forehead, how can

we

> work on that when she won't cooperate. Do you think this is an

issue.

> We make our decision the end of July. I have been trying not be

> obsessed about it and some days she looks great and other days, I

think

> she looks bad. The saga never ends. If I want to band, I think my

> husband will be o.k. with it. I think the thing that is

frightening me

> the most is the casting. I have nightmares about it, really, isn't

> that sad. Oh well, could you give me some feedback, you all know

how

> to make me feel better. Debbie and Brielle (turning 6th mos on

the

> 6th tort and plagio) Robbinsville, NJ

July 17, 2005

Angie , This has been happening to me, as well. I stated brushing my

hair before I get in the shower. That helps to get all the loose ones

out and keep them out of the drain. At this point, I don't know who

sheds more, me or my cats!!! Mine has been coming out steadily, but I

don't have any bald patches or major thinning, so I haven't done

anything about it. Rogaine was suggested by my hairstylist. I didn't

want that, once you stop using it, everything that grew as a result of

the Rogaine will come out!! A dermatologist would be my next

suggestion. They could give you more answers as to what would help.

Sometimes it's just a supplement of some sort (Vit. B12, ect..).

Since I haven't noticed any actual thinning, I'm not doing anything

other than brushing before I shower, keeping it in a loose braid at

night when I go to bed, and buying the occasional Liquid plumber!!

I've been on MTX for 3 years now and it hasn't gotten any

worse...Marina

July 17, 2005

Hi Angie.

I am on MTX injections, and I've noticed that mine has been falling out

steadily since being switched over from the pills. My hair has thinned

considerably along my hairline at the top of my forehead, and it seems to

have thinned out less noticeable everywhere else. I always have it in a

ponytail when I am preparing meals because I find it is everywhere.....(on

my clothes, floor, etc.).

I am going to get my hair cut here in the next few weeks. Speak to your

hairdresser about different cuts that give the illusion of your hair being

fuller than it is. Also, you'd be amazed what a blowdryer and a round

brush can do for volume!

Take care,

--- In , " along302003 " <along3@c...>

wrote:

> I am having internet problems so I hope I can get this posted and read

> some responses before it decides to go off again. I have a question

> has anybody lost hair while on mtx and if so what did y ou do I took

> a shower this morning and my hair was falling out while I washed it.

> I know this is a side affect of mtx never had a problem before but my

> dosage was upped and I have taken three dosages so far and now

notice

> my hair coming out. Thanks for any info.

>

> Thanks

> Angie

July 18, 2005

Hi,

This is just a suggestion but my mom experienced hair loss that has been

mentioned. After test she had a thyroid that was not functioning properly.

Actually it runs

in the family both my daughter and I have it. But one of the signs of the

thyroid not working right was hair loss.

Just a suggestion you might want to ask about. Once they got her on synthroid

the hair loss stopped.

Lynn

ltlmisscrankypants wrote:

> Hi Angie.

>

> I am on MTX injections, and I've noticed that mine has been falling out

> steadily since being switched over from the pills. My hair has thinned

> considerably along my hairline at the top of my forehead, and it seems to

> have thinned out less noticeable everywhere else. I always have it in a

> ponytail when I am preparing meals because I find it is everywhere.....(on

> my clothes, floor, etc.).

>

> I am going to get my hair cut here in the next few weeks. Speak to your

> hairdresser about different cuts that give the illusion of your hair being

> fuller than it is. Also, you'd be amazed what a blowdryer and a round

> brush can do for volume!

>

> Take care,

>

> > I am having internet problems so I hope I can get this posted and read

> > some responses before it decides to go off again. I have a question

> > has anybody lost hair while on mtx and if so what did y ou do I took

> > a shower this morning and my hair was falling out while I washed it.

> > I know this is a side affect of mtx never had a problem before but my

> > dosage was upped and I have taken three dosages so far and now

> notice

> > my hair coming out. Thanks for any info.

> >

> > Thanks

> > Angie

>

July 30, 2005

Hi

I'm certainly not a doctor but your symptoms sound a lot like Pakinsons. Have

you ever mentioned this to your doctor? Tremors or trembling are a primary

feature as is muscle stiffness and difficulty walking. My good friends dad had

this and what you describe sounds similar. I hope your doctors can figure it

out for some peace of mind.

Take Care

Babs

July 30, 2005

Hi ,

I get some muscle weakness, too, and found out Thursday during my

initial visit with my new doctor that I also have weakness on my

right side. They are suspecting lupus right now, not RA, which was

my previous diagnosis.

There are three things that immediately come to mind from your

descriptions, and there are probably more possibilities. Have you

been tested for MS or parkinsons? The weakness and shaking sound

suspicious to me. The other thought was possible nerve/spinal cord

issues since you said you had some degeneration of the spine. I'd

discuss all three with your doctor.

Good luck. I know how frustrating feeling so bad and not knowing

why is.

> Hi all,

> I am still trying to figure out what is going on with me.

I've been

> following the list and some of what you all talk about. I hope my

doc

> can help figure all this out.

> I wanted to pass on the symptoms I have to see if they

relate to what

> you folks that have been diagnosed with RA go through.

> I have a lot of pain, mostly in the legs from about mid

thigh down,

> knees, ankles and feet. My muscles feel like they are stiff and

very

> inflexible quite often, and any exercise or use makes them feel

very

> exhausted, and they shake. The knees swell some, especially the

right

> one that they did surgery on a couple years ago (and made much

worse

> thank you). I also get a lot of soreness in my hands and wrists

and

> notice stiffness in the forearm muscles too. My hands shake a

lot,

> especially if i've exercised at all. I've noticed difficulty with

> handwriting lately, and fine motor skills at my job. My hands

just

> shake. I've also noticed my jaw shakes when I'm trying to drink

from a

> mug. I haven't heard much talk about muscle weakness on the list

so

> I'm wondering if other people have this kind of thing too.

> I also have a lot of fatigue, and often feel completely

unable to do a

> thing. I have absolutely no energy. It takes several hours once

I

> wake up to get moving. I am stiff a bit, but mostly just

profoundly

> tired. Its horrendous. Its like it takes an act of congress to

get me

> moving.

> I have a lot of degeneration in my back, neck, knees which

they have

> always just told me is 'arthritis'. Seems things have gotten much

much

> worse in last year, and more recently to the point that I honestly

> think my days at my job are numbered. I think I've said this

before.

> Anyway, does this sound like what you folks go through? or

something

> else? Thanks.

>

July 31, 2005

,

Have you had your thyroid checked? Read this excerpt:

Due to the similarity of its symptoms to other conditions, many thyroid

disorders are undiagnosed or misdiagnosed. Hypothyroidism (where the

thyroid reduces thyroid hormone production) involves the slowdown of

the whole metabolism and is the most common form of thyroid disorder.

Symptoms include increased weight, fatigue, depression, intolerance to

cold, constipation, joint pain, muscle pain, brittle fingernails,

brittle hair, pale skin, facial swelling, ankle swelling, foot

swelling, leg swelling, muscle pain, muscle spasms, muscle atrophy,

joint stiffness, drowsiness and missed menstruation (not a problem for

you).

http://www.wrongdiagnosis.com/news/

thyroid_disorder_underdiagnosed_and_misdiagnosed.htm

Babs' suggestion of Parkinson's is also something to be considered:

The four primary symptoms of Parkinson's are tremor or trembling in

hands, arms, legs, jaw, and face; rigidity or stiffness of the limbs

and trunk; bradykinesia, or slowness of movement; and postural

instability or impaired balance and coordination. Patients may also

have difficulty walking, talking, or completing other simple tasks.

a

On Jul 30, 2005, at 2:39 AM, wrote:

> Hi all,

> Â Â Â Â Â I am still trying to figure out what is going on with me.Â I've

> been

> following the list and some of what you all talk about.Â I hope my doc

> can help figure all this out.

> Â Â Â Â Â I wanted to pass on the symptoms I have to see if they relate

> to what

> you folks that have been diagnosed with RA go through.

> Â Â Â Â Â I have a lot of pain, mostly in the legs from about mid thigh

> down,

> knees, ankles and feet.Â My muscles feel like they are stiff and very

> inflexible quite often, and any exercise or use makes them feel very

> exhausted, and they shake.Â The knees swell some, especially the right

> one that they did surgery on a couple years ago (and made much worse

> thank you).Â I also get a lot of soreness in my hands and wrists and

> notice stiffness in the forearm muscles too.Â My hands shake a lot,

> especially if i've exercised at all.Â I've noticed difficulty with

> handwriting lately, and fine motor skills at my job.Â My hands just

> shake.Â I've also noticed my jaw shakes when I'm trying to drink from

> a

> mug.Â I haven't heard much talk about muscle weakness on the list so

> I'm wondering if other people have this kind of thing too.

> Â Â Â Â Â I also have a lot of fatigue, and often feel completely unable

> to do a

> thing.Â I have absolutely no energy.Â It takes several hours once I

> wake up to get moving.Â I am stiff a bit, but mostly just profoundly

> tired.Â Its horrendous.Â Its like it takes an act of congress to get

> me

> moving.

> Â Â Â Â Â I have a lot of degeneration in my back, neck, knees which they

> have

> always just told me is 'arthritis'.Â Seems things have gotten much

> much

> worse in last year, and more recently to the point that I honestly

> think my days at my job are numbered.Â I think I've said this before.

> Â Â Â Â Â Anyway, does this sound like what you folks go through?Â or

> something

> else?Â Thanks.

>

July 31, 2005

a,

I have had my thyroid checked. I have been hypothyroid for years,

and am stable on medication with it. The doc does not think it is

involved. Thanks for the thought though.

July 31, 2005

,

See if a B-vitamin supplement helps.

Sierra

> Hi all,

> I am still trying to figure out what is going on with me.

I've been

> following the list and some of what you all talk about. I hope my

doc

> can help figure all this out.

> I wanted to pass on the symptoms I have to see if they relate

to what

> you folks that have been diagnosed with RA go through.

> I have a lot of pain, mostly in the legs from about mid thigh

down,

> knees, ankles and feet. My muscles feel like they are stiff and

very

> inflexible quite often, and any exercise or use makes them feel

very

> exhausted, and they shake. The knees swell some, especially the

right

> one that they did surgery on a couple years ago (and made much

worse

> thank you). I also get a lot of soreness in my hands and wrists

and

> notice stiffness in the forearm muscles too. My hands shake a lot,

> especially if i've exercised at all. I've noticed difficulty with

> handwriting lately, and fine motor skills at my job. My hands just

> shake. I've also noticed my jaw shakes when I'm trying to drink

from a

> mug. I haven't heard much talk about muscle weakness on the list

so

> I'm wondering if other people have this kind of thing too.

> I also have a lot of fatigue, and often feel completely

unable to do a

> thing. I have absolutely no energy. It takes several hours once I

> wake up to get moving. I am stiff a bit, but mostly just

profoundly

> tired. Its horrendous. Its like it takes an act of congress to

get me

> moving.

> I have a lot of degeneration in my back, neck, knees which

they have

> always just told me is 'arthritis'. Seems things have gotten much

much

> worse in last year, and more recently to the point that I honestly

> think my days at my job are numbered. I think I've said this

before.

> Anyway, does this sound like what you folks go through? or

something

> else? Thanks.

>

August 17, 2005

Has anyone had or heard of your big toe hurting like a really bad

cramp w/o an actual cramp and/or it switching to your like archilles

tendon? I'm having a heck of a time with it. My toe is a lot better

but, the tendon or that area anyhow is crappy! I've had the problem

with my toe b4 but never with the back of my ankle. Just

wondering....Kim

August 17, 2005

Sometimes my toe joint(s) get so swollen during a flare up it can cause my toe

joints or ankles to hurt and feel like they are jammed. Just my experience.

Cortnee

ksamedifference <ksamedifference@...> wrote: Has anyone had or heard of

your big toe hurting like a really bad

cramp w/o an actual cramp and/or it switching to your like archilles

tendon? I'm having a heck of a time with it. My toe is a lot better

but, the tendon or that area anyhow is crappy! I've had the problem

with my toe b4 but never with the back of my ankle. Just

wondering....Kim

September 11, 2005

Hi Sue,

There is no guarantee that any particular flush will be successful in

removing any or all of the detritus in either your liver or gallbladder. Many

people perform 10 or more flushes before success. I know I am going to stir up

great debate, but the jury is still out on what those soft green " stones " really

are. Suffice to say that the flushes ability to stimulate both the flow of bile

from the liver and emittion from the gallbladder is very detoxifying at the

least. Pain in the liver/gallbladder region may happen from a number of

reasons, gallstones or sludge being just one of them. The program is

essentially the same no matter what: cease harm, protect, lubricate, detox,

rebuild, support; not necessarily in that order. Thank God the liver is as

regenerative as it is. Keep up the faith and hard work. Always, in all ways,

-Dave

----- Original Message -----

From: Sue<mailto:suemy4@...>

gallstones <mailto:gallstones >

Sent: Thursday, September 08, 2005 5:24 PM

Subject: question

Hello.

I have been having occasional sharp pains on my right side, about 3

to

4 inches below my rib cage. It seems to be after eating, later

though, not right away. I did a liver flush about 2 months ago, and

then I did one last night. I passed maybe 50 small stones total.

But

I am still having the occasional pain. I thought the cleanse would

have gotten rid of the pain. Is that pain from the gallbladder or

the

liver? Any suggestions?

Thanks,

Sue

Learn more from our experience, over 7.000 liver flush stories:

http://curezone.com/forums/fd50.asp?f=4<http://curezone.com/forums/fd50asp?f=4>

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September 11, 2005

Sue the pain your having could be from your small intestine some foods will

irritate the small intestine hours later when it reaches the intestine. I have

this problem and I take a digestive enzyme that helps break down the food. Alls

ask your doctor be for trying any thing.

----- Original Message -----

From: Dave Shelden<mailto:wholehealthawareness@...>

gallstones <mailto:gallstones >

Sent: Sunday, September 11, 2005 2:52 PM

Subject: Re: question